Page 3 of 4 [ 58 posts ]  Go to page Previous  1, 2, 3, 4  Next

SteveK
Veteran
Veteran

User avatar

Joined: 19 Oct 2006
Gender: Male
Posts: 2,899
Location: Chicago, IL

09 Jan 2007, 4:14 pm

en_una_isla wrote:
That's it!! The self-diagnosed deserve their own forum!! We keep getting picked on! :lol:

I think the best diagnosticians of AS are childhood bullies ;).

I have no problem with anyone, regardless of diagnosis, lack thereof, etc. WP would much very dull without some of our more interesting self-diagnosed and not-sure-if-I-have-it-or-not members.

For me, learning about AS explains my bizarre behavior as a child and my continued quirks & perceptual issues to this day. It is a comfort to know there might be a "something" that I am, and that there are others like me, or who at least think they are.

I mean, as long as people aren't trying to falsely claim disability (I for one have no intention of filing for disability), what's the real issue here? Is it just a pecking order thing?


YEAH! MOST self diagnosed AS people seem to have gotten it RIGHT, and some doctors diagnosing AS have gotten it WRONG! SO, logically, whether one is self diagnosed or not shouldn't be an issue. As for me, NOBODY but I knows the trouble I have with dealing with people. NOBODY but I and my mother knows about my development history.

My mother doesn't even remember some stuff I do! Just a week ago I reminded her of how I once told her I remembered going to mexico and she didn't remember. GUESS WHAT! In the pictures she gave me, there was a picture of me with the SAME pancho and sombrero I remembered, and the heading said it WAS on the mexico coast! She remembered the event BECAUSE the picture reminded her, and remembered my mentioning it earlier, etc.... She ALSO remembered I was right about where I got them!

As for the skewed senses? I have mentioned it constantly, but nobody paid attention.

Other stuff IS official, etc.... but not good for a solid diagnosis.

HECK, I just got turned down for 2 positions because they didn't feel I had the "people skills", but they figured I was STRONG technically. AS helps explain that.

Steve



Corvus
Veteran
Veteran

User avatar

Joined: 27 Sep 2006
Gender: Male
Posts: 1,674
Location: Calgary

09 Jan 2007, 4:25 pm

Personally, I dont care about diagnosing or not. I wouldnt have selected anything if the choice wasn't there nor would I have cared. Point is, the people here are the people I can relate to very well so having a diagnosis or not, doesn't matter in reality.



Kosmonaut
Veteran
Veteran

User avatar

Joined: 14 Sep 2006
Gender: Male
Posts: 2,253

09 Jan 2007, 4:35 pm

How about a competition?
Let's define a metric for Autistic quality and segregate people accordingly.
A neighbour of mine has 'fragile-X': put them in their own forum, yes?

Stupidest thread ever.
That is all.

EDIT: Well maybe not 'ever', but certainly this forum( since i joined anyway.)



Sedaka
Veteran
Veteran

User avatar

Joined: 16 Jul 2006
Age: 43
Gender: Female
Posts: 4,597
Location: In the recesses of my mind

09 Jan 2007, 6:23 pm

im self DX with AS... though i'm not adamant about it... if i find anything else that fits better... i'll generalize my label as that... but whatever is up with me... what i call it doesn't matter... there are still all the specifics that have caused me trouble all my life... which is why i come here... and why i even bother to generalize my status... which whatever it is... is not normal lol.

from what i understand... unless you were LUCKY enough to get DXed as a child... it's pretty hard to do so as an adult cause it's a developmental/childhood phenomenon... while i have talked at length with a specialist about my childhood and such.. and they did say AS was a likely fit... i have not gone in for further testing. edit: i also doubt that my insurance would even begin to cover this sort of thing... my eyes and teeth come first, lol)

im fine to leaves things be for now...i'm almost done with school and will be able to at least get a job (no one's ever garanteed to keep one!)... so i don't feel the need to get DXed... it's not gonna help me find anymore friends... and i DO have WP for all my theraputic needs!

i just feel sorry for you... you sound like someone who would probably have anger towards NTs as well as the self-DXed aspies. while i can empathize, cause i have had anger towards others too (who hasn't).. i generally grow out of it. why hate on self DXed people?.... i hope things start going better for you and that you can get past this.


