Trying to Reduce Toe-walking among children with Autism

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theshawngorton
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30 Mar 2013, 10:16 pm

Verdandi wrote:
Autism treatments are a growth industry. Parents want their children to be normal and all sorts of people want to sell normal to parents of autistic children. Doesn't matter that this may put autistic children under significant duress, because the important thing is that they appear as normal as possible.


It's a crime, a profitable crime!



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30 Mar 2013, 10:40 pm

Chloe33 wrote:
InsertHeals wrote:
Hello all and thank you for the feedback!!

@Buyerbeware

Awful. just awful. nothing else to say

@Chloe33

In no way whatsoever do we feel that toe walking is unacceptable! However, there are cases where people who develop toewalking as a child develop physical problems later on in their lives, as described by @Cinnamon. In no way whatsoever are we trying to "make money off parents with Autistic children". Currently, parents of children who toe-walk have them go through treatments such as surgery, botox injections, or ankle foot orthotics, which all are extremely expensive, invasive, and not the most effective. We are simply trying to provide a much cheaper, and effective alternative treatment.

We are developing an orthotic that you slip into a shoe (ex. Dr Scholls orthotics) that would teach autistic children to put pressure on their heal rather than their toes, which would hopefully prevent physical issues that can be developed later in life (due to toewalking).

We feel that if proven effective, our foot orthotics could also help reduce social stigmas placed on autistic children, as mentioned by @veggiegirl. But this is not our primary goal.

As mentioned by @Rapidroy, toewalking can cause difficulties with balance later on in life.

Sorry for taking so long to respond! and all of your input is 110% is appreciated! Please continue to add to this and we will continue to update you. Thanks again!

Also, sorry for the broken links in the original post, was restricted from posting links until a couple of posts. Thanks for all of the understanding everyone!

--InsertHeals

A

We are not a


Cinnamon described having knock knees, which is a genetic thing. Toe walking did NOT cause the knock knees.
I am 33 years old and have toe walked and i have no bad repercussions from it.

Perhaps parents are embarrassed by their children's toe walking as it's an obvious sign of autism.
Is Rapidroy so certain toe walking caused him balance problems later on? I thought clumsyness was a trait on the spectrum.

I can't imagine wanting to want to pressure children to put their foot onto their heels via a forced shoe! The feet have too many nerves and are sensitive. The extremes, botox injections etc that parents are putting their children through borders on outrageous and extreme. It is very disturbing. The extent parents are filling to go through to cover up toe walking? there are other ways to help your children without throwing fortunes around or filling the poor kids with botox, that's disgusting.

Its disgusting how human society is so unaccepting (especially parents towards their Autistic children who may want to toe walk).


You are WRONG, toe walking can cause significant leg problems, one of the biggest issues is habitual toe walking causes the tendon and muscle in the legs to shorten, destroying any normal walking without extensive painful surgery. Toe walking is not a harmless thing like you think it is.



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30 Mar 2013, 10:42 pm

Verdandi wrote:
Autism treatments are a growth industry. Parents want their children to be normal and all sorts of people want to sell normal to parents of autistic children. Doesn't matter that this may put autistic children under significant duress, because the important thing is that they appear as normal as possible.


It isn't about just apearing normal, FACT is medically prolonged toe walking is shown to cause extensive damage to the tendons and muscles in the leg. Children who engage in prolong and extended toe walking may lose the ability to walk normally.



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30 Mar 2013, 10:52 pm

DVCal wrote:
It isn't about just apearing normal, FACT is medically prolonged toe walking is shown to cause extensive damage to the tendons and muscles in the leg. Children who engage in prolong and extended toe walking may lose the ability to walk normally.


According to Mayo Clinic's site:

http://www.mayoclinic.com/health/toe-wa ... plications

Quote:
Complications

By Mayo Clinic staff

Persistent toe walking may increase a child's risk of falling.


Looking around, I can't find much that validates this claim of "extensive damage."



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30 Mar 2013, 11:29 pm

Verdandi wrote:
DVCal wrote:
It isn't about just apearing normal, FACT is medically prolonged toe walking is shown to cause extensive damage to the tendons and muscles in the leg. Children who engage in prolong and extended toe walking may lose the ability to walk normally.


According to Mayo Clinic's site:

http://www.mayoclinic.com/health/toe-wa ... plications

Quote:
Complications

By Mayo Clinic staff

Persistent toe walking may increase a child's risk of falling.


Looking around, I can't find much that validates this claim of "extensive damage."


http://info.nspt4kids.com/Portals/62762 ... _FINAL.pdf

https://www.google.com/url?sa=t&rct=j&q ... syxAKsChiw

Quote:
Some children with idiopathic toe walking develop tight Achilles’ tendons as they get older. This is called a contracture. When this happens they can no longer drop their heels to the ground.



r84shi37
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30 Mar 2013, 11:36 pm

I toe-walked 24-7 until I was perhaps 7 or so. A doctor recommended to my mother that I wear some strange boots that would effectively force me to walk correctly but my mother just ignored the toe-walking and I guess I grew out of it. I typically walk on my toes when I go up and down stairs but normal walking is currently most natural.


