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wendigopsychosis
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12 Apr 2010, 3:17 pm

As of now I'm self-diagnosed, though next monday I'm going in to get a diagnosis.

I hate self-diagnosis, which is why I've been bouncing between therapists for a couple months trying to get an official diagnosis. I hate self-diagnosis because I feel like it makes me sound like I'm trying to excuse my problems with a label.

I never even considered I might have ASD until my aspergian boyfriend suggested it (he still says he thinks I'm more autistic than he is, though I beg to differ...). I always thought there was just something wrong with me, and I'm just not meant to interact with normal people. (Normal being charismatic, well adjusted people. Not all NTs. "NT" is not an accurate title, I think.)
I had an ex-boyfriend who was incredibly in touch with his emotions. He was popular in high school, charismatic, the life of the party, and everything else that I wasn't. He tried very hard to "fix" me, but it never really worked. I learned a lot though (for example, when someone says "Hi, how are you" instead of saying "good" I'm supposed to say "I'm good, how are you?").
What always came up was this situation:

My boyfriend would be upset, crying, or I would be upset, crying, etc. Either way, we'd be having some sort of argument involving emotions.
He would share his side of things, how he felt, all that. Then came the dreaded "tell me how you feel."
My mind would always go completely blank. I would stutter, I would sit in silence trying (trying trying trying) to come up with something to say, to be able to explain myself, explain why I felt a certain way. I couldn't. There was nothing there.
He would then tell me, "You're thinking too hard, don't think, just talk."
I would tell him that there was nothing in my head. I can't just talk. There's nothing there. I just don't know.
He would then get angry. He would scream things like, "Just f*****g say what you mean! You're a human being! You have feelings! You're not a robot! You're not ret*d! You're making me doubt your intelligence! I know you're smart enough to know your own mind!"
I would just clam up even more, obviously.
I never understood what was wrong with me, because clearly something was wrong with me. Here's a perfectly normal (if not better than normal) guy who can say what he thinks, what he feels, express himself... and here I am, a girl, the emotional sex, who simply shuts down when confronted with this. Blue screen of death, so to speak.
That's just one example of an autistic symptom that I didn't recognize as having anything to do with autism. I really had no idea what autism was, other than the kids I knew in elementary school who couldn't speak or write their own names. I never even once considered that I had Asperger's.

I told my ex-boyfriend a few weeks ago that I think I have Asperger's. His response was that no, of course I don't, we're all still growing, and I'm just as smart and capable as the next girl, I just need to take time to learn to express myself.

I want a diagnosis so I can tell my ex-boyfriend that it's not my fault, and I really was trying, and I'm not just stupid.
I also want to be able to understand myself. Because if I don't have Asperger's, then I don't know what's wrong with me. But I'm definitely not normal.



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12 Apr 2010, 3:32 pm

earthmom wrote:
Aimless wrote:
My son was placed in a preschool for the developmentally delayed because he didn't talk. The school had him assessed when he was 5 and he was diagnosed with Asperger's Syndrome. I thought it referred to his sensory sensitivity. I started reading about it and like many others started recognizing myself. I was a child many years before any form of higher functioning autism was considered but I was placed in therapy in 3rd grade because I was "maladjusted" and unable to socialize. My mother said I did not cry to be held as an infant and did not talk as a toddler. At 17, I was provisionally diagnosed with Schizoid personality Disorder. I didn't have my first "real" boyfriend until I was 40 years old (That one wasn't real either but it lasted about a year and a half). When I started reading about AS and saw the diagnostic criteria, I thought maybe. Then I read Carol Gray and Tony Attwood's Discovery Criteria and found more specific similarities. Eventually I found Wrong Planet and over the past year have been continually amazed at the myriad ways that my particular idiosyncrasies match other members. I'm old enough to know what my struggles are and even yesterday a problem that has been a part of me as long as I can remember was mentioned.Inertia, which has been the bane of my life. I never knew it was associated with AS. I have had struggles that I have never been able to overcome. You can either consider each symptom and come up with a separate diagnosis for each(and they have), but if you find something that covers all of it, then that is the logical choice. I don't have the means to be formally diagnosed and at least in my area, the professionals do not know how AS manifests in adults. I used to want to belong in real life but now I recognize it's beyond my capability and I also realize how any attempt will exhaust me. Meh, I did not go looking for an explanation for myself. I started reading for my son and found myself. And in conclusion, blah blah blah,blah blah blah. :roll:


Our experiences are somewhat the same. Wasn't it great to find all of these people here who are more LIKE you than NOT? :) That was a brand new experience for me. All of my life I find people to be so unlike me.

