ADOS Assessment

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Joined: 3 Sep 2016
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14 Oct 2016, 3:17 am

If I'm honest , I want an ASD diagnosis as it would explain why I feel the way I do. It won't change anything except answer some questions. I have already changed my lifestyle to one that is more suited to my needs so a Dx won't change my life at all unless my comorbids get treated differently because of the Dx. So, do I want ASD ? I want answers and if ASD answers my questions then yes I do.

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AspieUtah
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14 Oct 2016, 7:12 am

MentalIllnessObsessed wrote:

AspieUtah wrote:

MentalIllnessObsessed wrote:

Hello. I was wondering where it said your score for the ADOS? I looked through my whole report and it didn't say what I scored on it. It did tell my SRS-II scores though. But for the SRS, I was just trying to figure out where I belonged, but I need the adolescent girls one to figure out my actual score. It just gave me the sub scores. All the psychologist that diagnosed me said that I met the cut-off criteria for autism in the ADOS, so I'm above a 10, so at least 11 or above. How do I know where though? It probably depends on the assessment too, but I looked in my social, emotional, and behaviour section and it wasn't there.

Well, my written assessment report included my score toward the conclusion of the report. But, I admit that it was included only because the score that my diagnostician(s) had told me verbally (10) had been revised (11) after the fact. I suspect that if they hadn't reported your overall score to you, you could easily ask them to tell you verbally or send a written letter to you with the score.

Greetings. I looked near there, read all the information about the autism aspect because the assessment was a neurodevelopmental assessment, and saw nothing. I just read several times that I have met the cut-off criteria and that I'm high functioning.

Why did your diagnostician(s) revise it? Did they tell you why?

I would like to ask them, but I was told I probably not keep asking them stuff so I haven't ask anything. I will need to email them though some time in the next year for university. I need them to submit some forms for the AccessAbility department so I can get accommodations I believe. I need the assessment, plus a few other forms. But I guess I'll add this onto my "what do I need to ask" list for the psychologist. I am also wondering about if I should ask her about some of the disorders related to autism like prosopagnosia or alexthymia or whatever, along with why more executive functions weren't checked for my assessment (mainly just cognitive flexibility and inhibition). Kinda going off topic now, sorry.

Hm. The ADOS-2 tests encourage diagnostician(s) to tell the diagnostic results verbally at the conclusion of the assessment. I amn't sure that they should report in the written assessment, too.

In my case, there was some doubt about my routine and repetitive behaviors from by comorbid obsessive compulsions (they saw none during the assessment until I described them) and wondered whether they were based in my autism or independent. They must have agreed that the behaviors were based in my autism because my score was adjusted to 11 instead of 10.

In your case, I would ask the diagnostician(s) to report your final score. It doesn't change your diagnosis, but it helps satisfy your curiosity. Good luck!

_________________
Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)

Voynich
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Joined: 31 Oct 2013
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15 Oct 2016, 9:35 am

I saw psychodynamic therapists long before I was given an ADOS assessment. It was excruciating, as it required so much fluent speech and expression of feelings that I wasn't capable of. That I wasn't capable of those things was one of the primary reasons for my referral to them - then the primary reason for their discharging of me. It focused very little on my practical and sensory issues in the present and almost wholly on relations of the past.
Later, a consultant neuropsychologist (who forwarded me on for ASD assessment) laughed at their judgement of my problems as an issue of the style of my upbringing, and dismissed my experience with them completely. Which I agreed with.
"Your mileage may vary" etc...

I think the content of the ADOS assessment being made more available to people before assessment is very regrettable, and in principle I don't like that I'm bumping this thread. Not knowing what to expect is important to a sensible interpretation of what happens (even if that's not always that likely given it's not exactly comprehensive). But I wanted at least to say that at least some forms of psychodynamic therapy might not be anything much to pin hopes on. Although, maybe mine were just particularly unsuited to my problems. It stressed me out all to hell, and I tended to leave sessions frustrated to the point of anger.

I got no ADOS score verbally or in writing, only a narrative report.

P.S. The fragmented and competitive situation of NHS teams, especially in Mental Health, and the fact that they're generally absolutely choking for funding makes the idea of conspiracy extremely unrealistic. They need to be measurably making the difference they set out to, or they're at risk of being stripped back or shut, and for that they need 'clients'.

AspieUtah
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15 Oct 2016, 9:43 am

Voynich wrote:

...I got no ADOS score verbally or in writing, only a narrative report....

Hm. Maybe I received both a verbal and written ADOS-2 scores. Thinking back, maybe they did that my score had been revised, or because I had asked about the score before and after the revision. Or, maybe the clinic reported scores for everyone while other clinics seee reasons to avoid getting too specific.

ConceptuallyCurious
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15 Oct 2016, 10:02 am

The way ADOS 2 module 4 is scored, it's not possible for you to be below cut off because of repetitive behaviours. The cut off scores are based on the reciprocal social interaction and communication scores. Then then imagination and rigidity/repetitive behaviours are scored separately to form an overall idea.

My scores as an example:

Mine was double marked (it was filmed and the second marker watched the film). It was done by someone with experience of ASD in adult women and was very sensitive. I thought it would be patronising but it wasn't and actually found that the tests did get at skill deficits. I was 20 when it was done.

_________________
Diagnosed with:
Moderate Hearing Loss in 2002.
Autism Spectrum Disorder in August 2015.
ADHD diagnosed in July 2016

Also "probable" dyspraxia/DCD and dyslexia.

Plus a smattering of mental health problems that have now been mostly resolved.

AspieUtah
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15 Oct 2016, 11:30 am

ConceptuallyCurious wrote:

Mine was double marked (it was filmed and the second marker watched the film). It was done by someone with experience of ASD in adult women and was very sensitive. I thought it would be patronising but it wasn't and actually found that the tests did get at skill deficits. I was 20 when it was done.

Nice chart!

Mine was similar, but, because it was included in the overall narrative of the written report, appeared as:

Social Affect (SA) (Communication and Reciprocal Social Interaction) = 9

Restricted and Repetitive Behavior (RRB) = 2

SA + RRB Total = 11 (Autism cut-off= 8; Autism Spectrum cut-off= 10)

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