Self diagnosed people here don't have aspergers
Ok, lets put it this way.... Lets say a large group of white people start acting black and dying their skin, and altering their hair, and pretending to be black. But these people can take the complexion out of their skin and set their hair back to normal and go back to white facial features whenever they want to. But then they voice their opinions about related matters in places that will affect the way black people live, and hijack the voice of their entire race. And then lets say they either trivialise or attempt to justify slavery. How do you think blacks people would feel? I'd bet you they'd be highly pissed off.
You can do this with any group of people, I used them as an example because people often fear crossing their line because of social backlash. But this stuff really isn't any different.
let me tell you, doctors know only what they read. patients, (such as you or I) live it, and know. After 17 years of diabetes, i think it is safe to say that i know more about diabetes than a doctor. After 24 years of living with Asperger's, i think its safe to say i know more about it than a doctor does, also.
nobodyzdream
Veteran
Joined: 23 Apr 2007
Age: 44
Gender: Female
Posts: 1,267
Location: St. Charles, MO-USA
I still think it is odd... the big if... before you were diagnosed were you an NT? I'd think it's safe to assume once someone is diagnosed it means they always were an aspie, so maybe instead of referring to undiagnosed as NT types, it's more like "the unknown"-I know I'd prefer having a label like that than being completely excluded from the idea until diagnosis...
To refer to someone as a non-aspie even, if they can fully relate to something with the criteria and all, they surely know better than anyone else here, and it doesn't necessarily exclude them, but it does kind of drive them away...
Going to the white guy thing-what if the guy does have a lot of native american background and look back, he winds up in a small settlement type thing (on a quest for knowledge about his background and to share some fun stories and learn some things) and they wind up making him leave by insisting that he knows nothing of native americans because his skin is white...
I never said ALL undiagnosed people are NT, some are aspie. But a good portion, like around 2/3, are pretenders, or textbook syndrome sufferers. A diagnosis doesn't mean someone is or isn't Aspergian, and there are aspies who never find out about autism and go their whole lives in the dark. But there are far more non-aspies turning it into an alternative fashion trend.
nobodyzdream
Veteran
Joined: 23 Apr 2007
Age: 44
Gender: Female
Posts: 1,267
Location: St. Charles, MO-USA
I've also noticed from my other forum and such though, that it's not just an Aspie thing, but on my BPD one there are a lot of people like that as well. It seems for some reason, these days there are a lot of people looking for answers to things-I don't know if it's so much of a trend really, I hadn't even heard of it for a really long time (asperger's I mean). I think people are probably intrigued and interested. I do admit though, with on-line testing and such it does make it rough. A lot of people will assume that they are simply because one of those tests said they were, but don't make the effort to see where they actually fit into the criteria... and that's for anything anymore, or they think it's like, contagious, literally. But they could very well be convinced they are if they don't have the knowledge, so they feel they are very much the same... so from that route it doesn't do a ton of good either because response will still be negative if it is questioned because you're questioning what they believe is true, no matter where they wind up, until they get a label.
Don't get me wrong-I'm looking forward to an assessment and everything VERY much so. But not to belong with a group, I want it for me. I need to know what direction to go with my learning about it. My big thing is wanting to know why right now, and have a reason for it that I can find if I want to research it myself. This up in the air thing is driving me crazy. lol, I NEED that option to find information, I NEED that to "get my homework done" I guess you could say. But it's only for me. Not that I can't do it myself. But what if I threw myself into something without having that "official" tag on it? I could be learning all about something that doesn't fit me. I seriously doubt that it's the case, but there is always that lingering possibility until then.
I won't know what direction to go in until I see it for CERTAIN, even though I've pretty much self-diagnosed. It's kind of like getting a map for me-I need a map for everything that I do or I will get so lost in thought and ideas and junk that I will miss my turn off and wind up in another state from where I am supposed to be. In other words, I really want to throw myself into looking stuff up (and am looking stuff up, in moderation) as to not throw myself off completely off course. Mainly just to be cautious.
