abusive treatment for autism
It might be worse, for many kids, to be told "No. Wrong. You're doing it wrong. That's wrong." Over and over again.
When somebody tells me I am doing something wrong, when I've done my best at it, it hurts more than just about anything you could say to me. Sometimes it's necessary, sure; and I don't hate people for doing it. But when I have tried my best, and when it's still no good, it feels like... well, it feels like I'm worthless. I want to do well, very badly. When I'm told I haven't done well, I feel like there is something horribly wrong with me and with the world.
One shouldn't blame a dyslexic person for not reading a word correctly, nor a deaf person for failing to recognize a tune, nor an autistic person for not reciting the correct greeting. And yet... this ABA thing... it is setting the child up for repeated failure. For everything the child learns successfully, he will have been told, "No." "Wrong." repeatedly; and it's even worse when the skill is developmentally unavailable to learn at all, and there isn't even a success at the end of all that failure.
It's not really failing that's so bad. You have to fail a few times before you get something right. It's that the failure is pointed out, made obvious, repeatedly. If a child fails at school, you (ideally) don't ignore it--you get him tutoring and show him how to catch up. You don't just sit him down in front of the problem until he chances on the correct answer. Long before he does, frustration and the repetition of "No!" and "Wrong!" will have caught up with him, and he'll get the idea that he oughtn't to try at all, lest he fail.
Having to hear someone tell you to do something in order to do anything at all could be directly connected to the natural hesitance that anyone feels, after repeatedly having been told "no!" when he takes any sort of initiative, to take initiative in the first place. I realize that for some it's an executive function issue; but for others, I would surmise it is closer to, "If I try anything on my own, I risk being told I'm wrong; so I'd better play it safe and not try at all."
Exactly! I feel it is abusive to sit a child down for hrs a week everyday, and drill into him/her that he/she is wrong. Everything you do, say, and think is wrong. I've felt like this all of my life, and I couldn't imagine having to deal with it on a daily basis with someone confirming that I'm wrong by keeping data on all of my wrongs on a sheet, then discussing it with others.
Also your point about being developmentally ready is a good one. They take very little into account as far as the individuals development goes. I have gone rounds with the teachers at my son's school, because I felt that they were expecting more out of him than he could do. When he was tested a couple months ago his over all developmental age was about that of a 12 month old. Of course, that's considering that his gross motor, and such was almost age appropriate, so that made his score higher. His receptive, and expressive language skills were about at a 3 month old's level. I feel that they shouldn't expect him to perform any task that they wouldn't ask a 12 month old to do, since cognitively that's where he's at.
My son does need to be taught by breaking down things into steps. I have no problem with doing some discreet trials, for some things. He does need to learn cause, and effect, and how to exchange PECs for things. I think a few minutes at a time through out the day should suffice. I will also admit that he is going to cry, and complain during this time. He does not like being forced to do things. He gets upset because I don't let him sit on top of the TV, or eat dirt, but that doesn't mean that I'm going to just let him. I can't let him grow up without any kind of communication method, either.
Yes, definitely. Nobody at all is saying that children with autism should have no discipline; nor are they saying there should be no therapy--especially the sort of therapy that teaches communication and other useful skills. It is just that, I think, most or all people on WP are quite convinced that it is never necessary to sit a child down for forty hours a week, repeatedly tell him he is doing things wrong, perhaps even restrain or hurt him, all in order to try to make him "normal"!
It's not therapy I'm opposed to. It's the idea that becoming "normal" should be the preeminent goal of therapy, that being autistic is unacceptable, that gaining skills should be prioritized at the expense of the child's happiness. I would much rather appear severely autistic and be happy, than appear mildly autistic and be spending every effort to appear normal, unwilling to do what is natural for me, frightened that someone will see through my facade and understand just how unacceptable a human being I am.
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I was just making sure that I wasn't sounding like a hypocrite, because my son does do a program at school that incorporates ABA into it. It's called the STAR program, and it's really new, so I'm not really all that familiar with it, yet. I won't allow for some of the principles of ABA to be used with him, but he does do discreet trials, and he's not always very happy during them, either. I wish that I knew of a better way, but unfortunately, I don't.
http://www.playproject.org/
I posted another thread about this, but curious since it is relevant - is anyone familiar? Comparisons?
M.
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My thanks to all the wonderful members here; I will miss the opportunity to continue to learn and work with you.
For those who seek an alternative, it is coming.
So long, and thanks for all the fish!
people would always think that they can grab my face and force me to look at them or if do not do things exactly the way they want and as fast as they want then they would grab me and throw me on the floor and sit on me until i did exactly what they wanted me to do
people would also throw me on the ground and sit on me if i did not want to play foot ball or any other sports
Lnb1771
Yellow-bellied Woodpecker
Joined: 19 Sep 2011
Age: 53
Gender: Female
Posts: 74
Location: United States
That's my opinion on ABA.
Basically, they are training kids to show the symptoms of autism less; and then they are rating the success of treatment by whether or not the kids show autism less. The studies that tested ABA all used autism rating scales as measures of success; but the autism rating scales all measure basically one thing: The superficial symptoms of autism. Train a child to hide those, and the treatment is "successful". There was no measurement of whether the children were emotionally happier, gained ability in daily living and academic activities, or were better able to communicate their own ideas instead of ABA-scripted phrases. There was no long-term outcome study at all.
I appreciate what you're saying about ABA studies. The Lovaas study did a follow-up ten years later to see if the gains made "stuck." I know this because I was one of the ones he studied. There are flaws with his methodology, no doubt. He tended to cherry pick his treatment group based on functioning level and ability for parents to commit to a 40hr/week therapy schedule. The control group only got 10 hours/week. The real problem I see with the study was the researchers encouraging my parents to NEVER tell me about my autism. IMHO, that is where the real damage occurred (at least in my case).
Interesting website BTW.
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