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Verdandi
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07 May 2011, 3:51 pm

Hayes wrote:
Again something that has largely been the case with me also. I think my 'front' was a building up of behavior that I had gradually learned was more normal in company. More usually expected I mean - the knowledge of which made me adapt my demeanor/actions among others. How much of this has now become 'me' is something that concerns me.

It seems notionally incredible that I can get to 40 and have to start wondering 'who am I'...darkly amusing as well but that could just be me.


Yeah, that happens with a lot of autistic adults, I hear. And yes, it is kind of incredible.

The building up of behavior gradually is definitely a thing - I actually did another thing which was consciously construct fronts for particular situations, although most of them were based on the same core stuff. I've let go of some - but not all - of it, and I feel like maintaining it was a large drain on my energy and probably a significant contributor to my depression over the years.



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07 May 2011, 4:05 pm

As 44 year old, i must say that when i first heard of AS, it was one of those aha experiences! But a short story is needed.

I'we always known that i was somehow different. Both in kindergarden, and later on in school. When i was 10, in '77, i were dx'd as MBD, and were told, that it was something i just had to learn to accept!
So i did! - But i never felt as a "normal human"!
Some 23 years later, i desided to find out what MBD was. It was a old dx that by then had been outdated, but MBD stands for Minimal Brain Dysfunction, And i was told it was a dx-umbrella that amongst other consealed ADD ADHD and similar. So, i read the dx's and found out that none of the dx's matched completely. - There were always something... So i just descided to be me, and get the best out of it.

Then, last august, i helped my wife do some research, for her final report. Where she were to write of how to work with a patient with a combined dx of organic paranoid schizophrenia and Aspergers!! !
I started to read about some explanations, on the net, where persons were telling of what their experiences with these dx's were. Within a few articles, about AS, i found out i were reading my own history.
So i found some articles of how to test for AS. I found out that of the traits to look for, I matched around 95%. I took some online tests, AQ SQ EQ and AspieQuiz, and concluded i were almost ecstatic.

FINALLY i knew that i were not alone! - But, after all these years, i really could'nt believe i had found out, why i had all these challenges! Was it the right conclution i had come up with? or had i just being fooling myself? As i have tree children, of whom one is in need of ascesment, that weve been fighting for for far to long, i desided to se if i could persuade my MD to send me to a psychiatrist, specialised in conduct disorders and ASD. He agreed, as he was rather dissatisfied with how the situation was around my child. And after tree months of testings, and interwievs, i was finally given my new identity as Aspie, on 4/3-'11. 8)

But You'we asked of how i felt...
When first finding out about AS i were almost ecstatic. But after a couple of hours, i started to be "a little" depressed. - Why had i not found out before? What now, what would i get from it? Who did i feel should know? would it do any difference? - To my kid? I had used all my life to try to "fit in". Now what sort of reaction would i get from my family? Did they need to know? And hundreds of other questions...
As is, i now have come to the conclution that i wish that i found out in my late teens, as it would have had a great deal of influence on the help to get a education, i could have had! - And by that, have made my life somewhat less stressfull! - The treats would have been the same, but the tools somewhat easier to come by!! !
Another way to look at it is that via the dx iwe had a great deal more self esteem, and self understanding, wia the tools to get in therapy, and via contact with other Aspies...
- No i dont regret that i got the dx!! ! - Only, that theres so many that have seen "Rain-man"! !!



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07 May 2011, 4:25 pm

Hayes wrote:
Is there anyone here who like me only discovered they were AS as an adult? - for me it was 40.


I discoverd August 6th 2010 at age 40

Hayes wrote:
Wondered how you dealt with it? How long did it take to come to terms with - or indeed have you?


I was relieved that I was not insane just a little different. I was put into special education classes when I was in school I always said I wasn't learning disabled but they would say I had ADHD. After being tested for Aspergers they said they saw no signs of a learning disability so I feel vindicated. 8)

Hayes wrote:
If/when you told anyone were they surprised?


My doctor thought I was normal but I do my best to act NT around doctors. I have had two psychologists tell me they knew from the first meeting with me they knew I had AS. My friends some of them say no way I have it while others said they knew something was wrong with me.

Hayes wrote:
Has the discovery changed your life? Would you rather not have known?


I now know that the damage to my heart and kidneys might have been caused by constant high blood pressure spikes caused by my social anxiety. I already have high blood pressure so the social anxiety causes extremely high spike evrytime I am in public having my pressure go up at work, the store, and going out everyday just about killed me.

Hayes wrote:
Anything you would like to share about AS discovery as an adult I would like to hear and discuss.


Well, I wish I would have seen a psychologist sooner I was afraid of being found out to be crazy and locked up for it so I avoid seeing psychologist like the plague.


