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loner1984
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06 Feb 2014, 10:30 pm

First off, what does curebies? is that a real word?, if so what does it mean ?.

Im certainly not against a cure, but a cure has to be given a birth or well when you are a child. I honestly think i would have a worse life, is there was a cure like tomorrow, because im 30 years behind on so many things in my self, you can just relive your childhood, your first kiss, your first girlfriend, stuff like that. You cant just get some good friends you have known for 20 years and grown up with.

There was a story about a blind man, who suddenly gained sight, he had been blind all his life, he killed himself, he couldn handle the visual input of what he was seeing, not to mention he didn understand it.

Taking a cure doesnt make you suddenly understand everything or learn all the things you never learned.

But if i took a cure, and suddenly had a need to be a social as normal people, as in they are sitting and home crying and going crazy, if they have to be alone for one weekend. I would literally go insane.

Only thing worse than not having any friends and being alone, would be to crave more social aspects than i do now, and lose the ability to be alone.

And for me, each year i get older, i find myself, having less and less mental energy, and getting worse and worse and learning new things, its hard enough to remember old things.



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06 Feb 2014, 11:01 pm

The question should be-Why do curbies hate us so much?


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06 Feb 2014, 11:13 pm

I have thought about this subject, regarding a cure for autism, and as I'm writing this now, I now have given careful consideration about this.

We now live in a time where every aspect of the human brain is now being scanned in order to understand its function using high tech scanning technology and what goes in the brain along with associating certain phenotypic traits with certain alleles, especially in humans and indeed there has been considerable progress in autism research including a recent study suggesting that in those of us with autism, there has been findings suggesting that the higher functions are highly connected and hence more active in autistic brains, than in NT brains, alllowing more concentration, but at the same time, allowing for withdrawals into our own private worlds.

Of course, the purpose of medical science is to understand how a disease process operates in order to find what goes in a biological systems such as tissues or an organ and how it affects the health of the organisms and finding methods for treating these kinds of things.

And this leads me to the issue of curing autism. Eventually, neuroscience will reach the point where a treatment is possible once we know everything about how the autistic brain functions, which leads to the question? Will it be possible to phase out autism?

The question should be should we cure autism completely or some of the certain other aspects of autism?

I now realize that curing autism is not something that is universally shared by those of us, including myself, with ASD but more of a belief that seems to be universal only with NTs for NTs seem to have this view that we would be better off without autism or that those of us with ASD are suffering or even worse that we cannot seem to be productive members of society when in actual fact, I neither suffer and probably many of you have some form that is not even recognizable by NTs. Even the NTs I have encountered don't even noticed and when I do tell them, as I have done before, they become a little surprised since they have as stereotypical view of autism which fortunately I don't have nor do I choose to conform to the NT stereotype of autism.

In addition, there are still prejudices towards people with autism and it also has occurred to me that a cure could potentially be a form of eugenics, which in this day and age is considered completely abhorrent or worst even had consequences that human history can never forget and hopefully would never repeat. Just look into WW2 when Adolf Hitler, when he rose to power, and his "final solution" of exterminating the Jews and other groups he considered inferior along with complete misguided plans to form an Aryan race to the questionable practices of the Tuskegee experiment in which young black men were fooled into thinking that they were recieving medical treatments but instead were given fake treatments.

If such practices were based on the notion that autism, in all forms, were a form of mental illness, as I'm pretty sure most NTs still have, then a cure would at worst be a form of eugenics, since based on such views, only denies our unique ways of being part of the human experience and speaking as an Aspie, I think autism is more of a way of life and way of being instead of being a mental illness which stems from my perspective, something that is unique to the individual and even those of us with autism know that no two of us are alike, in our interests, our cultures, and should a cure be a mandatory, if there is no mutual understanding between NTs and autistics, then another potential human rights violation could ensue.

Of course being autistic has its obvious drawbacks. Yes, I would love to have and keep friends, yes I want a girlfriend, even form a family, which I am confessing to the rest of the world about it and yes I do suffer from anxiety, once in a while and if it was possible at least to do away with the sensory overload and the ability to truly read the emotions of other people, which I'll admit I'm getting better at as I get older, then I would gladly accept it but I will not accept something that could destroy who I am in the inside, as a human being.

