Page 3 of 5 [ 69 posts ]  Go to page Previous  1, 2, 3, 4, 5  Next


Are self diagnosed people welcome
yes 90%  90%  [ 82 ]
no 10%  10%  [ 9 ]
Total votes : 91

iceveela
Velociraptor
Velociraptor

User avatar

Joined: 16 Aug 2011
Age: 32
Gender: Female
Posts: 438

01 Jan 2012, 8:28 pm

Fnord wrote:
iceveela wrote:
Fnord wrote:
iceveela wrote:
I am self-diagnosed, and I know that I am not welcome here by a few people as if my self-diagnosing myself makes other people less of a aspie...

A self-diagnosis does not make someone any less an Aspie; not being an Aspie does, however...


But I think even if someone is not a aspie but believes they are, they should be able to stay here and talk about their issues without fear of provocation...

One more time, for those who did not read it before...


I would respond negatively, but i do not want to deal with the repercussions. I will move on to talking to someone else who sparks my interests, because you just lost my spark.


_________________
Aspie score: 164/200
NT score: 60/200
You are very likely an Aspie!

AQ: 36


Fnord
Veteran
Veteran

User avatar

Joined: 6 May 2008
Age: 67
Gender: Male
Posts: 60,896
Location: Stendec

01 Jan 2012, 8:32 pm

iceveela wrote:
Fnord wrote:
iceveela wrote:
Fnord wrote:
iceveela wrote:
I am self-diagnosed, and I know that I am not welcome here by a few people as if my self-diagnosing myself makes other people less of a aspie...
A self-diagnosis does not make someone any less an Aspie; not being an Aspie does, however...
But I think even if someone is not a aspie but believes they are, they should be able to stay here and talk about their issues without fear of provocation...
One more time, for those who did not read it before...
I would respond negatively, but i do not want to deal with the repercussions. I will move on to talking to someone else who sparks my interests, because you just lost my spark.

Oooo ... a parting shot! I am wounded sir! Wounded, I say!

... not.

:lol:



iceveela
Velociraptor
Velociraptor

User avatar

Joined: 16 Aug 2011
Age: 32
Gender: Female
Posts: 438

01 Jan 2012, 8:48 pm

Anyways, where was I? Oh, right. Acceptance.

Quote:
Why should people relate to the issues of autism and Asperger's so much and write many posts, where the diagnosed also relate to and go into conversation with, if they are not on the spectrum at all? (exceptions for people with a family-member on the spectrum for information). Then they should be at least obsessed with it. I guess, that people who don't relate to ASD at all would not even write here, at least not for a long time. Like there are a million of forums I don't relate to and would never write in. There was this forum about depression I was reading in and though having been depressed, I could not relate to the people, because...well, they were not autistic and had different ways of writing and "bounding" with each other and perception and they had too complicated Emoticons, that I couldn't understand the coherence of the written text anymore and an excessive use of Emoticons and were excessively talking about "how they feel" and relations and stuff, I could not relate to. So I stopped reading there.


I agree with this. I am transsexual, but it is hard for me to relate to other transsexuals because of the way I am.


_________________
Aspie score: 164/200
NT score: 60/200
You are very likely an Aspie!

AQ: 36


SyphonFilter
Veteran
Veteran

User avatar

Joined: 7 Feb 2011
Gender: Non-binary
Posts: 2,161
Location: The intersection of Inkopolis’ Plaza & Square where the Turf Wars lie.

01 Jan 2012, 9:07 pm

CockneyRebel wrote:
I welcome everybody, whether they're diagnosed or self-diagnosed.
As do I. If a poster has problems they need to talk about, I'm listening. I'll post a response if I think I can contribute in a meaningful way. On the other hand, if someone comes onto these boards and starts trolling, they can get the f**k out. I have zero patience for people who intentionally and continuosly cause trouble.



Aharon
Veteran
Veteran

User avatar

Joined: 26 Dec 2011
Age: 50
Gender: Male
Posts: 745
Location: Kansas

01 Jan 2012, 9:21 pm

This site is a great resource and a source of support, encouragement, and hope to the people that come here. I've seen plenty of posts by NT's who are parents of children in the spectrum, seeking a better understanding. I've read many by people who, regardless of their diagnosis status, have found that here, there are people that can relate to the way they think and they find strength in that. This place isn't a club for a select group. It's a place where the only prerequisite is that you're genuinely interested in being here.

