Do you ever call/consider yourself autistic? (AS Dx)

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mr_bigmouth_502
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28 Jun 2014, 2:58 am

My diagnosis is kind of hazy, because even back when I was diagnosed at the age of six, Aspergers Syndrome and High Functioning Autism were sort of intertwined, so I've been described as both being autistic, and as having Aspergers. I usually describe myself as having Aspergers, but I've had people had people say to me "I understand X can difficult for you because of your autism" and things like that. I know full well that Aspergers Syndrome is just another name for HFA, but I prefer it because it carries a "genius" connotation; if I say I'm an aspie, people will think that I'm a super-smart, socially awkward dude and not someone with a serious developmental disability, because in many people's minds autism = mental retardation (not trying to be offensive, just using technical terminology).



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28 Jun 2014, 5:03 am

I don´t go around sharing either, but I have had the question: "What is Asperger" and to the answer: "A sort of autism", they went : "Huh?" or "Naaaah, can´t be".
It is still new to me and being in the social system, I will have to explain at some point, why I have had difficulty holding down a job.
I have settled for a modest explanation: "We don´t read social situations quick enough. AS is a "one thing at a time" syndrome, meaning a narrower bandwidth and less RAM, so we need to either work OR speak. We need instructions in a logical language, and we may learn concrete tasks at a slower speed because of a different processing".
That would be things, that understandably would be a problem in modern work life, unless you´re lucky enough to have found yourself a niche.
"Any strengths?" I would point out: "A good ability to make systems, good at working things out logically, precision, good at detecting deviations, autodidactive, unorthodox".
(Gosh , I didn´t realize, I was that typical).


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28 Jun 2014, 9:48 am

I would say aspergers as opposed to autism in the presence of other people because society's opinion seems to be that people with aspergers are "the ones that are more normal"


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SoMissunderstood
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28 Jun 2014, 11:50 am

diablo77 wrote:
This comes about in part because of an argument I got into on another site, but I do wonder how common it is for people whose official diagnosis is AS (or another of the "other" ASDs now under the umbrella) to simply call themselves autistic and align with the general autism community. I think as I get older I'm doing it more and more, and this has a lot to do with research and experience. As I do advocacy work and service work for people with disabilities, many of them on the spectrum, I start to see that many of the things they do are things I do as well, though sometimes on a less pronounced scale. I also realize that many who are considered "lower-functioning" have abilities that I don't have, and I've stopped seeing the hierarchies of high/low functioning as being a linear thing. Most importantly, I'm interested in seeing improvements in the world for all autistic people, not just those who function in a similar way to me, so I don't want to distance myself. I even have moments when I wonder if AS is completely accurate for me, as many of the adults I know who identify as Aspies have the classic features of social awkwardness and maybe some narrow interests, but they don't have meltdowns or repetitive behavior patterns and they weren't in Special Ed as kids so I still feel like I have less in common with them sometimes that with the people I work for. I wonder if there are others who feel that way, or if it's as common as it seems to want to make a distinction all the time.

Exactly!

This isn't my reasoning though.

What other 'excuse' can I give for why I act this way to other people?

There's a very simple example of this, when you admit that you are Autistic, then have other 'normal' people go 'bulldust, there's absolutely nothing wrong with you'...

So then, it's interesting to ask them this question:

"okay then, if there's 'nothing wrong with me' kindly tell me, brutally and honestly the personal issues that you have with me and we'll start from there...'

Then, out it all comes:

"you seem too emotionally cold and aloof".
"you don't look at me or acknowledge I exist in any way"
"you can't take a joke or tell when I am being sarcastic"
"you always say the wrong thing at the wrong time"
"you throw 'tantrums' in public'
'you can't tell how I feel'
"you don't know when it is your turn to speak in a conversation"
"you are such a huge 'drama queen"
'you are so introverted, I'm amazed you haven't turned inside-out yet"
"you whine about it being too hot/cold when it really isn't"
"you are not interested in anything any 'normal person' would be"
"you are that clumsy, you'd trip over your own shadow"

Then, I show them a list of symptoms for Autism and Asperger's Disorder...and ask them to 'tick them all off as they apply"...