I know logically since I'm relying on another human being for my roadmap (diagnosis) that it's possible that he could be wrong, or something can happen. So I want to stay cautious until I get the go ahead to continue on, because I'd really hate to mess up on something this important-especially since I have a family, lol. I just know I get way too obsessed with it once I start, and I don't want to be throwing myself head on into something if I don't know it to be certain.
Last edited by nobodyzdream on 03 May 2007, 9:53 pm, edited 6 times in total.
I'll tell you this.
One of the first thoughts that crossed my mind when I came on here was the amount of undiagnosed and not-so-sure-Im-an -Aspie people that were on here.
It made me confused,and wondering if perhaps it might be something imagined among some people who want to feel that they"belong" somwhere,call it a "category" of people,syndrome or whatever.
I never had any doubts myself though...,mainly based on the fact that I was 100% percent sure already before taking any Online Aspie quiz's.
I just didnt know it was an Aspie thing until I started to read more about it.
There is just too much of it there to just be coincidences and believe me,Id love it if someone just walked up to me and said" oh you can think yourself out of it" and it actually worked.
My roomie is that type of person and just being around him everyday reminds me that something is different.
Just in the pst coupke of hrs we were heavily discussing the following.
1.I tell him repeated times to answer my question,which to me is crystal clear and no matter how many times he answers the question I dont get it because its not a yes or no answer ,but for him it was natural to say it in 10 other ways instead of just giving me the flippin straight answer.Result of that:I feel stupid for not understanding and wondering how I ,who am otherwise of above average intelligence to not understand such simple things as answers to my questions.
2.Complaining about the sounds the shoppingcart wheels and the sound they make when I pull it across the floor at the supermarket,until the point I actually ask him to pull it because I cant move another inch cause its hurting my ears so bad,and then having him say that it always sounds like that and I never reacted before and then me having to explain to him,that NO,they always do make a sound,all sorts of sounds but this is higher pitch and it really HURTS.
and these are just 2 examples of what we went through today.
Im not even going to go through what we have talked about the rest of the week,
or go into how I only got good grades in english( surprise surprise) and art in high school while I failed all my other classes.
or why I get so obsessed with certain things I forget to eat...and pee sometimes...and have to force myself to go to bed so that I dont pass out cause Im so tired.
or why every second person I start talking to,within a few seconds looks at my teeth and starts wondering whats wrong with them and why they're so bad.
or why at 18 I thought there was something wrong with all my boyfriends because as soon as they touched me I felt sick to my stomach and thought it was because I wasnt enough in love with them,
or how I cant explain why I had all sorts of tics as a child,OCD during my teenage years,panicattacks in my early 20's and go into crisis evrytime a major change occurs in my life.( right now having to go into surgery to remove a non-dangerous dermoid cyst in my ovaries and having refused the surgery once already because finding out that I had it threw me into some sort of trauma to the point I still cant get it into my head that it will be alright cause Im afraid of all the little things that could go wrong,even though its been 2 months)
or why my thinking is so black and white,or why I threw fits as a child,or why cant control myself when talking and tend to talk about myself so much a conversation with me can seem quite onesided( yeah I get this alot, and I try but still tend to do it) opr being accused of not listening,mostly because I simply drift away after awhile due to,frankly,no interest whatsoever in what the other person is saying because my annoying selfish mind seems to think its so much more fun to talk about me( Im doing it right now to, know).
or why I can stay in a store at the mall for a total of 5 minutes before feeling nausea and getting dizzy because I think the lights are too bright.
or how I feel dishonesty because I find it hard to look into peoples eyes and prefer small groups of people.
why I all my life I havent had any problems in talking to new people and trying to make friends,but for some reason none of them calls me back...not even once every now and then.
Why I totally panic when the most stupid thing of mine is thrown away or when I go visit my parents and my mom decides to unpack and organize things for me,I totally flip out.
Actually I have to stop myself now,or I would go on for another hour or so.
Maybe it doesnt fit into being an Aspie,but I know that I have some in common with alot of people here....and Im sure that behind every undiagnosed person in here,there is a story.
