Self diagnosed people here don't have aspergers

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lemon
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05 May 2007, 2:04 pm

shadexiii wrote:
lemon wrote:

i'm still wondering what the advantages of a diagnosis is? (have asked this already several times, but no answer ...)



It could help for things like insurance or government aid in some instances. That's an advantage that people would actually care about.


i am on insurance for more than ten years now :? (i'd rather have a job ! ! i hadn't understood how important a diploma is :roll: , i'll have one 5 weeks from now :D (i started studying again at the age of 37), people behind a desk are the ones i am most clueless about, they don't even give interpretable signs of any kind)



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05 May 2007, 3:28 pm

shadexiii wrote:
People with social phobia tend to lack social skills. There's no deception there.

I'm sorry if I gave the impression of implying deception - the only deception involved is in what some people's brains "tell" them, it's certainly not a conscious act!

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If you can't bring yourself to socialize, starting at an early age, you don't learn those skills.

That *is* true, but it has different origins. The person lacks self-confidence but when in a secure and encouraging (for their needs, not as in "putting them on the spot" type encouragement, that would defy the whole purpose!) environment they do not show any such problems. I'm certainly not trying to say that the social embarrassment or difficulties someone with social phobia experiences is not real - to them it is 100% real! It's just not the same as actually lacking an innate social instinct and ability to "connect" socially.

(In fact my Point of view is that all experience and feeling is real, it just isn't always the same as what is actually happening)

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The worst part about this is the way some people are handling it. Assuming that they can make what is effectively a diagnosis of others, without training, and with the only thing to judge it on being text on a forum. There's a staggering number of assumptions necessary to do such a thing.

Completely agree with that... I'd love to be able to do that but it isn't possible... even for someone meeting a person face to face, you need to get into a lot of details before you can make such a diagnosis. As I said before I much prefer just accepting people's experiences (and helping them deal with them if their experiences are giving them a bad impression or distorting their view of the world) and traits as fact, and I feel under a lot of impossible pressure when asked to make such "judgements".



Noetic
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06 May 2007, 7:55 am

shadexiii wrote:
What I'm trying to say is this: if someone is not going on about how "bad" they have AS, or misrepresenting AS, if they identify with others on this site that have at the least similar life experiences and difficulties, what's the big deal?

In that case I have no problems at all



Noetic
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06 May 2007, 7:58 am

Xenon wrote:
I understand what you mean. But I don't identify as having AS just because I lack social skills... it's also important to discover and understand *why* someone doesn't have social skills.

Oh very much so, I was talking about one type of person who tends to "seek solace" in an AS self-dx. Certainly many who do self-diagnose are correct, I'm not saying that having a diagnosis makes AS or autism more "real" :)

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I don't have social phobia, I do not have an avoidant personality, and I am generally a happy person with no self-esteem issues.

I am the same.



Noetic
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06 May 2007, 8:04 am

Xenon wrote:
I understand what you mean. But I don't identify as having AS just because I lack social skills... it's also important to discover and understand *why* someone doesn't have social skills.

Oh very much so, I was talking about one type of person who tends to "seek solace" in an AS self-dx. Certainly many who do self-diagnose are correct, I'm not saying that having a diagnosis makes AS or autism more "real" :)

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I don't have social phobia, I do not have an avoidant personality, and I am generally a happy person with no self-esteem issues.

I am the same.



nobodyzdream
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06 May 2007, 10:21 am

lemon wrote:
i'm still wondering what the advantages of a diagnosis is? (have asked this already several times, but no answer ...)


I'd personally like a diagnosis just for certainty for myself. If I get in a mood where I want to look something up, just to understand a little better or just out of interest (stories I can relate to or whatnot) I want to know for sure that I'm even looking at the right thing. It won't make a difference as to who I am, and it won't even effect whether or not I find anything that can help me understand better that much, but without it, I feel lost. I don't need an official label, I just need even an idea-if my psych doesn't wanna "label" me with it (though since I've been out of work so long and can't seem to do things I really need to... EVER, and that would be kind of nice to have a reason to give the people who don't know me but "monitor" what I do as far as assistance goes) I just want to know, for reassurance, for a direction, etc. It's not a huge benefit to a lot of people probably, but it's something I need for myself. I don't wanna be on a treatment plan without being able to look up other options, or give input myself-if I don't know what I have, how will I know what else I can look into rather than just taking some guy's word for it who doesn't know anything about me besides what I tell him? :P



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06 May 2007, 10:54 am

Noetic wrote:
Xenon wrote:
I understand what you mean. But I don't identify as having AS just because I lack social skills... it's also important to discover and understand *why* someone doesn't have social skills.


