#1 reason why I don't tell people
ˈpātrəˌnīz,ˈpatrəˌnīz/Submit
verb
gerund or present participle: patronizing
1.
treat with an apparent kindness that betrays a feeling of superiority.
"“She's a good-hearted girl,” he said in a patronizing voice"
synonyms: treat condescendingly, condescend to, look down on, talk down to, put down, treat like a child, treat with disdain
You don't need to patronise me by posting the definition of patronising here. I am intelligent adult and if I don't know the meaning of a word I can look it up.
But just so we are clear. I do not feel superior to anyone here. On the contrary I often feel rather inferior here and wish I had the debating skills many of the other members display. I am also in awe of the ability of so many members here to apparently offer exactly the right sort of support people need when they are having a bad time. It's an ability I wish I had but I don't, either in real life or on the internet. In my short time here so far I have learnt rather a lot and intend to be here long enough to learn a lot more.
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Autism is not my superpower.
Trust me, Sandpiper...I ain't perfect, either.
The only thing you can do is the best you can. Most decent people respect that, and don't hold it against you for not offering the "perfect" advice. I certainly don't.
"Perfect" advice is not always needed---and sometimes can be irritating to the recipient. What's "perfect" for one might be "ill-advised" for the other.
The key is to understand the individual.
I don't tell anyone. I don't see any reason to. I have already adjusted to my weirdness and I frankly tell people, Sorry I don't like large gatherings, or the sound it too loud for me, etc. Or I just leave. I run my own business and do an excellent job and some people don't like me personally because I can be pretty frank. I can live with that.
Due to my work history in home health, hospice, in case management, I have been fortunate to closely observe many individuals and many families coping with a variety of stresses, illnesses, disabilities. I have had more examples to learn from (I'm a pattern learner) and one of the things I have learned is that nothing works for everyone. "N" has to be pretty large to see the exceptions to the patterns. While there are patterns, and there are solutions, people are still individuals. Our individual chemistries, physical, developmental, historical and personality-wise. When I was younger, I thought I knew it all and could solve any problem if people would just do what I say. Suffice it to say, I have been humbled. Many times. We can never know why another person can't take a particular path and judging it is not helpful to the afflicted person. And I am as guilty as anyone. When I am not successful, the root is usually the latter.
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The river is the melody
And sky is the refrain - Gordon Lightfoot
I tell people because my traits are not always invisible, and I risk being mislabeled. For example, when I was a kid, everyone in my social group thought that I was anorexic because I couldn't eat most foods. Every time I was in a social situation that involved eating, they would try to "help" based on their understanding of the issue. I had chaperones following me around, pressing food on me that I couldn't eat, and if I did find something palatable, I would be praised and petted for it. It was very embarrassing.
In my case, the overall result of not telling people is that they don't understand what drives my behavior, and so they don't know how to approach or accommodate me. It's just easier to be upfront about it, especially since more people know what autism is these days. In that regard, I probably have it easier than many on this site, since I'm so young. My generation is generally more aware of these things, so I can expect to find more understanding among my peers. As for the patronizing manner that people adopt when they know that you're autistic, I'm impartial to it. Most people seem to assume that tone towards me regardless of whether I tell them or not.
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I have not the kind affections of a pigeon. - Ralph Waldo Emerson
I've told my closest friends because I know they won't treat me any different, but I haven't said a word to my employers or coworkers. It's my first job in retail and I wanted the genuine experience to challenge myself rather than a safe, padded experience meant to keep me comfy. I'd rather get called every name in the book before I get pitied.
I have mixed feelings on this subject. I'm only self diagnosed at this point so I've never told anyone that I'm on the spectrum as I feel that would be disingenuous of me. I can only speculate on what I would do.
"Crotchety old man."
"Ornery old man"
Remember those kinds of descriptions? I've wondered as of late if generations ago HFA people who had to sink or swim with no help and had to force themselves to live in an NT world and play by NT rules finally just reached an age in their lives where they were like: "Suck it. I don't want to go there, do that, act that way, be that way, pretend that way, etc" and being perceived as "ornery" was just that person refusing to act in a way they never felt comfortable being in the first place.
I wonder that because being close to 50, that's how I've been feeling more and more. I'm feeling more and more like I don't have to play the game to the degree I used to and I don't want to.
So if I was formally diagnosed would I tell people? Others have said that they feel they can be perceived as being anti-social, rude, etc for no apparent reason. I could see being able to say something like: "I'm autistic and being in loud places or around a lot of people at once is very hard for me. So I'm not going to that function."
If someone's response or thoughts were: "You should push yourself and go to that function, autistic or not. We all have problems to deal with." That's fine. They could think that.
Suck it.
goldfish21
Veteran
Joined: 17 Feb 2013
Age: 42
Gender: Male
Posts: 22,612
Location: Vancouver, BC, Canada
They just don't have faith in what you're telling them. There's a lot of people who don't have faith in and or are leery of a lot of medications, treatments and therapies et al. That plus a lot of autistic people being highly resistant to change and trying something new.
