You young people are truly lucky in this autistic age

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AnAutisticMind
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04 May 2009, 8:12 pm

Katie_WPG wrote:
There are benefits and downsides of early diagnosis.

I tend to think of things in terms of "what if it DID happen back then"? Rather than using today's standards to judge the past situation.

In the case of older aspies, I don't think early diagnosis would have been any help. They would have just been permanently institutionalized (until those hospitals were closed down). Or locked in the house. Whatever their parents felt like.

In the case of myself...I don't think anything GOOD would have come out of it. AS treatments didn't really exist when I was a child, and the ones for classical autism would have been far too insulting. The only thing that could have happened was an increased chance of giving up on myself and my parents giving up on me.

The situation is possibly even worse today. Treatments exist, but the only effective ones aren't for AS itself, but for co-morbid conditions that many people with AS don't have. As a result, several parents now believe that their child needs things like PT, OT and ST; JUST because they have AS. If this isn't covered under insurance, then parents pay for it all, potentially sucking money out of their child's college fund.

But, many parents have been told to not bother with aiming for post-secondary education for their AS children by psychologists and special ed teachers. As a result, these children will have fewer educational opportunities that many undiagnosed AS children had before them.

Many psychologists are also telling parents not to bother with trying to establish independance in their AS children, because "they don't want them to develop unreasonable expectations". As a result, many young adults with AS are going straight from high school to welfare, without even trying to find a job. Even a part-time one; because their parents have drilled it into their head that employment will be too much for them.


i totally agree withyou,i am glad i slipped through the cracks many years ago

my op is all about this site and all the info for everyone out there now, especially for parents

this site is great therapy for all of us, especially when the more experiences autistics can teach the younger ones a few steps to avoid

again, thank you


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Some of your greatest accompolishments are the direct results of your greatest failures. Some of your greatest failures are the direct results of your greatest accompolishments.......AnAutisticMind


AnAutisticMind
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04 May 2009, 8:17 pm

LabPet wrote:
AnAutisticMind - thanks for helping us; being Autistic can be hard. I don't usually, but a Wrong Planet friend/inhabitant, nightbender, is having a really tough time right now: http://www.wrongplanet.net/modules.php? ... &p=2181808

Others have been responding and hopefully he'll be feeling better soon; might you post on his thread? I think just writing, sharing what you told us, would help him recover.

Oh, check out my video clip - URL below! Hope you like......thank you, AnAutisticMind.


hi lab, your welcome..our job is to help others in times of dismay...ALL OF US..............i will post to your friend


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seedub
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04 May 2009, 8:23 pm

double



Last edited by seedub on 04 May 2009, 8:24 pm, edited 1 time in total.

seedub
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04 May 2009, 8:24 pm

Thinking in hypotheticals is always fun.


If I had grown up under the context that everyone believed I was handicapped, my 'growing up time' (and no, upbringing is not the correct word) would likely have been completely different. But I wouldn't be in anyway.

That's something I think about, my whole life I was never even suspected of being autistic in anyway. So what does that tell me about the way people percieve me?



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04 May 2009, 8:50 pm

hester386 wrote:
I am a friendless freak and refuse to consider myself lucky.


I would've been lucky if I had been diagnosed 5-6 years earlier than I was. Middle school really ****ed up my mentality and to this day I can never think positive of or be happy with myself. Then about a month before graduating high school, I finally got the answers to all my misery but instead of treating the AS, I was given anti-depressants to treat my depression (which was caused by not knowing I had AS). I'm pretty p.o.'d because I clearly had signs of something seriously wrong with me and everybody around me knew I was ****ed up but I was at a small ghetto Catholic school at the time surrounded by people who would never have a ****ing clue that all this **** I was having could easily be indentified as something along the lines of AS.

All the cursing indicates how mad I am that I didn't get this diagnosis sooner. Fortunately I went to a good high school where people had a more expanded knowledge of things but even then, it took my high school counselor four years of seeing me fall apart at school to realize that I may have had AS.

Of course by then I was legally an adult and all the child-centric services for people with AS were no longer applicable to me.



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05 May 2009, 2:09 am

AnAutisticMind wrote:
i am almost 50 and notice quite a lot of younger people here and that is good, i relate well to people of all ages..............don't worry young people, by the time you get older a lot of things will fit into better spaces, make more sense......TRUST ME

you guys are so lucky to have the treatment and support you do today as autism is on every tv, magazine, and book cover, lol

i lived in a lonely confused world in the 1960's and 70's...............i had to make my way through the world totally in the dark and not understanding what it was all about, and thinking about things few 8 year olds did(what is life?, why are we here?, what does it all mean?), not too many 8 yrs old think about those things, lol

i just knew i was so damn different than anyone else.................could not believe how immature people really were

by the time i turned 16, i had changed from a confused, awkward, pimply dorked stooge, lol.too a very mature young gentlemen.....girls were chasing me and i just couldn't figure out why they would want me


don't worry you guys, you'll make your way in the world LOUD AND CLEAR, let it evolve as it was suppose to, dont get frustrated...................all my love to you guys


I am in my 50's so I know what you mean. The younger members of WP probably can't imagine what it was like before the internet, for one thing. It is such a boon for those on the spectrum. I used to use computerized Bulletin Board Systems (BBS's) which was usually someone who set aside an extra computer and phone line for people to call up and post messages with their eight bit computer (like my old Commodore 64 or Vic 20.) The discussions were usually about how the C64 was better than the Atari 800 or something similar. People eventually set up more specialized BBS's and message boards, but nothing like the variety of the current wwweb.


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kittenmeow
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05 May 2009, 10:05 am

Oh yeah? Well I had to walk in the snow to school, up two hills and back or whatever people say to give some competative snarky claim to having life rougher.

No, not really.

I actually do remember what life was like before the internet. What did I do? I wrote on paper.

It's not like the internet is some safe haven free of bullies and mob mentality enthusiasts.



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05 May 2009, 11:02 am

AnAutisticMind, I agree there is a greater amount of resources available to people nowadays being diagnosed with AS wherein; in decades past that was simply unheard of shall I say :oops: :oops: :( .Anyways, I too found it hard to travel through life for, I was not dx'ed with AS until my latter age wherein; I was already out of the educational system and there was not much for me in regards to opportunities and options now available.Still, I wish not to sound pessimistic for, despite such I have managed to acrew some skills and other toools over the last couple years now...


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05 May 2009, 12:29 pm

I was only diagnosed as an adult, since throughout my childhood, nobody knew Asperger's existed, and I was too high functioning for an autism diagnosis. I hadn't heard about Asperger's until my late 20's when I was seeing a therapist for PTSD/depression, and she suggested the possibility. I then read up on Asperger's and saw that I fit the description, which was confirmed when I got the diagnosis.


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06 May 2009, 6:12 am

kittenmeow wrote:
Oh yeah? Well I had to walk in the snow to school, up two hills and back or whatever people say to give some competative snarky claim to having life rougher.

No, not really.
(Snip)


LOL! Touche'! Monty Python did a great skit that showed old rich guys topping each other about how bad they had it as kids. Sorry I don't have a link.


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