What about Inertia did you read here recently?


I don't think I could find the thread. It was mentioned more than discussed. But my response was OMG that too?I have attributed it to general worthlessness and then later to executive dysfunction related to one of my diagnoses of inattentive ADD later in life. It's like there's a glitch between thought and action. I have to force myself to do everything and then I'm exhausted after.



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12 Apr 2010, 3:49 pm

Oh I see - like being frozen and unable to get started on something?

I frequently have that feeling. Once I finally do start on something then I get consumed with it and can't stop. Changing up is difficult, and getting started is very difficult.

My son definitely has that too.

And we both at times have a sense that time is different than it really is. I'm very time oriented - have clocks within sight nearly everywhere, but that's because I'm aware MY time is not the same as everyone else's time.

There are times when I'm sure 20 minutes have gone by and the clock says only 2....

Or worse, I believe I have enough time to do 3 tasks and still get out the door but it's just impossible to do that. Each task takes approx 5 minutes to accomplish and I have to be out the door in 5 minutes, so of course do the math - it won't work. When my son does it I can clearly point out the error - add up the time and point to the clock and show him he's miscalculating but when I do it I somehow believe it will work.

As if to us time is much more rubbery and flexible - it stretches when we want and it shrinks when we want. :) Then we're shocked to find ourselves late or otherwise messed up because the time didn't cooperate and change like we wanted.


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12 Apr 2010, 5:17 pm

A lot of what I would say is said here. But I'd like to add something. I'm not saying that it applies to anyone on this forum. People who are like this would probably not be here, anyway.

I've been talking to a friend on the phone. He has OCD and social anxiety. He also used to think that he had AS, but still thinks that he has traits of it. We were having a conversation about AS, and I remember him saying:
"But I still think I have AS"
Me: "Why do you want to label yourself? It almost seems to me like you want to have it."
Him: "But AS is cool. Look how many great thinkers had it. Newton, Einstein..."

No. And he thinks I'm crazy because of my interests, my bluntness, etc. People like that should get AS for a day and see what it's like.


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12 Apr 2010, 5:31 pm

That way of thinking can be a double edged sword.

If you do have AS, it's a way of saying HEY - we're not LESS THAN, we're just different. Proof of that is look at these great minds who also had AS!

It's a way of standing up for yourself and pointing to very successful people who had what you have and were great.

But if you don't have AS and you just want to be associated with those big thinkers and famous people, that's not good.

It can go both ways.

I've learned to like myself in spite of symptoms and quirks and accept myself but it's taken nearly 50 years. To me, it's good to know about the great people who did and do have AS. It's encouraging. And my AS makes me unique and who I am, so I can't wish it away without wishing myself away.

I have to add that I've always wanted to be able to go along in what seems like a more effortless life, like NTs.


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12 Apr 2010, 5:45 pm

I thought I suffered from depressia. I was browsing the Internet to figure this all out. Browsing and browsing... There was always something missing. Accidentaly I bumped on a person with Asperger's and I was just curious what Asperger's was. Eureka!! :lol: It was like finding my biography written by many people!
I didn't diagnose myself because I wanted to belong somewhere. It was part of wanting to find an inner peace and part of pure coincidence.


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12 Apr 2010, 5:50 pm

MathGirl wrote:
A lot of what I would say is said here. But I'd like to add something. I'm not saying that it applies to anyone on this forum. People who are like this would probably not be here, anyway.

I've been talking to a friend on the phone. He has OCD and social anxiety. He also used to think that he had AS, but still thinks that he has traits of it. We were having a conversation about AS, and I remember him saying:
"But I still think I have AS"
Me: "Why do you want to label yourself? It almost seems to me like you want to have it."
Him: "But AS is cool. Look how many great thinkers had it. Newton, Einstein..."

No. And he thinks I'm crazy because of my interests, my bluntness, etc. People like that should get AS for a day and see what it's like.


OMG those kinds of people do my head in. AS is not cool for crying out loud.


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12 Apr 2010, 5:57 pm

^Isnt it? Perhaps it is, and we have let others tell us it isnt.


