'We are all somewhere on the spectrum'

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LornaDoone
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10 Aug 2011, 12:48 pm

I don't mind it really. The thought behind it is well meaning, although misguided. If I'm in a particularly gritty mood, I will thank them for the sentiment. " It's nice. However, we are all not autistic.. wondering how you came to that conclusion..."

I am a black woman and think of it as people telling you that they don't see you as black. I see you as white like everybody else.. While well meaning, pretty misguided. "Well, thank you for seeing me as equal, but I'm proud of my colour. I like being a bit different from everybody else."


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10 Aug 2011, 7:30 pm

When you look into the symptoms particularly looking at aspergers. People tend to think of disabled as a more extreme condition, cant function normally. So when I got my diagnosis and my mom heard it was genetic, she went off on who she thought in the family had aspergers. Do they really have aspergers, probably not. The only person who Im convinced might actually be on the spectrum or borderline spectrum is my dad.

Ive have NT friends, who Im convinced are near the spectrum but their symptoms are milder to the point where its not clinically significant. One friend off this board was self-diagnosed aspie who later found out he wasnt aspie. He just has very bad social anxiety. His social ackwardness is likely due to being an immigrant and anxiety related. Im guessing hes near the spectrum. Another friend, I thought was on the spectrum but he reads people so well I dont think hes on the spectrum anymore. But I believe he's very close. But his social awkwardness is not clinically significant. He has rigid mannerisms, is antisocial, and has somewhat obsessive interests. But not aspie obessive or not that I know of.



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10 Aug 2011, 7:42 pm

While people may have 'trait's of autism it still doesn't mean they know what it like to constantly have those issues and be impaired by them. I think this is why so many people don't believe ADHD is a real disorder. It's real when your symptoms become so impairing that you can't get anything done.

Sometimes they say it to be well meaning, most times they say it to stop you from complaining. My strategy is to go through a list of failings people can't relate to. Bringing up synaethesia seems to make them back off. Not that it's a failing, people just think I'm so damn weird.


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10 Aug 2011, 7:57 pm

I find the argument that introversion is on the non-clinical end of the autism spectrum quite persuasive:

"Grimes' thesis explains that if you take each of the factors this new model proposes and follow it along a continuum to their most extreme expressions, they correlate with the widely used Baron-Cohen Autism Spectrum Quotient. Depending on how much we have of each factor (and how they interact with other personality traits), we can be simply introverted or, moving along the continuum, have Asperger's syndrome or, moving further yet, have autism."

"Consider, for example, that many of us tend to think slowly and are not quick at communicating. At the introvert level, no big deal. Take that communication difficulty and move it along the scale Grimes proposes and you get to Asperger's and then autism. Same with our tendency to focus deeply: At the healthy end of the scale that can be perseverance. Take it further, and you hit perseveration, which is not so good. Grimes suspects Aron's sensitivity theory is outside of introversion. 'That sounds like it belongs more in openness, the tendency to become frazzled and overwhelmed coupled with physical sensitivity is its own thing.'"

http://www.psychologytoday.com/blog/the ... and-autism

http://etd.fcla.edu/CF/CFE0003090/Grime ... 005_MA.pdf



Last edited by Kon on 10 Aug 2011, 7:59 pm, edited 2 times in total.

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10 Aug 2011, 7:57 pm

pensieve wrote:
While people may have 'trait's of autism it still doesn't mean they know what it like to constantly have those issues and be impaired by them. I think this is why so many people don't believe ADHD is a real disorder. It's real when your symptoms become so impairing that you can't get anything done.

Sometimes they say it to be well meaning, most times they say it to stop you from complaining. My strategy is to go through a list of failings people can't relate to. Bringing up synaethesia seems to make them back off. Not that it's a failing, people just think I'm so damn weird.


It might be a better idea not to complain to NTs at all unless their your psych or disability specialists. Even my psych hates all the bitching. I mean Im in your office and you told me straightfowardly a couple times not to tone it down. I can be more cooperative if nessary. Damn even to think of it, my prof was a diability specialist and she was trying to normalize my issues. I only skimmed the surface with her cause Im not her client.

