Those of you with food aversions/issues - can you explain?
I am severely grossed out by eating mayonnaise or sour cream. To me the thought with mayo is it's like the equivalent or eating a spoon of lard. Sour cream looks like mayo so by association it's bad. Stuffing is gross because it's wet bread and that's weird. Most is psychological for me, not the taste.
For what it is worth, I appreciated the overkill!
I have a 2.5-year-old son with moderate ASD (non-verbal). He has had issues with eating since about 12 months of age.
Currently he will only eat:
1) A single brand of yogurt that comes in a squeeze pouch. He will not eat yogurt from a spoon, even if I squeeze the yogurt from the pouch onto the spoon in front of him.
2) A single brand of fruit/veggie baby food puree in a squeeze pouch.
3) Crunchy carbs like goldfish crackers, cheerios, etc.
4) He will only drink juice from a juice box - must be in juice box form with a tiny straw. No water, no milk, no open cups, etc.
That's it.
We have been taking him to OT feeding therapy for a year and have made zero progress.
So my question is to those of you with food aversions/eating issues - what causes your aversion to eating? Is it fear-related? Something else? As I mentioned above, my son isn't verbal, so I can't simply ask him what is going on inside of his head as far as food is concerned. Any advice that I could try to help him expand his diet a bit more?
Thank you!! !
My area of expertise!! !
Lol. I was one of those children who refused to be breastfed. They had to test out a variety of brands of milk and allegedly I would only drink one - my mother still laughs about how I picked out the one that tasted the worst.
My earliest memories involve worrying about food. When I was around three, I remember consciously making the decision to put my foot down as to what I wasn't going to eat, and to this day... I've not become a "free-eater".
1) PRESENTATION -
Separate > Mixed. If a meal can be separated out into it's ingredients, it was easier to eat. Google "pelau". My sister would separate peas, rice, carrots, corn, meat... And I'd eat it grain by grain.
Dry > Wet. The drier, the better. Too many sauces trigger disgust. Ketchup was okay, or mustard. By around ten I could combine the two, and use small amounts of gravy also, by about 13 I could do curry. My mother would bake my meals to dry them out for me. I don't know how this works, but I prefer to have a drink and eat desiccated food than to have anything that's still "juicy"
Colour Bland is better. That wheat pasta colour. More than three colours evoke suspicion. I was in my twenties by the time I was good with pizza with more than 2 toppings (Hawaian is still the only one i'm good with), and I still have to prep myself for Neapolitan Ice Cream.
Certain colours have to be avoided too. Eggplant purple for example. Any colours too dark, like greens, or too bright, like yellows. Bland pastel stuff is easiest. Like apples, and pears, for fruits as opposed to strawberries.
Exposure Box is good, eg, fast food boxes > Plastic container (get dark ones that don't stain) > plates (get ones without a lot of grooves or ornamentation).
Flat white ceramic is best for me. Disposable white plates straight from a pack are good too. Let him have his own dishes that he doesn't see other people using.
2) TEMPERATURE
Heat Scalding, steaming hot is the only way to go. If it needs someone to blow it, let the child do it or put it in front of a farm. Once I get that food scalding hot, even the worst things get more edible.
Cold works as long as it's cold. Mildly chilled is bad. Lukewarm is the worst. Lukewarm milk is... Lukewarm milk kept me out of school for about a week because I just couldn't stop vomiting.
3) CONSISTENCY
Transparency Kool-aid/ bottled water is the easiest thing for me to drink out of a glass. If you can see through it, it's good.
Mixture Generally, Solution>Colloid> Suspension is how I have it worked out in my head. Any kind of drink that has stuff in it that settles? Ugh. The more watery a thing is, the easy it is for me to convince myself to eat it. Eg., watermelon and cucumber > pineapple > tomatoes > guava. If you're thinking about fruits.
4) SCENT - some scents are as noxious as say burning tires or rotting bodies are to normal people. I've had to take vomit breaks sometimes just from passing in front of a Subway restaurant with an open door.
