What motivates Self-Diagnosis?
wendigopsychosis
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Joined: 11 Apr 2010
Age: 33
Gender: Female
Posts: 471
Location: United States
As of now I'm self-diagnosed, though next monday I'm going in to get a diagnosis.
I hate self-diagnosis, which is why I've been bouncing between therapists for a couple months trying to get an official diagnosis. I hate self-diagnosis because I feel like it makes me sound like I'm trying to excuse my problems with a label.
I never even considered I might have ASD until my aspergian boyfriend suggested it (he still says he thinks I'm more autistic than he is, though I beg to differ...). I always thought there was just something wrong with me, and I'm just not meant to interact with normal people. (Normal being charismatic, well adjusted people. Not all NTs. "NT" is not an accurate title, I think.)
I had an ex-boyfriend who was incredibly in touch with his emotions. He was popular in high school, charismatic, the life of the party, and everything else that I wasn't. He tried very hard to "fix" me, but it never really worked. I learned a lot though (for example, when someone says "Hi, how are you" instead of saying "good" I'm supposed to say "I'm good, how are you?").
What always came up was this situation:
My boyfriend would be upset, crying, or I would be upset, crying, etc. Either way, we'd be having some sort of argument involving emotions.
He would share his side of things, how he felt, all that. Then came the dreaded "tell me how you feel."
My mind would always go completely blank. I would stutter, I would sit in silence trying (trying trying trying) to come up with something to say, to be able to explain myself, explain why I felt a certain way. I couldn't. There was nothing there.
He would then tell me, "You're thinking too hard, don't think, just talk."
I would tell him that there was nothing in my head. I can't just talk. There's nothing there. I just don't know.
He would then get angry. He would scream things like, "Just f*****g say what you mean! You're a human being! You have feelings! You're not a robot! You're not ret*d! You're making me doubt your intelligence! I know you're smart enough to know your own mind!"
I would just clam up even more, obviously.
I never understood what was wrong with me, because clearly something was wrong with me. Here's a perfectly normal (if not better than normal) guy who can say what he thinks, what he feels, express himself... and here I am, a girl, the emotional sex, who simply shuts down when confronted with this. Blue screen of death, so to speak.
That's just one example of an autistic symptom that I didn't recognize as having anything to do with autism. I really had no idea what autism was, other than the kids I knew in elementary school who couldn't speak or write their own names. I never even once considered that I had Asperger's.
I told my ex-boyfriend a few weeks ago that I think I have Asperger's. His response was that no, of course I don't, we're all still growing, and I'm just as smart and capable as the next girl, I just need to take time to learn to express myself.
I want a diagnosis so I can tell my ex-boyfriend that it's not my fault, and I really was trying, and I'm not just stupid.
I also want to be able to understand myself. Because if I don't have Asperger's, then I don't know what's wrong with me. But I'm definitely not normal.
Our experiences are somewhat the same. Wasn't it great to find all of these people here who are more LIKE you than NOT? That was a brand new experience for me. All of my life I find people to be so unlike me.
What about Inertia did you read here recently?
I don't think I could find the thread. It was mentioned more than discussed. But my response was OMG that too?I have attributed it to general worthlessness and then later to executive dysfunction related to one of my diagnoses of inattentive ADD later in life. It's like there's a glitch between thought and action. I have to force myself to do everything and then I'm exhausted after.
Oh I see - like being frozen and unable to get started on something?
I frequently have that feeling. Once I finally do start on something then I get consumed with it and can't stop. Changing up is difficult, and getting started is very difficult.
My son definitely has that too.
And we both at times have a sense that time is different than it really is. I'm very time oriented - have clocks within sight nearly everywhere, but that's because I'm aware MY time is not the same as everyone else's time.
There are times when I'm sure 20 minutes have gone by and the clock says only 2....
Or worse, I believe I have enough time to do 3 tasks and still get out the door but it's just impossible to do that. Each task takes approx 5 minutes to accomplish and I have to be out the door in 5 minutes, so of course do the math - it won't work. When my son does it I can clearly point out the error - add up the time and point to the clock and show him he's miscalculating but when I do it I somehow believe it will work.
As if to us time is much more rubbery and flexible - it stretches when we want and it shrinks when we want. Then we're shocked to find ourselves late or otherwise messed up because the time didn't cooperate and change like we wanted.
_________________
Solitude is impracticable, and society fatal.