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12 Apr 2010, 6:01 pm

zen_mistress wrote:
^Isnt it? Perhaps it is, and we have let others tell us it isnt.


Well, in my opinion it isn't cool anyway. It's not something I'd want to make a craze out of.
I doubt a lot of the people who think AS is really cool and stuff would think the same way if they had it. (The one's that don't already I mean, like the guy mathgirl mentioned)


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12 Apr 2010, 6:06 pm

Well a lot of the things AS put me through does not make it fun. But I think a lot of help and support and undertstandng would have gone a long way but it is hard to come by.

I have personally never met a person who thought they had AS because they thought it was cool. but perhaps they are out there but I havent encountered them yet....


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12 Apr 2010, 6:08 pm

MONKEY wrote:
MathGirl wrote:
A lot of what I would say is said here. But I'd like to add something. I'm not saying that it applies to anyone on this forum. People who are like this would probably not be here, anyway.

I've been talking to a friend on the phone. He has OCD and social anxiety. He also used to think that he had AS, but still thinks that he has traits of it. We were having a conversation about AS, and I remember him saying:
"But I still think I have AS"
Me: "Why do you want to label yourself? It almost seems to me like you want to have it."
Him: "But AS is cool. Look how many great thinkers had it. Newton, Einstein..."

No. And he thinks I'm crazy because of my interests, my bluntness, etc. People like that should get AS for a day and see what it's like.


OMG those kinds of people do my head in. AS is not cool for crying out loud.


AS is the antithesis of cool. It's a comfort to be here, but it's not so fun out in the real world.



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12 Apr 2010, 6:09 pm

zen_mistress wrote:
Well a lot of the things AS put me through does not make it fun. But I think a lot of help and support and undertstandng would have gone a long way but it is hard to come by.

I have personally never met a person who thought they had AS because they thought it was cool. but perhaps they are out there but I havent encountered them yet....


There are those out there, they tend to be on the internet though. And there are some that do have it and say that makes them completely awesome in every way and the rest of the population are lower life forms (I've seen a few of them on here actually).


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12 Apr 2010, 6:20 pm

MONKEY wrote:
zen_mistress wrote:
Well a lot of the things AS put me through does not make it fun. But I think a lot of help and support and undertstandng would have gone a long way but it is hard to come by.
I have personally never met a person who thought they had AS because they thought it was cool. but perhaps they are out there but I havent encountered them yet....

There are those out there, they tend to be on the internet though. And there are some that do have it and say that makes them completely awesome in every way and the rest of the population are lower life forms (I've seen a few of them on here actually).
Well, I agree that it makes me awesome in a different kind of way. But on the other hand, it's very hard to live this way, when the rest of the world operates differently. I'm lucky to be surrounded with understanding and supportive people, but many people on this forum happen to live in much worse conditions. It's also easier when you're young. You pretty much depend on your parents to do lots of everyday things for you. But I can imagine how life would be exponentially more stressful for me once I begin to have to cook, clean, and do all of my shopping on my own., in addition to at least being able to find a stable job. Even now, I am frequently under stress, even though I live in the most possibly supportive environment.

I don't think anyone would ever understand what goes on in my mind unless they live in my shoes for a day or two. I may appear to cope very well, but it's also not that easy. I don't know how these people can say that they are greater than the rest of the population, heh. I find it very difficult to cooperate with aspies. The world, however, runs on cooperation.


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Last edited by MathGirl on 12 Apr 2010, 6:24 pm, edited 1 time in total.

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12 Apr 2010, 6:23 pm

MathGirl wrote:
MONKEY wrote:
zen_mistress wrote:
Well a lot of the things AS put me through does not make it fun. But I think a lot of help and support and undertstandng would have gone a long way but it is hard to come by.
I have personally never met a person who thought they had AS because they thought it was cool. but perhaps they are out there but I havent encountered them yet....

There are those out there, they tend to be on the internet though. And there are some that do have it and say that makes them completely awesome in every way and the rest of the population are lower life forms (I've seen a few of them on here actually).
Well, I agree that it makes me awesome in a different kind of way. But on the other hand, it's very hard to live this way, when the rest of the world operates differently. I'm lucky to be surrounded with understanding and supportive people, but many people on this forum happen to live in much worse conditions. It's also easier when you're young. You pretty much depend on your parents to do lots of everyday things for you. But I can imagine how life would be exponentially more stressful for me once I begin to have to cook, clean, and do all of my shopping on my own., in addition to at least being able to find a stable job. Even now, I am frequently under stress, even though I live in the most possibly supportive environment.

