The Pro-Cure Thread
im pro cure. a.s makes my life so miserable and painful.
i apreciate many other people can live with their a.s- but that frankly sounds like a different condition.
i cant work, cant have realtionships, cant manage money, cant pay bills, cant sleep for being woken up by each tiny sound or vibration (adverage of 5 hours, broken sleep a night), get distracted by things, cant think striaght anyway- what life do i have with this??
i spent my entire time at school getitng bullied by teachers and pupils for being weird, adult life is not much better.
what benifits does it confer for me? none- i just cry and get confused all the time.
briliant if you can work, get married, have children.
i cant, and i find the concept of being told to 'accept' myself or my life or condition laughable. this doesnt mean i tihnk EVERYONE should be 'cured'- id just really like to, as i have no moeny for food, as i hvae spent it all again, as well as loosing some; i am just a mess.
each person has a different experiance of a.s- and there are clearly people who can live with it, and those- like me- who cant.
DentArthurDent
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@ kingdomofrats. I do expect my CLOSE friends to have an understanding, but I take it upon myself to educate them. As for people involved in ASD work they must have an understanding, much like HI and VI.
good on you for taking time to understand other disorders.
I have no problem with the ASD community pushing for greater awareness, in fact I fully support this. My argument is with the very vocal minority who expect the non asd community to learn all about us, make allowances for all our behaviors and go around belittling and insulting the very people they want support from.
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You can educate NTs about this stuff till your butt turns blue but they will still be clueless about it.
This attitude makes me laugh, why should people not involved in ASD take time to understand it. I wonder how many here that believe 'NT's' should learn all about our peculiar difficulties have ever bothered to investigate the needs of other disabilities/disorders. How many of you can sign, or take blind people into consideration when arranging an office or placing things on a footpath.
Why should 'NT's' take time to help a bunch of self obsessed people who get around spruiking about how Superior they are. The delusion of 'aspie superiority' is I believe yet another symptom of the syndrome.
I for one applaud all those 'evil, shallow, NT's' who make it their lifes work to help ameliorate the effects of ASD and search for the cause and maybe even a cure. I despise those amongst us that have open hostility toward such people
Believe me, though I expect people to understand my ASD, I am not one of those self absorbed ones. I would take the time to understand anyone whether they had a disorder or not. Even people without a disorder can find it hard to unlearn their less positive traits/behaviour patterns and not f**k up.
As for blind or deaf people, of course I would accommodate their needs. They are way, way worse off than me.
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DentArthurDent
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Believe me, though I expect people to understand my ASD
By saying this do you mean those you are in close contact with or the majority of the 'nt' population. Those close to me have learnt a lot from me, personally I do not expect them to go off and do research. This is not what I am against. I get really pissed by those with an ASD who believe it is their right to have the general population look into and understand their disorder.
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"I'd take the awe of understanding over the awe of ignorance anyday"
Douglas Adams
"Religion is the impotence of the human mind to deal with occurrences it cannot understand" Karl Marx
Believe me, though I expect people to understand my ASD
By saying this do you mean those you are in close contact with or the majority of the 'nt' population. Those close to me have learnt a lot from me, personally I do not expect them to go off and do research. This is not what I am against. I get really pissed by those with an ASD who believe it is their right to have the general population look into and understand their disorder.
I'm impressed that you were able to influence people with your AS but that will not always be the case for everyone. NTs make up the majority of the world. Therefore everyone is ignorant to anything that isn't NT. If you are an aspie they dont give a s**t. They expect you to live by the rules of the NT world. One of these rules is a cruel one "their jokes are funny, yours aren't". It's okay for NTs to insult people but not Aspies apparently. If an NT jokes, it's all in good fun. Have an Aspie tell the same joke and it's considered mean.
This kind of thing is why I think NT people need a wake up call about the fact that not everyone communicates like they do.
But I know that's more impossible than a pig flying...which is why a cure is the only means for ending my misery at least.
Believe me, though I expect people to understand my ASD
By saying this do you mean those you are in close contact with or the majority of the 'nt' population. Those close to me have learnt a lot from me, personally I do not expect them to go off and do research. This is not what I am against. I get really pissed by those with an ASD who believe it is their right to have the general population look into and understand their disorder.
I mean those close in contact with me. By understand, I do not mean they should take it upon themselves to go look things up and find out information about ASD so they can understand why I seem weird or hard to understand/connect with. I mean that if I explain that I find something hard or confusing they understand and don't think it's because I don't care or I'm just slow.
