Psychologist says I will probably be denied SSI.
Doing okay this morning?
Thank you Lee...you are sweet. I'm doing good today. I felt so much better last night after coming here. I hope you've had a good day and will be keeping you and other good folks here close in my thoughts. It gives me strength and a renewed sense of faith in humanity.
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I choose stability over my children sleeping on the street. And I wouldn't dare presume to know why others are on SSI or judge them for their reasons. Just because you have the courage, ability, means and support to do something does not mean we all do.
DragonflyDreams, You are no coward and I'm sorry that anyone would make such gross judgments. Don't let it bother you. It is on them and no other. It's ignorance and isn't even worthy of notice. I hope you're having a good day.
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I know a lot of autistic people are really, really frightened of not knowing what to expect; and that employment often is risky and difficult to keep. And I guess I was angry because I constantly have to live with the reality that I may not make it in school, that I may be truly unemployable, and have to live on disability no matter what I really want. I ended up being so stressed that I became physically ill last quarter, and had to drop out; and the only reason I was able to come back to school at all was that I spent every last penny from the money I earned last summer for paying for that missed quarter of school; and I know that if it ever happens again, I will be fully dependent on the government.
I don't like being dependent on anybody else. It frightens me that someone could decide that I'm too disabled to go to school. And on the other hand, I'm frightened that if they decide I'm not disabled enough, they could take away my SSI and leave me unable to get a job.
I want out of this system. I want it more than I want almost anything else. This is a horrible way to live and I cannot imagine anybody wanting it because it is more "stable".
If I were to say anything about people who are on SSI when they have a chance at work, thanks to it being a dependable way to get enough to live, maybe I might say that it is a sign of cowardice, unwillingness to take the risks that come with being employed. But people who think that SSI is a source of stable income... are probably wrong. You can lose it anytime they please.
I wish nobody would have to take those risks to be employed; but I really think that most autistic people can work--even those labeled "low functioning"--given training and decent accommodations. I'm very angry that in many places there are no good ways to get those things. My own anxiety and frustration and desperation to spend my life doing something useful sometimes spills over, and I say things that aren't correct. People who are searching for stability aren't necessarily lazy. They're just afraid to risk their lives on the bet that if they look for jobs, they won't fail and freeze to death in a cardboard box next winter. I really shouldn't be so harsh.
Thank you Callista. I very much appreciate this reply of yours, and now I understand why you said what you said and why.
I respect your position because i can now understand what it is, in more detail, and what motivates you and drives you with regards to your stance.
The thing is, I am stable now. I am 47. I did look for jobs. I did build a career. I did have "success," carved out in a novel and non-conformist way and managed largely from home. But I cannot sustain it because of my particular presentation and because of my sensory issues. I also cannot sustain it because no matter what i have tried, I cannot cope with being around people socially. And everywhere, yes everywhere, this is required. For some who do not have a presentation of AS like mine, work and being around people is feasible. For me it is not. and yet, if you put me in a lineup of AS people, because I am hyperverbal, people would assume I am less "impaired," than another who is more silent and withdrawn. Not the case, though.
In the end, I am different, and my disability is such that it is what it is and I am what I am.
I am not afraid anymore. I am the least afraid I have ever been in my life. Because a diagnosis has given me understanding about what I am. I lived 45 years in a state of abject terror. Not anymore. The panic and fear is subsiding. And I use my time wisely and I work at being content with life. I look for meaning through the private delight of my special interests, my animals, the garden and nature.
I wish you well and hope you reach your goals and dreams. I really do.
Last edited by millie on 10 Jan 2010, 7:03 pm, edited 1 time in total.
I frequently wonder how it's always the Christian who doles out the cruelest judgments where most of us know better than to judge another, and when the bible clearly states you mustn't judge lest you be judged. It's a hypocrisy which is seen all too often. It's always uncanny that way and why I have little or no respect for many Christians because of it.
I choose stability over my children sleeping on the street. And I wouldn't dare presume to know why others are on SSI or judge them for their reasons. Just because you have the courage, ability, means and support to do something does not mean we all do.
DragonflyDreams, You are no coward and I'm sorry that anyone would make such gross judgments. Don't let it bother you. It is on them and no other. It's ignorance and isn't even worthy of notice. I hope you're having a good day.
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Thanks Meadow
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I do hope you're feeling better! Meltdowns are never fun. I was very close to one myself today.
You know, I've been here for years, and I don't think I've ever done anything that qualifies as unjustly judging people. This is the first time, I think, that I've ever done it. And immediately you blame it on my being a Christian?... No. Sorry. That isn't logical; or at least, it's as logical as blaming it on my race or my gender. What people often don't get about Christianity is that it isn't actually about following a bunch of rules. It's about acknowledging that you are in fact imperfect, and that there's no way to escape that imperfection. It's about needing God. I said what I said because I am human and I sometimes do stupid, wrong things. I apologized because I've learned enough to know that I can be wrong--and often am.