_________________
Neuroscience PhD student

got free science papers?

www.pubmed.gov
www.sciencedirect.com
http://highwire.stanford.edu/lists/freeart.dtl


Kosmonaut
Veteran
Veteran

User avatar

Joined: 14 Sep 2006
Gender: Male
Posts: 2,253

09 Jan 2007, 7:24 pm

Yes you seem to have the same understanding of the situation as myself Sedaka ( however, i may not be as diplomatic.)

One point which has not been mentioned so far is that:
In order to get a dignosis of AS you have to go to a specialist in diagnosing AS (at least in this country. I think very rarely would a GP consider such a thing unless prompted.)
And so, you are much more likely to get such a diagnosis from the specialist.
Ie. the diagnosis is also dependant on who you see. Moreover this parameter maybe as effective in the diagnosis as the condition itself.

Personally, i have been diagnosed with AS by such a specialist. But i do feel ( in view of experience with other 'Autistic' people), that i am barely on the spectrum.
I think i could fake being 'NT' quite well. At least as well as some 'NT' could fake being 'AS' to a specialist in diagnosing AS. ( given the same amount of time; clearly the more time you spend with me, the more unavoidable 'leakages' would occur.)

Anyway, what's my point?
Someone sticks a label on you. Or you stick it on yourself. What does it matter?

I think the only benefit in seeing a specialist for a DX is in not getting an AS diagnosis.
Since you may have some other mental dysfunction which is possibly treatable.

Fair enough, there maybe a lot of self-diagnosed people who are 'merely' socially ret*d. And before AS was invented, what became of them? Maybe labelled as 'hermits' or 'bachelors' (monks). When you reach the age of 40 and found yourself incapable of having a long-term relationship with anybody outside of your family, then what does it matter if you are self-diagnosed or not?



snake321
Veteran
Veteran

User avatar

Joined: 25 Mar 2006
Age: 45
Gender: Male
Posts: 3,135

09 Jan 2007, 8:01 pm

Corvus wrote:
HydroPurity wrote:
So what's with all these self diagnosed people? It's a real buzzkill when you find someone who is self diagnosed because it makes me think they're trying to justify being a loser. Not saying that us with AS are losers no matter what we do, but a very disorderly part of the syndrome has to do with being social, so it seems like something someone would claim to have to justify being an outcast or recluse. Personally, if I were never diagnosed, I would've never even considered that maybe I have some rare unknown disorder associated with autism.


From what I read, why would getting a doctors 'approval' on the diagnosis serve any differently? Many here complain their doctor was a moron. Who is to say those 'diagnosed' are even diagnosed correctly? There are many threads popping up stating people were diagnosed wrong all the time. People put too MUCH faith in doctors - you know yourself better then anyone and with the correct knowledge, you can view yourself more subjectively (hard at first).

As well, I dont think I'm a loser - I'm living my life the best way I know possible - whatever makes me happy

You havent questioned why some people even went TO self diagnos themselves. I just didnt look for a condition, I spent a lot of time and personal reflection to come to my conclusion. I had other factors in my life outside of being a simple, quiet loner who cant talk well. I dont use the condition as an excuse, never, nor do I really label myself anything beyond human or 'not average.' If I learn a certain way, aspie or not, I learn a certain way. If I cannot talk, aspie or not, I cannot verbally function well.

I share much in common with Aspies - aspie or not, who REALLY cares?


I agree.... There are alot of people on here faking AS status, BUT, an official diagnosis means nothing. Some of the few REAL aspies on here aren't listed as diagnosed. I myself am diganosed, but I know my peeps when I see them (or in this case read their posts). I don't need to be a proffessional to understand this, I can apply relative logic as due to diagnostic ctiteria. Dude, if you wanna know who the real aspies on here are and who'se faking, contact me, I can't tell you every single one but I can definately tell you some of them.



MrMark
Veteran
Veteran

User avatar

Joined: 3 Jul 2006
Age: 66
Gender: Male
Posts: 8,918
Location: Tallahassee, FL

09 Jan 2007, 8:08 pm

Kosmonaut wrote:
Stupidest thread ever.
That is all.
That's interesting. I feel quite the opposite. There's just so much trivial drivel on this site, some of which I have to admit resopnsibility for. It's refreashing to see a thought provoking thread.


