I Hate Poisoning My Daughter
We aren't debating if it's harmful or not. We're debating whether it helps seizures and the problem is that there have been no studies on the topic. So the mother would be making a life altering decision for her daughter based on hearsay (not to mention introducing her to an illegal substance). She is also acting against medical advice which in some states is enough to declare her an unfit mother.
I wasn't saying she was an unfit mother, I was pointing out the harmful effects of marijuanna. Today we here 'gateway drug' and are led to think it's relitivly harmless, which it is not. I understand she's scared, discouraged and just wants help, I was just trying to help.
Also I'd like to point out I was snapping at Gosmokesome.
Oregon has legalized marijuana for seizures. I just don't feel comfortable with it becaiuse I would never know what dosage she's getting.
Of course, there's been research. Oregon wouldn't allow it for seizures without research.
_________________
Time flies like an arrow. Fruit flies like a banana.
Of course, there's been research. Oregon wouldn't allow it for seizures without research.
It should be simple to standardise dosage if your cooking - just a matter of determining the strength/effects of each new batch over several days of cautious use. If you make each run with enough for a month or more, it wont be much of an inconvienience, as after the 1st week you should have everything chopped/weighed into pre-measured dosages.
Of course, there's been research. Oregon wouldn't allow it for seizures without research.
It should be simple to standardise dosage if your cooking - just a matter of determining the strength/effects of each new batch over several days of cautious use. If you make each run with enough for a month or more, it wont be much of an inconvienience, as after the 1st week you should have everything chopped/weighed into pre-measured dosages.
First of all, psych, that avitar!! I love it! Hahahaha.
But I'm not sure about dosages because Consumer Reports took herbs that companies like Nature's Way sells and did some tests to see if the active ingredients in the herbs were the same as the claim on the bottles. Most were way off. The batches didn't match other batches. The magazine said that it's hard to take dried plants, grind them up, stuff them in capsules and expect them to all have the same strength.
You put up some helpful info though. I'm going to be studying up on it.
_________________
Time flies like an arrow. Fruit flies like a banana.
Sedaka
Veteran
Joined: 16 Jul 2006
Age: 43
Gender: Female
Posts: 4,597
Location: In the recesses of my mind
NO! THEY'RE NOT!! Marijuana is supposed to help stop seizures and we all know that marijuana's side effects aren't destroying livers and causing miserable side effects. The reason I can't use marijuana with my daughter to stop seizures is because I would never know the dosage. Each plant is different.
I can't stand to see my daughter suffer and it makes me so mad that a stupid law and some greedy pharmaceutical companies are preventing research and manufacture of uniform marijuana doses.
Marinol is garbage. It won't help my daughter.
well, just how many bong hits CAN she take?
there's a reason it's referred to as "Self medicating"
if she smoke too much, she'll just fall asleep
_________________
Neuroscience PhD student
got free science papers?
www.pubmed.gov
www.sciencedirect.com
http://highwire.stanford.edu/lists/freeart.dtl
Well, here's a first pass at ideas for anticonvulsants with relatively slight (or very rare) side effects. Whether or not any of them would be right for your daughter, or anyone else, is for a doctor to decide. Taking more than one of them at once, to get the desired activity while minimizing side effects, is a definite possibility, none of them have been singled out as interacting badly with any of the others. Some also have counteracting side effects, e.g., one may sometimes cause moodiness while others are mood stabilizers.
I'm emailing a doctor with a request for feedback on this, and I'm sure he'll have something to say, so check back in a day or two.
Lamotrigine (Lamictil): Has one worrisome side effect, but it's quite rare. The side effect is an increased likelihood of getting Stevens-Johnson syndrome, a really nasty rash of the skin and mucus membranes, which affects about 1/10,000 of 1% of the population every year, and kills about 1/20th of the people who get it. It sounds pretty horrible, but ginseng, penicillins, ibuprofen, and a number of other things people take without a second thought similarly increase their chances of getting SJS, so this is not a unique risk factor. Oh, Dilantin also causes increased risk of SJS. And it's perfectly possible to get SJS while taking nothing at all. But it wouldn't be honest of me to not mention it... The great majority of cases of Lamictal-induced SJS occur within the first 2 months of use, so doctors will normally start at a dose which is so low as to be ineffective, and gradually work upwards - this is believed to lower risk and minimize problems should they occur. But it also means that another anticonvulsant may be needed during the ramp-up period. Other side effects are uncommon, not threatening, and cognitive side effects are infrequent, unless you count mood stabilization as a side effect (it's also a very effective treatment for bipolar disorder).