I'm slowly learning that I should leave all my complaits to the board or aspie friends. Admittedly I am a mild aspie, pretty much 99% of my symptoms breakdown to NTs trying to relate and tell me to stop overanalyzing, bitching, and control myself. To them, its probably just a mood/ lack of control problem. To them, Im a crazy weird NT.

I dont think I have any issues that exceed the range of normal. Im actually not sure??



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11 Aug 2011, 3:58 am

Kon wrote:
At the healthy end of the scale that can be perseverance. Take it further, and you hit perseveration, which is not so good.

It depends what you mean by "not to so good." If people obsessively follow different paths they will get further along those paths. if one of those paths is wildly successful for everyone then it makes the policy of encouraging crazy ideas worthwhile. That is how blue skies research works: give passionate people the time to follow their passions and one of them will come up with the next Internet. It is how evolution works: all these crazy creatures killing themselves and the ones who survive produce a stronger next generation for everyone. It does not matter if 99.9 percent appear to be total failures as long as the one success is big enough.

My own obsession is in creating a rational economic theory (current economic theory cannot be derived from pure logic and is thus not rational). I once calculated that if my theory is followed, it is worth one hundred trillion dollars (because it would double global economic growth, year on year) and also solve all major political (and thus social) and environmental problems. If a policy of encouraging obsession leads to just one theory like that, even if everyone else is obsessed over celebrities and train sets, it makes obsession a good policy.



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11 Aug 2011, 7:51 am

trappedinhell wrote:
My own obsession is in creating a rational economic theory (current economic theory cannot be derived from pure logic and is thus not rational). I once calculated that if my theory is followed, it is worth one hundred trillion dollars (because it would double global economic growth, year on year) and also solve all major political (and thus social) and environmental problems. If a policy of encouraging obsession leads to just one theory like that, even if everyone else is obsessed over celebrities and train sets, it makes obsession a good policy.


The whole problem is that people are irrational. Combine that with the fact that they can't look into the future, and it basically becomes impossible to make a fully rational economic theory.


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trappedinhell
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11 Aug 2011, 9:22 am

Artros wrote:
The whole problem is that people are irrational. Combine that with the fact that they can't look into the future, and it basically becomes impossible to make a fully rational economic theory.

Maybe I should have said logical rather than rational. it is possible to derive the existence of property, and other basic concepts of economics, from pure logic. But you are right. That on its own carries no weight. People are motivated by many things, but a desire to be consistent is not one of them.

(A desire to appear consistent and believe in consistency is a motivation, but those are merely social and psychological pressures. Actually being consistent is not even on the agenda.)



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11 Aug 2011, 9:48 am

Sweetleaf wrote:
Well according to what I have learned in psychology, there are no behaviors that are related to a specific mental disorder.....so yes everyone at one time or another experiances various symptoms of various disorders. But it only becomes a disorder if someone has a specific group of symptoms that interfere negatively with their life.

Like with depression everyone feels depressed at one time or another, but it is only considered a disorder if it persists and interferes negatively with fucntioning.


Yes exactly!



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11 Aug 2011, 9:58 am

Callista wrote:
I actually agree with it.

The genetics that make autism are almost certainly floating around in the general population, in the NTs' DNA. Some NTs have only a few chunks of autistic DNA; some have enough to create autistic traits. Some of those autistic genes make artists and scientists and introverted eccentrics, still NT but with some autistic traits... You put the right NTs together and they pass on the right DNA, and you get an autistic baby.

So, in a way, yeah--we're all a little autistic. Autism is an extreme version of traits found in the general population. The autism spectrum extends quite smoothly into the typical.

Quite a few disorders are like that--a continuum with a fuzzy sort of fading into the typical general population, many more people with a mild version than with a severe version, even more people who can't be diagnosed but have minor detectable traits.

I kind of like that idea, because it means that autism isn't something foreign and scary; it's something that's part of the normal human gene pool, meant to be here, not some interloper that's taking over your child and turning him into an alien or something. Autistic people are just on the extreme end of the bell curve--a bell curve that contains all of humanity.


