how many aspies here are undiagnosed or unsure

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another_1
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15 Mar 2013, 2:55 pm

Self diagnosed, and I'm ok with that.

If the diagnosis of Aspergers had been available when I was, like, 12, I have no doubt whatsoever that I would have gotten one then. By the time it was added in 1994, I was 34 years old (or 33, depending on what month they released the revision :lol: ), and, while I'd vaguely heard of it, I didn't actually find out any details about it until a month before my 50th birthday. I've learned enough coping skills that if I chose to pursue a formal DX it would likely take someone with a great deal of experience with adult autistics to accurately evaluate me.

Asperger's explains absolutely EVERYTHING about me that sets me apart from the norm. Following strategies other Aspies have had success with seems to be helping me deal with the issues that still give me problems. Considering the appalling lack of support available even to autistic adults who struggle much more than I do, I see no reason to spend large quantities of money to confirm something I already am sure of. As far as I'm concerned, the old adage, "if it walks like a duck, talks like a duck, and looks like a duck - it's a duck.!" applies. So . . . I talk like an Aspie, I have social issues like an Aspie, I have sensory processing issues like an Aspie, I have meltdowns/shutdowns like an Aspie, I have executive function issues like an Aspie, etc., etc., etc. . . . I'm an Aspie!



hey_there
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15 Mar 2013, 3:53 pm

I am undiagnosed and am sure that I am not really an aspie, because aspies have repetitive behaviors, routines (and a hatred of change in them), sensory issues, special interests and stuff like that, but I don't have any of these things. I just have some issues with reading body language, and some issues with understanding pragmatics, like when people are joking and using sarcasm (I have a bit gotten better at detecting sarcasm) or understanding that something I've said may have been rude (this has improved a lot over the years). Also, what I tend to do a lot is correct others, and if they disagree with my correction I start arguing with them. Like for example the other day my grandma was looking at the sunset and she said what a pretty red sunset is was, but I had to correct her because the sun was orange and not red. (which we argued about for a few seconds)


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I only have a few traits of AS and don't meet the diagnostic criteria.


tall-p
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15 Mar 2013, 5:42 pm

No one would be interested in a formal dx about me. I don't want any pills. I don't want to talk to a "doctor," who thinks he/she knows who is this and who is that. Most all of them have an ulterior agenda... they want to SELL you pills that make you feel better, and that keep you coming back for MORE... and forever. Because the pills don't heal you.


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15 Mar 2013, 5:55 pm

me



Webalina
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16 Mar 2013, 12:00 am

FishStickNick wrote:
Undiagnosed and unsure, but I think there's a good chance that I have AS. It's the one thing that seems to explain all of my quirks.


Same here. I just recently discovered that I seem to fit somewhere on the spectrum. Even though I've scored ridiculously high on the assessments, I'm still not 100% sure. I AM however more sure now than I was when I first started researching it last summer. Then I was about 60% sure. Now it's more like 90%. If I DON'T have it, I can't imagine what else it could be....there's NO WAY I'm NT.

I'm considering getting diagnosed, but only for proof to people who question me or my oddball behaviors, and to satisfy my need for closure. I can't stand to leave issues open-ended.



Yuzu
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16 Mar 2013, 12:29 am

I have some AS traits, but since I did not have any problems in school growing up, I probably don't have it. I'm more likely to have schizoid/avoidant pd.



gratin
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16 Mar 2013, 3:58 am

Mindsigh wrote:
gratin wrote:
LizNY wrote:
Undiagnosed but 99.5% sure I have it. It describes all of the difficulties I've had throughout my life, and I can relate to so many of the things posted here. At this point, I don't kno if I can get a dx. I've learned to mimic so many social aspects that I can fake for a while. And once I stop faking, they think I'm intentionally being difficult. The funny thing is....when I fake social interactions, people often say I'm fake. I don't get it....


I mimic as well, eye contact in particular, and I don't know if I'm doing it right because I don't know instinctively. Taught myself to ask people how they are too and stuff like that just with time / experience of observing.


I was told by a psychiatrist that I'm too articulate to have it. I learned to mimic all the social stuff as a young adult from watching my coworkers in retail. I tend to view other people as "customers" now and there's still an imaginary counter between myself and them. If I'm in a situation where I can't apply the retail model, I'm lost.


The paediatrician my daughter saw last week said girls were better at being able to mimic (she makes eye contact, etc) and more difficult to diagnose ... and that they could sometimes mimic role play even though it wasn't instinctive. So maybe thinking is changing.



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16 Mar 2013, 4:02 am

undiagnosed
my country there is no awareness even among doctors


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Jensen
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16 Mar 2013, 4:34 am

FishStickNick wrote:
rebbieh wrote:
Some days I really think I have it and other days I think it's ridiculous to even suspect it.