Like I said,what I wrote about above is about 10 percent of what I think and deal with on an everyday basis,either because its happening now or because it has happened in the past and Im trying to figure things out.
I just really think we all came here for a reason and I dont think that undiagnosed people are any kind of threat to anyone wanting to have their voice heard( Aspies) and such.
Im not sure I even wanna scroll up to see how long this post just got*putting foot in mouth*
:-/ hm
I'll tell you this.
One of the first thoughts that crossed my mind when I came on here was the amount of undiagnosed and not-so-sure-Im-an -Aspie people that were on here.
It made me confused,and wondering if perhaps it might be something imagined among some people who want to feel that they"belong" somwhere,call it a "category" of people,syndrome or whatever.
I never had any doubts myself though...,mainly based on the fact that I was 100% percent sure already before taking any Online Aspie quiz's.
I just didnt know it was an Aspie thing until I started to read more about it.
There is just too much of it there to just be coincidences and believe me,Id love it if someone just walked up to me and said" oh you can think yourself out of it" and it actually worked.
My roomie is that type of person and just being around him everyday reminds me that something is different.
Just in the pst coupke of hrs we were heavily discussing the following.
1.I tell him repeated times to answer my question,which to me is crystal clear and no matter how many times he answers the question I dont get it because its not a yes or no answer ,but for him it was natural to say it in 10 other ways instead of just giving me the flippin straight answer.Result of that:I feel stupid for not understanding and wondering how I ,who am otherwise of above average intelligence to not understand such simple things as answers to my questions.
2.Complaining about the sounds the shoppingcart wheels and the sound they make when I pull it across the floor at the supermarket,until the point I actually ask him to pull it because I cant move another inch cause its hurting my ears so bad,and then having him say that it always sounds like that and I never reacted before and then me having to explain to him,that NO,they always do make a sound,all sorts of sounds but this is higher pitch and it really HURTS.
and these are just 2 examples of what we went through today.
Im not even going to go through what we have talked about the rest of the week,
or go into how I only got good grades in english( surprise surprise) and art in high school while I failed all my other classes.
or why I get so obsessed with certain things I forget to eat...and pee sometimes...and have to force myself to go to bed so that I dont pass out cause Im so tired.
or why every second person I start talking to,within a few seconds looks at my teeth and starts wondering whats wrong with them and why they're so bad.
or why at 18 I thought there was something wrong with all my boyfriends because as soon as they touched me I felt sick to my stomach and thought it was because I wasnt enough in love with them,
or how I cant explain why I had all sorts of tics as a child,OCD during my teenage years,panicattacks in my early 20's and go into crisis evrytime a major change occurs in my life.( right now having to go into surgery to remove a non-dangerous dermoid cyst in my ovaries and having refused the surgery once already because finding out that I had it threw me into some sort of trauma to the point I still cant get it into my head that it will be alright cause Im afraid of all the little things that could go wrong,even though its been 2 months)
or why my thinking is so black and white,or why I threw fits as a child,or why cant control myself when talking and tend to talk about myself so much a conversation with me can seem quite onesided( yeah I get this alot, and I try but still tend to do it) opr being accused of not listening,mostly because I simply drift away after awhile due to,frankly,no interest whatsoever in what the other person is saying because my annoying selfish mind seems to think its so much more fun to talk about me( Im doing it right now to, know).
or why I can stay in a store at the mall for a total of 5 minutes before feeling nausea and getting dizzy because I think the lights are too bright.
or how I feel dishonesty because I find it hard to look into peoples eyes and prefer small groups of people.
why I all my life I havent had any problems in talking to new people and trying to make friends,but for some reason none of them calls me back...not even once every now and then.
Why I totally panic when the most stupid thing of mine is thrown away or when I go visit my parents and my mom decides to unpack and organize things for me,I totally flip out.
Actually I have to stop myself now,or I would go on for another hour or so.
Maybe it doesnt fit into being an Aspie,but I know that I have some in common with alot of people here....and Im sure that behind every undiagnosed person in here,there is a story.
