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0_equals_true
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11 Aug 2008, 5:48 pm

Not all are non-verbal for the same reason. Some people with autism also have other things like cerebral palsy that prevent them from speaking. They can understand language but just can’t form the words. They can also have difficulty physically using other communication methods. That is why there is something called 'facilitated communication' which requires another person to help them.



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11 Aug 2008, 6:10 pm

Callista wrote:
I kind of doubt you can get the insurance company to buy you a keyboard if you can talk, even talk some of the time. I know some people have managed it; but... well, I've heard some pretty bad stories. Like people not getting powered wheelchairs until they can hardly move their arms because a manual chair is tearing their joints up so badly... "Sorry, we can't help you; you can still use the manual chair. Come back when you can't anymore, then we'll help you."

Yeah, it would be nice if you could have something to fall back on. For all you know, just having it might take your stress level down enough so you'd need it less than you thought you might. (Like how I carry back-up stuff like stim toys or my cloak in my backpack, which I almost never use but feel better just having... and when I need them, I NEED them! Heh.)

am think this is one of those things am like the NHS for,am sometimes think it should become like americas service because do not wait as long to see specialists,but this is one of the best parts of the NHS [free stuff].
here,am have found it quite easy to get a lot of autism and communication related adaptions and aides needed even though they take time-the OT gets the funding for them through the council so am do not have to pay,but it takes a long time as they don't do funding meetings often.

getting a powered wheelie here is easier than in US as well,there's many organisations that will get the funding for those they accept,though there are more places for children than adults.

what they have done for am since could not wait most of the year for the meeting to come up due to laptop being killed in a meltdown,they instead said what things am need for disability reasons.of the communication related stuff,they class laptops as a must have/need due to using it to communicate with,and they include the high speed sky internet that have got under communication--these things and everything else on the list have money stored for them in account if need another quickly and the council or staff are not allowed to use the money for care bills or anything else-full high rate DLA benefit pays for it all.
the problem with waiting to get something council funded for is how long it takes,especially if it's needed as soon as possible.

am use a laptop along with a TTS [text to speech] program or just a notepad window [depending on whether have had too much sensory input going on or not],though being vista there's only one voice on it for choice unlike with XP which had loads.
am do not choose not to speak,it is extreme sensory related and also shows up on EEG with the right mid anterior temporal area being affected [controls speech,hearing and other things].

am think non verbalism in autism is different causes for all autists,as one form of help does not work for everyone.


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11 Aug 2008, 6:54 pm

LostInSpace wrote:
It seems like a device may be especially useful when you are upset- need to stim, sick or ill, or in frightening situations- here I am thinking about that incident you had with the police. A device could have a preprogrammed message for the cops, which could explain the problem to the cops or make requests for slower speech, etc. Cops may also take your communication problem more seriously if you have a device.
Never speak to the police (at least in America). The only thing talking to the cops can do for you is get you arrested.



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11 Aug 2008, 9:10 pm

Praetorius wrote:
LostInSpace wrote:
It seems like a device may be especially useful when you are upset- need to stim, sick or ill, or in frightening situations- here I am thinking about that incident you had with the police. A device could have a preprogrammed message for the cops, which could explain the problem to the cops or make requests for slower speech, etc. Cops may also take your communication problem more seriously if you have a device.
Never speak to the police (at least in America). The only thing talking to the cops can do for you is get you arrested.


yeah, but if the police go up to you and ask questions, and you don't respond typically, they can take that VERY WRONG. Most importantly make sure that you don't have to reach into a purse or jacket or pocket or anything (such as if you carry a card explaining autism, or a communication device). You hear every so often on the news about police shooting someone who's done nothing or practically nothing wrong, so especially autistic people need to be extra cautious.


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11 Aug 2008, 9:58 pm

Quote:
Never speak to the police (at least in America). The only thing talking to the cops can do for you is get you arrested.


While I have the utmost respect for cops who genuinely care about upholding the public safety, not all cops are like that- some seem to become cops solely so that they can break laws themselves with impunity. Plus there's the ridiculous favoritism some can show towards friends and family members. If it weren't for an eyewitness who came forward, my dad would have gotten screwed by a cop who preferred to believe the 16 year old idiot who smashed into my dad's car just because he was a local boy (we are from one town over). Unfortunately, you can't always avoid encounters with the not-so-good cops.