_________________
"The cordial quality of pear or plum
Rises as gladly in the single tree
As in the whole orchards resonant with bees."
- Emerson


snake321
Veteran
Veteran

User avatar

Joined: 25 Mar 2006
Age: 45
Gender: Male
Posts: 3,135

09 Jan 2007, 8:32 pm

Well actually I care to some degree who on here is AS and who is not because people who are pretending, are taking our voices away for their own selfish fashion trends. Lets say a servey for a civil rights issue came along to observe aspie opinions, and most of the "aspies" were just NTs following a trend. It's no different than if lets say, white kids demanded to be viewed as blacks, pretended to be black.
The only reason I hang onto the autistic culture (as much as possible) is because rather I like it or not, I'm going to be labled. This label isnt a choice for me, it's shoved on me. Prejudice is against our "symptoms" not our label. So not bringing it up won't do any good, and this ignorant society will forever make excuses to dodge their responsibility in owning up to their negative behaviors.



SteveK
Veteran
Veteran

User avatar

Joined: 19 Oct 2006
Gender: Male
Posts: 2,899
Location: Chicago, IL

10 Jan 2007, 1:33 am

MrMark wrote:
Kosmonaut wrote:
Stupidest thread ever.
That is all.
That's interesting. I feel quite the opposite. There's just so much trivial drivel on this site, some of which I have to admit resopnsibility for. It's refreashing to see a thought provoking thread.


Frankly, I feel it is silly ALSO! Kosmonaut CLAIMS that you have to be an AS expert in his country, That is certainly NOT the case in the US. Even if it is, NO "AS expert" is qualified to simply make a diagnosis! NONE! Just check out the requirements for diagnosis! They have to make interviews, be observant, etc... OTHERWISE, HFA and AS may look identical, and the person may even be a normal person with some quirks. BESIDES, nobody is perfect.

As for provoking thought? I guess you didn't like the nerd/geek thread. What do you think about the sea monkey thread?

Steve



MrMark
Veteran
Veteran

User avatar

Joined: 3 Jul 2006
Age: 66
Gender: Male
Posts: 8,918
Location: Tallahassee, FL

10 Jan 2007, 6:14 am

SteveK wrote:
I guess you didn't like the nerd/geek thread. What do you think about the sea monkey thread?
I'm afraid I can't keep up with all of 'em.


_________________
"The cordial quality of pear or plum
Rises as gladly in the single tree
As in the whole orchards resonant with bees."
- Emerson


Kosmonaut
Veteran
Veteran

User avatar

Joined: 14 Sep 2006
Gender: Male
Posts: 2,253

10 Jan 2007, 6:57 am

MrMark wrote:
Kosmonaut wrote:
Stupidest thread ever.
That is all.
That's interesting. I feel quite the opposite. There's just so much trivial drivel on this site, some of which I have to admit resopnsibility for. It's refreashing to see a thought provoking thread.


Yes, may i 'take this back'.
I was in a bad mood last night, and interpreted the thread as some kind of perveted elitism.
But i see that there are some other thought provoking issues involved.

Diagnosis is clearly a murky issue.
My view is that a lot of people with an AS diagnosis, would receive a different diagnosis from different
doctors. Or to put it another way: most doctors would have an 'AS-bias' one way or another.
I don't see how self-diagnosis can be much better or worse.



T-rav20
Veteran
Veteran

User avatar

Joined: 5 Jan 2007
Age: 39
Gender: Male
Posts: 1,848
Location: South Jersey

10 Jan 2007, 7:26 am

SteveK wrote:
OTHERWISE, HFA and AS may look identical, and the person may even be a normal person with some quirks. BESIDES, nobody is perfect.



HFA and AS are not separate disorders according too either DSM-IV-TR or the ICD-10 That's why
calling it "Aspergers's" or "High-functioning autism" as though they were single diseases with a simple set of symptoms is so problematic. It's why they call it a 'spectrum', it affects people differently.


_________________
Ceterum autem censeo, Carthaginem esse delendam

The following statement is True, the preceding statement was False.

I'm A PINEY from my head down to my HINEY.


SteveK
Veteran
Veteran

User avatar

Joined: 19 Oct 2006
Gender: Male
Posts: 2,899
Location: Chicago, IL

10 Jan 2007, 7:51 am

T-rav20 wrote:
SteveK wrote:
OTHERWISE, HFA and AS may look identical, and the person may even be a normal person with some quirks. BESIDES, nobody is perfect.



HFA and AS are not separate disorders according too either DSM-IV-TR or the ICD-10 That's why
calling it "Aspergers's" or "High-functioning autism" as though they were single diseases with a simple set of symptoms is so problematic. It's why they call it a 'spectrum', it affects people differently.


Well, they don't LOOK like they are different. In the end, they can seem to, and perhaps BE identical. HFA allows for SIGNIFICANT early development delays, and AS doesn't. Anyway, you poved my point! THANKS!

