What type of research is most important to you?

Page 3 of 3 [ 44 posts ]  Go to page Previous  1, 2, 3


What type of research is most important to you?
Poll ended at 11 Jul 2012, 11:45 am
Research with the sole intent of understanding and explaining Autistic behaviors. 73%  73%  [ 43 ]
Research to use observed behaviors in an effort to trace them back to the cause of Autism. 27%  27%  [ 16 ]
Total votes : 59

Washi
Veteran
Veteran

User avatar

Joined: 25 Nov 2010
Gender: Female
Posts: 804

15 Jun 2012, 10:09 pm

MindWithoutWalls wrote:
Same argument as in my response to the now well discredited argument over vaccines.

Science doesn't discredit but backs up what I'm saying. This may not be the best link but is just the first one I found and is the sort of thing I'm referring to, I don't believe this accounts for all cases of autism nor do I think my autism is the same as yours. http://www.ncbi.nlm.nih.gov/pubmed/21195109



MindWithoutWalls
Veteran
Veteran

User avatar

Joined: 25 Oct 2011
Age: 56
Gender: Male
Posts: 1,445
Location: In the Workshop, with the Toolbox

16 Jun 2012, 8:43 am

Washi wrote:
I don't believe this accounts for all cases of autism nor do I think my autism is the same as yours.


Always a good point to remember. Thank you.


_________________
Life is a classroom for a mind without walls.

Loitering is encouraged at The Wayshelter: http://wayshelter.com


1000Knives
Veteran
Veteran

User avatar

Joined: 8 Jul 2011
Age: 33
Gender: Male
Posts: 5,036
Location: CT, USA

16 Jun 2012, 11:07 pm

I don't consider Aspergers/ASD a real diagnosis. It has about zero actual diagnostic value. It's the same type of diagnosis as fibromyalgia, chronic pain, etc. Yes, the people that have those diseases are certainly in pain, but the problem is, their pain can stem from all sorts of different things. Sometimes it's nutritional deficiencies, sometimes it's not, but diagnostically, fibromyalgia isn't a helpful diagnosis, as it doesn't narrow things down enough to actually treat what's causing it.

It's the same situation with Aspergers/ASD at the moment. For example, for me, I've got NVLD, nonverbal learning disorder. Basically, my verbal IQ is like 130+, or 98th or 99th percentile, but my performance IQ is about 80, or 10th percentile. For all intensive purposes, it "acts" like Aspergers, and I've been diagnosed Aspergers (in passing, as in pyschs told I had it, but no paperwork done) schizoid/blah blah, but the real problem is my neurology is messed up. What happens with NVLD is the right brain hemisphere is dysfunctional in some way, in a lot of ways it's similar to what happens after people get right brain strokes or damage from accidents. But, the neurological root isn't being looked at really, and it's a shame. It's hard to "fix" neurology, but it's easier to figure out how to solve the problems when you know what's going on. For example, I know someone on here with NVLD who's performance IQ went up after doing vision exercises, so while I'm not a neurologist, yeah... Either way, I'd love for someone to study NVLD more, the diagnostic rate is low, though, it's about 1/1000 diagnostic rate, whereas Aspergers is about 1/100 people. Partially because it's rarer, but then I think the other problem is people with NVLD are getting misdiagnosed Aspergers. In a lot of cases, schools will diagnose NVLD kids Aspergers just because the IEPs are similar.

But, going with that, there's people with Aspergers that are definitively not NVLD. I'm thinking more of the extreme visual thinker types, that's sorta the opposite of NVLD. I'm thinking lower functioning autism too, is a different disease than "Aspergers" too, in most cases. So yeah, looking into actual causes neurologically of what's going on, and understanding why, that's what I'd like. It took forever to get the NVLD diagnosis, but it's really the only thing that makes sense to me, because psychology is so subjective of a "science" that one person can say I have whatever, another can I say I have something else or don't have something, you need to figure out neurologically what's really the case.



Ganondox
Veteran
Veteran

User avatar

Joined: 7 Oct 2011
Age: 28
Gender: Male
Posts: 5,777
Location: USA

17 Jun 2012, 1:26 pm

Neither one, they are both terrible, but I'd prefer the first one, the second one is useless.