I think this is technically true, but
the purpose of comments like "aren't we all a little ..." is to trivialize other's problems.
The result, unsurprisingly, is intense anger.



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11 Aug 2011, 11:40 am

Callista wrote:
I actually agree with it.

The genetics that make autism are almost certainly floating around in the general population, in the NTs' DNA. Some NTs have only a few chunks of autistic DNA; some have enough to create autistic traits. Some of those autistic genes make artists and scientists and introverted eccentrics, still NT but with some autistic traits... You put the right NTs together and they pass on the right DNA, and you get an autistic baby.

So, in a way, yeah--we're all a little autistic. Autism is an extreme version of traits found in the general population. The autism spectrum extends quite smoothly into the typical.

Quite a few disorders are like that--a continuum with a fuzzy sort of fading into the typical general population, many more people with a mild version than with a severe version, even more people who can't be diagnosed but have minor detectable traits.

I kind of like that idea, because it means that autism isn't something foreign and scary; it's something that's part of the normal human gene pool, meant to be here, not some interloper that's taking over your child and turning him into an alien or something. Autistic people are just on the extreme end of the bell curve--a bell curve that contains all of humanity.


Interesting take, and though I agree with a lot of what Calista says here, I definitely don't agree with the flat statement "We are all somewhere on the spectrum."

The reason I don't agree is pretty simple.

WHAT spectrum? Or, WHICH spectrum are we talking about?

By definition to be considered "on the Autistic spectrum," one has to have a very particular, though somewhat ambiguous, set of symptoms. It has to be one of a finite set of combinations of symptoms. If one is missing but one of out of all the "subsets" of Autistic criteria, one is certainly not on the Autistic spectrum.

Granted, what constitutes Autism, and what doesn't, is entirely "made up." But so is every "definition" of all disorders. They are all "made up" in the sense that a group of people got together and decided there was a need to differentiate between certain people with apparent problems dealing with life, and people who don't apparently have the same problems. The rest of us decide for ourselves whether to agree, not agree, or accept certain parts of what is decided, and not accept others. The same is true with language.

It's all about communication so when somebody says to me, "We are all on the spectrum.", I simply ask, "What do you mean by that? Do you mean we are all Autistic in some way, or do you mean everything is a spectrum, as in, 'we are all part of the human spectrum'?"

I certainly do not agree that "we are all Autistic" in one way or another," but I can agree that there is a Human spectrum that we are all a part of.

The problem I have had with hearing the statement "We are all on the spectrum" is that I've almost always heard it from people who are clearly attempting to minimize the reality of Autism and its horrendous effects on the lives of Autistics. Most of the people I've heard say things like this are the same people who hear of one difficulty we have, and say, "Well, we ALL experience that at one time or another."

Yeah, I agree we all do experience any ONE of the negative things Autistics experience at some point in our lives, and often repeatedly, BUT those who do not have Autism certainly do NOT experience it anywhere NEAR as often, or consistently as we do.

Yes, there ARE "fuzzy areas" when it comes to determining whether a person has Autism or not, and it can seem fuzzy when comparisons are made between "non-Autistics" and Autistics. The problem i have with statements like "We are all on the spectrum" is the motivation behind saying it. Too often, the motivation behind making the statement isn't about being part of an exploration for deeper understanding. Too often it's a dismissal of responsibility. Too often I've heard it said as a means to dismiss the necessity of learning more about Autism.

If you put on a scratched up pair of glasses, and look at an HD television, it looks all fuzzy. But that doesn't mean the picture is really fuzzy, does it?

Learning more about Autism, especially learning more from Autistics themselves, is like cleaning the lenses on those glasses. Autism, even though it is still somewhat of a fuzzy concept, doesn't look quite as fuzzy to someone who has learned a great deal about it as it does to someone who hasn't. Unfortunately, I've been infuriated more than once by [supposed] professionals who have said things like "We are all on the spectrum," only to discover the real reason they're saying it is to dismiss any conception that they might need to learn more about it. Sadly, it has sometimes been part of an attempt to perpetuate the myth that they know more than I do.