5)TEXTURE -
crunch > squish. Eg, Raw vegetables > cooked ones. Burnt crispy food > tender food. Crackers > jello. Crispy burnt eggs > wet messy raw eggs
6)TRUST of SOURCE -
Brands - I can eat fried chicken only from KFC. Just yesterday I increased my Pizza places up to 2. I've been experimenting with Chinese food, and now, I have up to five different places I've eaten Chinese food from, because I think I've done something racist and blended all the cooks into one complete set of Chinese people who are indistinguishable from one another. (I'm still trying to figure how Chinese wood work. Started when I was fifteen, and now, i'm like a pro at eating it without too much fussing. Been maybe a year since I vomited Chinese food back up)
The Cook The number of people who's food I can eat have dwindled down to one. Just my brother. And he's on tenuous ground. I've started cooking for myself, but in the beginning when I was your son's age and through those kindergarten years, I remember giving everyone a chance. And if you did something wrong too many times, that was it, trust was gone. Eg. My grandmother wouldn't stop putting onion in the cheese-paste, so I stopped eating from her when I was maybe 6.
7) TASTE - probably the least important variable. Food getting into my mouth was the problem when I was your son's age, getting it in and keeping it in.
SOCIAL CONTEXT - social pressure to eat, shaming, "Spotlight eating" can work from time to time but it's really traumatizing and overall, family bonding tends to suffer. I had to eat with the nuns when I was in kindergarten under the pictures of Jesus and the cross. Eating for Jesus would get me to do it, but they'd also have to call the ambulance from time to time when half-an-hour later I was projectile vomiting.
My mother used to try "Trading" things I wanted to have or do with eating. Eg, I missed out on seeing Pocahontas because I had to eat Mackerel and lentil stew in order to go and as much as I wanted to go, I couldn't and I think I cried for 2 days and I can't look at that movie or Vanessa Williams without thinking about that.
It's hard, and my mother tried, but with some effort you can figure it out, so that you're son doesn't end up malnourished or throwing up in a pediatric ward.
It's a psychological problem of disgust for me, primarily. Some of the things I see people eating, I wonder, "Jesus, how does your brain work where that's edible?" Mayonnaise literally crawls my blood. It's the kind of biological repulsion a normal person might have from eating snails or slugs or something.
The main thing I would suggest is to not try to force your kid to push back that disgust threshold. Even as an adult who understands how nutrition works and that what I have is essentially a disorder, I still can't forgive some of what my parents did with their good intentions.
Simple meals are really a complicated process. Eating is seriously probably the most stressful thing I do because there's just so many combinations possible. One very wrong thing might trump all the good things and it's frustrating - eg, when my mom made a whole jug of juice just to my settings alone, I wouldn't drink it because the jug she used had had milk in it maybe a month before... I was angry because obviously you can't put juice in a jug that once had milk in it, and she was angry because, well, time and money had gone into it...
I'd suggest going slow, lots of friendly communication where he doesn't feel punished or forced, and keeping a track of what goes right and what goes horribly wrong.
Ha Ha,
Yeah... I got a bit worked up.
Lol, I just keep thinking about my mum when I was your son's age. I wasn't non-verbal, but I was very very "reserved" and I remember the frustration on both of our parts because I couldn't articulate very well what was wrong.
I wish I could time-travel back in time and just explain to everyone that I wasn't being fussy intentionally. Just give everyone a big checklist and save everyone a lot of trouble. And I know my checklist (that I'm still figuring out) might be me-specific, but I thought it might help, even in a small way.
My mother was one of those "fancy" parents who was very anti- corporal punishment, but nobody else in the family was and they'd all be on her to just use a belt "for my own good" which she never did but now as an adult, I can imagine the kind of stress I caused her, because I was all skin and bones during this "figuring out" stage to the point where people were calling me either her "AIDS baby" or "the one she got from Africa" (they used to have a lot of those "Feed a Child" commercials back then).
