StampySquiddyFan
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Location: Stampy's Lovely World
07 Aug 2017, 2:41 pm
07 Aug 2017, 2:51 pm
SwimmingHigh wrote:
sighhhh
Maybe some of you feel less alone finding out other autistic people do these things but it fills me with horror and dread.
Im mostly still in denial
starting to realize I developed OCD as a way to cope with being autistic
I haven't been dx with anything other than depression & anxiety but since coming here I have felt comforted that I am not the only one suffering , I still feel alone ( but not lonely if that makes sense ) but I have a better understanding of things.
developing OCD as a way to cope with autism? - interesting theory
StampySquiddyFan
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07 Aug 2017, 2:56 pm
SaveFerris wrote:
SwimmingHigh wrote:
sighhhh
Maybe some of you feel less alone finding out other autistic people do these things but it fills me with horror and dread.
Im mostly still in denial
starting to realize I developed OCD as a way to cope with being autistic
I haven't been dx with anything other than depression & anxiety but since coming here I have felt comforted that I am not the only one suffering , I still feel alone but have a better understanding of things.
developing OCD as a way to cope with autism? - interesting theory
It is interesting. I believe I developed OCD because of my obsessive mindset that is pretty prone to anxiety. Actually, I think I was born OCD lol. I had obsessions since about the age of 5, maybe even before that. The theory seems pretty plausible to me
.
07 Aug 2017, 4:17 pm
07 Aug 2017, 5:20 pm
CockneyRebel
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Age: 50
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07 Aug 2017, 5:31 pm
07 Aug 2017, 7:10 pm
07 Aug 2017, 7:12 pm
SaveFerris wrote:
SwimmingHigh wrote:
It's not my own theory.
When I was diagnosed with OCD last year I researched it to understand why I do everything I do and it only explained a small % of my weirdness. (asd explains the rest so acutely i break down in tears whenever I come to this forum)
Upon further investigation it is common for people on the spectrum, to develop OCD. Many specialists have made a connection.
This is affirmed for me more and more as I participate in these threads.
it is terrifying being around people you dont understand, of course we are going to develop weird anxieties about it, and techniques to cope..
Maybe if I count all the words on a page I wont be a friendless loser any more.
If only it were that simple..
When I was diagnosed with OCD last year I researched it to understand why I do everything I do and it only explained a small % of my weirdness. (asd explains the rest so acutely i break down in tears whenever I come to this forum)
Upon further investigation it is common for people on the spectrum, to develop OCD. Many specialists have made a connection.
This is affirmed for me more and more as I participate in these threads.
it is terrifying being around people you dont understand, of course we are going to develop weird anxieties about it, and techniques to cope..
Maybe if I count all the words on a page I wont be a friendless loser any more.
If only it were that simple..
Sorry to hear about the struggle your having , I'm lucky in the fact that if I do have ASD , I've had it all my life and it's not been a noticeable problem ( to me ) unless of course the OCD type symptoms I suffer are because of ASD then it's a different story. Mind you when I was your age I was a wreck so I've had a lot longer to come to terms with my symptoms although sometimes it does get too much.
I am so use to suffering on a daily basis , i wouldn't know myself if I didn't.
sorry for your pain too.
Im also not diagnosed yet, but I was in special ed in the 80s with severe issues no one understood, (girls were so very rarely diagnosed then)
huge tantrums, and easily overwhelmed, sensitive to light and pain i couldnt sleep at night if i had a hang nail...
i mean jesus look t my scores in my signature..
How on earth did no one catch on???
Im really bitter thinking i could have been spared some agony had I known and been given proper treatment, had my parents been given proper councelling instead of thinking I was just "bad"
I wasnt bad i was scared and hurting
StampySquiddyFan
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07 Aug 2017, 8:10 pm
CockneyRebel wrote:
I catch myself doing that when I read as well.
Cool! I do it whenever I read anything, even books about Stampy
.
07 Aug 2017, 8:19 pm
SwimmingHigh wrote:
Im really bitter thinking i could have been spared some agony had I known and been given proper treatment, had my parents been given proper councelling instead of thinking I was just "bad"
I wasnt bad i was scared and hurting
I think feeling bitter is probably quite a common emotion for those who are Dx later in life , ASD Dx were still in their infancy when you were younger and adding the fact your female made it twice as likely ( I'm not sure it's twice ) that ASD would be missed.
Hopefully by hanging around here and talking to like minded people will help you ease that bitterness eventually
07 Aug 2017, 8:28 pm
07 Aug 2017, 10:41 pm
kraftiekortie wrote:
I, honestly, find that "feeling bitter" is one of the worst things one can do. I've seen bitterness destroy people.
Yes, the "system" sucks. I've had stuff done to me. And I really didn't have somebody to "talk to" until I was about 13 years old. And really....nobody after that until I was a senior in high school. Then things improved. Before then, I just lumbered around, living by instinct, so to speak.
