Self DX vs. real DX -a new perspective for me!

Page 3 of 3 [ 35 posts ]  Go to page Previous  1, 2, 3

Mysty
Veteran
Veteran

User avatar

Joined: 24 Jun 2008
Age: 55
Gender: Female
Posts: 1,762

17 Jun 2010, 4:48 pm

MrXxx wrote:
zen_mistress wrote:
MrXxx wrote:
Sure, but that qualifies in my mind as an impairment. If it affects your quality of life, it's a disability. When I use the term, I don't restrict it's meaning to he legal sense of the word. If it causes you difficulty, it's worth getting a DX that will qualify you for further treatment.


I don't think you (if you are one who manages to hold a decent job or career), are necessarily a "fake" just because you don't seek a DX. You may very well have AS, but you also have options the rest of us do not have. With a good job, you could choose to be evaluated, and use the DX to get treatment for interpersonal problems. But you choose not to. That raises what I now see as understandable questions in the minds of others for whom AS is a much more serious problem.

If your relationship troubles are serious, why not seek treatment? Why choose to do nothing more than what you are doing, which is admittedly not "nothing," but not as much as you could do?

I'm just saying I think I understand now why others may not take you seriously, but I'm not saying it's necessarily fair not to either. We don't know what your personal circumstances are. For all we know, getting full blown treatment might mean a choice between giving up your home or just learning on your own to deal with it.


What treatment? Anyone could go to a psychologist or take a social skills class without a diagnosis. Anyone could get counselling with relationships (though most therapists struggle to understand people with AS anyway :? . Why get a DX if you already know you struggle with social skills and relationships. Unless you were enrolling in some class which required a DX on entry, there would be no need,unless you wanted one for your own reasons.


Uh...

Any treatment available for AS? If AS is the problem, why not seek treatment geared toward AS? If a counselor is struggling to understand people with AS, that counselor obviously doesn't specialize in AS. The kind of social skills and relationship problems that AS causes are not your standard social skills problems. If AS is the cause of the problems, a counselor with little to no training in AS, would more than likely not be able to help as well as a counselor with proper AS training.

Trust me, I've been there, and it does more harm than good sometimes. I've seen treatments used on Aspies that were not geared toward Autism backfire and cause even more problems than they were trying to solve. With a DX and properly designed treatment, things go much more smoothly. That I have seen with my own eyes.


Which just brings the question, what treatment for AS? Where is this treatment for adults with AS? We are talking adults, after all, aren't we?


_________________
not aspie, not NT, somewhere in between
Aspie Quiz: 110 Aspie, 103 Neurotypical.
Used to be more autistic than I am now.


Mysty
Veteran
Veteran

User avatar

Joined: 24 Jun 2008
Age: 55
Gender: Female
Posts: 1,762

17 Jun 2010, 4:50 pm

MrXxx wrote:
zen_mistress wrote:
yes, but I got a whole year of counselling from the counsellor who was referred to me by the local Autism centre back at my home city.

I didnt have a DX then but had many good sessions with her. I did get a DX in December but I dont see how this opens up extra counsellng for me.. all the counselling services that I will get now were available back then before my dx.


Well then, it looks to me like you got what you needed without the DX, so you didn't need one. For most of us though, who can't pay for the long term stuff for ourselves, the DX is critical. I, as well as many others cannot get the support we need for the long term without it.

I never said YOU specifically needed one. I don't (or didn't) know your particular circumstances. Like I have been saying all along, this isn't about telling anyone what they should or should not do, or should or should not think. It's about me trying to understand BOTH sides of this issue. I do now. And the first post is simply an explanation of how I came to see a side I did not see before. It's not about convincing you or anyone else anything. It's about what I've learned. That's all.


What? She's not a part of the everyone you were talking about? At least, your generalization sure seemed to include everyone.

Yes, I realize that starting this thread was about understanding a certain point of view. None the less, you have said things with in it that sure sound to me like you are saying everyone who thinks they have AS should get a diagnosis. Which, as a comment about everyone, does apply to individuals.


_________________
not aspie, not NT, somewhere in between
Aspie Quiz: 110 Aspie, 103 Neurotypical.
Used to be more autistic than I am now.


MrXxx
Veteran
Veteran

User avatar

Joined: 11 May 2010
Age: 64
Gender: Male
Posts: 5,760
Location: New England

17 Jun 2010, 5:01 pm

capriwim wrote:
I would doubt the ability of the 'experts' to know exactly what would benefit me, as there are so many stereotypes and myths surrounding Aspergers, and the 'experts' don't fully understand it. I have taught myself a lot regarding social/communication skills...


Right. And that is what makes it such a difficult thing for us to obtain the help we need. There is no question it takes at least some self-education, both in coming to understand Asperger's and in coming to understand oneself. Most experts you'll encounter specialize in one thing or another, and there aren't that many who specialize in Autism. There are a lot out there, I believe, who do provide therapy without the proper understanding of AS. I've found in my own experience that it can be a colossal waste of time to work with them, unless they are willing to learn, and DO learn more about AS. A couple of people we have worked with DID actually take some specialized training to deal with our boys in school. The difference between the way they handled the boys, and the success they were having before the training, and that of after the training was like night and day. Clearly training and better understanding are critical.

It did take a lot of self-advocacy on our part, in behalf of our boys. We began that process before we began to suspect perhaps we we may be Aspies ourselves. It was hard, but we felt like we between a rock and a hard place, and I'm sure you'll agree that for a lot of Aspies, there can be a fight or flight response when that happens. We chose to fight, but both of use tend to fight with stubbornness, determination and standing our ground over and over until what we think needs to happen, happens. It paid off for us were our kids are concerned. Now we are realizing the same tactics may be needed, and may work where our own personal support is concerned.

capriwim wrote:
IBut with regard to people taking 'no' at face value, and not pushing, well, taking things literally does tend to be a characteristic of a lot of people on the spectrum. It's taken me many years to realise that 'no' isn't necessarily the final answer.


Yes, and it isn't just an "Aspie" trait either. Earlier I mentioned studying some positive thinking and influence techniques. I never became very good at it, but I did learn a few things that looking back seem surprising I never before understood. That "no" doesn't always mean "no." It often only means "Not right now." If you never go back and ask again, when it could be possible the answer might be "yes." You'll never know. Aspies certainly don't have a monopoly on this trait, but it is usually a very strong one it it's there. It used to be with me, but I'm learning. It takes a lot of patience, persistence and tenacity to not give up.

Ironically, I have one Aspie son who NEVER takes no for an answer, but his problem is not that he gives up. It's the opposite. He hasn't learned yet to give it a little time before asking again. If he gets a "no," he starts in immediately with a barrage of challenges and questions as to our reasoning to the point of ad naseum. He is slowly learning that it doesn't work and only serves to irritate people and cause them to more quickly shut down on him, and NEVER reconsider whatever his request is.

It's a fine line I think we all tend not to be very good at walking at first, but practice makes perfect. You can't get good at anything if you never try it, and don't practice it until you get better at it. It does take us longer than NT's, but it's not impossible to learn. You just have to do it, and quit worrying about whether you're doing it right on the first try. Make a mess of it, and try again. Over and over, until you start getting it right.


_________________
I'm not likely to be around much longer. As before when I first signed up here years ago, I'm finding that after a long hiatus, and after only a few days back on here, I'm spending way too much time here again already. So I'm requesting my account be locked, banned or whatever. It's just time. Until then, well, I dunno...