For example, if they pull you over, and you are having difficulty following their instructions, you better have a good explanation why. Otherwise you will *really* be in big trouble. Age was treated pretty brutally by the police because she wasn't able to do what they wanted.



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11 Aug 2008, 10:23 pm

I know a few Non-Verbal autistic people that I help out in the special education room. The high school I go to has a peer support program where general students go into the special ed classroom and help out a specific student. Mine happened to be a Non-Verbal Autistic because no one else would be a peer for that student. [She can be a real behavior problem and helping out somebody who is just plain mentally challenged w/o behavioral problems is far easier than a non-verbal autistic who has those issues.] However she is a very nice kid and gets along well with some of the kids. However when her schedule is not in exact order she may go haywire and destroy something.[ Shes irratible on Fridays due to the schedule change from weekdays to weekends.]



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11 Aug 2008, 10:34 pm

earthmonkey wrote:
yeah, but if the police go up to you and ask questions, and you don't respond typically, they can take that VERY WRONG. Most importantly make sure that you don't have to reach into a purse or jacket or pocket or anything (such as if you carry a card explaining autism, or a communication device). You hear every so often on the news about police shooting someone who's done nothing or practically nothing wrong, so especially autistic people need to be extra cautious.


Totally agreed.

If I don't talk to the police, then I am treated pretty horribly.

I even had one bad scare a couple years ago when I was waiting outside my apartment complex for staff to arrive, and got hassled by the cops, who saw that I could only write and got very suspicious, until a cop who actually knew me showed up -- right at the same time as the staff person showed up -- and told the guy to leave me alone and that I lived there.

(I actually make a point of going to the cops in whatever town I'm in and making sure at least some of them know me, buy them autism literature, etc. This reduces my risk of being treated like crap by them later in some situation where I can't explain myself. I don't by any means trust the police system in general, but if it means I'll survive and others might too, I'll do what I have to as far as educating them.

I've had a lot worse experiences than the one I described above, that was just among the most recent. What I don't understand is why they expect me to not struggle if grabbed from behind without knowing who is grabbing me -- that makes no sense.


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11 Aug 2008, 10:46 pm

benjimanbreeg wrote:
Age1600 wrote:
LostInSpace wrote:
Age, I would really recommend you get some kind of communication device. I'm sort of almost a speech therapist (I'm graduating grad school at the end of this month). If you were my client, I would definitely want you to get an AAC (augmentative and alternative communication) evaluation. Even if you are concerned you will become reliant on a device to the detriment of your speech, it sounds like speech is not functional for you a lot of the time anyway. Although speech is definitely useful (it is hands free, has no battery to be recharged, etc.), speech is not some ultimate goal to be achieved. *Communication* is the goal. If a device allows you to communicate more effectively, then I hope you follow your therapist's recommendation and get a device.

It seems like a device may be especially useful when you are upset- need to stim, sick or ill, or in frightening situations- here I am thinking about that incident you had with the police. A device could have a preprogrammed message for the cops, which could explain the problem to the cops or make requests for slower speech, etc. Cops may also take your communication problem more seriously if you have a device.


Yea i know, i always think though would i work so hard to talk or would i just give in and use the device? would i just be reliant on the device and give up talking altogether? I'm also afraid ppl like my brother and relatives think ill be using it as an excuse especially since i can be verbal and am not 100% nonverbal. So many things go through my mind, i go see my autism specialist this wednsday ill talk with him about it. I worry though because i push myself to talk, to do so much, despite the autism, and i dont want the autism winning if u know what i mean, i dont want to give in to it. I hate my language speech skills, but sometimes i feel good that i can at least talk, i feel so horrible for people who are completely nonverbal. I work with a little girl whos completely nonverbal, taught her some sign, and she only uses one hand, and i see how frustrated she gets, and i just wish i can find a cure, communication is such an important thing in life! Thanks for the idea, and i know it will help with the cops big time, thanks to the stickers, i dont have as many problems with cops. Anyways thanks though for ur advice!


yeah, I have a card, that i can show to anyone, and it says attention police/emergency services- i have an autism spectrum condition


Yea i have a card too but that doesnt stop them during the process of them driving behind the car with there flashing lights then going up to the veichle being very nasty doesnt always help. Thankfully the stickers on the car help the most! Along with other autism awareness on the car. like he has a puzzle piece, then he also just bought a magnet that says i love someone with autism which will help also.


