After 2 years I still CANT accept aspergers and be happy

Page 3 of 4 [ 64 posts ]  Go to page Previous  1, 2, 3, 4  Next

Verdandi
Veteran
Veteran

User avatar

Joined: 7 Dec 2010
Age: 55
Gender: Female
Posts: 12,275
Location: University of California Sunnydale (fictional location - Real location Olympia, WA)

22 Jun 2011, 4:04 pm

Callista wrote:
I think people who are talking about accepting themselves as AS should stop focusing so much on the benefits. It's like saying, "It's okay to be disabled if you have these superpowers to make up for it."

But... It should be okay to be disabled. Period. It should be okay to have something that gives you absolutely no benefits. You shouldn't have to justify your existence with special skills or anything. You should be allowed to be who you are, with your impairments and your disability and all, without being expected to be something different.

It's like saying, "It's okay to be black if you're a really good basketball player." Or, "It's okay to be gay if you're a famous fashion designer." Or, "It's okay to be elderly if you're a wise, cute old grandparent who makes everyone cookies."

Do you see the issue here? These are stereotypes. Positive stereotypes, as well as negative stereotypes, can create serious problems. And saying, "It's okay to be autistic if you're a really smart engineer or a savant," is just as bad as any of the above. It should be, "It's okay to be autistic." Period. No qualifications, no need to make up for anything.


^^^--- This.



Jediscraps
Veteran
Veteran

User avatar

Joined: 19 Sep 2010
Age: 47
Gender: Male
Posts: 522

22 Jun 2011, 4:12 pm

But prejudice itself, simply prejudging others, isn't exactly what is talked about with racism that I've read. At least, not the radical politics, it is about power. Bullying on grander scale.

Your description sounds more like that racism rather than simple prejudgement.

I say the difference because I've seen people talk against "hate" and all being equal but not look at the power differential or structure.

Sorry, can't explain better.



Verdandi
Veteran
Veteran

User avatar

Joined: 7 Dec 2010
Age: 55
Gender: Female
Posts: 12,275
Location: University of California Sunnydale (fictional location - Real location Olympia, WA)

22 Jun 2011, 4:15 pm

Jediscraps wrote:
But prejudice itself, simply prejudging others, isn't exactly what is talked about with racism that I've read. At least, not the radical politics, it is about power. Bullying on grander scale.

Your description sounds more like that racism rather than simple prejudgement.

I say the difference because I've seen people talk against "hate" and all being equal but not look at the power differential or structure.

Sorry, can't explain better.


No, you're making sense. You're talking about institutional power + prejudice (which is the definition of racism in many anti-racist circles). Prejudice by itself can't apply racism because it lacks the power. Racism's not the only thing that's like this.



Panic
Pileated woodpecker
Pileated woodpecker

User avatar

Joined: 31 May 2011
Age: 37
Gender: Male
Posts: 192

23 Jun 2011, 10:03 am

Everyone is arguing over what the definition of prejudice is, what i want to know is how to accept aspergers, it seems impossible.



wavefreak58
Veteran
Veteran

User avatar

Joined: 26 Sep 2010
Age: 66
Gender: Male
Posts: 4,419
Location: Western New York

23 Jun 2011, 10:37 am

Panic wrote:
Everyone is arguing over what the definition of prejudice is, what i want to know is how to accept aspergers, it seems impossible.


You can't accept Asperger's without first accepting yourself. The label is meaningless in this context. Asperger's is just a rough description of your neurology. You may as well say you don't accept your left hand as say you don't accept your neurology.

It is false to think you cannot improve yourself, but you have to put your energy into the right things. Weep profusely and rail against the injustice of your lot in life. But at some point you have to let that run its course and move on.


_________________
When God made me He didn't use a mold. I'm FREEHAND baby!
The road to my hell is paved with your good intentions.


Verdandi
Veteran
Veteran

User avatar

Joined: 7 Dec 2010
Age: 55
Gender: Female
Posts: 12,275
Location: University of California Sunnydale (fictional location - Real location Olympia, WA)

23 Jun 2011, 11:23 am

Panic wrote:
Everyone is arguing over what the definition of prejudice is, what i want to know is how to accept aspergers, it seems impossible.


