This video is just disgraceful to the autistic community.

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miss-understood
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23 Dec 2011, 7:06 am

In Australia now the correct terms are people first, disabilities second. A child with autism, people with disabilities etc... I like it. Even though my eldest child is severely affected by autism, he has always been much more than that.

Gotta say, you guys sure can debate!! ! It has been many years since I studied anything, you are all giving my brain a workout.



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23 Dec 2011, 7:21 am

Tamsin wrote:
Sansomrocks1027 wrote:
As some of you may have already seen this, I feel the need to speak out about it. Others may feel differently about it, and I completely understand that, and your opinions. I am not afraid to speak my mind, about anything for that matter. But this did it for me. I understand that some mothers with children who have autism, and children who are on the spectrum may feel this way, and I DO understand the hardships you have to endure, but this is completely UNACCEPTABLE. What kind of mother says such harsh and hurtful things like this about their own CHILDREN!? knowing damn well that because of their rank on the spectrum, they probably can't interpret/filter others feelings/emotions, so that just automatically gives you the right to speak like this?
What kind of mother thinks about driving over a bridge with their disabled child, and has NO guilt about it, or even can say such a horrendous thing so bluntly as she did!? What kind of mother can say such brutal and hateful things, such as dealing with financial issues, all because they have a child with special needs, who NEEDS that extra help, Or thinks of the worst things that can possibly happen for their child's future, like not getting married, or having children and a family of their own? It's just so funny because they are only optimistic for a few seconds, but then out of the woodwork they hope for an immaculate recovery for their children. Deep down in the black pits they call their hearts, they wish that they've never planted the seeds of life. You know, the seeds that just so happen to have been an AUTISTIC CHILD. At least that's what Autism Speaks is trying to make it look like.
Oh God, I wish my mother would say this kind of sh** to me to my face, because you know what? I CAN feel emotions, and I CAN feel other's pain and suffering. But this, this is just sad, sad BS! I do not pity any of these ungrateful women, because they don't deserve to be felt sorry for.

I completely understand that these women have it rough, big time no doubt, and that they were only trying to shed light on a dark subject, but it just wasn't done in the proper way.

As is the case with most Autism Speaks propaganda.


[youtube]http://www.youtube.com/watch?v=FDMMwG7RrFQ&feature=share[/youtube]



I saw that video a few years ago and it made me so angry that I never watched it again. And I don't plan to either.


Those are my exact sentiments.


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23 Dec 2011, 7:25 am

dianthus wrote:
aghogday wrote:
I can't speak for anyone else, but at least when the mother talked about driving off the bridge, the child was across the room looking out the window.

In my opinion, regardless if she could understand any language spoken, she was not paying attention to what was being said, instead paying attention to whatever it was about the window that she was interested in.


Yes the child was looking out the window. Does that automatically mean the child was not listening or paying attention to what was said? This kind of assumption has been made about me my entire life. Many times as a child other people said things in my presence that they thought I didn't understand, or didn't hear because I was busy doing something else. But I heard those words very clearly, I understood just fine and sometimes the things I heard were very upsetting. Those statements reverberated in my mind even years later. But no one had any idea because I did not have any outward reaction to what was said.

Quote:
The assumption made in the video is one that the children, are not communicating with those around them, and are not paying attention to people, so if one understands and agrees with that assumption, it's understood there is no potential of harm to the children.


I think this is a dangerous assumption to make regarding any child, and especially regarding an autistic child.

btbnnyr wrote:
I also don't know why most of this thread is about the feelings of the parents with little mention of the feelings of the children, or even the specific child listening to her mother talk about driving them both off a bridge.


People are talking about the feelings of the parents because that is what the video is intended to get people focused on.


Parents or monsters?


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23 Dec 2011, 9:04 am

The_Perfect_Storm wrote:
Sansomrocks1027 wrote:
@ The perfect storm:
But that's just how life is. You take what God has given you, and you run with it. I understand that these monsters may feel hopeless for their children, but that doesn't change being a PARENT.


I don't think you really appreciate the toll autism can take on the parents.

I Can understand how those mothers feel apart from the one saying she wanted to drive off a bridge with her daughter, thats just crazy.
My mum has given up her life for me she has never had any relationships or friends she struggles with money because of me, I feel like a burden because I am.



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23 Dec 2011, 9:20 am

miss-understood wrote:
In Australia now the correct terms are people first, disabilities second. A child with autism, people with disabilities etc... I like it. Even though my eldest child is severely affected by autism, he has always been much more than that.