And I've suffered (partially my own fault) from not having accomplished much in life. I don't have much to be "proud" of, really, even though I'm 56 years of age. I'm just a clerk, and will always be a clerk. It's a little embarrassing because most of my family has accomplished much more than me.
But it's still no use being bitter.
I can understand one being angry and frustrated by not being diagnosed earlier. I was one of the "lucky" ones, as I was classically autistic at a very young age, though I did "come out of it" to the point where I presented Aspergian instead of "classical."
Yes, the "system" sucks. I've had stuff done to me. And I really didn't have somebody to "talk to" until I was about 13 years old. And really....nobody after that until I was a senior in high school. Then things improved. Before then, I just lumbered around, living by instinct, so to speak.
And I've suffered (partially my own fault) from not having accomplished much in life. I don't have much to be "proud" of, really, even though I'm 56 years of age. I'm just a clerk, and will always be a clerk. It's a little embarrassing because most of my family has accomplished much more than me.
But it's still no use being bitter.
I can understand one being angry and frustrated by not being diagnosed earlier. I was one of the "lucky" ones, as I was classically autistic at a very young age, though I did "come out of it" to the point where I presented Aspergian instead of "classical."
I have spent a life of neglect and abuse, due to misdiagnosis, and complete misunderstanding of asd/females
Homeless from 12-17
sexual assaults because i was naive and put myself in very stupid situations.
Married to a very abusive person, who was easily able to manipulate me.
Drug issues i have overcome, that existed as a coping mechanism for not understanding why I was so different.
The isolation and loneliness has literally made me suicidal.
Bitter doesnt even begin to describe it, honestly
I don't think there is a word strong enough, in the english language to describe what I am feeling.
To think of all the pain that could have been avoided with one freakin diagnosis, and some proper training for my parents.
Its too late for me now, im broken beyond repair.
Undiagnosed autism already destroyed me.
08 Aug 2017, 12:35 am
SwimmingHigh wrote:
Britte wrote:
If there is such a thing, I think I have music echolalia. Also, I have a particular vocal tic/compulsion of which seems connected to echolalia.
edit. I just read your post, SwimmingHigh, and, some of what you mention resonates with me.
edit. I just read your post, SwimmingHigh, and, some of what you mention resonates with me.
OH me too with music I play the sasme song on repeat, sometimes for THREE MONTHS (I could never live with a partner)
or the same few bars/notes of a song
and when I play piano I can play the same small little part over and over and over and over and over its incredibly satisfying (not to anyone near me)
^Yep. Same with me, exactly!
08 Aug 2017, 1:05 am
SaveFerris wrote:
SwimmingHigh wrote:
Im really bitter thinking i could have been spared some agony had I known and been given proper treatment, had my parents been given proper councelling instead of thinking I was just "bad"
I wasnt bad i was scared and hurting
I think feeling bitter is probably quite a common emotion for those who are Dx later in life , ASD Dx were still in their infancy when you were younger and adding the fact your female made it twice as likely ( I'm not sure it's twice ) that ASD would be missed.
Hopefully by hanging around here and talking to like minded people will help you ease that bitterness eventually
I concur with Ferris' sentiments. Please do hang around. If you have as much as a shread of hope, things can turn around. By the way, it's nice to make your acquaintance, SwimmingHigh. I get a high from swimming, as well (assuming that is the basis of your username) : )
StampySquiddyFan
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08 Aug 2017, 8:35 am
Britte wrote:
SaveFerris wrote:
SwimmingHigh wrote:
Im really bitter thinking i could have been spared some agony had I known and been given proper treatment, had my parents been given proper councelling instead of thinking I was just "bad"
I wasnt bad i was scared and hurting
I think feeling bitter is probably quite a common emotion for those who are Dx later in life , ASD Dx were still in their infancy when you were younger and adding the fact your female made it twice as likely ( I'm not sure it's twice ) that ASD would be missed.
Hopefully by hanging around here and talking to like minded people will help you ease that bitterness eventually
I concur with Ferris' sentiments. Please do hang around. If you have as much as a shread of hope, things can turn around. By the way, it's nice to make your acquaintance, SwimmingHigh. I get a high from swimming, as well (assuming that is the basis of your username) : )
I agree with Brittle and Ferris. Please don't leave
. I wasn't diagnosed when I was little either, and I hope you don't feel too bad about not being diagnosed earlier. Sometimes it's just hard to tell what's "normal." Take me, for instance. I was my parents' first child, and I was born back when ASD awareness existed, but not as much as it does today. They weren't looking for autism. If they were, they would have noticed, but they were just concentrating on raising a happy, healthy baby. After me, they had my two siblings (both with suspected ASD), so they didn't really have a "normal" standard to compare us to. Autism also runs in my family, so odd behaviors that others would pick up on my parents regarded as normal. I sometimes question things like "Why didn't they notice this" or "Everybody today would see that as an autistic trait." But they didn't, and that's OK. I hope you stick around too!
