This video is just disgraceful to the autistic community.

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opal
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19 Dec 2011, 2:53 am

Verdandi wrote:
The_Perfect_Storm wrote:
I don't mind what they are saying, from what I've seen so far. But why are they saying it in front of the kids? They don't need to hear that sh**..

This does offer quite a bit of insight into what many parents might be feeling. And what they are feeling is perfectly natural. Their children are defective, and the whole reason for having them in the first place is pretty much gone. Any hopes and dreams they had for their child before the diagnosis are near-impossible. It's selfish, but it's a natural response.

At least they are being honest. No one wants to have a disabled child.


Well, here's some honesty:

If anyone doesn't want to risk having a disabled child, they simply shouldn't have children. None of us get to control everything that happens in our lives, and sometimes things happen that take more work than anyone ever expects. They don't like having a disabled child? Let them imagine what it's like to be that child, living with parents who view them entirely as tragedies, failures, and burdens.



I agree totally. If you can't handle the chance your kid may not be perfect, then don't have any.



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19 Dec 2011, 2:54 am

Verdandi wrote:
It isn't stupid. It's the truth: If you have children, things go wrong. Sometimes they don't go wrong that badly and you only have to deal with a few injuries and illnesses. Sometimes you end up with a child who's disabled. It's not because god's out to get you. There was no "destiny" in place that disability ruined. It happens. If you can't cope with things not turning out as you hoped, you really shouldn't bother to have children. That's not going to stop anyone from having children, of course, but maybe there should be more work on preparing parents for the possibility that their children won't all turn out to be perfect little geniuses with a scholarship to Harvard.


It just seemed like a stupid thing to say. No one is prepared for a child with a disability. No one is going to avoid trying for a child because of a slight risk. And what about people that weren't expecting a child, let alone a child with a disability? That family wasn't talking asking for some 'perfect little genius'. They wanted to see their child take advantage of the talents they do have, yet they were constantly held back by the childs weaknesses.

Verdandi wrote:
I wasn't saying anything simple. The idea that not everyone is going to have a perfect life, but there's no reason to go out of one's way to make it worse seems strangely complex to a lot of people, including parents of autistic children.


What I meant was, I don't think that these parents simply don't like their disabled child. I highlighted your sentence in bold... I thought I was clear, sorry. Communication error?

Verdandi wrote:
That video shows it. You even called it out. Saying "I wanted to kill myself and my child" right in front of the child is abusive. Even though I didn't have a diagnosis as a child, I also lived it. My parents knew that something was going on or I never would have ended up in a special education classroom for one year, nor would I have almost gone to an "alternative" high school. I'm 42 now and my mother knows about my diagnoses, and she still tries to blame everything on me being lazy or my grandmother supposedly "coddling" me after I left home, as if the possibility that all that stuff she thinks I should be able to do is something I would be able to do easily if only I tried a little harder. Yes, I'm generalizing a bit from my own experiences, but I just do not see how a parent who does not view their child as fully human is going to treat that child as fully human.


Yes, I disagreed with that comment. But I don't believe that the particular attitude we were talking about (as I understood it) necessarily leads to abuse. I can see what you mean a bit more clearly now. Yes, if the parents don't have a whole lot of respect for their child they are unlikely to treat them well. When I use the term defective to describe autism I don't mean it in such a way as people with autism are any less of a person than anyone else. It's just an acknowledgement that we have certain disadvantages.

Verdandi wrote:
And what that woman said about her daughter? There have been multiple instances of parents murdering their disabled children - not just autistic children, although several of them have been killed - and the murderers in question tend to receive the same kind of calls for sympathy that's getting posted in this thread - but I have no sympathy for that, and I never will. One's grief does not absolve one's responsibility as a parent. And the story about how this woman openly expressed her fantasy of driving off a bridge or whatever it was is heartbreaking. I feel terrible for her child having to hear that stated so bluntly. For her, though? She's being self-indulgent.


I have no experience or knowledge of any autism-related murders, or attempts by guilty parents for sympathy. I don't blame the parent for having those thoughts. She should not have mentioned them in front of her child though. I can only assume she thought the kid wouldn't understand what it meant. Disturbing.