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Lay your hands on me, one last time' (Breaking Benjamin)
DentArthurDent
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Believe me, though I expect people to understand my ASD
By saying this do you mean those you are in close contact with or the majority of the 'nt' population. Those close to me have learnt a lot from me, personally I do not expect them to go off and do research. This is not what I am against. I get really pissed by those with an ASD who believe it is their right to have the general population look into and understand their disorder.
I mean those close in contact with me. By understand, I do not mean they should take it upon themselves to go look things up and find out information about ASD so they can understand why I seem weird or hard to understand/connect with. I mean that if I explain that I find something hard or confusing they understand and don't think it's because I don't care or I'm just slow.
And this is fair and reasonable, I think we are on the same wavelength
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"I'd take the awe of understanding over the awe of ignorance anyday"
Douglas Adams
"Religion is the impotence of the human mind to deal with occurrences it cannot understand" Karl Marx
Wait wait. Cure does not equal treatment. Treatment can be social skills lessons or anti-anxiety medication or sensory integration therapy. Treatment--at least the good sort--is meant to help you learn things to become more functional. Cure-oriented treatment is meant to yank your brain forcibly in the NT direction, assuming that becoming NT is your first priority. There is a big difference between wanting to learn to cope better and wanting your brain re-configured.
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ColdBlooded
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Uhhh... Maybe i'm not understanding this correctly(but i think i am).....But, isn't the entire idea of a "cure" completely unrealistic? I mean, after a person has already developed, anyway. Your entire neurological functioning can't just be switched from "different" to "normal". It all builds on itself, so wouldn't you really have to completely rebuild the person's brain to change something like autism? Before someone's born, maybe docs could learn how to modify whatever unusual genes might cause it... but to think you could just inject a person with something or whatever, then they're like "okay, i'm gonna be normal now," doesn't seem like it could work in any way... Because that difference is something that has influenced your whole mental development, it's not just a single thing that can be turned on and off. It's not like making a medicine to fight off a virus, it would have to be something that actually messed around with your own basic genetic information. And, in the unlikely case that it's not at all related to genetics and it's some wacky thing like vaccines causing it( ), it would still have to completely alter the person's existing neurological structure to "cure" their autism.
Treatments, on the other hand, i can understand. Perhaps they could come up with something that helps the areas of the brain that are responsible for social functioning to run in a smoother manner, or something similar. Y'know, like how antidepressants treat things by inhibiting the re-uptake of serotonin, which results in a better emotional state. But, if they did that, that's definitely not something you'd call a "cure for autism"... Just a possible treatment that could help out a bit with some of the "symptoms" that are giving a person problems.
So, yeah... Short of some magical Harry Potter stuff happening here, i don't really understand how this notion of a "cure" even makes sense...
To me the cure if there will ever be a cure is something that won't happen in the next 10-20 years. Your life in that time will still go by. Do not just give into misery. Enjoy yourself.
I used to lock myself in my room, dread social contact, especially going to the big city. Ah, but now I see every gig I attend as just another adventure, with many happy memories.
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You can educate NTs about this stuff till your butt turns blue but they will still be clueless about it.
This attitude makes me laugh, why should people not involved in ASD take time to understand it. I wonder how many here that believe 'NT's' should learn all about our peculiar difficulties have ever bothered to investigate the needs of other disabilities/disorders. How many of you can sign, or take blind people into consideration when arranging an office or placing things on a footpath.
Why should 'NT's' take time to help a bunch of self obsessed people who get around spruiking about how Superior they are. The delusion of 'aspie superiority' is I believe yet another symptom of the syndrome.
By that reasoning, why should anyone, any disability, be accommodated at all?
I see your point. But blind people do not expect the rest of us to wear black goggles and the deaf ear plugs. What I am getting at are the vocal minority who believe the rest of society should all learn and understand and accommodate for our particular problems. It is hard enough for the so called experts to DX us accurately how the heck do you expect the rest of society to spot us and make the necessary adjustments. Personally i believe it is up to us to try and fit in, this also includes educating those around us about our particular issues. Walking around with an air of superioprity because we have a high IQ is perversely quite stupid
I am so greatful to DentArthurDent for picking up the position of sanity. Sane people are sooo rare at this part of the WP.
As for the disabilities are concerned.. well, 1stly - aspie here are most loud that they do not have any disabilities, but that they are "unique".2ndly - I know a guy with only one leg. and I am perfectly aware of his dificulties, there is no need to educate me on one-leggedness..
But still, I am not going to invite him over for a run or a week end out of town. See my point, no? oh... gosh, ok:
What good does it make for you if other people know you have some "uniquness"? All they get out of it is - you are boring to be with, and they are not interested to have you around. So, go ahead, educate them! have fun.