For the time being, I am not against methods for helping autistics cope with sensory overload and with new methods in helping autistics communicate, especially the latter which I think is getting better. What I think we should now appreciate is neurodiversity, much as ethnic diversity is being appreciated, the same should be true for neurodiversity for no two are alike, which if fully appreciate would in time, help eradicate the belief that autism is something that must phased out.

If the time comes when it is possible to cure autism, it should be a matter of choice, not something that needs to be mandatory or rather I think that some of the other aspects such as sensory overload. Personally, I should be free to make that decision.



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06 Feb 2014, 11:34 pm

I still don't hate curebies. I don't think I hate anyone, to be honest - I just relate a ridiculous amount to people and can't not relate to anyone...I had a dream the other night where someone was killing me and I felt bad for him. Yeah. That said, I'm starting to see how other people might. I had an experience recently where I met someone who had taken curing their child too far, to the point of abuse. I can see how that could leave one with a bad taste with all curebies, even though most of them don't take it that far.


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07 Feb 2014, 12:59 am

For one thing, the name reminds of the Care Bears.


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07 Feb 2014, 1:56 am

LoveNotHate wrote:
JSBACHlover wrote:
LoveNotHate wrote:
JSBACHlover wrote:
LoveNotHate wrote:
DevilKisses wrote:
I think a cure for autism is a great idea. It would improve and save a lot of lives.


What if the "cure" is the same as the "Down Syndrome" "cure" where chromosomal errors are identified pre-birth, so the parents can choose to abort ?

About 92% of pregnancies in the United Kingdom and Europe with a diagnosis of Down syndrome are terminated

http://en.wikipedia.org/wiki/Down_syndrome

Yes, this terrifies me. I don't want confused and uninformed parents killing off their children just because they are "not normal." And who defines what normal is? Some panel in Washington, D.C. or at Harvard?


Looks like it is starting in Australia ...

The internet was ablaze last week with the news that health authorities in Western Australia (WA) have given approval for IVF clinics to ‘screen’ embryos to reduce the chances of a couple having a child with autism.

http://www.sbs.com.au/news/article/2013 ... ing-autism


"Reduce the chances"???? That's Orwellian-speak for KILL THEM. This is absolutely terrible. This is genocide.


What Western Australia is doing is letting parents - who have a family member with autism - do embryonic screening to pick out a female child. The reasoning is that the odds of having an autistic female is much less, therefore, this should lower the odds of the child being autistic.

We may see autistic females become more prevalent than autistic males if they are successful at reducing autism.

Um, now exactly how does one "pick out" a female child? What happens to the embryo that is male? Does it get flushed down a special toilet marked "autism"? I, too, would have liked for this thread remain about "curing" autism. But the fact is in today's healthcare environment, the only "cure" we have is "eugenic selection."

You watch: by 2020, we are going to be hearing experts, in the name of "compassion," lauding the terminations of autistic pregnancies.



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07 Feb 2014, 2:13 am

With all these terminated male embryos in Western Australia we're soon going to have to send our men over to re-populate Western Australia.

I joke, I'm sorry. I know it's a serious matter.

Has anyone seen the new research at 'curing' autism before birth?

http://www.nbcnews.com/health/kids-heal ... ins-n23931

Quote:
“We have proven the concept that in autism, indeed chloride is elevated and perhaps our diuretic acts in reducing that,” Ben-Ari told reporters on a conference call. “We have shown that if we administer the diuretic to the mother for 24 hours before and during delivery, the offspring is … cured."


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07 Feb 2014, 6:26 am

wozeree wrote:
What about autistic children? And those who don't have an effective means of communication? (There are AAC users who oppose being cured, by the way.) They won't be able to opt out of a cure if their caregiver wants it and they don't.

Anyway, I have no problem with people wanting to get cured, but if there was a cure and it was called a "cure," and some people refused it, there would be all kinds of problems created. Oh you just want to be disabled? Etc. What a mess!


I can not speak for everybody else but this is why I am afraid of Autism Speaks power. I could envision that if you refuse a cure you could be discriminated against a lot more than even today, labeled a danger to yourself and others and forced to take the cure. It is the attitude surrounding curibism of us a diseased and broken that has real world effects on us. It is the vigilantism already done based on the "curabee" view that I think would get a lot worse if a cure came out. I think it would be healthier for people who want a cure to accept themselves as they are.