"Trickery" was actually the lesser of all the evils in my mothers case; even the pediatricians at a point were telling her that I was just acting out as a tantrum and that the vomiting was just something kids did when they got too worked up. We don't condone "rod-sparing" very much over here, in a lot of people's eyes I was just being bratty and spoiled in need of a good whooping. I was smart, reading and talking early, always the best in class, so they didn't consider me being "special" and asperger's wasn't really a thing back then anyway. Autism was barely popularly. If you didn't have cerebral palsy or Down's syndrome or something visibly wrong, you were just "spoiled" and in need of a whooping. Official diagnosis.
So my mum was going trial and error, mostly. But she had these lists and charts to make sure that at the end of the day I was getting all the required nutrients. What I couldn't get, she'd buy supplements for and I actually tolerated the stuff that everyone else thought was disgusting like cod liver oil, etc. She'd take me to the pharmacy sometimes and let me pick out the most "appetizing" bottle She had all the charts to measure me with, and while I wasn't as healthy-looking as the rest, nutrient-wise these were probably my best years.
It turned out all right. I'm just 5'3, but it's not - "you were growth delayed" short. It's when I started cooking my own food and getting into Chinese food (and now lately pizza) that things are actually getting unhealthy... because I'm actually lazier and less concerned than she was
For every traumatizing memory I have for back then, I can probably find a good one to balance it out. Just the little things helped sometimes. She'd get this really high chair and put it in the corner so I could watch everything while she cooked, see the whole process so I'd know she didn't try to "sneak" anything in. "Food-inspector" role-play
I mean, there were bad days, but she'd also put milk powder in one plate, wheat germ in another, cocoa in another, sugar in another, give me a spoon, and then tell other people, "Hey, stop being closed-minded." So I just want to encourage you. It'll get easier. Some things that might be hard with other normal children might be easier, too. They had to hide the cod liver from me. Also, burnt, biscuit-hard cow-liver... Turkey that had been over-baked to the point of becoming tasteless jerky...
"I just keep thinking about my mum when I was your son's age. I wasn't non-verbal, but I was very very "reserved" and I remember the frustration on both of our parts because I couldn't articulate very well what was wrong."
OMG this. ^^^^
His inability to communicate is what makes this the hardest. He knows a few signs and uses a PECS board and the Proloquo 2go app in a limited way... and that's it. I would be more than willing to accomodate his "quirks" and help him feel more comfortable, but I have no idea what he is thinking and feeling because he can't tell me. And his "triggers" change almost daily - one day he'll be fine with something, the next day he isn't. Even his occupational therapist has said he is her toughest patient because she can never pinpoint his triggers.
Sigh. I just love that little guy so much and worry about him constantly. I just want him to be happy and healthy and I have no idea how to get him there.
P.S. You didn't get "worked up" - no need to apologize! I appreciated your detailed response!
Yeah... I got a bit worked up.
Lol, I just keep thinking about my mum when I was your son's age. I wasn't non-verbal, but I was very very "reserved" and I remember the frustration on both of our parts because I couldn't articulate very well what was wrong.
I wish I could time-travel back in time and just explain to everyone that I wasn't being fussy intentionally. Just give everyone a big checklist and save everyone a lot of trouble. And I know my checklist (that I'm still figuring out) might be me-specific, but I thought it might help, even in a small way.
My mother was one of those "fancy" parents who was very anti- corporal punishment, but nobody else in the family was and they'd all be on her to just use a belt "for my own good" which she never did but now as an adult, I can imagine the kind of stress I caused her, because I was all skin and bones during this "figuring out" stage to the point where people were calling me either her "AIDS baby" or "the one she got from Africa" (they used to have a lot of those "Feed a Child" commercials back then).
