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Deb1970
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13 Dec 2014, 1:57 pm

I was diagnosed with HFA. I had speech delays and still have issues with pronunciation.


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Deb1970
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13 Dec 2014, 1:58 pm

I was diagnosed with HFA. I had speech delays and still have issues with pronunciation.


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Rocket123
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13 Dec 2014, 5:05 pm

ASPartOfMe wrote:
They made a mistakes in the diagnostic criteria of Aspergers. So instead of fixing the mistakes they just killed it. Aspergers was confusing but ASD is even more so.

I 100% agree (about ASD being confusing). This is a topic I have spoken about with my therapist (a clinical psychologist with expertise in autism, particularly with children).

My therapist agrees that I do qualify for the diagnostic criteria for Aspergers according to DSM-IV. However, she went on to say that I “did not present as someone who is Autistic”. That she disagreed with the change introduced in DSM-V. That someone with Aspergers “presents themselves differently” than someone with Autism. That someone with Autism is much more impaired.

Ultimately, I have no idea (if my therapist is right or wrong). My world is very limited. I have only met (and observed) one other autistic individual in my life. So, I don’t have enough data points to form an opinion on this matter.



btbnnyr
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13 Dec 2014, 5:18 pm

I have many data points, and I would say that only 2 HFA individuals I have met present as really obviously autistic, and it is the more severe social disability that distinguishes them, not non-social traits. Only 1 of these people continues to appear really autistic as I converse with him, because his verbal ability is quite limited. The other person is verbally fluent, and the initial impression of really autistic presentation decreases as interaction increases.


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Jezebel
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13 Dec 2014, 5:41 pm

Rocket123 wrote:
I 100% agree (about ASD being confusing). This is a topic I have spoken about with my therapist (a clinical psychologist with expertise in autism, particularly with children).

My therapist agrees that I do qualify for the diagnostic criteria for Aspergers according to DSM-IV. However, she went on to say that I “did not present as someone who is Autistic”. That she disagreed with the change introduced in DSM-V. That someone with Aspergers “presents themselves differently” than someone with Autism. That someone with Autism is much more impaired.

Ultimately, I have no idea (if my therapist is right or wrong). My world is very limited. I have only met (and observed) one other autistic individual in my life. So, I don’t have enough data points to form an opinion on this matter.


Hmm. I'm not sure if I agree or disagree - so I suppose a little of both?

As of now, like you, my actual experience with other autistic individuals has been limited as well, though I am planning on going on to graduate school to specialize in ASDs before going the PhD or MD/PhD route, but I think her comment is kind of forgetting the whole "spectrum" thing. The main problem with the two disorders being different seemed to occur with those considered "high functioning." I don't think it's necessarily true that someone with autistic disorder was more impaired though? Again, it really just seemed to change from person to person. I remember some people on here saying how their actual diagnosis had changed from autistic disorder to Aspergers (or perhaps it was vice versa) or that their diagnosis wasn't actually clear at all, which is kind of confusing.

So I suppose ASD becomes confusing at the same point - what's the difference between a high functioning autistic individual and someone diagnosed with Aspergers? Perhaps they could've had specifiers for that? Maybe something like ASD "with Aspergers traits" to show the differences displayed/presented by individuals on the spectrum? You've brought up an interesting point.


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Protogenoi
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13 Dec 2014, 11:46 pm

[quote="Jezebel"][quote="Rocket123"]I 100% agree (about ASD being confusing). This is a topic I have spoken about with my therapist (a clinical psychologist with expertise in autism, particularly with children).

My therapist agrees that I do qualify for the diagnostic criteria for Aspergers according to DSM-IV. However, she went on to say that I “did not present as someone who is Autistic”. That she disagreed with the change introduced in DSM-V. That someone with Aspergers “presents themselves differently” than someone with Autism. That someone with Autism is much more impaired.