Gotta say, you guys sure can debate!! ! It has been many years since I studied anything, you are all giving my brain a workout.


Okay, thanks, I was misremembering something I heard. I think people with disabilities is generally preferable.



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23 Dec 2011, 9:26 am

Oh Great Show Negative Reactions of Autistic Children.. to gain sympathy by NTs , where's the rest of the behavior of autistics?


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23 Dec 2011, 9:30 am

I hope Autism Speaks makes a video featuring Autistic Adults, soon.

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23 Dec 2011, 11:08 am

NaomiDB wrote:
The_Perfect_Storm wrote:
Sansomrocks1027 wrote:
@ The perfect storm:
But that's just how life is. You take what God has given you, and you run with it. I understand that these monsters may feel hopeless for their children, but that doesn't change being a PARENT.


I don't think you really appreciate the toll autism can take on the parents.

I Can understand how those mothers feel apart from the one saying she wanted to drive off a bridge with her daughter, thats just crazy.
My mum has given up her life for me she has never had any relationships or friends she struggles with money because of me, I feel like a burden because I am.


It makes me sad to read this. I'm a mom with a 6 year old with Asperger's and severe anxiety and OCD among other things. Yep, he's a lot of work, yep, I don't have a job out of the home anymore because he needs so much of my time, yep, there are many, many things that have changed in our life because of his extreme fears and needs.

BUT there is not one thing I would change if it meant he wouldn't be who he is! I've never loved someone the way I love him, I've never learned so much about life and love as I've learned from him! He has taught me to let go of expectations and to live in the moment, each moment and see the beauty these moments hold.

If it wasn't for my son I think I would have missed out on how wonderful life really is, and THAT is sad thought!

I'd be willing to bet your mom feels much the same, so be happy, let go of feeling like a burden, you've been her most valuable life teacher and the world is a much better place because of you and others like you!


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23 Dec 2011, 12:18 pm

Verdandi wrote:
League_Girl wrote:
You said "Generally speaking? Mental illness does not cause violent behavior."

Now you say you never said they never commit violence so perhaps I took it literal. :?


Probably. I didn't mean never. Like, "Generally speaking, airplanes are safe transportation." But airplanes crash. But very few crash relative to the number of flights. It wouldn't be the first time I ever made an accidentally misleading generalization, however.



I see. You had the question mark so it changed the meaning of what you said. You made it sound like you were asking it than saying it and then posting your opinion. Like I read something and I don't agree with it so I ask "Generally speaking?" and then I say what I think. It's like a rhetorical question people ask when they don't agree what they had read or heard.



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24 Dec 2011, 12:27 am

Verdandi wrote:
I wasn't offended at your use of "the disabled." I feel that the usage elides "people" from the definition. I realize it is widely used, but I disagree with that usage for the reasons I stated. I believe that the label itself reflects the attitude toward people with disabilities, that we can just be reduced to "the disabled." That's what we are, disabilities. I don't care for that.

As this dictionary entry says:

http://www.thefreedictionary.com/disabled

Quote:
Usage: The use of the disabled, the blind, etc. can be offensive and should be avoided. Instead one should talk about disabled people, blind people, etc.


Although I would argue that being offensive is probably one of the least important elements, as compared to the semantic effect of labeling people as one of their traits, rather than as people.

As for the rest, I've already said everything I can in my previous post. I'll just be reiterating my points if I respond further.


I was thinking more in a governmental sense like SSDI and the permanently disabled as opposed to people with general disabilities that really aren't identified as disabled, like a person with a prosthetic leg, functioning well in life. From a military perspective as well with terms like 30% disabled military vet., etc. I worked on a military installation, so that is learned bias. Technical terms that really aren't used in a personal manner.

Per actual people. When I see a person in a wheel chair I see a person, and don't think I would ever use the word disability to refer to them at all on a personal basis, I can see the potential to offend someone, and the potential negative impact of reducing people to their diabilities.

I remember another individual arguing the same point here, intensely, as one of his major arguments; that he wanted to be referred to by his real name in life rather than Autistic, because he felt his identity was not the disorder of Autism, in fact he didn't want others to even refer to him as a person with autism, instead his real name.

And, considering this I think he would have taken offense if someone referred to him as disabled rather than his real name, although in his case autism was a legal disability for him, and he referred to it as such.

There are many perspectives here on that issue as I know you are aware of, many do identify themselves with the disorder, with the adjective autistic or as a general term autistics, while others prefer to reference themselves as a person with autism.

Same with Aspergers, some prefer to be called a person with Aspergers, others autistic, others aspie, etc.