Gabapentin (Neurontin): A mild drug, with mild side effects (sedation in some elderly patients, moodiness in some pediatric patients). There have been a few cases of liver damage from it, but millions of people take it without apparent harm, which is kind of puzzling. May be slightly helpful for OCD, depression, anxiety, and insomnia.
Tiagabine (Gabitril): May cause confusion or sedation at high doses. No other common side effects, and generally low toxicity.
Zonisamide (Zonegran): A mild drug which is usually used to boost the effectiveness of another anticonvulsant. Those who do experience side effects tend to get nothing worse than drowsiness or headaches. In other patients it reduces migranes. It's also a mild mood stabilizer.
Acetazolamide (Diamox): Another relatively mild anticonvulsant, which would need some help from another drug. It is also a diuretic, which accounts for almost all of its common side effects: needing to drink more water, needing more potassium, and needing to pee more frequently. The only other frequent side effect is blurred vision (probably related to its effectiveness as a med for glaucoma). If your daughter likes fruit juice as much as most kids, only the peeing should be an issue.
Ethotoin (Peganone): "Dilantin Lite." A chemical relative of Dilantin, it was developed for its lower incidence of side effects, but it's also a milder anticonvulsant, and needs to be taken more often, so has fallen out of common use. Still, it's an option worth considering - it won't make your daughter get hairy like Dilantin, probably won't make her deficient in folic acid like Dilantin, etc. The most common side effects at high dosages are ataxia, gastrointestinal upset, and blurred vision.
Here, from what I've been reading let me show you a 'nice' siezure medication.
http://www.epilepsy.com/medications/b_n ... rious.html (side effects generaly being dizziness, sleepiness, and weight gain, no 'major' side effects mentioned.)
Browse through the list that's given, find one you like: http://www.epilepsy.com/epilepsy/seizure_medicines.html
Of course, there's been research. Oregon wouldn't allow it for seizures without research.
It should be simple to standardise dosage if your cooking - just a matter of determining the strength/effects of each new batch over several days of cautious use. If you make each run with enough for a month or more, it wont be much of an inconvienience, as after the 1st week you should have everything chopped/weighed into pre-measured dosages.
First of all, psych, that avitar!! I love it! Hahahaha.
But I'm not sure about dosages because Consumer Reports took herbs that companies like Nature's Way sells and did some tests to see if the active ingredients in the herbs were the same as the claim on the bottles. Most were way off. The batches didn't match other batches. The magazine said that it's hard to take dried plants, grind them up, stuff them in capsules and expect them to all have the same strength.
Home made batches will have a widely varying strength as well, but that wont matter because you will be carefully & cautiously testing and recording the strength of each batch, rather than sticking them into pre-printed bottles with dosage instructions from the last years batch.
I im agine the procedure would go something like this, but youd have to ask someone with 1st hand experience: break up 2oz, melt into chocolate solids (for instance) & make a large, even slab. Then you weigh out and dose *very* small amounts, wait for 1 day, re-dose slightly larger etc. After a few days youll have *safely* worked out precisely how much is needed, and youve got 2oz supply of standardised meds which can be accurately weighed out on accurate scales.
Really, the main problem i can think of might be your daughters ability to communicate to you how she feels, so youll know when to stop, or discontinue in the 'testing' stage. This would apply to any medicine though, the only difference i can see here is you have to go through that initial cautious phase every time a new batch is made, which is why i recommend making extra large batches.
There's really nothing else that can be said about effects long-term, either positive or negative.
The simple fact is, we don't really know.