Ultimately, I have no idea (if my therapist is right or wrong). My world is very limited. I have only met (and observed) one other autistic individual in my life. So, I don’t have enough data points to form an opinion on this matter.[/quote]

The only difference according to the DSM-IV is that aspergers lacks speech delay and must have average or above average intelligence.
But the DSM-IV was criticized for only including mostly the harder to spot symptoms...
Hmm. I'm not sure if I agree or disagree - so I suppose a little of both?

As of now, like you, my actual experience with other autistic individuals has been limited as well, though I am planning on going on to graduate school to specialize in ASDs before going the PhD or MD/PhD route, but I think her comment is kind of forgetting the whole "spectrum" thing. The main problem with the two disorders being different seemed to occur with those considered "high functioning." I don't think it's necessarily true that someone with autistic disorder was more impaired though? Again, it really just seemed to change from person to person. I remember some people on here saying how their actual diagnosis had changed from autistic disorder to Aspergers (or perhaps it was vice versa) or that their diagnosis wasn't actually clear at all, which is kind of confusing.

So I suppose ASD becomes confusing at the same point - what's the difference between a high functioning autistic individual and someone diagnosed with Aspergers? Perhaps they could've had specifiers for that? Maybe something like ASD "with Aspergers traits" to show the differences displayed/presented by individuals on the spectrum? You've brought up an interesting point.[/quote]


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14 Dec 2014, 12:56 am

As a parent "high functioning" meant different things historically. In the early days my daughter was HFA because she had a speech delay but was smart.

Today as a 9yr old she's been demoted from "HF" to "moderate" as her communication is still well behind her NT peers despite not even trying with math or music. High functioning nowadays has been hijacked by people formerly labelled with Aspergers.



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14 Dec 2014, 2:17 am

At this point I don't know what the hell "high-functioning" is anymore. I really just prefer to be treated as an individual, but I know that won't happen.



Rocket123
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14 Dec 2014, 2:38 am

cyberdad wrote:
As a parent "high functioning" meant different things historically. In the early days my daughter was HFA because she had a speech delay but was smart.

Today as a 9yr old she's been demoted from "HF" to "moderate" as her communication is still well behind her NT peers despite not even trying with math or music. High functioning nowadays has been hijacked by people formerly labelled with Aspergers.

Thanks for sharing this. It helps put things in perspective.



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16 Dec 2014, 5:55 am

League_Girl wrote:
ASPartOfMe wrote:
They made a mistakes in the diagnostic criteria of Aspergers. So instead of fixing the mistakes they just killed it. Aspergers was confusing but ASD is even more so. Aspergers was a label that was hugely helpful for people. People felt positive about it. This was a new phenomenon for a medical diagnosis and that bothered the hell out of certain people. Especially those that are in a profession that makes money about feeling bad about themselves. A portion of Aspies after years of being bullied for who they are overdid it and became the "Aspie elitists" . That made Aspies the perfect enemy for parents of LFA who struggled 24 hours a day 7 days a week. A perfect scapegoat also for school districts and stressed out taxpayers. And so it began, Aspergers was overdiagnosed, Aspies were elitist, looking for money or excuses. While lack of scientifically relevant differences was trotted out to say why Aspergers should be taken away, if people want to opine that aspies were elitist or overdiagnosed no scientific proof is required.

I loathe to admit it but the slander against aspies worked. It mostly associated with the Sheldon's of the world these days. Aspergers is medically a big part of me and always will be but with my unemployment some speech issues and motor coordination problems and average intelligence I don't fit the 2014 colloquial term.




What were the mistakes in the AS criteria they made?


The biggest one was making it a separate diagnosis from autism instead of a sub category of autism. That made it easier for some people to disassociate themselves from other autistics, say silly things like Aspergers is the next step in human evolution. The views of some Aspies is used by many to categorize all Aspies.

The language was to broad, to open to interpretation. A situation only made worse by the DSM 5.

We don't have of one diagnoses of cancer there are dozens if not hundreds of them. Some require immediate action, other "mild" sub categories require "watchful waiting" few have problems with this. If you support the sub-categories you are not accused of hurting unity of the cancer community.


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