Are you diagnosed or not diagnosed?

Post Reply New Topic

I'm female I'm diagnosed got diagnosed in 2004. I also have diagnosed OCD I got diagnosed in 2009 and I got diagnosed with epilepsy a couple of monthes ago.

Last edited by Jediyoda on 02 Oct 2011, 10:17 pm, edited 1 time in total.

Diagnosed with AS about a week ago.

Are there reasons folks don't get a disagnosis? Curious.

---Griffen---

I guessed that more females will be diagnosed than males. No reason, really. I just made a guess.

I'm diagnosed.

Thanks. Just curious if there was some rationale for folks to get very involved in a community until they had some kind of professional certification of their condition (or lack of). Doesn't seem like the kind of thing someone would be inclined to take lightly.

I hadn't even stumbled onto this place until after I had received the diagnosis from the Dr.

People that don't realise they have an ASD until much later in life are just so relieved that there is a reason they are that way that they begin to identify with the label. Getting a formal diagnosis is difficult to as an adult, and sometimes a child too. I knew two mothers who struggled to get their boys diagnosed.
Some don't want an official diagnosis because they don't think their symptoms are severe enough, they don't want it on their record or they can't afford it.

I read up about it before I was diagnosed but was never sure until I was diagnosed, twice. Now it just seems so obvious and knowing makes me beat myself up less when my symptoms get out of control. Same with ADHD too. When I'm really struggling I will just give in and say 'I'll deal with this later.' Usually with medication.

Since I was diagnosed I decided to make some changes and though it's hard to keep them up I have and feel better because of it. I've got the help of the medication which makes things 10 times as easier, but then it wears off.
I went from being behind my peers in general knowledge to correcting them about it. I taught myself physics, high school math and I'm writing my own book. I don't care too much about socialising too because I've been through it all and I've developed enough skills to get by, even if I can't have a normal conversation. That doesn't bother me anymore. What bothers me is that I can't write or think clearly at times, have horrible sensory issues and really love my routine and hate to break it.

That does make sense. I'm now 35 and just got diagnosed, so there was some element of shock and another element of relief that "something" was identifiable.

The logistical hurdles make sense (money, time, fear of "record"). Wondered if there was some part of the population that says they have ASD but have not sought confirmation lest they don't get a confirming diagnosis. That is, do some fear of finding out they don't have it?

In reading this forum, saw many "self-diagnosed" participants and was a but surprised those folks wouldn't have tried to get official confirmation (provided they are not hindered by the logistical hurdles you mention).