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30 Mar 2013, 11:47 pm

Right now I'm 22 and have toe walked for as long as I can remember. I was told by a doctor when I was younger that I had tight tendons and I did the stretches and still do to this day but when I walk normally I can hear my footsteps and I hate that sound! As far as I can tell I don't have any damage from toe walking. Though I do tend to scare people when I walk into a room because I don't make any noise.

I'm a lot less clumsy on my toes compared to normal as well. Don't know if it's normal or not but I can correct any lose of balance better on my toes.



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31 Mar 2013, 12:29 am

Wycca wrote:
Right now I'm 22 and have toe walked for as long as I can remember. I was told by a doctor when I was younger that I had tight tendons and I did the stretches and still do to this day but when I walk normally I can hear my footsteps and I hate that sound! As far as I can tell I don't have any damage from toe walking. Though I do tend to scare people when I walk into a room because I don't make any noise.

I'm a lot less clumsy on my toes compared to normal as well. Don't know if it's normal or not but I can correct any lose of balance better on my toes.


The stretches you are doing help prevent damage from toe walking by keeping your muscles stretched.



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31 Mar 2013, 12:45 am

DVCal wrote:
http://info.nspt4kids.com/Portals/62762 ... _FINAL.pdf

https://www.google.com/url?sa=t&rct=j&q ... syxAKsChiw

Quote:
Some children with idiopathic toe walking develop tight Achilles’ tendons as they get older. This is called a contracture. When this happens they can no longer drop their heels to the ground.


Fair enough.



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31 Mar 2013, 1:04 am

Verdandi wrote:
DVCal wrote:
http://info.nspt4kids.com/Portals/62762 ... _FINAL.pdf

https://www.google.com/url?sa=t&rct=j&q ... syxAKsChiw

Quote:
Some children with idiopathic toe walking develop tight Achilles’ tendons as they get older. This is called a contracture. When this happens they can no longer drop their heels to the ground.


Fair enough.


Though, if you can't get a child to stop toe walking, then simple periodic stretches of the calf should prevent any damage.



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31 Mar 2013, 1:06 am

Quote:
Is Rapidroy so certain toe walking caused him balance problems later on? I thought clumsyness was a trait on the spectrum.



No I am not certain on that I just figured that if you only have a few square inchs of foot touching the ground (as apposed to the whole foot)you would be in a much more likely position to be triped up/fall over should your walk be disturbed, I was thinking out loud. This hasen't been a problem for me though for what I can tell. Its also hard for me to tell accurately what couses what as I am a generally weak and clumsy person, bad enough for an OT intervention so to me those issues have created more problems in my life then walking on my toes ever will.



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31 Mar 2013, 2:03 am

I'm confused, if toe walking is so bad. Why is it that most.women walk that way. I mean odd shoes or not. Or is it one of those gender things?.



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31 Mar 2013, 4:47 am

Most women don't walk that way! If you mean the ones wearing high heels, they are still distributing their weight as it falls into the shoe (irrespective of what the shoe itself could do to affect balance and posture), not consciously putting their weight onto the ball of their foot as in toe-walking.

I cannot for the life of me imagine, how toe walking, unless it's done the majority of the time, could cause shortened tendons or anything else. If you physically walk normally a lot of the time too, your ligaments and muscles are experienced in both types of walking.


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31 Mar 2013, 4:53 am

whirlingmind wrote:
Most women don't walk that way! If you mean the ones wearing high heels, they are still distributing their weight as it falls into the shoe (irrespective of what the shoe itself could do to affect balance and posture), not consciously putting their weight onto the ball of their foot as in toe-walking.

I cannot for the life of me imagine, how toe walking, unless it's done the majority of the time, could cause shortened tendons or anything else. If you physically walk normally a lot of the time too, your ligaments and muscles are experienced in both types of walking.


That is the problem many children on the Autism spectrum may in fact toe walk almost exclusively. Toe walking here and there not a big deal, but toe walking most of the time can be bad.



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31 Mar 2013, 2:56 pm

I am 24 and I have toe-walked since I was a toddler. I don't do it constantly, but I would say at least 70% of the time. I recently saw a specialist who said it had not damaged anything, and that my tendons were only slightly tighter than normal. He said there really wasn't any reason that I had to stop.

My parents tried every intervention they could when I was a kid, and nothing worked. The casts that I had to wear for 6 months further alienated me from my peers, and all of the physical therapy made me miserable, as did the constant nagging by my family and teachers to "put your feet down." My balance on my toes is great, and I am much clumsier when I try to stop doing it.

My son is also a toe-walker and I don't intend to do anything about it unless he later decides that it is something he wants to stop doing.

This may not be very relevant to the original post, but I felt like chiming in that toe walking has caused me no problems and is not something I have ever wanted to change about myself.



CharlesMonster
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31 Mar 2013, 9:25 pm

Toe walking is harmless, and is done to relieve stress, whether that stress is tactile defensiveness or as a result of some unknown stimuli. or it can simply be done for the sheer joy of it.

I still toe walk, and get joy out of it myself. When I feel small, it makes me feel big, when I feel big I don't do it.

I'm 46 ;-) If you told me I couldn't toe walk I would get upset and feel repressed.

The main problem with toe walking is not to the person toe walking, but to the parents and society in general that feels uncomfortable with unusual behavior.