Aspies saying they're Austic without context.

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Do you think Aspies should say "I'm Autistic" instead of "I have Asperger" (I'm not talking about as part of a larger discussion ie: "Aspergers is related to/type of Autism"
Poll ended at 27 Oct 2012, 11:38 pm
Yes 72%  72%  [ 23 ]
No 28%  28%  [ 9 ]
Total votes : 32

seekingtruth
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02 Jan 2012, 8:18 pm

When it comes to my son, who is 6, and we are in a store or somewhere and he's having a meltdown and people are looking at me to do something in the form of discipline or wondering if I'd hit him. I don't have time to explain an Asperger's diagnosis that many of them are clueless about so I just quickly say "He has a form of Autism, sorry for the disruption, we are fine, thank you for understanding." And move on to taking care of his needs.

It's too much and too confusing to most people, but almost everyone has at least heard of autism, so unless you have time and they care to listen it works in a pinch.

I do agree with some of the posters that it's good to get the point out that autism isn't just completely disabled people, they can look beautiful like my son and seem normal during short visits........ too long with my son and his quirkiness is undeniable - love that boy!


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N0tYetDeadFred
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02 Jan 2012, 8:31 pm

A lot of people have fought for the right to self-identify as autistic, and I agree with them.

It's not the right thing to say in every situation, but it's an option.



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02 Jan 2012, 8:55 pm

fraac wrote:
I like calling myself autistic because it's a mindf**k for whoever I'm talking to.


Sounds like you're a good candidate for that shirt that says, "I have autism. I speak for myself." If I ever get diagnosed, I'm considering one for myself. I actually like the idea of the reaction of a person first seeing it more than I would want it for the politics, much as the politics might concern me.

TheSunAlsoRises, as I understand it, Asperger's isn't going to be removed from the DSM when the next edition comes out. Autism will simply be an umbrella term, and Asperger's will be under that umbrella. I had this question myself, and another poster was able to clear that up for me. I think it's a separate diagnosis now, with much debate as to whether or not it's a form of autism, and the next DSM will categorize it as a form of autism, which settles the debate at the "official" level, even if many people will continue to disagree.

Anybody want to confirm for me if I got it right this time?


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Phidaissi
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02 Jan 2012, 10:11 pm

I tend to identify as autistic and if asked for more detail (or if it seems contextually appropriate) will clarify that with the term aspergers.

I agree with others that say that it's all the same thing.
It's just variance between which things are more problematic, and severity is not always apparent.

Despite appearing very intelligent and functional to most people, they don't realise how many issues I have with general day-to-day tasks, motivation, sleeping patterns, etc.

The capacity to cope with your issues is a separate issue to having the issues.
Whether others notice your differences doesn't define whether they exist of not.



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02 Jan 2012, 11:21 pm

People can say what ever they like. Asperger's is still on the autism spectrum so it's not like people are being dishonest.

I have more in common with autism or my symptoms don't fit any annoying AS stereotype. I would say I'm autistic depending on the situation and my ability to speak. I only say I have Asperger's around my family and my psychiatrist who thinks I'm only 'a bit' Asperger's. My sensory issues are severe, my executive dysfunction can be so hard to overcome some days without medication, and sometimes though I can communicate well a day later or maybe a few days later it's like I've forgotten three years of social skills training. Self training. It's like I'm back three years ago when I didn't even know why I couldn't have a normal conversation with people.

And today, I just feel so drained of mental and physical energy all I want to do is lie on my bed and sleep and wake up hopefully with the ability to at least walk.


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02 Jan 2012, 11:31 pm

Callista wrote:
Well, here's my take on it.

Thinking of the people I know who have autism, I see a group of people who are very diverse. They are anywhere from completely independent and self-supporting since the age of 18, to living at home as adults and needing help every day.

The people I know who have Asperger's have exactly the same distribution of independence levels, except that they are on average better with speaking. Note that I don't say "better at communicating", because they aren't; they are just better at speaking.

The difference is so small that I have come to the conclusion that Asperger's and autism proper are the same thing. It's not just that "Asperger's is a form of autism", but actually, "Asperger's IS autism." There was never any difference. We just didn't know that autistic people could speak until we named Asperger's. With the definition of Asperger's, not only did we get the Asperger's subset of the Spectrum, but the classic autism group also gained many people who could speak and take care of themselves--they are, in fact, the majority of classic autism cases now.

So, when I say "I am autistic," I mean not just that "I've been variously diagnosed with Asperger's, autism, and PDD-NOS, and believe PDD-NOS to be the best description so far," but, "I think dividing the autism spectrum into subcategories makes no diagnostic or clinical sense." There are no subcategories--just one very diverse category called "autism".

Anyway, when I identify myself as autistic--obviously odd, but also competent and fairly independent--I'm making the point to everyone I meet that autism is more likely to be someone like me than someone like the Autism-Speaks stereotype.


Agreed!! !



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02 Jan 2012, 11:48 pm

I will not use the term "Aspergers" as pertaining to myself (should it come up for whatever reason)....without adding in the further explanation regarding my "place" on the spectrum...I am much more prone to say that I am "on the spectrum", and that while I was assessed with "Aspergers" it was not the same as a "formal diagnosis"...but I DO identify myself as being a "person on the autistic spectrum"......I generally don't get the chance to explain all that, but am more comfortable with saying that I am "mildly autistic"...I have my strengths and my weaknesses...I am different from a "classic Aspie" male..because (I guess) a lot of Spectrumy females are...My boyfriend is more of a "Classic Aspie"...he is more "functional" than me....In restaurants, we sit next to each other rather than across cause I am a crazy tactile stimmer..who gives compulsive backrubs and we are much more comfortable when we don't have to look across at each other....but he went to college....drives...has a stressful IT job....an all-consuming video game obsession etc....has Very high IQ...is walking encyclopedia regarding certain subjects....CAN be better at talking..whereas I am verbally much more repetitive and childlike...We both have funny voices....he does not have to wear noise cancelling earmuffs the way I do, and is not medicated.....I have more of a need for some form of "emotive communication" that he would prefer to avoid.....but he is the most gentle, warm cuddly sort of person....tho he will completely shut down at the slightest hint of emotive communication to such an extent that it has caused me a lot of stress..and I eventually got on prozac, and that actually helped me "deal" with it....gar....going "off topic"....He has acknowledged "aspergian traits" in the past, but would never identify himself as an aspie...let alone...as being a person with leanings towards the Austistic Spectrum....



RobotGreenAlien2
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03 Jan 2012, 12:33 am

Guineapigged wrote:
This is something I've been wondering about for a while. We could talk for hours about whether people with Asperger's should identify as autistic or not, but in real life, what is the correct etiquette? Is it acceptable to say "I'm autistic" to save yourself having to say "I have Asperger's, which means x ,y and z"?
Sometimes I think it would be easier to say "I'm autistic" but at the moment I wouldn't because it just doesn't seem right. Plain "autistic" implies a certain degree of severity, whether you like it or not. "I have an autistic spectrum disorder" seems like a fairly good compromise because the world "autism" is in there without implying Kanner's syndrome.


I think I'm on the same page as you here. A few people refered to medical deffinitions but they dont matter to most people.
I agree with those that are in favour of having a longer descussions with people. Infact if I had that chance I'd explain what it means for me and save the medical terms until the end so they dont begin with the steriotype.
It does realy come down to who you are I suppose.