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07 May 2011, 4:58 pm

Hayes wrote:
Is there anyone here who like me only discovered they were AS as an adult? - for me it was 40.


Friday, March 4th, 2011, just a few weeks after my 17th birthday.

Hayes wrote:
Wondered how you dealt with it? How long did it take to come to terms with - or indeed have you?


I was skeptical and denied it for the first 3 days. After that I caved in to my inner reasoning and faced the fact that AS describes me more than any other word I can think of.

Hayes wrote:
If/when you told anyone were they surprised?


The only person who knows is my mom, and she is the one that told me about it.

Hayes wrote:
Has the discovery changed your life? Would you rather not have known?


Absolutely. I always knew there was something strange about me, finding out what it is has completely changed my life and how I view myself.

Hayes wrote:
Anything you would like to share about AS discovery as an adult I would like to hear and discuss.


I had thought about seeing a psychologist a few months ago so I could have an excuse for needing extra time on my SAT. I was lazy and didn't do it, but if I did, I probably would have found out about AS sooner.[/quote]


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ScottyN
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08 May 2011, 12:33 am

I discovered I had AS at 40. I accepted it immediately. The diagnosis described me perfectly, and I have no problem with it.



Hayes
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08 May 2011, 5:18 am

TalusJumper wrote:

To answer the OPs original question, it was somewhat easy to come to terms with it as it logically makes a lot of sense for me. It was a process that has spanned over a decade for me of research and analysis of my current and previous behaviors. However, as only being self-diagnosed, it still opens the question- do I really have Asperger's syndrome or not? This question always lurks in the back of my mind.



Interesting how it was logical for you and made sense. Must have been some relief at that, missing pieces of the jigsaw as it were. I don't feel like that. It was more of a surprise - certainly made sense of a lot of my past experiences but still personally a surprise.
Different experiences with our self-diagnosis as well. The DX is my own but there is no shadow of doubt that I have it. I hope you get the answers you need.
Hayes



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08 May 2011, 5:28 am

liloleme wrote:

I was happy at first that I finally knew why I just couldnt make things work they way other people did and why I always felt like I was doing everything wrong. Then a sort of grief process set in. I guess I always thought that if I tried hard enough that I could be like the other people. So I felt like my DX sort of closed the door on that. Now I completely accept myself and Im happy about who I am. ... I am also blessed with my wonderful husband. I appreciate him so much because my first marriage was so horrible and so wrong for me. I did get three beautiful children out of my first marriage....one of my older daughters also has aspergers. Also Im glad that I know because I can help my two younger kids and we have fun together and a deeper understanding. I wish I would have known sooner.


I wonder if I am perhaps going through the process you describe liloleme? I'm somewhere between the grief and acceptance parts I reckon. Glad you are doing so well and have a loving family. A true blessing.



Hayes
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08 May 2011, 5:40 am

kfisherx wrote:
... No self-discovery or any warning. I was in grief therapy and in a shrink's office for the very first time in my life. I was completely pissed off about it and still am in some ways. I was pissed at first because it felt so random to me and I would not accept it. After weeks of research I realized that there is no way I could not accept it. Still I fought it and even until recently (it has been 7 months now) tried to get out of it or deny just how affected I am.


Wow...what a bombshell. Worse because it came at the time it did in the way it did. The 'trying to get out of/deny it' bit was me at first. I think in part because I couldn't believe I'd got to 40 without knowing!

kfisherx wrote:
Now I am realizing exactly how affected I am and how my whole life has been nothing but me making accommodations for this thing that wants to bring me down. I am still not pleased but am dealing with things better now. I put myself into training to help improve areas of awareness and I am trying to take better care of myself from a medical perspective. I am acknowledging my anxiety as a comorbid condition. I am giving myself more breaks. Ultimately I believe the DX will save my life as I accept that I really cannot do everything I believe I am capable of doing because I do have to work harder than my peers for things. But that will come with more time to absorb and accept. It has been a slow process for me and I suspect will continue to be so.


I feel quite similar. It's the information I needed but didn't want. The uninvited house guest that rearranges your furniture perfectly. Slow absorb and acceptance - I'm with you there. I wonder if women are better at that than men?

kfisherx wrote:
At work, the DX has actually very much benefited me. I finally understand that the blocks I have struggled with all these years are related to my brain wiring not my attitude. My boss gets it too and between us we are working on a plan to improve me. My coworkers have all readjusted their communication style to my needs and things have overall improved.


Glad things going so well.



Hayes
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08 May 2011, 5:44 am

Zen wrote:
It was last year for me. Mostly I'm glad to finally understand pretty much everything about my life, but there are times when I think not knowing was easier simply because I was completely clueless about how I appeared to other people and therefore didn't have as much anxiety (especially on a professional level).