*shrug* Obvi they can do as they please, but they can’t truly be “SO TIRED OF IT,” or otherwise at their wits end if the remain unwilling to try a different approach that has worked for others (more than just me) & have faith in their own experience. They’d find out right quick if it’s going to benefit them or it’s not. Instead they choose to continue suffering and complaining. That’s the bizarre part to me, and also why I have an ever increasing difficulty feeling bad for any of the long time complainers on this forum. It’s not as if no one has ever told them what they can do about their condition, they simply choose to continue to do nothing about it.
Most people aren't going to try something they don't believe is going to work for them. Especially if it's anything that requires more involvement than taking a pill. Could be the more miserable ones view treatment as a false hope. Human psychology often defies logic.
Mmhmm. Not willing to do the work? Then you don’t get the results. Simple as that.
It’s very much like fat people complaining about being fat while being 100% opposed to changing their diet and exercise routines. GIGO.
If only it were as simple as swallowing a pill I would be doing that, but, it isn’t, so I put in the effort & benefit from the results.
Right I was thinking the same thing. I have a relative who says she's sick and tired of being sick and tired. But she stays sedentary and eats junk. Too set in her ways I suppose.
I’m far more understanding of senior citizens on the spectrum saying “Aah well, f**k it, I’m old anyways - it’s not like I’m going to start a new career or get married and have kids, so I’m just gonna carry on existing as I do,” kind of thing. It’s everyone younger with unfilled potential to exploit that I take issue with their reluctance to want to do the work it takes to forge better lives for themselves going forward.
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No for supporting trump. Because doing so is deplorable.
I've spent most of my life struggling on undiagnosed, with no way to explain my difficulties, always working to improve myself with no assistance or understanding from others, constantly trying to adjust my behaviour to fit into society, but it's an unwinnable battle and I'm SO TIRED OF IT.
Nowadays I want people to accept the way I am and cut me some slack.
I read these complaints on WP and can't help but think "Then why don't you try treating your symptoms differently, then?" as I've been sharing here for more than 5 years how I treat my own symptoms & function as highly as I do. But it seems people here just want to complain vs. actually do anything that helps themselves. SO bizarre!
Goldfish21, you should make a singular post that lists some of the main symptoms you've treated and how you've gone about doing it. Maybe if it were all in one place, it would be easier to follow. I look forward to such a thread.
"Crotchety old man."
"Ornery old man"
Remember those kinds of descriptions? I've wondered as of late if generations ago HFA people who had to sink or swim with no help and had to force themselves to live in an NT world and play by NT rules finally just reached an age in their lives where they were like: "Suck it. I don't want to go there, do that, act that way, be that way, pretend that way, etc" and being perceived as "ornery" was just that person refusing to act in a way they never felt comfortable being in the first place.
I wonder that because being close to 50, that's how I've been feeling more and more. I'm feeling more and more like I don't have to play the game to the degree I used to and I don't want to.
So if I was formally diagnosed would I tell people? Others have said that they feel they can be perceived as being anti-social, rude, etc for no apparent reason. I could see being able to say something like: "I'm autistic and being in loud places or around a lot of people at once is very hard for me. So I'm not going to that function."
If someone's response or thoughts were: "You should push yourself and go to that function, autistic or not. We all have problems to deal with." That's fine. They could think that.
Suck it.
Oh, Magna. I totally agree. One of the great things about getting older is that you can use that to justify being a grouchy, crazy, whatever person. It's like getting slipped into a role where you are not so out of place.
So many things that used to seem important to somehow "fit in" I no longer can work up the energy to care about. I can just be a quirky old lady.
_________________
The river is the melody
And sky is the refrain - Gordon Lightfoot
"Crotchety old man."
"Ornery old man"
Remember those kinds of descriptions? I've wondered as of late if generations ago HFA people who had to sink or swim with no help and had to force themselves to live in an NT world and play by NT rules finally just reached an age in their lives where they were like: "Suck it. I don't want to go there, do that, act that way, be that way, pretend that way, etc" and being perceived as "ornery" was just that person refusing to act in a way they never felt comfortable being in the first place.
I wonder that because being close to 50, that's how I've been feeling more and more. I'm feeling more and more like I don't have to play the game to the degree I used to and I don't want to.
So if I was formally diagnosed would I tell people? Others have said that they feel they can be perceived as being anti-social, rude, etc for no apparent reason. I could see being able to say something like: "I'm autistic and being in loud places or around a lot of people at once is very hard for me. So I'm not going to that function."
If someone's response or thoughts were: "You should push yourself and go to that function, autistic or not. We all have problems to deal with." That's fine. They could think that.
Suck it.
Oh, Magna. I totally agree. One of the great things about getting older is that you can use that to justify being a grouchy, crazy, whatever person. It's like getting slipped into a role where you are not so out of place.