Steve



Hovis
Veteran
Veteran

User avatar

Joined: 9 Jul 2006
Age: 50
Gender: Female
Posts: 936
Location: Lincolnshire, England

10 Jan 2007, 8:13 am

MrMark wrote:
I'm "self-diagnosed." The way it was explained to me, there are six parameters for Asperger's. A person must have a positive score in at least three for a positive diagnosis. I only get a positive score in one, the social, where I'm at the top of the scale. So technically, I'm not Asperger's. But I'm not a "loser" either. My life has been very difficult, and I've struggled long and hard to understand why. AS explains the aspects of my life that are not explained by ACOA and SAD. So I feel like I fit in here. I have the same difficulties with social skills that NTs take for granted as everyone here. I've never been less than completly honest about my status. I'm not a "wannabe." In fact, being here has made me appreciate how much worse things could be. I think we try to be very inclusive here. That's why "neurotypical" is a profile option. I didn't check that one because it clearly doesn't apply.


MrMark, you could easily have been describing me here. According to the psychiatrist who sent a questionnaire recently for my parents to fill in, I didn't show sufficient symptoms in childhood for a diagnosis to be persued (although he hasn't actually seen me in person, I might add). However, all self-tests give me a 'very likely' or borderline AS result. All my life I've had huge difficulty 'getting' other people, as if there was some unseen something that they automatically understood and I didn't. I've accepted that there's clearly something very different about the way I think and searched for information that might explain it, and the autistic spectrum is the closest match I've found.

The more posts I read here from people both professionally and self-diagnosed, the more descriptions I recognize in myself. Sometimes I can say, "Yes, that's what I do/feel like, exactly." Other times, it's more a case of I can understand the pattern of thinking; as if it's an exaggerated form of my own thoughts. I suspect that an apt diagnosis for me, if there was such a thing, would be 'Aspie-minded'.



T-rav20
Veteran
Veteran

User avatar

Joined: 5 Jan 2007
Age: 39
Gender: Male
Posts: 1,848
Location: South Jersey

10 Jan 2007, 8:20 am

SteveK wrote:
T-rav20 wrote:
SteveK wrote:
OTHERWISE, HFA and AS may look identical, and the person may even be a normal person with some quirks. BESIDES, nobody is perfect.



HFA and AS are not separate disorders according too either DSM-IV-TR or the ICD-10 That's why
calling it "Aspergers's" or "High-functioning autism" as though they were single diseases with a simple set of symptoms is so problematic. It's why they call it a 'spectrum', it affects people differently.


Well, they don't LOOK like they are different. In the end, they can seem to, and perhaps BE identical. HFA allows for SIGNIFICANT early development delays, and AS doesn't. Anyway, you poved my point! THANKS!

Steve


Really? that's funny I don't remember proving your point, perhaps you misunderstood mine. MY point was that though they present different symptoms they're the same disease-process affecting different people in different ways. Infact so far as I can tell you're arguing two contrary points at the same time. Do explain


_________________
Ceterum autem censeo, Carthaginem esse delendam

The following statement is True, the preceding statement was False.

I'm A PINEY from my head down to my HINEY.


logitechdog
Veteran
Veteran

User avatar

Joined: 19 Nov 2006
Age: 40
Gender: Male
Posts: 973
Location: Uk - Thornaby

10 Jan 2007, 8:23 am

You guys tryed the AQ autism test? 16+ - adults


http://www.wired.com/wired/archive/9.12/aqtest.html (make sure you save the options you pick - or use (AQ test)

With scores of 26 or lower indicating that a diagnosis of Asperger Syndrome can effectively be ruled out.

You only really need to do this top one :)

/*
Important header Read first file
Reference
The Adult Asperger Assessment (AAA): A Diagnostic Method
http://www.autismresearchcentre.com/tests/aaa_test.asp

All tests are In 1 here at the bottom
*/

http://www.autismresearchcentre.com/tests/aq_test.asp (AQ test)
http://www.autismresearchcentre.com/tests/eq_test.asp (EQ test)


http://www.autismresearchcentre.com/tests/aaa_test.asp Then use this Excel sheet and you need to run a macro... all info is they.. (This is used after you done the AQ test.. EQ Test

http://www.autismresearchcentre.com/tests/default.asp All tests here if any of them go in it as well....

How’s that for a better diagnoses lol



Last edited by logitechdog on 10 Jan 2007, 9:47 am, edited 6 times in total.