This is something I have struggled with. Once I knew AS was causing certain traits, when the trait appears I'm now thinking 'is this AS' and it seems to accentuate it. I'm starting to deal with it better (time is a great healer as mother used to say) but one of the negatives of realization.



Hayes
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08 May 2011, 5:50 am

Trencher93 wrote:
On the other hand, knowing this is a biological condition and I can't change it is a huge relief.


I think I'm slightly rebeling against this myself. I have a tendency to try and dig my heels in and say 'I can change it' with various results. As I've been adjusting my behaviour for years - decades - why not now tailor it to my relatively new found knowledge that I have AS? Good idea? No idea.



Hayes
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08 May 2011, 5:53 am

Chris71186 wrote:

I was diagnosed shortly after my highschool years. Back when I was in highschool it wasn't a proper diagnoses.... made life.... hard


In what ways did it make life hard Chris?



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08 May 2011, 6:50 am

I assume this is a thread for diagnosed AS.

I'm in my early 40s and I self diagnosed myself at Christmas. It explains quite a lot.



Hayes
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08 May 2011, 12:59 pm

Amik wrote:
I found out about AS when I was in my twenties. After I found out about AS, I did a lot of research on it and self-diagnosed at first and had my suspicion confirmed later with a professional diagnosis.

May I ask why you obtained a professional diagnosis and whether you are still glad you did so?

Amik wrote:
I took it very well. It was actually a huge relief for me to find out about it, because it explains so much about me and my life, things that I had always found so confusing and had worried that might be caused by something more serious...

Aha...this was worrying me for a while. It was when I realized that my echolalia probably wasn't quite acceptable really (as I thought at the time)...I didn't notice anyone else doing it AND it seemed to be getting worse.
Which is an ongoing worry actually - I read somewhere that the dodgy brain rewiring I might have due to AS may well get worse with aging. This I think is true as the echolalia certainly has for one thing.

Amik wrote:
I haven't told anyone in real life about it yet. A part of me wants to, but a part of me thinks it's probably not a good idea. I want people to understand me better, but unfortunately I think that most people in my life are simply too ignorant about things like these, so I suspect that not much positive would come out of telling them about my AS.

As I've mentioned already, the only person I've told is my wife and I'm happy with that for pretty much the same reasons as you detail.
BUT...I do wonder whether it could actually BE the AS that makes me reticent? (I am an overly private person - too a degree above and beyond the call of duty as it were.) Have you wondered this?

Amik wrote:
Discovering AS has changed my life a bit, mostly because I now understand my strengths and weaknesses better and know why I'm different from most other people and feel a bit less alone now that I can at least talk to other aspies online. Knowing about AS has been helpful and a relief, but it has not caused any dramatic changes in my life. I'm happy that I know about it though and only wish I had found out about it sooner.

I have really debated whether I wanted to know sooner or not. I think probably not.

It is good to be able to talk to others on WP and them know what you mean. It feels almost like discovering I actually understood another language and have now found the country its spoken in.
Hayes



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08 May 2011, 1:05 pm

Trencher93 wrote:

...Some day I'll write a book...


And it sounds like it would be a very interesting read too! I had a general disinterest in sports overall but it was being in my own world that got me the most bad reports I think. I wonder if teachers are more alert to youngsters with AS these days? Probably they are.



Hayes
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08 May 2011, 1:21 pm

Verdandi wrote:
The building up of behavior gradually is definitely a thing - I actually did another thing which was consciously construct fronts for particular situations, although most of them were based on the same core stuff. I've let go of some - but not all - of it, and I feel like maintaining it was a large drain on my energy and probably a significant contributor to my depression over the years.


In part this has been my experience - although I think one of my (major) constructed fronts is an antisociability. This could be a 'male' way out (only in my opinion of course) - i.e. instead of bothering to adapt to certain people I just avoid them. Probably more than that in truth - certain people I really find boring and will not seek or put up with their company very much.

Of course I could just be an intolerant, antisocial person at heart regardless of AS....be nice to blame AS for all my human failings but not realistic. Ho hum.

The idea of forced social fascia's being responsible for depression is very interesting. It is something I've had to deal with over the years (depression I mean). Is this your own notion or more generally accepted as being responsible for depression in Aspies?
Hayes



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08 May 2011, 1:42 pm

Hauge wrote:
As 44 year old, i must say that when i first heard of AS, it was one of those aha experiences! But a short story is needed...

Thank you so much Hauge for your interesting, frank and amusing account!
I do wonder if a childhood/teenage diagnosis would have helped me too. Certainly I suppose it could have depending on prevailing circumstances. I always have this little persistent voice that says 'no way, you didn't need any help'...but I know he's most likely wrong really. (By the way I don't mean 'voice' in too literal a way before anyone asks...)