Is self-diagnosis okay/valid/a good thing?

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Is self-diagnosis okay/valid/a good thing?
Yes 68%  68%  [ 100 ]
No 32%  32%  [ 47 ]
Total votes : 147

dianthus
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10 Dec 2014, 11:51 pm

Norny wrote:
If that doesn't happen then it's vague, cliche statements that get us no-where.


So be it.



Norny
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11 Dec 2014, 12:03 am

dianthus wrote:
And all of that aside it is not ideal for anyone new to a forum to see a heated debate going on as soon as they arrive. It sets a bad tone and may be upsetting to them or make them feel uncomfortable. IMO debates of all kinds should be contained to different subforum(s) and not part of general discussion. Especially on a "support site."


dianthus wrote:
Norny wrote:
If that doesn't happen then it's vague, cliche statements that get us no-where.


So be it.


If you aren't willing to fix the problem that you despise then the problem will persist.


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btbnnyr
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11 Dec 2014, 1:37 am

I think that it is good for people to see debates and discussions of important autism-related issues like self-diagnosis on wp.


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ASPartOfMe
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11 Dec 2014, 2:07 am

dianthus wrote:
ASPartOfMe wrote:
I agree there are more good things then bad here but I am taking into account that people in a fragile state tend to look only at the bad parts and would be hurt by coming here right now. There are other sites and resources besides WP. When a newbie comes on and the first response they see is an extension of this debate instead of whatever thier issues are I can't see that as helpful. But I do see this as a very temporary situation.


That's what I dislike about all of this. People who are coming here just trying to figure things out for themselves might feel very put off by all the arguing and criticism. Not just new people but anyone who doesn't have an official diagnosis, or anyone who doubts or questions whatever official diagnosis they already have. There are many situations where people may need to put more trust in themselves so they can find the confidence to walk away from (un)professional therapies or treatments if they are not getting what they need from it.

In any case, it is unlikely to be helpful to anyone to be told that they do not have the right to assess what their own problems are and identify themselves accordingly, ie, to self-diagnose. People who are saying these things are not taking different perspectives and understanding how it might affect someone in different circumstances than themselves to hear such criticism.

And all of that aside it is not ideal for anyone new to a forum to see a heated debate going on as soon as they arrive. It sets a bad tone and may be upsetting to them or make them feel uncomfortable. IMO debates of all kinds should be contained to different subforum(s) and not part of general discussion. Especially on a "support site."



I also agree that self diagnosis debate threads should exist as it is a big issue in our community. It was the temporary condition of 4 or 5 threads going on at once and instead of going on a few days or a week it has been going on 4 weeks. And while there has been no bullying or personal criticism even with my gaps in cognitive empathy I could easily understand why somebody's just coming here thinking of self-diagnosis likely to feel hated.


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11 Dec 2014, 2:49 am

ASPartOfMe wrote:
I also agree that self diagnosis debate threads should exist as it is a big issue in our community. It was the temporary condition of 4 or 5 threads going on at once and instead of going on a few days or a week it has been going on 4 weeks. And while there has been no bullying or personal criticism even with my gaps in cognitive empathy I could easily understand why somebody's just coming here thinking of self-diagnosis likely to feel hated.

I wonder. Do that many people come to WP thinking of self-diagnosis? Or, do most people come here after discovering autism, knowing they have a bunch of "unresolved issues" and want to learn more about it from others?



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11 Dec 2014, 4:50 am

My experience would suggest that the vast proportion of people self-diagnose, a diagnosis which is then confirmed by a specialist.

Twenty five years ago I spent a week being "tested" by a group of quite eminent psychologists. I had been "let go" from two senior positions on the basis of my not being a "team player", and I wanted to know why. They came up with nothing other than the fact that I had an IQ that put me in the top 5% of the population.

I had had gender issues from childhood, and seventeen years ago I was diagnosed as being transsexual. Subsequent to that I transitioned, and in order to acquire hormone treatment and surgery I saw a Psychiatrist every few weeks for two years. No mention of autism there either. I felt at the time that my inability to get on with people was entirely due to my gender issues.