There's really nothing typical about being in the spectrum. Each person experiences it in a very different way. Keeping that in mind, I value the people that accept me over the one's that can relate to me. The one's that do both, though, are priceless! Therefore, in my opinion, it's our ability to accept all that come here; NT's, diagnosed, undiagnosed, posers, and lost ones that makes this all work, not the idea that we are all the same. We come together because of a common interest in a mental condition. To turn people away because they didnt meet some requirement would completely defeat the purpose of this place.

Lastly, I am undiagnosed, and have posted "not sure" on my profile. I may change that someday. To date, however, in spite of lacking an official diagnosis, I have gotten nothing but total support and genuine concern from everyone here. There is a lot of support here, and I want thank you all, because I'm learning so much, and it's making my life better. Whether I get a diagnosis or not, it's still making a difference. Thanks for accepting me.


_________________
We are not so different from potted plants in that, if given everything we need to be properly nourished, the outcome can be incredibly contrary to when we are not. A flower won't grow in flour, and neither can we.


Magnus_Rex
Veteran
Veteran

User avatar

Joined: 4 Oct 2010
Age: 34
Gender: Male
Posts: 2,704
Location: Home

01 Jan 2012, 9:34 pm

I have not seen any evidence of undiagnosed people being unwelcome here. Sure, there are people like Fnord, but his problem seems to be more with the fact that we have no formal training for diagnosing than the diagnosis itself. He only needs to get over the fact that one does not have to be competent to get a diploma: there are many "formally trained professionals" out there misdiagnosing their patients.

As I have stated before, I am not 100% certain about my self diagnosis, but I will not blindly believe a doctor. Even if his diagnosis agreed with my opinions, he (and I) could be wrong. For this reason, I would like opinions from at least three different professionals. So far, I have no reasons to doubt my suspicions of having Asperger syndrome, since I fit almost every criteria and I identify with many aspergians here, but I am willing to listen to other theories.

As for AS being a disability, I think it is not. Although it brings us far too many problems "normal" people do not have to deal with, I believe that is only because society is predominantly non-autistic. Consequently, it is more adjusted to the needs of non-autistic people.



Verdandi
Veteran
Veteran

User avatar

Joined: 7 Dec 2010
Age: 55
Gender: Female
Posts: 12,275
Location: University of California Sunnydale (fictional location - Real location Olympia, WA)

01 Jan 2012, 9:51 pm

Fnord wrote:
One more time, for those who did not read it before...

Fnord wrote:
Of course those who "Diagnose" themselves are welcome! A person's beliefs should have no bearing on his or her eligibility for membership.

Whether or not you have an objective, valid and official diagnosis of AS/ASD, you are welcome here.


These three things are not automatically correlated. You can have an official diagnosis that is not objective and may be invalid (except in terms of paperwork). An unofficial diagnosis (self-diagnosis) can be valid and/or professional (kfisherx has an unofficial, valid, professional diagnosis, for example - she doesn't have an official diagnosis for a lot of valid reasons).

Also, as I pointed out before, a self-diagnosis is not necessarily a matter of "belief" or "faith." That's a fallacious connection.



Last edited by Verdandi on 01 Jan 2012, 9:55 pm, edited 1 time in total.

Verdandi
Veteran
Veteran

User avatar

Joined: 7 Dec 2010
Age: 55
Gender: Female
Posts: 12,275
Location: University of California Sunnydale (fictional location - Real location Olympia, WA)

01 Jan 2012, 9:54 pm

Magnus_Rex wrote:
I have not seen any evidence of undiagnosed people being unwelcome here. Sure, there are people like Fnord, but his problem seems to be more with the fact that we have no formal training for diagnosing than the diagnosis itself. He only needs to get over the fact that one does not have to be competent to get a diploma: there are many "formally trained professionals" out there misdiagnosing their patients.


Aside from disagreement with how Fnord frames self-diagnosis, I agree that he is not and never has to my knowledge tried to say anyone is unwelcome.

I have seen some posters actually make some really nasty comments about self-diagnosis. In one of the recent threads, one poster was complaining that self-diagnosees were somehow ruining official diagnoses by trivializing the time and money invested in them, even though a self-diagnosis may involve far more time and research than an official diagnosis, and some amount of money (due to buying books on AS and autism).



iceveela
Velociraptor
Velociraptor

User avatar

Joined: 16 Aug 2011
Age: 32
Gender: Female
Posts: 438

01 Jan 2012, 10:18 pm

Verdandi wrote:
Magnus_Rex wrote:
I have not seen any evidence of undiagnosed people being unwelcome here. Sure, there are people like Fnord, but his problem seems to be more with the fact that we have no formal training for diagnosing than the diagnosis itself. He only needs to get over the fact that one does not have to be competent to get a diploma: there are many "formally trained professionals" out there misdiagnosing their patients.


