Boycott Autism Speaks

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Spare me your fake compassion and your terrible advice. You're passive-aggressive and manipulative. You bully others who disagree with you. You try to dominate discussions. You try to characterize topics you dislike as "harmful to humanity." None of this is slander because it is what you have done - what you did in this post I responded to.

Oh and here's a post where aghogday says the things that he denies saying (and calls me a liar for saying he said them):

http://www.wrongplanet.net/postp5790297.html#5790297



Note that he is defending the perspective he describes. Read the entire post.

Real words you actually typed don't suddenly disappear or change meaning in a different discussion.

girl_incognito wrote:
Thank you Paula!

I also want to stress that we are trying to help divert funding to more local charities that actually do help.

We are compiling a list of them, it just takes some time.

Now that's great and where the focus needs to be..in my opinion..on all the local organizations that could really use local efforts to achieve the goals and missions they set forth already...

This effort against Autism Speaks is a total waste of time and effort in only my opinion..

As the way Suzanne Wright described Autism is already the way the public in general sees autism from the terror of stories that were first put out to the general public through spokes person's like Jenny McCarthy linking it to vaccines..or the recent Senator and Canary Party linking it to mercury in vaccines and pollution...

There IS NO POSSIBLE WAY THE GENERAL PUBLIC IS EVER GOING TO VIEW AUTISM AS A GOOD THING..IT'S JUST NOT GOING TO HAPPEN..THERE IS ALREADY A COMBATING AUTISM ACT IN EFFECT IN THE US..

IT IS DESCRIBED AS SOMETHING AS BAD AS WAR...

Now that's the entire government looking at it that way..with trillions of dollars of funding overall..

Da ya..really think a charitable non-profit organization raising about 60 M dollars a year is going to be negatively influenced by a group effort of people on the internet who are already described as not really autistic..in general by at least some of the people who directed the DSM5 effort to get rid of Asperger's Syndrome..in part because they don't see this internet described autism phenomenon as anything seemingly but 'a self-reported fraud'...

As evidenced here on this site..in the news interview of one of the representatives of the DSM5 working committee and the APA...

No of course not..in any reasonable estimation that i can see..the only thing that is happening here is name brand name brand name brand name brand...free advertisement for Autism Speaks for anyone who might see the headline here viewing this internet site...

And actually going to Autism Speaks Website..where the information is detailed on autism and presented as well as any media presentation on any website overall ...of course..because the whole organized effort was started by a President of NBC..high powered..media mogul.....

Well..yeah..i agree..efforts like the recent one that started in this forum to actually start a new effort to help people on the spectrum are this focus on local organizations..the names of the organizational efforts..and how to help and volunteer..are yes important in my estimation2...

THEY Are really effective ways to help people on the spectrum...

But seriously all this attacking on Autism Speaks..only puts Autistic people online overall in a negative light..as from the outside looking in ..it looks like the online autistic people only care about themselves and could NOT care less about all the other people on the spectrum suffering and yes even dying from autism co-morbid related conditions whether Autism Speaks is truly funding efforts in research that may actually make some of this suffering eventually go away from people...

Seriously..from the outside looking in this validates the general public's viewpoint already that autism is a serious disorder that is centered around a deficit of demonstrated human empathy for people who do not experience life quite the same way as other people...

But...go ahead..continue on with the effort if ya like..but in my opinion i'll spend my time and or effort..on my local organization that does really good things for people on the spectrum..and let autism speaks continue funding research..as there is no way my local organization could ever fund that nor do they have any expertise to get involved in it..even if they wanted to do it..and had a little extra funding.....

And yes that research could mean eventually a life or death scenario for a person on the spectrum with a co-morbid condition like the one my son head that killed him DEAD...

THIS AIN'T A GAME FOLKS..IT'S LIFE AND DEATH..'REAL LIFE STUFF.'..!
_________________

Source, please?

That video is pretty horrible, but it had a 2005 date on it. When was it actually shown?

I was just on the website looking around (because this thread is such a mess, I can't figure out who is right) - but I saw they have a series of blogs from adults with Autism. They are writing about all the things that we right about here, the prejudice they experience, etc. You should check it out, they do have actual Autistic voices there. Maybe this was all in reaction to John Robinson quitting or maybe it was before, I'm not sure.

Verdandi wrote:

Please find the post you are referring to and leave a link to it. It will only serve to make your point (presumably:-) Also, I have searched the words "push through the pain" and cannot find them.

As far as compassion, I was talking about actually suffering for you, the suffering you apparently cannot do for yourself, at least not all of it, so as to in some way ease your burden, I hope I can even remember to do this, as words are sometimes easier than action.

Re the "push through the pain" comment that you puts quote marks around, this does not sound like me at all. I speak more of feeling the pain. That is my language. "Pushing through" sounds strange. If I said that, please find it, so I can view it in context, if I even said such a thing.

Re dominating conversations, that sounds to me more like you, actually. I think enquiry might be good for you, more from the perspective of learning about yourself. You could become more empowered help people this way.

The call center dialogue was kind of interesting. Since then I have put quite a bit of thought into it and spoken to several people who work at call centers (that I happened to be calling about a bill, and one from a collection agency that called me) and asked what they think about this idea. I am still processing it. I will write about this some other time, maybe soon. At present I am against that idea, but open to seeing it differently if someone can present a rational for doing that.

It sounds like you may be thinking there is no logical reason for me to ask this question except that I am carrying a grudge toward high-functioning autistics who cannot work, so because of this I am saying do not give people who cannot tolerate noise a private room in a call center. But this thread is not about that. That is a symbolic question as it touches on a place at the edge of self-perception and other-perception. I just like the call center example because it is not so cut and dried. People have to think about that one, or at least I do.Maybe we can go into it more in the future, but I would like to add, not so much to you, but to the general reader:: Anyone who thinks/feels what I am writing here about the call center scenario or what anyone is writing about giving someone sensitive to sound a private room, will actually affect what happens in call centers is possiblly having a pipe dream, but I am hoping that because of participating on this thread and having a new and emerging understanding, certain people will begin to have the world open up for them into a much bigger place and so be able to participate much more fully in a way they never previously imagined possible.