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Age1600
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11 Aug 2008, 10:54 pm

earthmonkey wrote:
Praetorius wrote:
LostInSpace wrote:
It seems like a device may be especially useful when you are upset- need to stim, sick or ill, or in frightening situations- here I am thinking about that incident you had with the police. A device could have a preprogrammed message for the cops, which could explain the problem to the cops or make requests for slower speech, etc. Cops may also take your communication problem more seriously if you have a device.
Never speak to the police (at least in America). The only thing talking to the cops can do for you is get you arrested.


yeah, but if the police go up to you and ask questions, and you don't respond typically, they can take that VERY WRONG. Most importantly make sure that you don't have to reach into a purse or jacket or pocket or anything (such as if you carry a card explaining autism, or a communication device). You hear every so often on the news about police shooting someone who's done nothing or practically nothing wrong, so especially autistic people need to be extra cautious.


Yea i found carrying a card, having those warning occupant with autism may not respond to verbal commands stickers, plenty of autism awareness magnets, and autism shirts, along with educating the police department which my mother brought brodecures, cards, papers explaining autism to the trainer of the cops and to the secretary to hand them out helped alittle. Also my next step is buying a broducures to keep in the car and hand out to the cops personally. Right now what i said above works the best. Havent got harrassed since i did all of that. In fact cops seem to be more understanding which is great.


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12 Aug 2008, 6:04 am

Age1600 wrote:
benjimanbreeg wrote:
Age1600 wrote:
LostInSpace wrote:
Age, I would really recommend you get some kind of communication device. I'm sort of almost a speech therapist (I'm graduating grad school at the end of this month). If you were my client, I would definitely want you to get an AAC (augmentative and alternative communication) evaluation. Even if you are concerned you will become reliant on a device to the detriment of your speech, it sounds like speech is not functional for you a lot of the time anyway. Although speech is definitely useful (it is hands free, has no battery to be recharged, etc.), speech is not some ultimate goal to be achieved. *Communication* is the goal. If a device allows you to communicate more effectively, then I hope you follow your therapist's recommendation and get a device.

It seems like a device may be especially useful when you are upset- need to stim, sick or ill, or in frightening situations- here I am thinking about that incident you had with the police. A device could have a preprogrammed message for the cops, which could explain the problem to the cops or make requests for slower speech, etc. Cops may also take your communication problem more seriously if you have a device.


Yea i know, i always think though would i work so hard to talk or would i just give in and use the device? would i just be reliant on the device and give up talking altogether? I'm also afraid ppl like my brother and relatives think ill be using it as an excuse especially since i can be verbal and am not 100% nonverbal. So many things go through my mind, i go see my autism specialist this wednsday ill talk with him about it. I worry though because i push myself to talk, to do so much, despite the autism, and i dont want the autism winning if u know what i mean, i dont want to give in to it. I hate my language speech skills, but sometimes i feel good that i can at least talk, i feel so horrible for people who are completely nonverbal. I work with a little girl whos completely nonverbal, taught her some sign, and she only uses one hand, and i see how frustrated she gets, and i just wish i can find a cure, communication is such an important thing in life! Thanks for the idea, and i know it will help with the cops big time, thanks to the stickers, i dont have as many problems with cops. Anyways thanks though for ur advice!


yeah, I have a card, that i can show to anyone, and it says attention police/emergency services- i have an autism spectrum condition


Yea i have a card too but that doesnt stop them during the process of them driving behind the car with there flashing lights then going up to the veichle being very nasty doesnt always help. Thankfully the stickers on the car help the most! Along with other autism awareness on the car. like he has a puzzle piece, then he also just bought a magnet that says i love someone with autism which will help also.