I'm sorry your daughter is having such a hard time with this. Its never easy to watch any child, let alone your own, suffer for any reason. The only advise I have is to do your own research. There has to be a drug out there with less devastating side effects. If your doctor won't work with you on the research or for whatever reason I would suggest getting a new doctor.
[Citation Needed]
Read all of my posts, I already cited several sources.
Well I should certainly hope it stunts brain growth, I fear there's not much room left in my skull for more brain to go...
Well, here's a first pass at ideas for anticonvulsants with relatively slight (or very rare) side effects. Whether or not any of them would be right for your daughter, or anyone else, is for a doctor to decide. Taking more than one of them at once, to get the desired activity while minimizing side effects, is a definite possibility, none of them have been singled out as interacting badly with any of the others. Some also have counteracting side effects, e.g., one may sometimes cause moodiness while others are mood stabilizers.
I'm emailing a doctor with a request for feedback on this, and I'm sure he'll have something to say, so check back in a day or two.
Lamotrigine (Lamictil): Has one worrisome side effect, but it's quite rare. The side effect is an increased likelihood of getting Stevens-Johnson syndrome, a really nasty rash of the skin and mucus membranes, which affects about 1/10,000 of 1% of the population every year, and kills about 1/20th of the people who get it. It sounds pretty horrible, but ginseng, penicillins, ibuprofen, and a number of other things people take without a second thought similarly increase their chances of getting SJS, so this is not a unique risk factor. Oh, Dilantin also causes increased risk of SJS. And it's perfectly possible to get SJS while taking nothing at all. But it wouldn't be honest of me to not mention it... The great majority of cases of Lamictal-induced SJS occur within the first 2 months of use, so doctors will normally start at a dose which is so low as to be ineffective, and gradually work upwards - this is believed to lower risk and minimize problems should they occur. But it also means that another anticonvulsant may be needed during the ramp-up period. Other side effects are uncommon, not threatening, and cognitive side effects are infrequent, unless you count mood stabilization as a side effect (it's also a very effective treatment for bipolar disorder).
Gabapentin (Neurontin): A mild drug, with mild side effects (sedation in some elderly patients, moodiness in some pediatric patients). There have been a few cases of liver damage from it, but millions of people take it without apparent harm, which is kind of puzzling. May be slightly helpful for OCD, depression, anxiety, and insomnia.
Tiagabine (Gabitril): May cause confusion or sedation at high doses. No other common side effects, and generally low toxicity.
Zonisamide (Zonegran): A mild drug which is usually used to boost the effectiveness of another anticonvulsant. Those who do experience side effects tend to get nothing worse than drowsiness or headaches. In other patients it reduces migranes. It's also a mild mood stabilizer.
Acetazolamide (Diamox): Another relatively mild anticonvulsant, which would need some help from another drug. It is also a diuretic, which accounts for almost all of its common side effects: needing to drink more water, needing more potassium, and needing to pee more frequently. The only other frequent side effect is blurred vision (probably related to its effectiveness as a med for glaucoma). If your daughter likes fruit juice as much as most kids, only the peeing should be an issue.
Ethotoin (Peganone): "Dilantin Lite." A chemical relative of Dilantin, it was developed for its lower incidence of side effects, but it's also a milder anticonvulsant, and needs to be taken more often, so has fallen out of common use. Still, it's an option worth considering - it won't make your daughter get hairy like Dilantin, probably won't make her deficient in folic acid like Dilantin, etc. The most common side effects at high dosages are ataxia, gastrointestinal upset, and blurred vision.
Thank you, geek. I copiedyour post. This doctor is better than the last one who didn't want to hear about how regular her seizures were and didn't want to see our diaries of them that showed that they were hormone related. He didn't want to know anything about her except that he has grand mal seizures. Her new doctor agreed that some seizures are hormone related but neurologists aren't trained about that kind if seizure.
_________________
Time flies like an arrow. Fruit flies like a banana.
[Citation Needed]
Read all of my posts, I already cited several sources.
Well I should certainly hope it stunts brain growth, I fear there's not much room left in my skull for more brain to go...
I take it that you enjoy a little puff not and again?
Maturity stops when people start smoking marijuanna, not to mention the fact it is addictive, and causes depression.
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