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19 Dec 2011, 2:55 am

Redacted



Last edited by nat4200 on 19 Apr 2012, 5:39 am, edited 1 time in total.

TheygoMew
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19 Dec 2011, 2:58 am

BUT...on the bright side.

The George Washington bridge. Where would she drive off?? With all that traffic on top of that.

Image

I'm tired of the woe is me crap these parents say. There is no excuse to say all of that in front of your child. If the child had to listen to that and the mother seemed uncaring about how her autistic child would feel... imagine what the child is hearing on several occasions.

Oh wait, I forget. She's autistic and doesn't matter.

Such empathy pouring out. Must be nice to have all of that empathy!



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19 Dec 2011, 2:59 am

TheygoMew wrote:
I don't like how she is implying we're lesser beings. If she didn't have a normal child at home, she would have done it.

That is sending the message that we deserve to be killed and the killers should have sympathy.


As per this blog post, that's a message a lot of people believe in. Just one paragraph about how people spoke of these parents who murdered their own disabled children:

Quote:
Autism "experts" have already spoken up, defending the parents involved in these two cases. Neatha Lefevre, of the Autism Society of Washington, presented a stunningly sunny picture of the Oregon case. She told reporters: “The behaviors [of an autistic child] can be very challenging." Referring to Eckhart, who kept his sons in a dirty cage, she said, "When [parents] do this extreme, they feel this is the safest way to keep their children. The family will choose extremes because they don’t have good information.”


And this bit, which simply reiterates what I was saying earlier:

Quote:
As with most cases in which a parent abuses or murders a disabled child, there are a lot of voices urging us to feel empathy for the parent, to imagine how hard it is to have an autistic child. As far as I know, these "experts" have yet feel empathy for the child, to imagine how hard it is to be an autistic child with abusive or murderous parents.

Meanwhile, former PBS news anchor Robert MacNeil is returning to television with a special report called Autism Now. In a promotional interview, MacNeil described autism this way:

"It delays the most -- delays or impairs for life -- the most human thing we have, which is our ability to look into each others eyes and feel that other person's existence and what might be going on in their mind, and to empathize with them. That is denied -- largely denied -- to children with autism."



TheygoMew
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19 Dec 2011, 3:00 am

nat4200 wrote:
TheygoMew wrote:
I don't like how she is implying we're lesser beings. If she didn't have a normal child at home, she would have done it.

That is sending the message that we deserve to be killed and the killers should have sympathy.


I don't believe this was said: "If she didn't have a normal child at home, she would have done it." (unless it was in a longer version mentioned in the Youtube description)

Question for NT Speaks though why not have at least one ASD parent in one of these videos?


It's only because of Lauren (her normal child)...

[youtube]http://www.youtube.com/watch?v=C7NTfZzS9b8[/youtube]



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19 Dec 2011, 3:03 am

Sansomrocks1027 wrote:
As I stated in a previous comment, if I had a learning disabled child, I would love it for everything that's it's worth. Even if it was like you.


Lol.

I can see what you're saying, but I just don't believe you have the capacity to love every possible type of person out there. There are some sick fellows out there in the world today.


Sansomrocks1027 wrote:
I don't blame God for making me this way. Fear and questioning in God is the beginning of wisdom. You may not believe in him, but I do, and I don't hold grudges. Obviously i'll be this way for awhile, so what's the point in being angry? Any who, i'm not here to argue about higher powers, i'm here to speak my mind.


Groovy.



Last edited by The_Perfect_Storm on 19 Dec 2011, 3:11 am, edited 1 time in total.

TheygoMew
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19 Dec 2011, 3:04 am

Verdandi wrote:

And this bit, which simply reiterates what I was saying earlier:

Quote:
As with most cases in which a parent abuses or murders a disabled child, there are a lot of voices urging us to feel empathy for the parent, to imagine how hard it is to have an autistic child. As far as I know, these "experts" have yet feel empathy for the child, to imagine how hard it is to be an autistic child with abusive or murderous parents.

Meanwhile, former PBS news anchor Robert MacNeil is returning to television with a special report called Autism Now. In a promotional interview, MacNeil described autism this way:

"It delays the most -- delays or impairs for life -- the most human thing we have, which is our ability to look into each others eyes and feel that other person's existence and what might be going on in their mind, and to empathize with them. That is denied -- largely denied -- to children with autism."