I can't tell you that. The last time I tried to say anything to you, you flamed me and said I wasn't autistic enough or depressed enough to know what I was talking about.

I can tell you why I'm not fussed about being autistic: I've always been autistic, I will always be autistic. Being autistic didn't ruin my life, but it made a lot of things more difficult, and I spent years trying to figure out why these things were difficult. Now I know, and it's better to know and understand my own history than it is to simply struggle along with no idea why I have trouble.



Callista
Veteran
Veteran

User avatar

Joined: 3 Feb 2006
Age: 41
Gender: Female
Posts: 10,775
Location: Ohio, USA

23 Jun 2011, 2:14 pm

Chronos wrote:
Callista wrote:
I think people who are talking about accepting themselves as AS should stop focusing so much on the benefits. It's like saying, "It's okay to be disabled if you have these superpowers to make up for it."


I don't see AS as an absolute disability. Only a conditional one. I'm different. Not disabled because of it. It puts me at a disadvantage in some rather mundane situations, but at an advantage in others.
All disabilities are conditional like that, though! Have you heard of the social model of disability? I think that's what you're talking about, without knowing it. The social model basically states that disability is what happens when society is set up in a certain way, and your particular characteristics don't match those expectations. So, if you are autistic, and the society is set up for NTs, then your autism is a disability. But if you're autistic, and the society is set up for NTs and autistics, then you're not disabled. If you're autistic and the society is set up for autistics, then the NTs would be disabled. Society could be set up for lots of configurations of body and mind--like wheelchair accessible buildings without accommodations for people who don't use wheelchairs (in which non-wheelchair-users would be disabled because they would need to bring their own chairs), or a community of people using sign language and exclusively visual signaling, in which deafness is not a disability but lack of ability to learn sign language would be.

Disability is a social concept associated with a medical diagnosis. If you want to talk about the way that a diagnosis is associated with skills below the human average, range, then the word that makes the most sense is probably "impairment". And impairment in one area has nothing to do with strengths in another area. Being impaired in social skills, for example, has nothing to do with being good at, say, visual-spatial skills or memory.


_________________
Reports from a Resident Alien:
http://chaoticidealism.livejournal.com

Autism Memorial:
http://autism-memorial.livejournal.com


Niamh
Toucan
Toucan

User avatar

Joined: 10 Jul 2010
Age: 34
Gender: Female
Posts: 263

25 Jun 2011, 12:49 pm

Callista wrote:
I think what you've got is a problem with internalized prejudice.

Basically, it's like being a black person who's lived in the US and been told that black people are inferior for his whole life, and eventually coming to believe that this is true. So he reacts by trying to act as white as possible, hating his own skin color, staying away from other black people. We don't see that kind of thing near as often as we used to; but back before the Civil Rights movement it happened all the time. Black people would try to imitate white people, would even look down on other black people whose skin was darker than theirs.

Of course now we know how sad that was and how stupid we were to think that skin color and culture made anybody inferior or superior. But it happened. And it's still happening to people with disabilities.

I'm not blaming you here. When you've lived your whole life in a world that says autistic people are inferior and it's wrong to be autistic, you're going to eventually soak up that idea whether you like it or not. It's like you've got this recording playing in your head that says disabled is bad, autism is bad, don't look autistic, don't associate with autistic people--it ties the idea of disability to shame and inferiority in your head.

It can be really hard to get rid of that self-directed prejudice, but it's worth it. Being willing to accept yourself and other autistic people is worth it.


That explains exactly what I've been going through. It only gets worse the longer it keeps going on. I've been ashamed of my problems, and get a pang of guilt when I speak about my autism as if it's some kind of dirty word that I should never mention. I punish myself daily for the things I don't get done even though, if I think about it logically and be really honest with myself, I know that I have tried my best and always do. I don't know how to stop this thinking. But I do know that having an unsupportive family has caused a lot of this. My father and siblings in particular acted out with prejudice. Dad forbids me from getting any therapy and insists "there's nothing wrong with me" and that my problems just "come from tension". My brother helped me talk about it to my parents at first, but surprisingly turned against me quickly and lashed out in a nasty email. One of my sisters did the same thing by email, having acted accepting at first, and my other sister ignored my emails and just talked across me when I tried to talk to her about the diagnosis. Also when I tried to talk about it again a number of months later she changed topics quickly, and when I was having trouble in a particular situation one night and needed her cooperation (we were at a busy pub and I couldn't hear a word she was saying and explained that to her), she deliberately made things worse for me for the rest of the night and roped my other sister in on the action. My mother made a bit of progress over time though, but because I've been made to feel so ashamed of myself I am very afraid to talk to her about my problems, even though she could be really hoping for me to do so.