Following on from above by 5 years, I spent six months undertaking regular sessions with a relationship counsellor as I still didn't get on with people. Nothing positive came from that either.

It was only after I read about Susan Boyle (Scottish singer) and her Asperger's that I started to research my symptoms as they seemed similar. My GP is a very intelligent and knowledgeable person, and when I spoke to her about my suspicions she agreed that I probably did have Asperger's syndrome. Suggesting that there was little to be gained by seeing a specialist to confirm it as there was nothing they could do about it.

I have since spoken with relatives who were around when I was young, and they all agreed that I had been a bit "odd" as a child. Never played with other children or had friends, very much a loner. At school I was brilliant at Mathematics, Physics and Chemistry, yet in an English Essay exam scored just 1% for getting my name correct at the top of the blank sheet of paper I submitted. These facts plus others would suggest that I was Autistic as a child. But in the post WWII 1950's in the UK, Autism wasn't something that rang any bells.

So to repeat "My experience would suggest that the vast proportion of people self-diagnose, a diagnosis which is then confirmed by a specialist". A specialist needs to be looking for it otherwise they won't find it.

Not sure about chicken and egg situation, but apparently there is a statistically significant correlation between Gender Dysphoria and Autism. Those with Gender Dysphoria have an increased probability of being Autistic, or vice versa.


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11 Dec 2014, 11:05 am

allisoncc, your thinking makes sense to me.

I think the people who are opposed to self diagnosis would not find fault with any of this. My experience is consistent with this.

I would not say that I was ever 100% certain of being autistic prior to my official diagnosis, but I was pretty sure. To me that was essentially "self diagnosed" but I would be happy to say "pretty sure" rather than certain to allay the concerns of the anti self diagnosis people. I could not have rested with that degree of uncertainty and really needed the assessment to be satisfied.

I doubt that anyone who is coming here is going to be really put off by this debate. When I first ran into it, my thought was "that's interesting."

I don't think that it's going to work to tell people not to express an anti self diagnosis view for the benefit of the more sensitive visitor.

I find that I respect the views of people on both sides. I think they are largely talking at cross purposes. Their ideas are addressing concerns along different axes, so they use the same terms in different ways and don't acknowledge this about the other. I think the poster who observed early on that the quality of this debate was characteristic of the autism among participants was correct.



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11 Dec 2014, 4:34 pm

Adamantium wrote:
I don't think that it's going to work to tell people not to express an anti self diagnosis view for the benefit of the more sensitive visitor.


What do you mean by "work?" I for one don't post my own views to get something to "work."

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I doubt that anyone who is coming here is going to be really put off by this debate. When I first ran into it, my thought was "that's interesting."


Did you miss the post where B19 said someone has left for that very reason?



Adamantium
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11 Dec 2014, 6:00 pm

dianthus wrote:
Adamantium wrote:
I don't think that it's going to work to tell people not to express an anti self diagnosis view for the benefit of the more sensitive visitor.


What do you mean by "work?" I for one don't post my own views to get something to "work."

I mean as an argument--specifically, it won't convince the other side, and is not likely to get mods or Alex to silence them.

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Quote:
I doubt that anyone who is coming here is going to be really put off by this debate. When I first ran into it, my thought was "that's interesting."


Did you miss the post where B19 said someone has left for that very reason?

But was this because of the debate, or the person's trauma because of prior experiences with fractious arguments?

I can imagine that if many people were going to react that way, then the discussion might be shut down, but I don't think the debate in and of itself is going to be making people flee WP.

I just don't think this line of argument is going to change anything, and it's already been advanced several times, to no effect.



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11 Dec 2014, 6:08 pm

If there were no debates or topical discussions on wp, then I wouldn't be here, as it would be too boring.


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dianthus
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11 Dec 2014, 6:10 pm

Adamantium wrote:
I mean as an argument--specifically, it won't convince the other side, and is not likely to get mods or Alex to silence them.


