Is the majority of the people here really, "mild asperg

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Mack27
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21 Apr 2011, 9:02 am

I'm mild enough that I don't fit in with Asperger's therapy groups. I'm severe enough that people get creeped out the longer they're around me because they sense something is off but don't know what it is.



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21 Apr 2011, 9:08 am

IMO people's assertions of their level of "functioning" are complete BS anyway. Some people are so blind and oblivious to the way they interact and impact on other people even a fellow autistic can pick up on it. But the differance is I tend to be more inclined to tell you if your doing these things or not. Most people think its polite to leave you in the dark and I think thats really wrong and completlely counterproductive if you want people to have a greater understand of themselves and how they come across. Not in order to conform to a normality but to give people a better understanding in interactions so they can actually achieve what they want in life.

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21 Apr 2011, 11:45 am

pensieve wrote:
One thing that confuses me is the lack of people saying they have average Asperger's. It's either mild, moderate or severe. Mild sounds like their symptoms don't bother them much. Moderate sounds like a more serious case and severe sounds like they barely function at all, for someone with AS. Maybe I'm just interpreting the labels wrong. I think it would be better if people that were textbook AS say they were average. I suppose it's a bit of a broad word, far too broad for the detail orientated spectrum.


I really don't know, beyond what I have heard from others. I don't know what average Asperger's would be.

I know my issues aren't mild, though, or at least I've been told.

Laz wrote:
IMO people's assertions of their level of "functioning" are complete BS anyway. Some people are so blind and oblivious to the way they interact and impact on other people even a fellow autistic can pick up on it. But the differance is I tend to be more inclined to tell you if your doing these things or not. Most people think its polite to leave you in the dark and I think thats really wrong and completlely counterproductive if you want people to have a greater understand of themselves and how they come across. Not in order to conform to a normality but to give people a better understanding in interactions so they can actually achieve what they want in life.


People leave you in the dark until they get pissed off at you for not knowing what they were leaving you in the dark about, start a huge amount of drama over the fact that you do not behave strictly according to their scripts, and then accuse you of everything under the sun because apparently one's typical daily behavior betrays a deep and abiding hatred for all human beings.

Especially if the person making all those accusations causes overload as a matter of course.



Last edited by Verdandi on 21 Apr 2011, 2:13 pm, edited 1 time in total.

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21 Apr 2011, 12:28 pm

But the definition of mild can't be that the symptoms don't bother them much, because don't you have to be significantly bothered by them in order to be diagnosed? That's what confuses me. If you have symptoms but they don't impair you in any way, I thought that meant you didn't have any disorder. I agree that most people are probably just average.

I also agree with Laz that it's pretty hard to determine your own functioning level. If you could accurately do that, you probably wouldn't have a problem. :lol:



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21 Apr 2011, 12:40 pm

Yeah, I meant to say something like that as well - I can't really judge the severity of my symptoms, I just know what's been said back to me after I've described them.



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21 Apr 2011, 12:43 pm

Ai_Ling wrote:
So Ive read a ton of threads on here about people talking about how their mild cases. Are most of the people on here really "mild"? Because I would suspect all the people claiming to be mild are range from NTs thinking there aspie to aspies who arent actually mild. It doesnt seem like wp gets a higher representation of people at other ends of the spectrum (or they dont post as much?)

As for me, the psych that diagnosed me with aspergers claimed it was mild, and another psych who I saw a yr later said I had moderate to severe aspergers. So I just put together the diagnosises and say I have mild to moderate aspergers.

Im just wondering?


I consider myself severe, I can't spend time with anyone at all for more then a couple of hours with completely burning out everyday, my need for sameness is broad and my interests are very intense, to the extant that if you say you don't like my special interest then I wont like you.

edit; that said, funtioning levels are BS atm because theres no common criteria, which is why I look foward to the DSM V, by formalising severity levels, which still sounds a bit bullshitty.


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21 Apr 2011, 2:05 pm

I would say that my Aspergers is severe. but how can I really know?.I can drive a car --not the best driver, I'll admit --but I do drive. I can hold a job--not a high-paying job and not a full-time job, but several low-paying part-time jobs despite umpteen college degrees.Is that a disqualifier for severe AS?
Many adult Aspies are married, with families of their own and good steady well-paying jobs. To me, that's mild. If you were severe, you would be alone,To be autistic means to inhabit a universe of one. How can people that have spouses and children claim to be autistic? But they would probably look at me and say, well, you can work and drive a car, and are pretty articulate, so maybe you are only mildly impaired as well. So what's the criteria?