Then, I never, ever see or hear from them ever again.

It's good it works that way.



Last edited by SoMissunderstood on 28 Jun 2014, 12:02 pm, edited 1 time in total.

animalcrackers
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28 Jun 2014, 11:58 am

mr_bigmouth_502 wrote:
in many people's minds autism = mental retardation (not trying to be offensive, just using technical terminology).


Technical terminology is now officially "intellectual disability". (Just saying, since you indicate you want to be both technically correct and inoffensive, and using "intellectual disability" would accomplish both goals).


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mr_bigmouth_502
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28 Jun 2014, 9:30 pm

animalcrackers wrote:
mr_bigmouth_502 wrote:
in many people's minds autism = mental retardation (not trying to be offensive, just using technical terminology).


Technical terminology is now officially "intellectual disability". (Just saying, since you indicate you want to be both technically correct and inoffensive, and using "intellectual disability" would accomplish both goals).


I believe that's the terminology in the UK, not sure if it's caught on on my side of the pond, but I'll make a note of it. It's definitely less offensive-sounding.



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28 Jun 2014, 10:22 pm

mr_bigmouth_502 wrote:
animalcrackers wrote:
mr_bigmouth_502 wrote:
in many people's minds autism = mental retardation (not trying to be offensive, just using technical terminology).


Technical terminology is now officially "intellectual disability". (Just saying, since you indicate you want to be both technically correct and inoffensive, and using "intellectual disability" would accomplish both goals).


I believe that's the terminology in the UK, not sure if it's caught on on my side of the pond, but I'll make a note of it. It's definitely less offensive-sounding.


It's the new official diagnosis in the DSM -- in terms of whether or not it's caught on, I have no idea. (Next version of the ICD is supposed to change MR to ID as well, I think.)


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29 Jun 2014, 12:54 am

i don't really get into a lot of situations where i have to talk about my ASD, bit occasionally it comes up and i'm not really sure what to call myself. or if i even care.
my diagnosis isn't very clear first of all. i was assessed by people who did not know my parents native language (they were dominant in spanish and the assessors spoke only english). my mother apparently exaggerated my symptoms to get me treatment, as she had been turned down at an earlier place. whan i finally was diagnosed with "Autism" at age 4, they didn't agree with it.
all of my school files and psychological evaluations only say "Autism" under "diagnoses/health issues". they make no distinction between HFA, aspergers, etc. keep in mind i was diagnosed in 2001.
i don't really think about it, but i would say i have aspergers. nothing else. socially, i have been treated like anybody else, if not a bit ignored. i was rarely bullied.

most people, teachers especially see me as "smart" and "gifted" even without knowing of my diagnosis. and i plan not to tell them, they might change their mind, or they might not care. i know that I don't really care.
i qualify for special ed and i've been given the privilege of extended time on some tests, but i never really had to use it.
when i tell people i have aspergers (only people who ask politely and with a good reason, and people i'm close with), they tend to say stuff like
"but you seem so normal"
"you're not that bad" and
"you seem normal to me".
but then i've received comments like

"half the school thinks you're ret*d" (my school has around 2300 people)
"all of vada knows that you're autistic"
the former comment coming from my LO.

still, i try not to avoid labeling myself. i'm more than a diagnosis, but sometimes when i'm feeling ahhhh i wish i could just get rid of it.


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29 Jun 2014, 1:09 am

I do call myself autistic, because that's what I am. AS is just one particular style of autism, and not necessarily the mildest one, either. It's not that I think AS is a bad concept--we needed something to tell us that autism could be mild and could occur in people who can speak--but all in all, I think of myself more as "autistic" than "Aspie". It doesn't hurt that I've been diagnosed as being, variously, AS, autism, and PDD-NOS (and Rett's too, if you count a clerical error). I find things in common with people who have classic autism, as well as finding things that I can't identify with in diagnosed Aspies. It's all one spectrum and I cannot see any real dividing lines.


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