-- Emerson
A lot of what I would say is said here. But I'd like to add something. I'm not saying that it applies to anyone on this forum. People who are like this would probably not be here, anyway.
I've been talking to a friend on the phone. He has OCD and social anxiety. He also used to think that he had AS, but still thinks that he has traits of it. We were having a conversation about AS, and I remember him saying:
"But I still think I have AS"
Me: "Why do you want to label yourself? It almost seems to me like you want to have it."
Him: "But AS is cool. Look how many great thinkers had it. Newton, Einstein..."
No. And he thinks I'm crazy because of my interests, my bluntness, etc. People like that should get AS for a day and see what it's like.
_________________
Leading a double life and loving it (but exhausted).
Likely ADHD instead of what I've been diagnosed with before.
That way of thinking can be a double edged sword.
If you do have AS, it's a way of saying HEY - we're not LESS THAN, we're just different. Proof of that is look at these great minds who also had AS!
It's a way of standing up for yourself and pointing to very successful people who had what you have and were great.
But if you don't have AS and you just want to be associated with those big thinkers and famous people, that's not good.
It can go both ways.
I've learned to like myself in spite of symptoms and quirks and accept myself but it's taken nearly 50 years. To me, it's good to know about the great people who did and do have AS. It's encouraging. And my AS makes me unique and who I am, so I can't wish it away without wishing myself away.
I have to add that I've always wanted to be able to go along in what seems like a more effortless life, like NTs.
_________________
Solitude is impracticable, and society fatal.
-- Emerson
I thought I suffered from depressia. I was browsing the Internet to figure this all out. Browsing and browsing... There was always something missing. Accidentaly I bumped on a person with Asperger's and I was just curious what Asperger's was. Eureka!! It was like finding my biography written by many people!
I didn't diagnose myself because I wanted to belong somewhere. It was part of wanting to find an inner peace and part of pure coincidence.
_________________
Love,
A
MONKEY
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Joined: 3 Jan 2009
Age: 32
Gender: Female
Posts: 9,896
Location: Stoke, England (sometimes :P)
I've been talking to a friend on the phone. He has OCD and social anxiety. He also used to think that he had AS, but still thinks that he has traits of it. We were having a conversation about AS, and I remember him saying:
"But I still think I have AS"
Me: "Why do you want to label yourself? It almost seems to me like you want to have it."
Him: "But AS is cool. Look how many great thinkers had it. Newton, Einstein..."
No. And he thinks I'm crazy because of my interests, my bluntness, etc. People like that should get AS for a day and see what it's like.
OMG those kinds of people do my head in. AS is not cool for crying out loud.
_________________
What film do atheists watch on Christmas?
Coincidence on 34th street.
MONKEY
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Joined: 3 Jan 2009
Age: 32
Gender: Female
Posts: 9,896
Location: Stoke, England (sometimes :P)
Well, in my opinion it isn't cool anyway. It's not something I'd want to make a craze out of.
I doubt a lot of the people who think AS is really cool and stuff would think the same way if they had it. (The one's that don't already I mean, like the guy mathgirl mentioned)
_________________
What film do atheists watch on Christmas?
Coincidence on 34th street.
Well a lot of the things AS put me through does not make it fun. But I think a lot of help and support and undertstandng would have gone a long way but it is hard to come by.
I have personally never met a person who thought they had AS because they thought it was cool. but perhaps they are out there but I havent encountered them yet....
_________________
"Caravan is the name of my history, and my life an extraordinary adventure."
~ Amin Maalouf
Taking a break.
I've been talking to a friend on the phone. He has OCD and social anxiety. He also used to think that he had AS, but still thinks that he has traits of it. We were having a conversation about AS, and I remember him saying:
"But I still think I have AS"
Me: "Why do you want to label yourself? It almost seems to me like you want to have it."
Him: "But AS is cool. Look how many great thinkers had it. Newton, Einstein..."
No. And he thinks I'm crazy because of my interests, my bluntness, etc. People like that should get AS for a day and see what it's like.
OMG those kinds of people do my head in. AS is not cool for crying out loud.
AS is the antithesis of cool. It's a comfort to be here, but it's not so fun out in the real world.
MONKEY
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Joined: 3 Jan 2009
Age: 32
Gender: Female
Posts: 9,896
Location: Stoke, England (sometimes :P)
I have personally never met a person who thought they had AS because they thought it was cool. but perhaps they are out there but I havent encountered them yet....