Oh very much so, I was talking about one type of person who tends to "seek solace" in an AS self-dx. Certainly many who do self-diagnose are correct, I'm not saying that having a diagnosis makes AS or autism more "real" :)


OK, just making sure. ;)

On another board many moons ago (not an AS board but with some AS members, both formal-dx and self-dx), one member stirred up quite a hornet's nest by flatly stating that if someone does not have a formal diagnosis then they have no right to declare themselves AS, period. Some of the serious self-dx types (myself included) raked her over the coals for that one.

I know that some "self-dx" are those who have done little more than taken a test on the Internet and got a high score that says they might be an Aspie, and have jumped on the bandwagon the way people jumped on the ADD, ADHD, and Bipolar bandwagons in the past. (ADD, ADHD, and Bipolar do not fit my own psychological profile.)

But hey, in an informal group like this one, even that kind of self-dx would find kindred spirits, which is ultimately the important thing. And so can the self-dx who have come to that conclusion after substantial research. (Like me.) :)

(I don't plan on getting a formal diagnosis because there would be no point -- it would provide no tangible benefit, plus it would cost me money and time that I could put to better use.)


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06 May 2007, 1:28 pm

Xenon wrote:
On another board many moons ago (not an AS board but with some AS members, both formal-dx and self-dx), one member stirred up quite a hornet's nest by flatly stating that if someone does not have a formal diagnosis then they have no right to declare themselves AS, period. Some of the serious self-dx types (myself included) raked her over the coals for that one.

I can imagine! Some people just come out with such statements to provoke I think.

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But hey, in an informal group like this one, even that kind of self-dx would find kindred spirits, which is ultimately the important thing. And so can the self-dx who have come to that conclusion after substantial research. (Like me.) :)

Sure. I think I tend to object to *anyone* putting themselves up as a textbook Aspie or whatever, because everyone is different, so it's silly to try and represent a group of people like that.

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(I don't plan on getting a formal diagnosis because there would be no point -- it would provide no tangible benefit, plus it would cost me money and time that I could put to better use.)

I was very content just accepting I was "semi-autistic" in my teens (I don't even remember why I looked this up in the first place, but I remember reading Birger Sellin's book and thinking "Well that's not me, then, but still, a lot like me") but then I was living with my parents, I was unhappier than I am now and than I was when I was diagnosed but I wasn't actually having too many autism-related problems as such. It was in fact more an increase in social awareness that had made me very unhappy, and resulted in my attempting to deny this part of me for several years.

I had almost completely forgotten about autism when I went to see a neurologist 4 years ago for concentration problems, and must admit when he said "AS" I was very much not agreeing with that...



Last edited by Noetic on 06 May 2007, 2:57 pm, edited 1 time in total.

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06 May 2007, 2:47 pm

lemon wrote:
shadexiii wrote:
lemon wrote:

i'm still wondering what the advantages of a diagnosis is? (have asked this already several times, but no answer ...)



It could help for things like insurance or government aid in some instances. That's an advantage that people would actually care about.


i am on insurance for more than ten years now :? (i'd rather have a job ! ! i hadn't understood how important a diploma is :roll: , i'll have one 5 weeks from now :D (i started studying again at the age of 37), people behind a desk are the ones i am most clueless about, they don't even give interpretable signs of any kind)


yes, i'd say, unless you have some undying need for a DX... then the only positives are government assistance of any kind... and having people believe you when you say you have AS... like a cop badge lol


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06 May 2007, 3:44 pm

Sedaka wrote:
yes, i'd say, unless you have some undying need for a DX... then the only positives are government assistance of any kind... and having people believe you when you say you have AS... like a cop badge lol


I don't need government assistance, and I don't tell anyone offline about AS. I use my having AS as an explanation for why something isn't working, and from there try to figure out some kind of "work-around" to solve the problem. Eg, at work I compensate from my lack of social skills by being gracious and polite, and always appearing friendly. So instead of people thinking "He's so quiet, what a weirdo" (which was what I would get 20 years ago, before I figured it out), now it's "Sure, he's a bit quiet, but he's a nice guy".

As opposed to the Aspie wanna-bes who will tell everyone that they have AS and use it as an excuse to (try to) get away with things... ;)


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06 May 2007, 5:18 pm

Xenon wrote:
Sedaka wrote:
yes, i'd say, unless you have some undying need for a DX... then the only positives are government assistance of any kind... and having people believe you when you say you have AS... like a cop badge lol


I don't need government assistance, and I don't tell anyone offline about AS. I use my having AS as an explanation for why something isn't working, and from there try to figure out some kind of "work-around" to solve the problem. Eg, at work I compensate from my lack of social skills by being gracious and polite, and always appearing friendly. So instead of people thinking "He's so quiet, what a weirdo" (which was what I would get 20 years ago, before I figured it out), now it's "Sure, he's a bit quiet, but he's a nice guy".

