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Why are so many aspies against medical research in Asperger?

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Fnord
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30 Jan 2013, 12:29 am

DVCal wrote:
I actually can understand why someone be distrustful of being a subject in medical study. Historically medical researchers have done some terrible things to those who they were studying. Even basically forgetting that the subject were people and not lab rats. That was the past though. Today things are much better, and researcher have a much better grasp of ethics.

Ethical people would pay their "research subjects" a living wage.



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30 Jan 2013, 12:41 am

DVCal wrote:
The purpose is likely to find a cause or some kind of treatment or cure, or simply to study how an autistic mind works.


That's the reason that I'm fearful of that type of testing and research. There's nothing about me that needs to be cured and if somebody tries to do that to me, I'll sue them.


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30 Jan 2013, 1:11 am

DVCal wrote:
I was talking to some fellow Aspies about volunteering for medical research in Asperger, and all of them seem to very much opposed to it. I am talking about EEG, MRI, or blood and tissue sample type research.

I would be happy to help in such research, and don't get the strong opposition.


I would do almost anything for science, I participated in an OCD study and it was very interesting. Sign me up!



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30 Jan 2013, 1:13 am

Yuugiri wrote:
I'd love treatment. I hate being socially anxious and lonely all the time. I want to be able to relate to people at large. Plus, I'm all for furthering scientific knowledge in general.

No one would forcibly "cure" you guys. I doubt there's even a "cure" out there. Imagine having your lovely autistic brains with better coping mechanisms to deal with/without all the negative symptoms. No more meltdowns, no more overstimulation, no more social troubles (for those of us who are interested in connecting with other people). It's idealistic, sure, but I really do not see the downsides of getting treated for this.


I agree completely with this.

Thanks.



Raziel
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30 Jan 2013, 3:10 am

Tyri0n wrote:
Raziel wrote:
rapidroy wrote:
Tyri0n wrote:
DVCal wrote:
I was talking to some fellow Aspies about volunteering for medical research in Asperger, and all of them seem to very much opposed to it. I am talking about EEG, MRI, or blood and tissue sample type research.

I would be happy to help in such research, and don't get the strong opposition.


I had a neuropsychiatrist who said "Don't worry, I'm not treating you as a subject." My response was "Don't worry, I'd love to be a subject in published research."

I don't get it. All the people who are against cures, I hope you all have jobs. Because, if not, I'm not sure why you feel entitled to be a dead weight on society because of your condition, if it's reversible. You are violating our collective rights as a society by consciously choosing not to be productive for dumb reasons.


I'll say it again, were I live if they find any epilpesy or major changes in your case in your brain while doing these tests you may as well kiss your drivers permit goodbye. For me thats one of the few things I have to inuse some independance in my life and if I lost it I would no doubt contribute even less to socity. Be careful what you ask for when doing these things, the answer may surprise.

When I die however thay can do what they want with my brain since I will no longer require its use and their be no of no vaule to me.


Well, totally different reasons, but I was also getting into trouble, because I wanted to be part of a medical research who had to do with ASD.
Since then I don't do it anymore, because I also have to protect my rights.
I was in that programm, but didn't wanted to finish, that why this particular psychiatry just gave me an ASD suspicion and another shrink send an report about me to my insurance, what they aren't alowed to do and treated me like sh**. 8O
I'm so mad about it that they violated my rights, NOT with me again and being officially a "nut case", I have nearly no chance doing something against it.

So, NO research with me anymore! :shameonyou:


Sounds like some people are way too paranoid. I'm currently reading a book that purports to link this ASD paranoia to the tunnel vision and lack of 3D perception that many people with Aspergers experience. Makes sense because it's completely irrational.

People who resist this type of research for irrational reasons aren't necessarily hurting themselves, but they are hurting millions of others, including low-functioning austistic children who might be totally neurotypical with the proper cure. So, it's an incredible wrong to society to impede such research.


Sounds like you didn't get it.
Some others made the same experience like me and the shrinks also talked to my mom who is an NT(!) and said the SAME THING!
My new shrink was totaly astonished that they just wrote my insurence. Are they all paranoid too? :roll:
Not every researcher is the same!

You are WAY over the top!

I don't have to do it, it's my own choice and I'm independent from the government. So if I spend my time with research, I want to get paid for the time or be treated at least like a human being, otherwise no thanks.
That's my very own choice and I don't have to do anything just because I'm autistic or whatever.

I can do something better with my time than playing lab rat. :roll:


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