Aside from disagreement with how Fnord frames self-diagnosis, I agree that he is not and never has to my knowledge tried to say anyone is unwelcome.

I have seen some posters actually make some really nasty comments about self-diagnosis. In one of the recent threads, one poster was complaining that self-diagnosees were somehow ruining official diagnoses by trivializing the time and money invested in them, even though a self-diagnosis may involve far more time and research than an official diagnosis, and some amount of money (due to buying books on AS and autism).


I agree, I have spent copious amounts of hours researching both autism and aspergers, I have also done plenty of research on many other mental illness' just out of pure curiosity and boredom, such as ADHD, schizophrenia, Bipolar disorder, depression, and the likes. I found many different sites both by medical professionals, and people who have aspergers, I spend a lot of time on here reading posts, I read and watch videos posted on here, I have watched every documentary I can find on aspergers, and have read every book my library had to offer on many different psychological illness', which includes aspergers and autism, as well as others, such as ADHD, Scizophrenia, and even other disorders like epilepsy.

I believe my self-diagnosis is more a educated guess than just a shot in the dark to excuse poor social habits, and is also not just me trying to pin a disorder on myself for any reason. My "special interests" in science have kept me quite busy with studying throughout the years...

so more research and time have gone into my self diagnosis than the research that has gone into my little brothers professional diagnosis of autism, or my professional diagnosis of Gender Identity Disorder...


_________________
Aspie score: 164/200
NT score: 60/200
You are very likely an Aspie!

AQ: 36


Sweetleaf
Veteran
Veteran

User avatar

Joined: 6 Jan 2011
Age: 34
Gender: Female
Posts: 34,916
Location: Somewhere in Colorado

02 Jan 2012, 12:54 am

OddDuckNash99 wrote:
The only thing I have against a self-diagnosis is when a person self-diagnoses themself with AS but never needs to seek professional help, be it therapy or medication or whatever. All DSM diagnoses specifically say that the symptoms/diagnoses must cause "significant impairment in functioning." If someone thinks they have AS but doesn't need accommodations of any sort and can live their lives without seeking some kind of diagnosis, how is that really an AS diagnosis? (This excludes cases where a person cannot afford to seek an official diagnosis, of course.) It's not impeding on their life enough to cause significant problems. I'm all for self-diagnosis as a starting point. I correctly self-diagnosed myself with OCD about a year-and-a-half before I received an official diagnosis, but I needed to pursue an official diagnosis to get the help I need to live a somewhat "normal" life. AS is debilitating in many aspects, and I've heard many tales of self-diagnosis that only show Aspie traits or being part of the BAP rather than the full-blown condition.


I think its a bit more complicated then that........not only is it very difficult to afford professional help when you have no health insurance and cannot even get on medicaid, but then even if you can afford professional help it might not work. I've tried therapy and it did not really make much difference because I've never ran into a mental health professional knowlegable enough to really help me, I tried anti-depressants for my co-morbid depression and all that did was screw my mental state up even more.

So at this point in time I cannot afford professional help with any of the things I struggle with, not to mention I really don't know there is anything anyone within the system can really do for me. Naturually their goal would be to try and get me to function as normally as possible so I can at least contribute somewhat to a job or whatever.......well fitting in with what is socially acceptable is not one of my goals, if there was therapy availible that could help me with my personal lifestyle and the difficulties i face with pursuing that.....but it seems all thats out there is therapy to help you become more normal.


_________________
We won't go back.


Sweetleaf
Veteran
Veteran

User avatar

Joined: 6 Jan 2011
Age: 34
Gender: Female
Posts: 34,916
Location: Somewhere in Colorado

02 Jan 2012, 12:56 am

Fnord wrote:
nemorosa wrote:
Fnord wrote:
Of course those who "Diagnose" themselves are welcome! A person's beliefs should have no bearing on his or her eligibility for membership.
Just like so many have "belief" in their "Doctor". All welcome.

At least belief in medical science is firmly based in objective reality.