(claps)



Sansomrocks1027
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19 Dec 2011, 3:04 am

This video is obviously causing controversy in other places as well. This is just an all-out BAD video, that never should have been made in the first place. There are plenty of other methods out there to show on film what having an autistic child is like, and it should NOT have been done like this, or in this manner. I'm sure they were just trying to get the point across to everyone on what having an LD child can be like, especially for parents. It's not easy, I can tell you that right now. But I still will not have pity for this.

Obviously it wasn't done with the right precautions.



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19 Dec 2011, 3:05 am

They could have edited that out if the mother said something that they didn't agree with..



Verdandi
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19 Dec 2011, 3:12 am

The_Perfect_Storm wrote:
It just seemed like a stupid thing to say. No one is prepared for a child with a disability. No one is going to avoid trying for a child because of a slight risk. And what about people that weren't expecting a child, let alone a child with a disability? That family wasn't talking asking for some 'perfect little genius'. They wanted to see their child take advantage of the talents they do have, yet they were constantly held back by the childs weaknesses.


I've picked through stories over the years about parental abuse and murder of disabled children. It is, in fact, a topic that I've been reading about for as long as I've read about autism (about four years). The blog post I linked in my previous post in this thread discusses the phenomenon.

The_Perfect_Storm wrote:
What I meant was, I don't think that these parents simply don't like their disabled child. I highlighted your sentence in bold... I thought I was clear, sorry. Communication error?


Yeah, that was probably a communication error. I don't think they dislike their children. But I think that the problem is not just that parents don't know how to parent a disabled child (and most really do not, and the good parents learn along the way - there are several here on WP, such as Nostromo (or is it Nostromos? I forget the precise spelling). The problem is that when parents don't know how to parent their disabled children and they screw up? They abuse their child, neglect their child, even kill their child? The media showers us with requests to empathize with their pain and fear and heartbreak for having to deal with a disabled child, and there's very little sympathy for the child, and I suspect there's a general attitude that the child is in "a better place" or was better off dead, etc.

The_Perfect_Storm wrote:
Yes, I disagreed with that comment. But I don't believe that the particular attitude we were talking about (as I understood it) necessarily leads to abuse. I can see what you mean a bit more clearly now. Yes, if the parents don't have a whole lot of respect for their child they are unlikely to treat them well. When I use the term defective to describe autism I don't mean it in such a way as people with autism are any less of a person than anyone else. It's just an acknowledgement that we have certain disadvantages.


I understand. I didn't think you meant that. But then you have people in the media saying things like:

Quote:
Meanwhile, former PBS news anchor Robert MacNeil is returning to television with a special report called Autism Now. In a promotional interview, MacNeil described autism this way:

"It delays the most -- delays or impairs for life -- the most human thing we have, which is our ability to look into each others eyes and feel that other person's existence and what might be going on in their mind, and to empathize with them. That is denied -- largely denied -- to children with autism."


From:

http://illusionofcompetence.blogspot.co ... pathy.html

And this has a bit more information too:

http://illusionofcompetence.blogspot.co ... style.html

And I think when many people say defective, they mean exactly that. That they are not fully human.

The_Perfect_Storm wrote:
I have no experience or knowledge of any autism-related murders, or attempts by guilty parents for sympathy. I don't blame the parent for having those thoughts. She should not have mentioned them in front of her child though. I can only assume she thought the kid wouldn't understand what it meant. Disturbing.


The thoughts I don't blame anyone for. People have thoughts. People have negative, nasty, terrible thoughts. It's how they act on those thoughts - and in her case, thinking that she can say those things in front of her daughter.

I remember my parents saying things in front of me that I suspect they didn't think I could understand. At the time, I couldn't, but I can remember them and I do understand them now. They never talked about killing me, though. Mostly just how lazy and useless I was.



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19 Dec 2011, 3:12 am

The_Perfect_Storm wrote:
Sansomrocks1027 wrote:
As I stated in a previous comment, if I had a learning disabled child, I would love it for everything that's it's worth. Even if it was like you.


Lol.

I can see what you're saying, but I just don't believe you have the capacity to love every possible type of person out there. There are some sick fellows out there in the world today.