As opposed to the Aspie wanna-bes who will tell everyone that they have AS and use it as an excuse to (try to) get away with things... ;)


the only diff i see between yourself and what you deem an aspie poseur... is that you're willing to try and work with it... you said yourself, you blame the AS for some (random) problem just like you said the fakers blame stuff on AS.. that's no criteria for saying someone doesn't have AS... just a sh***y, slack-ass attitude...

and there are plenty of people both AS and no AS... that fit that profile


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06 May 2007, 5:19 pm

delte: dboule post ftl


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Last edited by Sedaka on 06 May 2007, 5:25 pm, edited 2 times in total.

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06 May 2007, 5:21 pm

delete: man the server is really laggin here WTF, mate?


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Last edited by Sedaka on 06 May 2007, 6:38 pm, edited 1 time in total.

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06 May 2007, 5:37 pm

Sedaka wrote:
the only diff i see between yourself and what you deem an aspie poseur... is that you're willing to try and work with it... you said yourself, you blame the AS for some (random) problem just like you said the fakers blame stuff on AS.. that's no criteria for saying someone doesn't have AS... just a sh***y, slack-ass attitude...


My point was that some wanna-bes loudly proclaim their AS to everyone they know, and use it as an excuse to hide behind. "I can't do X because I have AS." If it wasn't AS, they'd find something else to pin it on. (Eg, my earlier reference to ADD/ADHD and bipolar depression.)

Sedaka wrote:
and there are plenty of people both AS and no AS... that fit that profile


True enough.

Sedaka wrote:
edit: you have to suspend the belief that: blame~explanation (but with a positive spin!)


Sorry, but I'm not sure what you mean...


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lemon
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06 May 2007, 6:02 pm

nobodyzdream wrote:
lemon wrote:
i'm still wondering what the advantages of a diagnosis is? (have asked this already several times, but no answer ...)


I'd personally like a diagnosis just for certainty for myself. If I get in a mood where I want to look something up, just to understand a little better or just out of interest (stories I can relate to or whatnot) I want to know for sure that I'm even looking at the right thing. It won't make a difference as to who I am, and it won't even effect whether or not I find anything that can help me understand better that much, but without it, I feel lost. I don't need an official label, I just need even an idea-if my psych doesn't wanna "label" me with it (though since I've been out of work so long and can't seem to do things I really need to... EVER, and that would be kind of nice to have a reason to give the people who don't know me but "monitor" what I do as far as assistance goes) I just want to know, for reassurance, for a direction, etc. It's not a huge benefit to a lot of people probably, but it's something I need for myself. I don't wanna be on a treatment plan without being able to look up other options, or give input myself-if I don't know what I have, how will I know what else I can look into rather than just taking some guy's word for it who doesn't know anything about me besides what I tell him? :P


well, for me (certainly after twenty years) it doesn't matter to know, i know for myself, my life has been too akward and here is the only place where i can find myself.

but i do have my brother's opinion of course who works with autistic people and has studied and read a lot on the subject. i have seen a lot of therapists, psychologists, etc in my life, they all said there was nothing wrong with me. And of course there is nothing really wrong with me(that's not entirely true, but well), i'm perfectly happy(now that is), but i do not fit in, people get angry with me.

now that i've learned what's the matter i seem to be able to organize things better(i now calculate obsessions for example, i do not constantly fight them, i cooperate with it, this makes my life bearable) and people around me seem to understand me better.
so if it helps, why should i not use it?
as i said before if that makes me a cucumber amongst asperger's, fine with me.



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06 May 2007, 6:13 pm

nah, you're fine, lol-while I'm saying I want the diagnosis just so I know for sure, I feel like a weirdo on here, lol. I'm about 99% positive I have AS, but for some reason I just need that official thing.

I really don't know why-I know I can look stuff up, and if I think I am, what's stopping me, right? ...and if I'm that sure, it shouldn't be a problem at all. I really don't get it, but that's why, lol.

But then again, I'm like that with EVERYTHING I do... I just need it for sure, I'll drive to the same place over and over and over, but if I don't have my map, I'm afraid of making a wrong turn somewhere and winding up not knowing how to get back. When I clean, I have to have something written or someone there to tell me what to do next.

Maybe I just want the diagnosis out of habit of needing it before I can do anything with it, considering I've been this way since I was 4 or 5, lol.