Do any of you have issues with aspie support group?

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Joined: 18 Jul 2013
Age: 57
Gender: Female
Posts: 8,374
Location: my own little world

03 Jul 2023, 12:08 pm

MagicMeerkat wrote:
I left a Facebook "support" group because I warned them NOT to say something in particular but they did anyway then jumped all over me like I was the bad one when I complained about my boundaries being disrespected.
I left an Autism support FB group as well that was put together to let Autistic people come together and talk to each other on zoom. They would have zoom meetings to socialize. But I found out later that the Autistic members were complaining about me because they claimed that I was talking about my Autism too much.

The other reason I left is that some of them kept giving me advice and suggestions on what I should do even though they knew nothing about me and my life. When I would tell them that it's not possible for me to do their suggestions or that their suggestions were inappropriate and did not apply or work for my specific situation, they would get upset and criticize me harshly because I did choose to follow their advice. They then would complain that I am stubborn and not teachable. I am extremely teachable but I am not going to take someone's advise blindly. It it is not possible for me to do, I can't do it.

For example, one of the members kept insisting that I put sound proofing in my house and that I regularly visit sensory deprivation chambers like he does. I looked up the price for those things. The only sound proofing materials that that would actually work would cost thousands of dollars for me to just do one room and they would not work for me. I know, I was a music major in college and even the tiny professionally soundproofed practice rooms which cost hundreds of thousands of dollars to put together, were not sound proof to me. I don't have that kind of money and my visual plane in my house is extremely important to my ability to function so I can't visually have ten inch thick foam all over my walls.

He also suggested that I try the $1000 sound reducing headset that he uses. I was like, yeah, ok, why don't you buy them for me? Of course he never offered to do that.

I also looked up the price for visiting the sensory deprivation center near me. It's $600 for a half an hour. The guy who kept insisting that I do this stuff has an extremely well paying job and he can afford to to those things. I survive on an SSI/SSDI check of $950 a month and that has to cover every living expense I have minus what I get for food stamps. When I was trying to explain to him how I simply can't afford those luxuries, they would tell me that I refuse to take advice from people and call me stubborn and not teachable.

It became completely intolerable to be a part of this group so I left.


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Wreck It Ralph