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21 Apr 2011, 2:42 pm

I think I can say fairly authoritatively that my place on the spectrum is on the mild end. I was diagnosed by an AS expert as being on the spectrum, but not fitting the criteria for AS entirely. I come across as unremarkable (that is to say, "normal"), if a little shy and awkward.

Nevertheless, being on the spectrum has had a fairly significant impact on my life. I am obtuse and inflexible when faced with petty cruelty and injustice, and I just can't cope with it at all. When someone underhandedly bullied me out of a circle of friends a few years ago, I took it so hard and so rigidly that I completely excluded myself even from the people who were still willing to be my friends simply because they were still friends with the bully. They were the only circle of friends I had had in years, and I am still devastated by losing them, but I am unable to be flexible enough to accept any part of what happened and live with it, so I had to shut it down completely. I think this is classic AS but it is still fairly subtle, so much so that at the time I didn't realize it had anything to do with being AS (which I didn't know I was at the time though I had suspected it years before). I mention this as an example of being genuinely mild but still at the mercy of the effect it has.

And as far as driving, I find it doable but very difficult. When I tried to explain to a doctor several years ago that I find it hard to drive because I have to pay attention to too many things at once, she said that it was very strange. (At the time I did not suspect I could have AS.) I find it difficult to change lanes and make left turns (impossible if traffic is heavy) and impossible to merge into traffic. I think this is definitely related to AS. Again, it's fairly subtle, and it doesn't make it completely impossible for me to drive, but it's so difficult that it's a real obstacle.



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21 Apr 2011, 2:56 pm

i'm not sure my mom says i'm mild, but i feel like i'm more moderate or severe, i'm going to get retested someday.

back when i was tested i had gone my whole life up to that point convincing myself i was normal, not only that i'm not sure if i understood the questions or i was trying to answer like an NT would.

i also think i may have more then aspergers, someone else told me to look up to other illnesses. i can't remember how to spell them but one is mostly extreme selfishness and the other is bizzare thinking, honestly i think i have both of those.


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21 Apr 2011, 3:04 pm

I think it might appear to be more mildly based because of all the forums dedicated to friends, jobs, schooling, etc that the less mildly affected people will not be able to contribute as much to. The only places I really post are here, Members Only, and the Parent Forum.

I do not consider myself mildly affected mostly because I had very poor awareness of people and myself most of my life. It never occurred to me to fake social skills because I didn't really recognize that such existed. Now that I know a lot more I think it will take a very long time for me to be able to do that, if ever. I also couldn't finish school even only going halfdays because of my asperger's, and it is apparently obvious to most people that something is wrong with me or that I have issues.

But it seems to me like if there are three options, that the middle option would be most likely to be more populous.
............................Asperger's....................................
[----------------------------------------------]
MILD --- MODERATE/AVERAGE --- SEVERE

---------- HFA -------------------- MFA ---------------- LFA
(Autism as a whole)
I would define mild as someone who can treat asperger's more as a personality or just some obstacle to not being able to get a date. That's just how I see it.

Aspies very much like precise definitions and will continue to argue this to their end but it's all very subjective and unless you get their reasoning or feelings on their own label, you can not know to be able to apply it to your own view of such a system.



Last edited by buryuntime on 21 Apr 2011, 3:15 pm, edited 1 time in total.

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21 Apr 2011, 3:08 pm

well I never thought I had anything until the doctor flat out told me I had AS. Then the psychologist that saw my son told me I'm on the autism spectrum. When I came here I said I had "mild AS" but it turns out I don't. My papers say Autism and the psychologists both said AS Moderate.

I manage two children on the spectrum, feed them 3 meals a day plus 2 snacks, take care of a house, go to school, and take care of their various medical problems. I also drive although learning to drive was a horrible experience. I'm working on my second degree and have applied to go to school for a Master's degree.