Well I totally based my self diagnoses on random impulsive thoughts I had, I never consulted with my therapist about it, never looked at any reliable sources about it and fancy myself smarter than everyone with a psychology degree. :roll:


_________________
We won't go back.


Fnord
Veteran
Veteran

User avatar

Joined: 6 May 2008
Age: 67
Gender: Male
Posts: 60,896
Location: Stendec

02 Jan 2012, 1:18 am

Sweetleaf wrote:
Fnord wrote:
nemorosa wrote:
Fnord wrote:
Of course those who "Diagnose" themselves are welcome! A person's beliefs should have no bearing on his or her eligibility for membership.
Just like so many have "belief" in their "Doctor". All welcome.
At least belief in medical science is firmly based in objective reality.
Well I totally based my self diagnoses on random impulsive thoughts I had, I never consulted with my therapist about it, never looked at any reliable sources about it and fancy myself smarter than everyone with a psychology degree.

At least you admit it.



Cringe
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 26 Dec 2011
Age: 33
Gender: Female
Posts: 36

02 Jan 2012, 1:29 am

Fnord wrote:
Sweetleaf wrote:
Fnord wrote:
nemorosa wrote:
Fnord wrote:
Of course those who "Diagnose" themselves are welcome! A person's beliefs should have no bearing on his or her eligibility for membership.
Just like so many have "belief" in their "Doctor". All welcome.
At least belief in medical science is firmly based in objective reality.
Well I totally based my self diagnoses on random impulsive thoughts I had, I never consulted with my therapist about it, never looked at any reliable sources about it and fancy myself smarter than everyone with a psychology degree.

At least you admit it.


My question is, what distinguishes a dx from a non dx (assuming they both have AS) if neither are currently in therapy? Does everyone with AS have to want therapy?


_________________
AQ Score [39]
Your Aspie score [157 of 200]
Your neurotypical (non-autistic) score [51 of 200]

Aiming to see a clinician in 2012 to get some answers.


Fnord
Veteran
Veteran

User avatar

Joined: 6 May 2008
Age: 67
Gender: Male
Posts: 60,896
Location: Stendec

02 Jan 2012, 1:36 am

Cringe wrote:
Fnord wrote:
Sweetleaf wrote:
Fnord wrote:
nemorosa wrote:
Fnord wrote:
Of course those who "Diagnose" themselves are welcome! A person's beliefs should have no bearing on his or her eligibility for membership.
Just like so many have "belief" in their "Doctor". All welcome.
At least belief in medical science is firmly based in objective reality.
Well I totally based my self diagnoses on random impulsive thoughts I had, I never consulted with my therapist about it, never looked at any reliable sources about it and fancy myself smarter than everyone with a psychology degree.
At least you admit it.
My question is, what distinguishes a dx from a non dx (assuming they both have AS) if neither are currently in therapy?

Bloody good question! What's the point of a self-diagnosis if the person with the "diagnosis" can not or will not do anything about it?

Cringe wrote:
Does everyone with AS have to want therapy?

I go speak to my therapist once a month or so. She says I'm "developing effective coping skills" well enough for a man my age.



Cringe
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 26 Dec 2011
Age: 33
Gender: Female
Posts: 36

02 Jan 2012, 1:50 am

oh, you are looking at diagnosis for the practical applications (how do i fix myself?), while some others see a diagnosis as a key to unlock some of Life's Mysteries (is there something wrong with me?)

Some people just want peace of mind i think. So they can stop the exhausting search for answers.

Others want to learn how to cope better in this world. Although I am not sure how much cognitive behavioral therapy will help someone with a neurological issue.

I want answers, as well as some practical solutions. Aspergers is hell when you don't know what it is at first.


_________________
AQ Score [39]
Your Aspie score [157 of 200]
Your neurotypical (non-autistic) score [51 of 200]

Aiming to see a clinician in 2012 to get some answers.


conundrum
Veteran
Veteran

User avatar

Joined: 25 May 2010
Age: 45
Gender: Female
Posts: 2,922
Location: third rock from one of many suns

02 Jan 2012, 2:12 am

Cringe wrote:
Some people just want peace of mind i think. So they can stop the exhausting search for answers.


^This.

Just knowing that the mysterious "it" that made me seem so "weird" my entire life has a name, and is shared by many other people, has been a great help to me.


_________________
The existence of the leader who is wise
is barely known to those he leads.
He acts without unnecessary speech,
so that the people say,
'It happened of its own accord.' -Tao Te Ching, Verse 17