This. Some days I feel "normal" and wonder why I ever thought I have AS. Other days, I wonder why I ever doubt having AS.

The same.
I had clear autistic traits as a child and a young adult (no late developments, though), - and I still have a few.
Tests are showing the same, but I am social and well liked (which I wasn´t always), and if people accept certain weaknesses, such as not being good at multitasking, having to have predictability and a good view over my working day, and confusion, when too much is happening at one time, I really have no problems.
My thinking in patterns is appreciated on the job, my pefectionism too, and the humour there is so thick, that I don´t miss it :wink:

Over time I have been called so many things, been given so many labels. It has confused me, and I feel that I have had no say in in it myself. That is possibly why I often feel that I NEED to know. (I feel very much at home in here, so.....)
Tests show, that I am in the area, where AS could be suspected (AS: 110, NT:99, AQ:33, EQ: 27, SQ: 41, Face: 31, RAADS: 118) I might take it up with a psychologist specialized in AS, just to settle my mind.



angelbee
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16 Mar 2013, 10:00 am

I am self diagnosed and ok with that. A lot of people say I'm normal but they have no clue how much I struggle to imitate and act normal. I don't want the government putting a label on me and making me spend money on a diagnosis. I know I'm an aspie and that makes me normal in the autism world.


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shubunkin
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16 Mar 2013, 5:16 pm

diagnosed at last

can someone help me- my profile won't update?
who sorts that sort of thing out ...?



conundrum
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16 Mar 2013, 8:38 pm

shubunkin wrote:
diagnosed at last

can someone help me- my profile won't update?
who sorts that sort of thing out ...?


Go to your Inbox, then click on "Edit Profile" at the top. That should do it.

If not, ask in this forum: http://www.wrongplanet.net/forum13.html (WrongPlanet.net Discussion)


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CuriousKitten
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16 Mar 2013, 8:58 pm

I am undiagnosed, but am certain this is the key I've been seeking. My best friend's daughter is diagnosed HFA and got SSI on the first try, and I was just like her at her age. I may try to make it official some day, but I'll have to find someone who can look past the gray hair and the fact I've been able to hold a job.

I've recently realized why my work attendance is so excellent -- I so hate breaking routine that I don't call in even when I have a very good reason.


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Aspie score: 142/200 NT score: 64/200
AQ Score: 42
BAP: 109 aloof, 94 rigid and 85 pragmatic


CuriousKitten
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16 Mar 2013, 9:01 pm

another_1 wrote:
Self diagnosed, and I'm ok with that.

If the diagnosis of Aspergers had been available when I was, like, 12, I have no doubt whatsoever that I would have gotten one then. By the time it was added in 1994, I was 34 years old (or 33, depending on what month they released the revision :lol: ), and, while I'd vaguely heard of it, I didn't actually find out any details about it until a month before my 50th birthday. I've learned enough coping skills that if I chose to pursue a formal DX it would likely take someone with a great deal of experience with adult autistics to accurately evaluate me.

Asperger's explains absolutely EVERYTHING about me that sets me apart from the norm. Following strategies other Aspies have had success with seems to be helping me deal with the issues that still give me problems. Considering the appalling lack of support available even to autistic adults who struggle much more than I do, I see no reason to spend large quantities of money to confirm something I already am sure of. As far as I'm concerned, the old adage, "if it walks like a duck, talks like a duck, and looks like a duck - it's a duck.!" applies. So . . . I talk like an Aspie, I have social issues like an Aspie, I have sensory processing issues like an Aspie, I have meltdowns/shutdowns like an Aspie, I have executive function issues like an Aspie, etc., etc., etc. . . . I'm an Aspie!


^^^^
I couldn't have said it any better!! !


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If it don't come easy . . . .
. . . .hack it until it works right :-)

Aspie score: 142/200 NT score: 64/200
AQ Score: 42
BAP: 109 aloof, 94 rigid and 85 pragmatic


Gamer
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16 Mar 2013, 10:58 pm

Well, my psychiatrist is starting to see it, but was initially unsure because I can hold a job which requires socializing to an extant. (I think someone earlier mentioned that having a job at all makes some doubtful you have high-functioning ASD)

I fit the bill in some aspects. I am a high-systemizer who has problems socializing, intense interests, and understanding humor at times. On the other hand, I also have intact executive functioning, don't get too stuck on repetition, and am not afraid to try new things. The psychiatrist seems to think that some of my work-related difficulties stem from the fact that I have a bit of a visual long-term memory deficit, which I had as long as I can remember. ADHD or a nonverbal learning disorder is also being considered.



elsing
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17 Mar 2013, 6:46 pm

I'm fairly sure, I'm also researching allot into ADD at the moment, this certainly accounts for allot of the executive functioning problems but barley touches the issues I have with meltdowns and high level social isolation (apart from 2 people).