So ya, all that has left me feeling confused and feeling shame for not being able to do everything that I look like I can do. I wonder if perhaps talking to my mother about that alone would help me start to fix things. She's been nicer to me since I officially moved out of their place, although I'm not so sure they'd be nice to me if they knew I was living off social welfare. But without that I wouldn't be able to stay here, where I've only recently managed to sort out occupational therapy and get help with my issues. I feel like I'm wasting my energy and my time feeling so bad about myself, but I'm confused about how to break the cycle...



anonymoussun
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 18 Mar 2011
Age: 38
Gender: Male
Posts: 53

10 Jan 2014, 1:45 pm

Panic wrote:
Others seem to be fine with having aspergers. I hate myself for having it andt he damage it has done to my family and life. I hate other aspies for their weakness, and I have no where to turn, therapists and medications are a waste of time and money, ive tried it. I am rejected by most. I look back at my past life and I see how aspie I was and it makes me sick.

I know there are different levels of asperger functionality, but i can see how my learning was affected by aspergers and how my behavior is weird to all learning about aspergers and it just blows.

There is nothing good about this. I can see why NTs bully and hate aspies.

I quite do feel the same way about my PDD-NOS. Except my pdd-nos has not had an effect on my family. I have kept it a secret, and feel like it has affected my social life development in part, and also due to my anxiety/OCD as well. It has affected me educationally where I got held back a year in kindergarden.



Quinntilda
Sea Gull
Sea Gull

User avatar

Joined: 30 Apr 2012
Age: 33
Gender: Male
Posts: 204
Location: USA

10 Jan 2014, 3:06 pm

I hate it too. I hate how people find it a good thing. Whenever I get told it is a good thing i get sick. I hate myself for having it. I have to lie to feel confident. I have the kind of mentality that life is off the amount of friends you have which I know many other people think that way. I have to lie to feel confident in life. I don't have a thing I call the real me. I lie about not being asperger to people like doctors even, they will treat me differently if they know. I always pretend I don't know or care about things an Aspie would.



Joe90
Veteran
Veteran

User avatar

Joined: 23 Feb 2010
Gender: Female
Posts: 26,492
Location: UK

10 Jan 2014, 3:37 pm

I relate to the OP. I was diagnosed with this curse when I was 8. I'm almost 24 and I still feel angry at myself for having it.

I hate it when other Aspies say ''I'm not ashamed. Asperger's makes me who I am''. Guh! Just stop saying that!

I look back on my life, and even not so long ago, and remember things I did that were so Aspie and the things what happened to me what is common to happen to Aspies (like being rejected from casual friendships and being told I'm weird) really makes me sick.

Sometimes I feel like I'm missing a lot of common AS symptoms and hope I was misdiagnosed and just have some other disorder. Then I find something posted here about girls with mild AS and it all describes me and I'm like, ''ugh f**k sake!! ! I thought there was a God for a minute!''

I cringe when I hear ''Asperger's'' mentioned out loud. It's such an ugly word. Why can't the prick who discovered it be named Hans Smith or something? Then it would be called Smith's Syndrome, which won't sound so...unusual and cringing.


I can easily imagine an NT version of me.


_________________
Female


zer0netgain
Veteran
Veteran

User avatar

Joined: 2 Mar 2009
Age: 56
Gender: Male
Posts: 6,613

10 Jan 2014, 3:47 pm

Nobody can promise that you'll ever be "happy" about having AS.

You should reach a sense of "peace" from accepting the reality. For me, learning about AS was liberating. I now UNDERSTOOD what was wrong with me, and it did empower me to better deal with it.

Still, five years later, I'm not "happy" about being autistic. Some times I'm very angry about how it has seemingly robbed me of so much in life I expected and even got to see others obtain.