So many things that used to seem important to somehow "fit in" I no longer can work up the energy to care about. I can just be a quirky old lady.
Ha! Let's celebrate our orneriness! I'm going to say I think we earned it. No, I know we've earned it!
goldfish21
Veteran
Joined: 17 Feb 2013
Age: 42
Gender: Male
Posts: 22,612
Location: Vancouver, BC, Canada
I've spent most of my life struggling on undiagnosed, with no way to explain my difficulties, always working to improve myself with no assistance or understanding from others, constantly trying to adjust my behaviour to fit into society, but it's an unwinnable battle and I'm SO TIRED OF IT.
Nowadays I want people to accept the way I am and cut me some slack.
I read these complaints on WP and can't help but think "Then why don't you try treating your symptoms differently, then?" as I've been sharing here for more than 5 years how I treat my own symptoms & function as highly as I do. But it seems people here just want to complain vs. actually do anything that helps themselves. SO bizarre!
Goldfish21, you should make a singular post that lists some of the main symptoms you've treated and how you've gone about doing it. Maybe if it were all in one place, it would be easier to follow. I look forward to such a thread.
It exists. I’ll PM you later this eve.
_________________
No for supporting trump. Because doing so is deplorable.
I've spent most of my life struggling on undiagnosed, with no way to explain my difficulties, always working to improve myself with no assistance or understanding from others, constantly trying to adjust my behaviour to fit into society, but it's an unwinnable battle and I'm SO TIRED OF IT.
Nowadays I want people to accept the way I am and cut me some slack.
I read these complaints on WP and can't help but think "Then why don't you try treating your symptoms differently, then?" as I've been sharing here for more than 5 years how I treat my own symptoms & function as highly as I do. But it seems people here just want to complain vs. actually do anything that helps themselves. SO bizarre!
OK, that's a bit of an insensitive response, but I'm going to assume this is not so much about me as about your own frustrations with those who do nothing to improve their lot.
Personally, I've spent most of my life attempting to self-treat my aspergers (even before I knew what it was). Right now, I think I have a handle on what does or does not work for me in terms of diet and exercise. Sometimes I slip a bit (for instance, I can't seem to wean myself completely off coffee, though it doesn't do me any good at all). On the whole, though, I'm doing the right things.
Trouble is, whatever I've tried, I've never been able to completely rid myself of aspie traits and behaviours which adversely affect work interactions. Frankly, I don't believe it's possible. At most, we can keep ourselves healthy enough to cope, and function at work at a reasonable level.
I'm actually one of your supporters, Goldfish, in that I'm always happy to read about regimes that have worked for others, and new things to try. I'd actually be pleased to see your ideas posted up in full again. But be aware that what works for you is not necessarily going to work for others. For some of us, our wariness about suggested treatments are not based on unwillingness to improve ourselves (and its annoying when that is assumed), but on experience of previous treatment attempts which have failed.
Ask. Tell.
How else will the world ever understand us, and our abilities and disabilities? From the media? With rare exception, all they do is make us appear either "special" or "needy."
No, be the faces of real-life autism. Step up, say your name and be proud.
I didn't wait to tell the world about my autism. I told a local magazine soon after I was screened in 2014. I was diagnosed in 2015. I celebrate my diagnosis day every year.
I am, therefore, immune to all the "slings and arrows" that get aimed at me. Life is so much nicer when we don't let others define us.
With apologies to Jim Sinclair, "don't mourn for me." I enjoy being an autist, even with the public meltdowns and private shutdowns. Learn to love your autism.
_________________
Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)
How else will the world ever understand us, and our abilities and disabilities? From the media? With rare exception, all they do is make us appear either "special" or "needy."
No, be the faces of real-life autism. Step up, say your name and be proud.
I didn't wait to tell the world about my autism. I told a local magazine soon after I was screened in 2014. I was diagnosed in 2015. I celebrate my diagnosis day every year.
I am, therefore, immune to all the "slings and arrows" that get aimed at me. Life is so much nicer when we don't let others define us.
With apologies to Jim Sinclair, "don't mourn for me." I enjoy being an autist, even with the public meltdowns and private shutdowns. Learn to love your autism.
For me it's public shutdowns and private meltdowns......
How else will the world ever understand us, and our abilities and disabilities? From the media? With rare exception, all they do is make us appear either "special" or "needy."
No, be the faces of real-life autism. Step up, say your name and be proud.
I didn't wait to tell the world about my autism. I told a local magazine soon after I was screened in 2014. I was diagnosed in 2015. I celebrate my diagnosis day every year.
I am, therefore, immune to all the "slings and arrows" that get aimed at me. Life is so much nicer when we don't let others define us.
With apologies to Jim Sinclair, "don't mourn for me." I enjoy being an autist, even with the public meltdowns and private shutdowns. Learn to love your autism.
For me it's public shutdowns and private meltdowns......
I agree. That usually happens with me, but sometimes....
_________________
Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)
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