Really? So you've lived with it for fifty years, and had three kids with it, a brother-in-law with it, and have read every book I have about it? Really?

Not!

Most of the time when I do hear the statement, it's meant innocently enough. Most of the people I have heard it from actually do have the right motivation for saying it. But it's because of that few percent that say it for the wrong reasons that I always ask, "What do you mean by that?"

Because those few cause a LOT of damage.


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11 Aug 2011, 11:45 am

In a blog entry I wrote ages ago:

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A last comment about the stupid teacherly 'Alladin Reading Group Guide' questions at the end of the book. At one point, they state:

"The Moorchild is dedicated to 'all children who have ever felt different.' Is this another way of saying that the book is dedicated to all children? Do you think every child - or adult - has felt different at some point in their lives?"

I hate this kind of normalization of the experience of being different. Maybe many kids feel different on some occasion, but very few kids, like Saaski/Moql and myself, have felt different virtually every time they're with a group of children. It's totally different from occasional concerns about not fitting in. Instead, you know that you never fit in, you never belong, or at least so rarely it feels like never. It becomes a part of how you see yourself - not within any group but always an outsider. It's like the difference psychologists draw between state and trait. State anxiety means you are simply anxious at the time. Trait anxious means you're an anxious person. Though you may not always be anxious, you are anxious much of your time. Similarly, the feeling of not belonging can be a state or a trait, and it's very different when it's a trait than when it's merely a state.

http://abnormaldiversity.blogspot.com/2008/03/moorchild.html



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11 Aug 2011, 4:55 pm

callie-1 wrote:

I think this is the downside of a very successful campaign to increase the profile of autism, everybody now knows a little bit about it, and the little bit they know resonates with them slightly. They then feel they are displaying empathy when they say so.




This is exactly what you get when so many insist that it isn't a disease.

People figure that there are better problems to focus on and won't give a damn about our problems.



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11 Aug 2011, 5:06 pm

Ettina wrote:
"The Moorchild is dedicated to 'all children who have ever felt different.' Is this another way of saying that the book is dedicated to all children? Do you think every child - or adult - has felt different at some point in their lives?"

I hate this kind of normalization of the experience of being different. Maybe many kids feel different on some occasion, but very few kids, like Saaski/Moql and myself, have felt different virtually every time they're with a group of children. It's totally different from occasional concerns about not fitting in. Instead, you know that you never fit in, you never belong, or at least so rarely it feels like never. It becomes a part of how you see yourself - not within any group but always an outsider. It's like the difference psychologists draw between state and trait. State anxiety means you are simply anxious at the time. Trait anxious means you're an anxious person. Though you may not always be anxious, you are anxious much of your time. Similarly, the feeling of not belonging can be a state or a trait, and it's very different when it's a trait than when it's merely a state

Excellent stuff. People say it is good to be different. They really mean "the same as everyone else but more interesting." Really different means not fitting in. Genuinely not fitting in. Like there is no place for you. It means being unable to communicate despite being intelligent, unable to get a job despite being hard working, unable to get a girlfriend despite caring deeply." Their different is not our different.



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12 Aug 2011, 7:25 am

'spectrum' is a metaphor. We need it to talk about the various autistic challenges and how we display them to the world.

One thing I've learnt from this discussion is the fact that the Autistic Spectrum is clinically distinct from the rest fo humanity. And it's digital - admittedly fuzzy-edged but still digital.

So anybody who uses the phrase does not understand this at all.

I guess one question to ask is 'what spectrum?'. If they are referring to a vague human spectrum they are talking about something totally different.

As for any claim of sharing a human spectrum

As WC Fields said 'On the whole, I'd rather be in Philadelphia'.


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12 Aug 2011, 8:51 am

My mother always says this, before being telling me to stop talking about rats all the time, because it's annoying and unnatural.

I don't say anything, but I do want to slap anyone who says this, lol.