Now does this mean I get my hair, teeth brushed, showers, wear clean clothes daily, and manage to eat 3 meals a day? No it doesn't. l'm also antisocial and have major sensory issues(so do my children so who better to help them deal with it)



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21 Apr 2011, 6:47 pm

kate123A wrote:
well I never thought I had anything until the doctor flat out told me I had AS. Then the psychologist that saw my son told me I'm on the autism spectrum. When I came here I said I had "mild AS" but it turns out I don't. My papers say Autism and the psychologists both said AS Moderate.

I manage two children on the spectrum, feed them 3 meals a day plus 2 snacks, take care of a house, go to school, and take care of their various medical problems. I also drive although learning to drive was a horrible experience. I'm working on my second degree and have applied to go to school for a Master's degree.

Now does this mean I get my hair, teeth brushed, showers, wear clean clothes daily, and manage to eat 3 meals a day? No it doesn't. l'm also antisocial and have major sensory issues(so do my children so who better to help them deal with it)


i wish i could muster up the courage to drive, the only way i can is if i see the whole car like 3rd person view on gran turismo, so when i play that game and accidently switch to 1st person i slam into a wall and end up losing the race. that's even when i'm driving a car i have driven for years like the lancer evolution. so i didn't care at all the diff between standard and premium cars in their latest game, cause i can't drive in first person anyway.

oh and schizoid was the other illness i may have, actually if i don't have it i will be shocked.


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21 Apr 2011, 8:20 pm

Verdandi wrote:
Yeah, I meant to say something like that as well - I can't really judge the severity of my symptoms, I just know what's been said back to me after I've described them.

I think it's the way we describe them. I'm not really sure if I have it as bad it not as bad as I think I do. The only people around to judge me just say 'snap out of it, act normal, stop being so selfish.' So I really have no idea. But the fact that the same people make me meals, pat me on the head and ask if I'm ok and get other people in the house to keep a distance from me might mean something. It's not as bad as it sounds. They, well she doesn't want me to be uncomfortable even though she does slip up at times with making noise and making jokes about my behaviour with others well within my hearing distance.

Some days I can barely move or I'll stay on the same interest all day. Other days I can clean, talk to people, even go out and do some shopping. Oh but the supermarkets can completely mess that up for me.


buryuntime wrote:
But it seems to me like if there are three options, that the middle option would be most likely to be more populous.
............................Asperger's....................................
[----------------------------------------------]
MILD --- MODERATE/AVERAGE --- SEVERE

---------- HFA -------------------- MFA ---------------- LFA
(Autism as a whole)

I agree.


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21 Apr 2011, 8:33 pm

QueenoftheOwls wrote:
How can people that have spouses and children claim to be autistic?


Maybe because their wife is their support network instead of a social worker? Maybe because they were lucky enough to find a wife that is loyal and unselfish?


Could you put yourself in a room with me and 20 other autistics and figure if I am married or not without asking?


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21 Apr 2011, 8:36 pm

wavefreak58 wrote:
QueenoftheOwls wrote:
How can people that have spouses and children claim to be autistic?


Maybe because their wife is their support network instead of a social worker? Maybe because they were lucky enough to find a wife that is loyal and unselfish?


Could you put yourself in a room with me and 20 other autistics and figure if I am married or not without asking?

I'll look for the guy with the wet suit and wedding ring. :wink:


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22 Apr 2011, 9:31 pm

QueenoftheOwls wrote:
I would say that my Aspergers is severe. but how can I really know?.I can drive a car --not the best driver, I'll admit --but I do drive. I can hold a job--not a high-paying job and not a full-time job, but several low-paying part-time jobs despite umpteen college degrees.Is that a disqualifier for severe AS?
Many adult Aspies are married, with families of their own and good steady well-paying jobs. To me, that's mild. If you were severe, you would be alone,To be autistic means to inhabit a universe of one. How can people that have spouses and children claim to be autistic? But they would probably look at me and say, well, you can work and drive a car, and are pretty articulate, so maybe you are only mildly impaired as well. So what's the criteria?


My husband does not function well. He has a job but does not work well with others. His motto is 'we need a plague' and does not give a crap what anyone thinks. He is very smart but does not have much empathy. But he loves me and we have always connected in a way he rarely experienced. He is a good father most of the time, but does not watch what he says in front of the kids and talks to them like they are adults. He is probably mild but is moderate in a lot of ways.


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