_________________
Cinnamon and sugary
Softly Spoken lies
You never know just how you look
Through other people's eyes

Autism FAQs http://www.wrongplanet.net/postt186115.html


Ettina
Veteran
Veteran

User avatar

Joined: 13 Jan 2011
Age: 35
Gender: Female
Posts: 3,971

17 Jun 2012, 6:51 pm

Quote:
I don't consider Aspergers/ASD a real diagnosis. It has about zero actual diagnostic value. It's the same type of diagnosis as fibromyalgia, chronic pain, etc. Yes, the people that have those diseases are certainly in pain, but the problem is, their pain can stem from all sorts of different things. Sometimes it's nutritional deficiencies, sometimes it's not, but diagnostically, fibromyalgia isn't a helpful diagnosis, as it doesn't narrow things down enough to actually treat what's causing it.


That's true for almost all psychiatric diagnoses, actually. Psychiatric genetics is finding that people with the same diagnosis can have totally different genetic variations, while people with a given genetic variation can have a whole spectrum of conditions. One of the reasons I like studying behavioral phenotypes of genetic conditions such as Down Syndrome or Williams Syndrome. You know there's good reason to group these people together.



Rascal77s
Veteran
Veteran

User avatar

Joined: 12 Nov 2011
Age: 47
Gender: Male
Posts: 2,725

17 Jun 2012, 7:06 pm

Ettina wrote:
It terrifies me to think of kids like me being selectively aborted. There already is selective abortion for the few cases of autism with a known genetic cause, such as Fragile X Syndrome.



People like you have been selectively aborted for decades. They don't take too kindly to Female Syndrome in China.



anberre
Butterfly
Butterfly

User avatar

Joined: 18 May 2012
Age: 36
Gender: Male
Posts: 12

18 Jun 2012, 11:03 pm

Ganondox, what would you prefer research focused on?



Rascal77s
Veteran
Veteran

User avatar

Joined: 12 Nov 2011
Age: 47
Gender: Male
Posts: 2,725

23 Jun 2012, 1:25 am

anberre wrote:
Great, let me know what they tell you, I'm interested to hear what theories may be present about that


Met the researcher today and performed some tests with EEG. Have to say I looked pretty studly in the cap. At the end I asked her about this and she had no clue. Either there's something to this or I'm nuts. Probably the latter. I did notice her stance was like mine, duck foot.



anberre
Butterfly
Butterfly

User avatar

Joined: 18 May 2012
Age: 36
Gender: Male
Posts: 12

25 Jun 2012, 9:02 am

That's interesting, I guess we'll both have to just keep our eyes and ears open for some research about this.



Ettina
Veteran
Veteran

User avatar

Joined: 13 Jan 2011
Age: 35
Gender: Female
Posts: 3,971

25 Jun 2012, 1:15 pm

Quote:
People like you have been selectively aborted for decades. They don't take too kindly to Female Syndrome in China.


Good point. For some reason though I identify more as an autistic person than as a woman, so it hits me harder emotionally to think of autism being selectively aborted.



Rascal77s
Veteran
Veteran

User avatar

Joined: 12 Nov 2011
Age: 47
Gender: Male
Posts: 2,725

25 Jun 2012, 1:23 pm

Ettina wrote:
Quote:
People like you have been selectively aborted for decades. They don't take too kindly to Female Syndrome in China.


Good point. For some reason though I identify more as an autistic person than as a woman, so it hits me harder emotionally to think of autism being selectively aborted.


I'm male and what IS being done to women hits me harder than what MIGHT be done to autistic people. It is hard for westerners to fully comprehend the level to which women are dehumanized in most parts of the world unless you have seen it with your own eyes.



MindWithoutWalls
Veteran
Veteran

User avatar

Joined: 25 Oct 2011
Age: 56
Gender: Male
Posts: 1,445
Location: In the Workshop, with the Toolbox

25 Jun 2012, 1:33 pm

People forget too easily about foot binding, too, now that it's been ended. Those who know about it also often have no idea of all that it involved and the full effect of it. Ugly, ugly practice, that.


_________________
Life is a classroom for a mind without walls.

Loitering is encouraged at The Wayshelter: http://wayshelter.com