I keep hoping to find where I "fit" and hoping that such an event will make me happier since I'll be someplace I work well and don't feel like such an oddball.



Rocket123
Veteran
Veteran

User avatar

Joined: 15 Dec 2012
Age: 61
Gender: Male
Posts: 2,188
Location: Lost in Space

10 Jan 2014, 5:51 pm

Panic wrote:
Others seem to be fine with having aspergers. I hate myself for having it andt he damage it has done to my family and life.


ruveyn wrote:
As to the general question: when you are handed a lemon, learn to make lemonade.


ruveyn – Your advice seems quite sound. As I have gotten older, it’s become quite obvious that, during our lifetimes, each of us will be struck with one or more maladies/conditions. We don’t get to choose which ones we are afflicted with. The best course of action is the one you suggest. Coupled with having appreciation (as things could always be worse).



qawer
Veteran
Veteran

User avatar

Joined: 26 Feb 2012
Gender: Male
Posts: 1,252

10 Jan 2014, 7:28 pm

Panic wrote:
Others seem to be fine with having aspergers. I hate myself for having it andt he damage it has done to my family and life. I hate other aspies for their weakness, and I have no where to turn, therapists and medications are a waste of time and money, ive tried it. I am rejected by most. I look back at my past life and I see how aspie I was and it makes me sick.

I know there are different levels of asperger functionality, but i can see how my learning was affected by aspergers and how my behavior is weird to all learning about aspergers and it just blows.

There is nothing good about this. I can see why NTs bully and hate aspies.


Image

You were not born disabled dog, you were born cat. When people say they don't like your cat, love it double!

Hate your cat and it will hate you back double! Love your cat and it will love you back double!

Cats don't give s**t, they are ready to take a fight - the only person you are fighting is yourself! It'll keep scratching you till you treat it properly.



Naturalist
Snowy Owl
Snowy Owl

User avatar

Joined: 25 Oct 2012
Age: 45
Gender: Female
Posts: 170
Location: Missouri, USA

10 Jan 2014, 8:34 pm

Callista wrote:
I think what you've got is a problem with internalized prejudice.


I actually agree with Callista's analogy, but perhaps that is the result of fifteen years living in a mostly-black, low-income neighborhood in the southern United States. Perhaps "prejudice" is a bit misleading, though. Prejudice is, of course, the result of the misunderstanding which is the root of that hatred; and it is especially easy to internalize guilt and self-loathing when you blame your perceived shortcomings as the reason others misunderstand you (which is essentially a misunderstanding of yourself). And while race is external and ASD is internal, the foundations of racial prejudice are often owing to differing cultural perspectives and values, which are also internal / psychological. So I don't think the initial analogy was far off the mark, maybe it would make more sense to people who are more familiar with the internal dynamics of racial prejudice in America, because whether the issue is race or disability, the question is still about individual identity and how that individual perceives the self in relation to the rest of society.



StatsNerd
Raven
Raven

User avatar

Joined: 10 Dec 2013
Age: 44
Gender: Female
Posts: 111

11 Jan 2014, 12:09 am

Naturalist wrote:
Callista wrote:
I think what you've got is a problem with internalized prejudice.


I actually agree with Callista's analogy, but perhaps that is the result of fifteen years living in a mostly-black, low-income neighborhood in the southern United States. Perhaps "prejudice" is a bit misleading, though. Prejudice is, of course, the result of the misunderstanding which is the root of that hatred; and it is especially easy to internalize guilt and self-loathing when you blame your perceived shortcomings as the reason others misunderstand you (which is essentially a misunderstanding of yourself). And while race is external and ASD is internal, the foundations of racial prejudice are often owing to differing cultural perspectives and values, which are also internal / psychological. So I don't think the initial analogy was far off the mark, maybe it would make more sense to people who are more familiar with the internal dynamics of racial prejudice in America, because whether the issue is race or disability, the question is still about individual identity and how that individual perceives the self in relation to the rest of society.


Just as melatonin content of the skin is unchangeable, so too is neurofunctionality. Furthermore, while racism is socially condemned by the majority of modern academia, discrimination against non-NTs is still accepted, provided the NT words things correctly (i.e., "Candidate may have trouble with personal boundaries.")