_________________
Reports from a Resident Alien:
http://chaoticidealism.livejournal.com
Autism Memorial:
http://autism-memorial.livejournal.com
It doesn't feel much like an apology when you go from calling people lazy to cowardly.
...I'm on SSI myself. I'm calling myself cowardly too.
_________________
Reports from a Resident Alien:
http://chaoticidealism.livejournal.com
Autism Memorial:
http://autism-memorial.livejournal.com
If that's supposed to make it any better.
Callista, I don't think you're mean or judgemental at all. I just think you have your different opinions and views and sometimes it offends people. (Generally though, I quite like reading your posts/what you have to say.. i wouldn't if you were rude or judgemental.)
I am not on SSI or anything that can help from the Government, I heard it's really hard for anyone who is Autistic to get Disability/SSI/whatever here in CA. So I haven't bothered trying, but I really can't handle having a job. I used to have one, but I would come home crying, pulling my hair out and causing a lot of SI like behavior and would completely shut down. Partially because my employers were bullying me, and the entire store was like sending me into sensory overload.
My psychiatirst says while I 'have had a job', I am not able to work due to said reaction to the one i had when i did have a job.
You know, I've been here for years, and I don't think I've ever done anything that qualifies as unjustly judging people. This is the first time, I think, that I've ever done it. And immediately you blame it on my being a Christian?... No. Sorry. That isn't logical; or at least, it's as logical as blaming it on my race or my gender. What people often don't get about Christianity is that it isn't actually about following a bunch of rules. It's about acknowledging that you are in fact imperfect, and that there's no way to escape that imperfection. It's about needing God. I said what I said because I am human and I sometimes do stupid, wrong things. I apologized because I've learned enough to know that I can be wrong--and often am.
I have a hard time when people start throwing their baggage around. That's another human problem that hopefully will be curbed a little bit. I cover up my pain and suffering a great deal but that doesn't mean I haven't suffered in the most inhumane ways humanly imaginable. And when you have been through so much as that you know that no one can be judged for they are where they need to be at that time. Take good care and remember we are ALL human and we should be entitled to a little bit of compassion, as well.
I choose stability over my children sleeping on the street. And I wouldn't dare presume to know why others are on SSI or judge them for their reasons. Just because you have the courage, ability, means and support to do something does not mean we all do.
DragonflyDreams, You are no coward and I'm sorry that anyone would make such gross judgments. Don't let it bother you. It is on them and no other. It's ignorance and isn't even worthy of notice. I hope you're having a good day.
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Thanks Meadow
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I do hope you're feeling better! Meltdowns are never fun. I was very close to one myself today.
Meltdowns are really hard. I hope you're able to relax a bit. This is very personal when we come to a thread and take that terrible risk to admit we are on assistance and basically the worst thing possible happens when someone judges us so horribly which is really our worst fear. It isn't deserved but it is the risk we took. I regret it now very much, myself. Hang in there, okay. It isn't worth any upset really. We will go on and do amazing things and the government will be paid back tenfold so don't worry or feel bad about such nonsense. I'll be thinking of you...
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I really think if only things were different, we could work, even the ones who have meltdowns like clockwork in the wrong situations. If only people would be willing to work with us instead of expecting us to be cookie-cutter employees, we'd be just as good as anyone else on their payroll, and better where we're talented. And while I maintain that it is cowardly not to try to work, you did note I mentioned that the thing people are afraid of tends to be that they'll lose their jobs and freeze on the streets... which can and does happen to people who end up homeless and such... if you think about it, that not a very high degree of cowardice, really. I have to admit I am very ashamed of taking money from the government, because from every part of the world I get the message that anybody who takes anything from anybody else is a freeloader, a drag on society, etc... and yes, it's because I'm afraid of risking losing my job and dying in some cardboard box somewhere. It's because I know that if I lose SSI, I will end up homeless, and that is not something I can survive for very long. It doesn't stop me from basically hating myself for taking money from anyone.
_________________
Reports from a Resident Alien:
http://chaoticidealism.livejournal.com
Autism Memorial:
http://autism-memorial.livejournal.com
It's self-defeating to hate oneself and then project that out onto others so needlessly, just as you feel it is being done to you. The government 'should' invest taxpayer dollars for our needy people rather than spending billions of dollars to control and monopolize other countries while killing innocent people in the process, but no one feels that bad about that. My goal is independence rather than moving from one insecure situation to another, and no one has a right to call me Lazy or Coward! I have worked VERY HARD all my life, just to survive, and I don't deserve to be called anything of the kind.
I think its because you are looked down on, that you've started looking down on others. It shouldn't make you feel ashamed to be on SSI. Humble, yes.
Yeah someone talked my parents into having me apply for SSI Disability, denied of course. Though apparently they deny almost everyone the first time so my parents appealed and again denied! SSI waste of time!
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From childhood's hour I have not been
As others were; I have not seen
As others saw; I could not bring
My passions from a common spring.
(Excerpt From "Alone" By E.A. Poe)