I don't think anyone would ever understand what goes on in my mind unless they live in my shoes for a day or two. I may appear to cope very well, but it's also not that easy.


This.
While I'm living at home things are a piece of piss compared to when I'll be in the real world. And still I'm a mess with some things.


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12 Apr 2010, 6:39 pm

MONKEY wrote:
MathGirl wrote:
MONKEY wrote:
zen_mistress wrote:
Well a lot of the things AS put me through does not make it fun. But I think a lot of help and support and undertstandng would have gone a long way but it is hard to come by.
I have personally never met a person who thought they had AS because they thought it was cool. but perhaps they are out there but I havent encountered them yet....

There are those out there, they tend to be on the internet though. And there are some that do have it and say that makes them completely awesome in every way and the rest of the population are lower life forms (I've seen a few of them on here actually).
Well, I agree that it makes me awesome in a different kind of way. But on the other hand, it's very hard to live this way, when the rest of the world operates differently. I'm lucky to be surrounded with understanding and supportive people, but many people on this forum happen to live in much worse conditions. It's also easier when you're young. You pretty much depend on your parents to do lots of everyday things for you. But I can imagine how life would be exponentially more stressful for me once I begin to have to cook, clean, and do all of my shopping on my own., in addition to at least being able to find a stable job. Even now, I am frequently under stress, even though I live in the most possibly supportive environment.

I don't think anyone would ever understand what goes on in my mind unless they live in my shoes for a day or two. I may appear to cope very well, but it's also not that easy.


This.
While I'm living at home things are a piece of piss compared to when I'll be in the real world. And still I'm a mess with some things.


I think many of the people who write the "Aspies are better" posts are people who were bullied severely in childhood and then went on to have horrible workplace experiences too. They hate NTs because they have not had good experiences with them. I had to be careful I didnt go down that road, of hating NTs. This board was very helpful with gettng me through some hard times when working.


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12 Apr 2010, 6:40 pm

alana wrote:
wolfdog64 wrote:

I imagine if someone found they couldn't form meaningful, lasting relationships a community containing other people with similar situations would look pretty good (oh the irony), regardless of the fact they'd be putting on an identity that many NTs would call "ret*d" . As long as the person's got a place to belong, the scorn and disregard of the majority can go hang itself. I personally think self-diagnosing AS is an effort to fulfill the need to belong. In a way it reminds me of the goth kids in high school who were all very dark, sinister, and lonely people. Together. Which strikes me the same way someone walking out of a Chinese buffet saying "I'm hungry" does.


One of us is confused, if it's me, pardon my confusion. This website, Wrong Planet, is not autism or asperger syndrome. In my mind making the argument that it is even an actual 'place to belong' is stretching it a bit. I don't see any evidence from your post that you are referring to anything other than this website. I clicked on one of the choices when I came here and I use this website in accordance with how the admin/owner intends it, otherwise I expect to be booted. Mainly it's a vent, this website...I'm not under any illusion that this website *is* asperger syndrome, or my asperger syndrome, or that I can be beknighted (or not) as aspie here. Wonder how many un- or self-diagnosed people donate money for the new server needed...see where it gets murky?


She's right, I didn't include anything to suggest I wasn't just talking about this website. I'd like to add that, before identifying with AS, someone might hold a different attitude about it. If someone they knew mentioned they had AS or HFA, they wouldn't have felt like it was something they had in common. It appears I tailored my post for relevance to this online community, rather then the AS/HFA community at large.

alana wrote:
I don't know any AS or HFA people in my real life, so none of that belonging stuff applies to me. As far as your reluctance to call yourself AS, it doesn't really matter. I never look at people's diagnostic status on here so I would never have known...I'm just not interested because in my view for every undiagnosed person here there is probably a misdiagnosed one as well. Some people here have openly admitted to trolling other boards so there is little reason to believe that isn't going on here alot too. In short it's just a website on the internet, it shouldn't be given any more weight than that.


Trolls? On a forum for AS/HFA? No way! But seriously, this post is good stuff.


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