Well, to you're dismay, I am capable of loving everyone, believe it or not. Why wouldn't I be able to love every person out there? Because i'm slightly autistic? That's BS. Sure, I may not like people, or may not know them personally, or I might not even like the things they may do, But Everyone has a genuine and caring side to them. It may be harder for others to show it, but trust me, it's there.

That is what I look for. And that is what matters the most.



Last edited by Sansomrocks1027 on 19 Dec 2011, 3:29 am, edited 1 time in total.

Verdandi
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19 Dec 2011, 3:15 am

Sansomrocks1027 wrote:
This video is obviously causing controversy in other places as well. This is just an all-out BAD video, that never should have been made in the first place. There are plenty of other methods out there to show on film what having an autistic child is like, and it should NOT have been done like this, or in this manner. I'm sure they were just trying to get the point across to everyone on what having an LD child can be like, especially for parents. It's not easy, I can tell you that right now. But I still will not have pity for this.

Obviously it wasn't done with the right precautions.


The controversy is largely over, as the video is several years old. It is frustrating that it remains as it is now, but it does seem that Autism Speaks is trying to improve how they talk about autism and autistic people. Aghogday has more information on that than I do, but I take his word for it.

I find the entire topic extremely frustrating because of a lot of other history.



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19 Dec 2011, 3:15 am

When I was a teenager my mother told me she wished she never had me. That really hurt. Now, I can only imagine what it would feel like to have had my mother say that she wanted to kill herself and me. The mother may have believed her child wouldn't understand, and the child may have been too young to understand, but that child will grow up and see this video. How will that child feel? It is one thing to have thoughts and feelings like the mother has experienced, and one shouldn't have to keep those feelings inside, but I don't believe anyone should tell their child (and the world) about them. THAT mother has no empathy, despite being "NT". It also disgusts me that anyone, let alone a group that claims to be speaking for autism, would even film this because of the repercussions to the child.



Sansomrocks1027
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19 Dec 2011, 3:18 am

Verdandi wrote:
Sansomrocks1027 wrote:
This video is obviously causing controversy in other places as well. This is just an all-out BAD video, that never should have been made in the first place. There are plenty of other methods out there to show on film what having an autistic child is like, and it should NOT have been done like this, or in this manner. I'm sure they were just trying to get the point across to everyone on what having an LD child can be like, especially for parents. It's not easy, I can tell you that right now. But I still will not have pity for this.

Obviously it wasn't done with the right precautions.


The controversy is largely over, as the video is several years old. It is frustrating that it remains as it is now, but it does seem that Autism Speaks is trying to improve how they talk about autism and autistic people. Aghogday has more information on that than I do, but I take his word for it.

I find the entire topic extremely frustrating because of a lot of other history.


Right. Well, this video is new to me, so of course i'm going to open my mouth and say something about it, when I really can't do much about the situation, as is. But, I have a voice, and better late then never right? :) And That's why i'm whole-heartedly against Autism Speaks. They make it seem like it's this big horrible epidemic/crisis.



Last edited by Sansomrocks1027 on 19 Dec 2011, 3:21 am, edited 1 time in total.

Verdandi
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19 Dec 2011, 3:20 am

Sansomrocks1027 wrote:
Verdandi wrote:
Sansomrocks1027 wrote:
This video is obviously causing controversy in other places as well. This is just an all-out BAD video, that never should have been made in the first place. There are plenty of other methods out there to show on film what having an autistic child is like, and it should NOT have been done like this, or in this manner. I'm sure they were just trying to get the point across to everyone on what having an LD child can be like, especially for parents. It's not easy, I can tell you that right now. But I still will not have pity for this.

Obviously it wasn't done with the right precautions.


The controversy is largely over, as the video is several years old. It is frustrating that it remains as it is now, but it does seem that Autism Speaks is trying to improve how they talk about autism and autistic people. Aghogday has more information on that than I do, but I take his word for it.

I find the entire topic extremely frustrating because of a lot of other history.


Right. Well, this video is new to me, so of course i'm going to open my mouth and say something about it, when I really can't do much about the situation, as is. But, I have a voice, and better late then never right? :)


Look at my posts in this thread. :) I just thought I'd offer a timeline.