Like I said,what I wrote about above is about 10 percent of what I think and deal with on an everyday basis,either because its happening now or because it has happened in the past and Im trying to figure things out.
I just really think we all came here for a reason and I dont think that undiagnosed people are any kind of threat to anyone wanting to have their voice heard( Aspies) and such.
Im not sure I even wanna scroll up to see how long this post just got*putting foot in mouth*
:-/ hm
Sedaka
Veteran
Joined: 16 Jul 2006
Age: 43
Gender: Female
Posts: 4,597
Location: In the recesses of my mind
You can do this with any group of people, I used them as an example because people often fear crossing their line because of social backlash. But this stuff really isn't any different.
but the point is... who are you to judge?
certainly not a doctor. even if you were, you wouldn't even be able to DX over the internet.
_________________
Neuroscience PhD student
got free science papers?
www.pubmed.gov
www.sciencedirect.com
http://highwire.stanford.edu/lists/freeart.dtl
Sedaka
Veteran
Joined: 16 Jul 2006
Age: 43
Gender: Female
Posts: 4,597
Location: In the recesses of my mind
I assure you it was quite different. During the witch trial people were advocating killing people based purely on suspicion of being part of a group that the majority was prejudiced against.
I'm merely trying to say that only aspies should speak from a 1st-hand experience for aspies. I'm certain most other cultures and communities around the world wouldn't sit too well with outsiders trying to represent them.
ive heard some "interesting" asprgian ideas come outta your mouth... ...
you've toned down recently....
_________________
Neuroscience PhD student
got free science papers?
www.pubmed.gov
www.sciencedirect.com
http://highwire.stanford.edu/lists/freeart.dtl
nobodyzdream
Veteran
Joined: 23 Apr 2007
Age: 44
Gender: Female
Posts: 1,267
Location: St. Charles, MO-USA
nobodyzdream
Veteran
Joined: 23 Apr 2007
Age: 44
Gender: Female
Posts: 1,267
Location: St. Charles, MO-USA
yeah, I get frustrated because I know things that should be easy to say are not for me, I think of a million things along the way to the answer and get sidetracked easily lol, it really drives me nuts 'cuz I hate to read long posts and mine are probably double what I consider a "long" post usually... my problem just seems to be figuring out where to stop once I get going
You can do this with any group of people, I used them as an example because people often fear crossing their line because of social backlash. But this stuff really isn't any different.
but the point is... who are you to judge?
certainly not a doctor. even if you were, you wouldn't even be able to DX over the internet.
There have been times in the far back past when I've trolled against NTs out of blind anger for the pains their society has caused me, and I will admit that. It's just one of those things where people spout out of anger, it doesn't mean that I really meant that. But that s**t was like over 2 or 3 yrs ago.
Aside from that, then what? I've stated that we might be the next stage in evolution, but I didn't express this view out of prejudice. I expressed it for logical reasons. If it turned up to be true then people would be dumb not to even look at the facts because of fear of offending someone. Political correctness is over-rated and just plain stupid.
Maybe this is OT but I used to drive people crazy with that actually,cause Id start talking about something,lets say a day when I was wearing a red jacket,and if I by chance happened to mention the red jacket,then swooooshh,Im off talking about how I bought it in a different town when I was there with my parents cause mom had a bad day and...swoooosh Im then talking about mom having a bad day cause people at her work are mean to her because she's female and works with men...and swoooshh,now Im off to talking about differences between men and women at workplaces.
and then I forget what I started talking about and people would think I was on something*LOL*
Actually in a certain document about me,its called" cant keep a red thread throughout conversation"
Im getting better at it though*LOL*
Similar Topics | |
---|---|
Newly Diagnosed |
07 Oct 2024, 5:46 pm |
Do you think getting diagnosed matters? |
20 Dec 2024, 3:29 pm |
Hi, new here!!! Newly Diagnosed!! |
13 Oct 2024, 7:41 pm |
Those Diagnosed Later In Life. And The Need To Be Optomistic |
27 Nov 2024, 12:35 pm |