That all being said I am all for people having a choice about such a personal decision even if they want deny my choice. I am not living there life and can not know their desperation. And not all people who want a cure want to enforce their view on us.


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07 Feb 2014, 6:34 am

For me Aspergers syndrome is like having Stockholm Syndrome.

I have learned to like and accept myself, but it doesn't mean to say that I wouldn't want to be freed from it some day.


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07 Feb 2014, 6:46 am

Quote:
save a lot of lives.


Autism is deadly now?


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07 Feb 2014, 6:47 am

Tuttle wrote:
Verdandi wrote:
That answer is meaningless. Being NT doesn't mean watching Jersey Shore, American Idol, and Glee.


And being autistic doesn't mean not liking these shows either. I know autistic people who's special interests have included Glee.


Yeah, I like Glee, and the person who introduced it to me was autistic.



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07 Feb 2014, 6:50 am

StarTrekker wrote:
LoveNotHate wrote:
We may see autistic females become more prevalent than autistic males if they are successful at reducing autism.


But for that to happen they would have to increase the general female population more than fourfold; we would die out as a species due to a comparative lack of males to mate with.


No, we could handle that. One male is capable of impregnating three females, after all. And we're overpopulated anyway.

Still, this is sexist. Though I doubt anyone will see it that way, given that it's males being discriminated against.



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07 Feb 2014, 11:10 am

JSBACHlover wrote:
LoveNotHate wrote:
JSBACHlover wrote:
LoveNotHate wrote:
JSBACHlover wrote:
LoveNotHate wrote:
DevilKisses wrote:
I think a cure for autism is a great idea. It would improve and save a lot of lives.


What if the "cure" is the same as the "Down Syndrome" "cure" where chromosomal errors are identified pre-birth, so the parents can choose to abort ?

About 92% of pregnancies in the United Kingdom and Europe with a diagnosis of Down syndrome are terminated

http://en.wikipedia.org/wiki/Down_syndrome

Yes, this terrifies me. I don't want confused and uninformed parents killing off their children just because they are "not normal." And who defines what normal is? Some panel in Washington, D.C. or at Harvard?


Looks like it is starting in Australia ...

The internet was ablaze last week with the news that health authorities in Western Australia (WA) have given approval for IVF clinics to ‘screen’ embryos to reduce the chances of a couple having a child with autism.

http://www.sbs.com.au/news/article/2013 ... ing-autism


"Reduce the chances"???? That's Orwellian-speak for KILL THEM. This is absolutely terrible. This is genocide.


What Western Australia is doing is letting parents - who have a family member with autism - do embryonic screening to pick out a female child. The reasoning is that the odds of having an autistic female is much less, therefore, this should lower the odds of the child being autistic.

We may see autistic females become more prevalent than autistic males if they are successful at reducing autism.

Um, now exactly how does one "pick out" a female child? What happens to the embryo that is male? Does it get flushed down a special toilet marked "autism"? I, too, would have liked for this thread remain about "curing" autism. But the fact is in today's healthcare environment, the only "cure" we have is "eugenic selection."

You watch: by 2020, we are going to be hearing experts, in the name of "compassion," lauding the terminations of autistic pregnancies.


That's not compassion, that's genocide and eugenics. That's hate, fear and murder.


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07 Feb 2014, 12:05 pm

Who_Am_I wrote:
Quote:
save a lot of lives.


Autism is deadly now?

in some of our cases it can and has been life threatening due to various behaviors,it can also be indirectly causing; to use examples that have actualy happened in the US; a autistic person having a big meltdown and wandering onto the road; a police officer decides to tazer them and they fall and hit their head,or an autistic having severe challenging behavior and being hog tied by the police to the point they cant breathe.
but that doesnt warrant curbies and hypocrite neurodiverse supporters assuming we are miserable and want to be cured of our autism.


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07 Feb 2014, 12:39 pm

CockneyRebel wrote:
The question should be-Why do curbies hate us so much?

Exactly.

It hurts that some people see the way I am as so wrong they think it would be good if I and people like me didn't exist. And it's scary that these people have so much power and support.



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07 Feb 2014, 12:58 pm

Stripeycat wrote:
CockneyRebel wrote:
The question should be-Why do curbies hate us so much?

Exactly.

It hurts that some people see the way I am as so wrong they think it would be good if I and people like me didn't exist. And it's scary that these people have so much power and support.


And those peons think they're doing the world a big favour.


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