That's a very narrow view. There are other reasons why people speak up about things, besides trying to "convince the other side" or to get people to take some kind of action.



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11 Dec 2014, 6:37 pm

dianthus wrote:
Adamantium wrote:
I mean as an argument--specifically, it won't convince the other side, and is not likely to get mods or Alex to silence them.


That's a very narrow view. There are other reasons why people speak up about things, besides trying to "convince the other side" or to get people to take some kind of action.


This analyzation I do not understand as it is known that autistic people focus onto detail and miss "big picture".

In this thread are many implications which adress traits of autistic people to be - if I interpret it right - "bad" or unwished in conversation.

Especially adressed to focus onto detail, rigidity in thinking, lack of Theory of Mind.

Why is it so?


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kraftiekortie
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11 Dec 2014, 6:54 pm

It's a pity that someone was "driven away" because of a debate. I feel bad about that, actually. Debates shouldn't get to the point where people personally abuse others (ad hominem attacks)

Good, honest, substantive debate makes this website a viable one. People have opinions, and they have a desire to "prove" their opinions. Other people have opposing opinions, and seek to "prove" theirs as well. There's nothing wrong with that at all. If somebody doesn't agree with you, it doesn't mean the person has less regard for you.

What I don't like is when people resort to rhetorical devices (some of which involve insulting the intelligence of those with whom they are opposed). These "devices" often cause the debate to sway to areas which have nothing to do with the resolution of the question which was originally posed. Additionally, the employment of rhetorical devices besmirches the "honesty" of the debate, renders the debate experience unpleasant, and brings offense to many people.

Some people don't believe in "self-diagnosis" for various reasons.

Some people see "self-diagnosis" as a way to "find out about themselves."

Within many contexts, the word "diagnosis" has acquired a broader meaning than the medical definition. This, I believe, is the basis from which the term "self-diagnosis" is used within WrongPlanet. I don't believe people who "self-diagnose" believe they are experts.

I don't believe anybody believes that a "self-diagnosis" carries as much or more weight than an official diagnosis, even though official diagnoses, in some cases, could be as subjective as a "self-diagnosis."



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11 Dec 2014, 7:03 pm

I don't know why people leave forums due to disagreement with others.
I don't leave forums for this reason or any other reason, but I am only on two forums - wp and a small tv show forum.


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dianthus
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11 Dec 2014, 7:17 pm

kraftiekortie wrote:
If somebody doesn't agree with you, it doesn't mean the person has less regard for you.


Exactly.

Debates are useful for exchanging ideas. But I don't enjoy them.

In general I don't like to get into exchanges where people keep replying back and forth. It's very draining for me. I want to speak my peace and then go on my way. If people misunderstand me, there's not much for me to do about it except let it be.



sonicallysensitive
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11 Dec 2014, 7:34 pm

It would be very unfair if those diagnosed as autistic who believe 'self-diagnosis' isn't a good thing were not allowed to express so - especially given the title of this thread.

To use someone leaving the forum as an example of potential danger of expressing one's views could be seen as blanketing the right to free speech and a form of scaremongering. A debate isn't a debate if both sides can't express their views.

If diagnosed autistics are capable anywhere of expressing their views in relation to autism/diagnosis, it should be on an autism forum - and especially so in threads related specifically to diagnosis.

On the simplest level - if whoever left the forum didn't like the tone of this thread, they should have stopped reading this specific thread. Would you continue watching a movie if the contents bothered you - especially so when the movie detailed the contents?

The simple solution to not wishing to engage in a specific debate is to not engage in that specific debate. Why listen to a piece of music you don't like when you can create your own playlist?

Using someone leaving as an example of reasons not to pursue such a conversation could be seen as a diversionary blanket tactic and an attack on those diagnosed as autistic - rather than the other way around.

Yes, individuals shouldn't offend or attack other individuals. That surely goes without saying.

Maybe someone left as they faced a nugget of truth in this thread. Maybe not. Who knows.