"Trickery" was actually the lesser of all the evils in my mothers case; even the pediatricians at a point were telling her that I was just acting out as a tantrum and that the vomiting was just something kids did when they got too worked up. We don't condone "rod-sparing" very much over here, in a lot of people's eyes I was just being bratty and spoiled in need of a good whooping. I was smart, reading and talking early, always the best in class, so they didn't consider me being "special" and asperger's wasn't really a thing back then anyway. Autism was barely popularly. If you didn't have cerebral palsy or Down's syndrome or something visibly wrong, you were just "spoiled" and in need of a whooping. Official diagnosis.
So my mum was going trial and error, mostly. But she had these lists and charts to make sure that at the end of the day I was getting all the required nutrients. What I couldn't get, she'd buy supplements for and I actually tolerated the stuff that everyone else thought was disgusting like cod liver oil, etc. She'd take me to the pharmacy sometimes and let me pick out the most "appetizing" bottle She had all the charts to measure me with, and while I wasn't as healthy-looking as the rest, nutrient-wise these were probably my best years.
It turned out all right. I'm just 5'3, but it's not - "you were growth delayed" short. It's when I started cooking my own food and getting into Chinese food (and now lately pizza) that things are actually getting unhealthy... because I'm actually lazier and less concerned than she was
For every traumatizing memory I have for back then, I can probably find a good one to balance it out. Just the little things helped sometimes. She'd get this really high chair and put it in the corner so I could watch everything while she cooked, see the whole process so I'd know she didn't try to "sneak" anything in. "Food-inspector" role-play
I mean, there were bad days, but she'd also put milk powder in one plate, wheat germ in another, cocoa in another, sugar in another, give me a spoon, and then tell other people, "Hey, stop being closed-minded." So I just want to encourage you. It'll get easier. Some things that might be hard with other normal children might be easier, too. They had to hide the cod liver from me. Also, burnt, biscuit-hard cow-liver... Turkey that had been over-baked to the point of becoming tasteless jerky...
Understandable! I am NT and will eat almost anything, and I can see how mayo could gross people out. It is sour, fatty, and gloopy... I like it, but I know MANY NT people that hate it too.
And ditto on stuffing - "wet bread" is an accurate description! haha. It is virtually the only thing I won't eat during Thanksgiving dinner. Gross.
I have a strong aversion to smoothies, blackberries, bananas, yogurt and spaghetti.
Smoothies because they taste like fruits, but are thick and cloying and otherwise smooth. It's like drinking vomit.
Blackberries, I just don't like the woody part in the center. The taste is fine.
Bananas are a smell based thing. The smell makes me nauseous.
Yogurt is too smooth and the smell makes me sick.
Spaghetti is also a mix of smell and texture, a strong tomato smell and the slippery noodles. Like swallowing snakes.
So, basically, never give me a blackberry-banana smoothie or a plate of spaghetti.
As for your son, maybe there is something about the spoons he doesn't like? The metal might be leaving a bad taste. Same for the water or milk, if there are specific components in the water. Maybe your area has a lot of zinc or clay or oil deposits. A sea or ocean could add a fishy taste.
Some of this may just be normal kid stuff.
"Some of this may just be normal kid stuff."
This is a struggle for me too... he is my first child, so I struggle to determine what is "autism-based" stuff and what is just "normal picky toddler playing his mom with his antics" stuff.
Smoothies because they taste like fruits, but are thick and cloying and otherwise smooth. It's like drinking vomit.
Blackberries, I just don't like the woody part in the center. The taste is fine.
Bananas are a smell based thing. The smell makes me nauseous.
Yogurt is too smooth and the smell makes me sick.
Spaghetti is also a mix of smell and texture, a strong tomato smell and the slippery noodles. Like swallowing snakes.
So, basically, never give me a blackberry-banana smoothie or a plate of spaghetti.
As for your son, maybe there is something about the spoons he doesn't like? The metal might be leaving a bad taste. Same for the water or milk, if there are specific components in the water. Maybe your area has a lot of zinc or clay or oil deposits. A sea or ocean could add a fishy taste.
Some of this may just be normal kid stuff.
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