At least when it comes to autism, that's kind of a complicated issue. Lots of threads on that specific issue. :)



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24 Dec 2011, 12:54 am

League_Girl wrote:
I see. You had the question mark so it changed the meaning of what you said. You made it sound like you were asking it than saying it and then posting your opinion. Like I read something and I don't agree with it so I ask "Generally speaking?" and then I say what I think. It's like a rhetorical question people ask when they don't agree what they had read or heard.


I asked myself a question and answered it. I meant it as a general thing, not an absolute.



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24 Dec 2011, 1:00 am

aghogday wrote:
I was thinking more in a governmental sense like SSDI and the permanently disabled as opposed to people with general disabilities that really aren't identified as disabled, like a person with a prosthetic leg, functioning well in life. From a military perspective as well with terms like 30% disabled military vet., etc. I worked on a military installation, so that is learned bias. Technical terms that really aren't used in a personal manner.

Per actual people. When I see a person in a wheel chair I see a person, and don't think I would ever use the word disability to refer to them at all on a personal basis, I can see the potential to offend someone, and the potential negative impact of reducing people to their diabilities.


I meant in every sense. I don't feel that any use of "the disabled" is accurate, and would prefer to see different usage. I realize not everyone may agree, but I tried to explain why I said what I did in that earlier post.

Quote:
I remember another individual arguing the same point here, intensely, as one of his major arguments; that he wanted to be referred to by his real name in life rather than Autistic, because he felt his identity was not the disorder of Autism, in fact he didn't want others to even refer to him as a person with autism, instead his real name.

And, considering this I think he would have taken offense if someone referred to him as disabled rather than his real name, although in his case autism was a legal disability for him, and he referred to it as such.


I don't think this is the same point. I would prefer to be referred to by my name, but I don't mind being described as autistic, an autistic person, even a person with autism. I dislike Aspie rather intensely, and if anyone catches me calling myself an "aspergian" then the Verdandi you all know is long gone. I don't mind that other people use those, however.

Quote:
There are many perspectives here on that issue as I know you are aware of, many do identify themselves with the disorder, with the adjective autistic or as a general term autistics, while others prefer to reference themselves as a person with autism.

Same with Aspergers, some prefer to be called a person with Aspergers, others autistic, others aspie, etc.

At least when it comes to autism, that's kind of a complicated issue. Lots of threads on that specific issue. :)


Quite true.



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24 Dec 2011, 1:50 am

Verdandi wrote:
aghogday wrote:
I was thinking more in a governmental sense like SSDI and the permanently disabled as opposed to people with general disabilities that really aren't identified as disabled, like a person with a prosthetic leg, functioning well in life. From a military perspective as well with terms like 30% disabled military vet., etc. I worked on a military installation, so that is learned bias. Technical terms that really aren't used in a personal manner.

Per actual people. When I see a person in a wheel chair I see a person, and don't think I would ever use the word disability to refer to them at all on a personal basis, I can see the potential to offend someone, and the potential negative impact of reducing people to their diabilities.


I meant in every sense. I don't feel that any use of "the disabled" is accurate, and would prefer to see different usage. I realize not everyone may agree, but I tried to explain why I said what I did in that earlier post.

Quote:
I remember another individual arguing the same point here, intensely, as one of his major arguments; that he wanted to be referred to by his real name in life rather than Autistic, because he felt his identity was not the disorder of Autism, in fact he didn't want others to even refer to him as a person with autism, instead his real name.

And, considering this I think he would have taken offense if someone referred to him as disabled rather than his real name, although in his case autism was a legal disability for him, and he referred to it as such.


I don't think this is the same point. I would prefer to be referred to by my name, but I don't mind being described as autistic, an autistic person, even a person with autism. I dislike Aspie rather intensely, and if anyone catches me calling myself an "aspergian" then the Verdandi you all know is long gone. I don't mind that other people use those, however.

Quote:
There are many perspectives here on that issue as I know you are aware of, many do identify themselves with the disorder, with the adjective autistic or as a general term autistics, while others prefer to reference themselves as a person with autism.

Same with Aspergers, some prefer to be called a person with Aspergers, others autistic, others aspie, etc.

At least when it comes to autism, that's kind of a complicated issue. Lots of threads on that specific issue. :)


Quite true.


Sorry, similiar point would been a better wording. He didn't focus on the phrase "the disabled", but in context of your point on reducing ones identity to a disability he did feel like someone calling him an autistic was reducing his identity to a disability.

Of course, that context applies differently to him than it may for others, because his form of autism was considered a legal disability, that he received government support for subsistence, which doesn't apply to all individuals that identify themselves as an autistic.