There are those out there, they tend to be on the internet though. And there are some that do have it and say that makes them completely awesome in every way and the rest of the population are lower life forms (I've seen a few of them on here actually).
_________________
What film do atheists watch on Christmas?
Coincidence on 34th street.
I have personally never met a person who thought they had AS because they thought it was cool. but perhaps they are out there but I havent encountered them yet....
There are those out there, they tend to be on the internet though. And there are some that do have it and say that makes them completely awesome in every way and the rest of the population are lower life forms (I've seen a few of them on here actually).
I don't think anyone would ever understand what goes on in my mind unless they live in my shoes for a day or two. I may appear to cope very well, but it's also not that easy. I don't know how these people can say that they are greater than the rest of the population, heh. I find it very difficult to cooperate with aspies. The world, however, runs on cooperation.
_________________
Leading a double life and loving it (but exhausted).
Likely ADHD instead of what I've been diagnosed with before.
Last edited by MathGirl on 12 Apr 2010, 6:24 pm, edited 1 time in total.
MONKEY
Veteran
Joined: 3 Jan 2009
Age: 32
Gender: Female
Posts: 9,896
Location: Stoke, England (sometimes :P)
I have personally never met a person who thought they had AS because they thought it was cool. but perhaps they are out there but I havent encountered them yet....
There are those out there, they tend to be on the internet though. And there are some that do have it and say that makes them completely awesome in every way and the rest of the population are lower life forms (I've seen a few of them on here actually).
I don't think anyone would ever understand what goes on in my mind unless they live in my shoes for a day or two. I may appear to cope very well, but it's also not that easy.
This.
While I'm living at home things are a piece of piss compared to when I'll be in the real world. And still I'm a mess with some things.
_________________
What film do atheists watch on Christmas?
Coincidence on 34th street.
I have personally never met a person who thought they had AS because they thought it was cool. but perhaps they are out there but I havent encountered them yet....
There are those out there, they tend to be on the internet though. And there are some that do have it and say that makes them completely awesome in every way and the rest of the population are lower life forms (I've seen a few of them on here actually).
I don't think anyone would ever understand what goes on in my mind unless they live in my shoes for a day or two. I may appear to cope very well, but it's also not that easy.
This.
While I'm living at home things are a piece of piss compared to when I'll be in the real world. And still I'm a mess with some things.
I think many of the people who write the "Aspies are better" posts are people who were bullied severely in childhood and then went on to have horrible workplace experiences too. They hate NTs because they have not had good experiences with them. I had to be careful I didnt go down that road, of hating NTs. This board was very helpful with gettng me through some hard times when working.
_________________
"Caravan is the name of my history, and my life an extraordinary adventure."
~ Amin Maalouf
Taking a break.
I imagine if someone found they couldn't form meaningful, lasting relationships a community containing other people with similar situations would look pretty good (oh the irony), regardless of the fact they'd be putting on an identity that many NTs would call "ret*d" . As long as the person's got a place to belong, the scorn and disregard of the majority can go hang itself. I personally think self-diagnosing AS is an effort to fulfill the need to belong. In a way it reminds me of the goth kids in high school who were all very dark, sinister, and lonely people. Together. Which strikes me the same way someone walking out of a Chinese buffet saying "I'm hungry" does.
One of us is confused, if it's me, pardon my confusion. This website, Wrong Planet, is not autism or asperger syndrome. In my mind making the argument that it is even an actual 'place to belong' is stretching it a bit. I don't see any evidence from your post that you are referring to anything other than this website. I clicked on one of the choices when I came here and I use this website in accordance with how the admin/owner intends it, otherwise I expect to be booted. Mainly it's a vent, this website...I'm not under any illusion that this website *is* asperger syndrome, or my asperger syndrome, or that I can be beknighted (or not) as aspie here. Wonder how many un- or self-diagnosed people donate money for the new server needed...see where it gets murky?
She's right, I didn't include anything to suggest I wasn't just talking about this website. I'd like to add that, before identifying with AS, someone might hold a different attitude about it. If someone they knew mentioned they had AS or HFA, they wouldn't have felt like it was something they had in common. It appears I tailored my post for relevance to this online community, rather then the AS/HFA community at large.
Trolls? On a forum for AS/HFA? No way! But seriously, this post is good stuff.
_________________
"You mock my pain!"
"Life is pain ... Anyone who says differently is selling something." - Wesley, the Dread Pirate Roberts in 'The Princess Bride'
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