well I hope those magnets help :D



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12 Aug 2008, 6:29 am

earthmonkey wrote:
Praetorius wrote:
LostInSpace wrote:
It seems like a device may be especially useful when you are upset- need to stim, sick or ill, or in frightening situations- here I am thinking about that incident you had with the police. A device could have a preprogrammed message for the cops, which could explain the problem to the cops or make requests for slower speech, etc. Cops may also take your communication problem more seriously if you have a device.
Never speak to the police (at least in America). The only thing talking to the cops can do for you is get you arrested.


yeah, but if the police go up to you and ask questions, and you don't respond typically, they can take that VERY WRONG. Most importantly make sure that you don't have to reach into a purse or jacket or pocket or anything (such as if you carry a card explaining autism, or a communication device). You hear every so often on the news about police shooting someone who's done nothing or practically nothing wrong, so especially autistic people need to be extra cautious.
god what kind of polices is in there in here they keep weapons in their belts even u would but your both hands in pockets and how about tourists in usa? in here u can talk to polices anytime u want and they will help i know that in usa its not like that police inst helpful in there


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12 Aug 2008, 9:07 am

In the middle of a meltdown, right before you lose speech.. does anyone else seem to jumble words together that don't make any sense? Or yell random profanity in a string that *should* have made sense? (I'd give an example but it would be rather colorful. LOL) This often happens right before I shut down, and I'm laughed at a lot for it. It does sound pretty funny I guess.



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12 Aug 2008, 3:30 pm

Age1600 wrote:
Yea i know, i always think though would i work so hard to talk or would i just give in and use the device? would i just be reliant on the device and give up talking altogether?


Just me personally, I've given up caring what other people think, and I figure, anything that's going to prevent me from stressing out is a good thing ;) I think I've got enough gray hairs as it is :roll:

Praetorius wrote:
Never speak to the police (at least in America). The only thing talking to the cops can do for you is get you arrested.


Yowza, I'm glad I don't live where you guys live 8O I've had to talk to policemen maybe...8 or more times...and a few times we were actually guilty of something :oops: Never been imprisoned or even taken into the station or given a ticket.


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12 Aug 2008, 8:17 pm

Dragonfly_Dreams wrote:
In the middle of a meltdown, right before you lose speech.. does anyone else seem to jumble words together that don't make any sense? Or yell random profanity in a string that *should* have made sense? (I'd give an example but it would be rather colorful. LOL) This often happens right before I shut down, and I'm laughed at a lot for it. It does sound pretty funny I guess.


I do this too! Then my mom will ask me what's wrong, and I say: "Rosie. What about Rosie?"


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17 Aug 2008, 5:26 pm

I hope it isn't a problem to post in this thread even though it's old.

I want to say thank you to the Autistic people on this thread because although I know about Asperger's syndrome I don't know very much about Autism, and this thread has helped me to understand what it is. This sounds really bad, but I thought Autistic people who couldn't talk just couldn't communicate because they didn't understand. :oops: I now know that it's completely different from that! Thank you for telling me this because now I am far less ignorant. :)

A few times I have stopped talking for a while because I'm stressed, but this is because I refuse to talk. I refuse to talk sometimes because when I'm stressed I find it difficult to find the right words for things and sometimes say things that I don't mean or are misleading or embarrassing and cause problems, so when I'm stressed sometimes I get worried about saying these things so I stop talking altogether so I don't say something that will cause problems later.

KingdomOfRats - I know what you mean about the NHS. Sometimes it is frustrating because it takes a long time to see a doctor, but at least all your money doesn't go to stuff you need for your health or a disability!



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17 Aug 2008, 6:17 pm

When I get frustrated I would use a higher level of vocabulary compared to getting angry, if the TV is up too loud or a radio is up to loud I would generally say, "Don't you think the volume on that is too excessive?"
I think communication is overrated. I don't like to use verbal communication. When I'm concentrating very hard such as watching TV I would not hear anyone else, and the accuse me of ignoring them. "Oh, he's ignoring me now, what did I do this time?"

I only really participate in verbal communication with people I feel comfortable with. Otherwise if I am engaged in an activity, I don't want to talk with anyone