With the context you provided, I can understand how you would see the SSDI usage of the permanently disabled as one that is not desirable.

However, for clarification, what about "Disabled Military Veteran", considering it's considered a highly respected term in our culture, because the individual was disabled as a result of defending the country, do you think that specific phrase is okay? That seems to be a different context, that might warrant an exclusion.



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24 Dec 2011, 2:01 am

aghogday wrote:
However, for clarification, what about "Disabled Military Veteran", considering it's considered a highly respected term in our culture, because the individual was disabled as a result of defending the country, do you think that specific phrase is okay? That seems to be a different context, that might warrant an exclusion.


I too receive government support for my disabilities, although not SSI yet. Still in appeal.

Anyway: Disabled military veteran is like disabled person. A veteran is a word for a kind of person (someone who was in the military and may have fought in one or more wars), so you're simply saying a particular kind of person. Similarly, disabled politician, disabled fireman, disabled lawyer, etc., although I don't see those very often. I also think that sometimes words like "disabled" are used in contexts where they are irrelevant, but that's another issue.

I do tend to think everyone should use it like I do, but really I can't (and don't want to) control everyone. Mostly I just want to be heard when I give my side. :)



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24 Dec 2011, 4:03 am

Verdandi wrote:
aghogday wrote:
However, for clarification, what about "Disabled Military Veteran", considering it's considered a highly respected term in our culture, because the individual was disabled as a result of defending the country, do you think that specific phrase is okay? That seems to be a different context, that might warrant an exclusion.


I too receive government support for my disabilities, although not SSI yet. Still in appeal.

Anyway: Disabled military veteran is like disabled person. A veteran is a word for a kind of person (someone who was in the military and may have fought in one or more wars), so you're simply saying a particular kind of person. Similarly, disabled politician, disabled fireman, disabled lawyer, etc., although I don't see those very often. I also think that sometimes words like "disabled" are used in contexts where they are irrelevant, but that's another issue.

I do tend to think everyone should use it like I do, but really I can't (and don't want to) control everyone. Mostly I just want to be heard when I give my side. :)


Thanks, I see your point on the lawyer and the politician, and agree with your general point.

I agree to disagree with you :) on the disabled military veteran phrase because it is a traditional time honored phrase that is used to respect and honor those that have sacrificed their inherent functional abilities in defense of the country.

They even receive special license plates for their vehicles in recognition for this sacrifice, labeled DMV.

In this one specific case, I'm not sure how else they could be described, that would properly honor this type of service.

My opinion is biased though, from working with the military for over 20 years, and seeing hundreds of ceremonies honoring these folks. :)



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24 Dec 2011, 4:12 am

aghogday wrote:
Verdandi wrote:
aghogday wrote:
However, for clarification, what about "Disabled Military Veteran", considering it's considered a highly respected term in our culture, because the individual was disabled as a result of defending the country, do you think that specific phrase is okay? That seems to be a different context, that might warrant an exclusion.


I too receive government support for my disabilities, although not SSI yet. Still in appeal.

Anyway: Disabled military veteran is like disabled person. A veteran is a word for a kind of person (someone who was in the military and may have fought in one or more wars), so you're simply saying a particular kind of person. Similarly, disabled politician, disabled fireman, disabled lawyer, etc., although I don't see those very often. I also think that sometimes words like "disabled" are used in contexts where they are irrelevant, but that's another issue.

I do tend to think everyone should use it like I do, but really I can't (and don't want to) control everyone. Mostly I just want to be heard when I give my side. :)


Thanks, I see your point on the lawyer and the politician, and agree with your general point.

I agree to disagree with you :) on the disabled military veteran phrase because it is a traditional time honored phrase that is used to respect and honor those that have sacrificed their inherent functional abilities in defense of the country.


Since I agreed with you that it's a usable phrase I don't understand what you're disagreeing with?

Quote:
They even receive special license plates for their vehicles in recognition for this sacrifice, labeled DMV.

In this one specific case, I'm not sure how else they could be described, that would properly honor this type of service.

My opinion is biased though, from working with the military for over 20 years, and seeing hundreds of ceremonies honoring these folks. :)


I have a similar bias. My ex and several family members have been in the military. I have not (although I did want to, I was convinced not to). World War II was a very intense special interest of mine for two years. I don't think we're disagreeing at all, I think something has been misunderstood.

If it was my comment about people using disabled to describe someone in situations in which it's out of context, I was referring to other things that had nothing to do with "disabled veteran."