NT's - Why do you come to this site?
It's true that everyone here is very different. There are some issues that are very challenging for a parent to understand when we don't have Autism ourselves. For example, eye contact. To me it is difficult to understand how this could be a challenge. All of these social things just come naturally to me, I always thought all these social things were just common sense. I wanted to hear from you guys about what it feels like to be you. Where does something like difficulty with eye contact come from? You know what I mean? So when I see symptoms in my son, and someone on here has the same symptom, I can get some ideas about what might be going on in his head. This helps me learn how to deal with it. For example, contrary to many therapies suggestions, I don't force eye contact on my son. This is a direct result of having listened to opinions of people with Autism on how uncomfortable and sometimes painful it can make some people feel. Without this input, I would have thought to myself, "well, eye contact is important, everyone does it, so let's work on that". Does that make more sense? I don't take every comment as being directly related to my sons point of view, but it just gives me a bit of a better idea since he is unable to explain these things to me.
It's true that everyone here is very different. There are some issues that are very challenging for a parent to understand when we don't have Autism ourselves. For example, eye contact. To me it is difficult to understand how this could be a challenge. All of these social things just come naturally to me, I always thought all these social things were just common sense. I wanted to hear from you guys about what it feels like to be you. Where does something like difficulty with eye contact come from? You know what I mean? So when I see symptoms in my son, and someone on here has the same symptom, I can get some ideas about what might be going on in his head. This helps me learn how to deal with it. For example, contrary to many therapies suggestions, I don't force eye contact on my son. This is a direct result of having listened to opinions of people with Autism on how uncomfortable and sometimes painful it can make some people feel. Without this input, I would have thought to myself, "well, eye contact is important, everyone does it, so let's work on that". Does that make more sense? I don't take every comment as being directly related to my sons point of view, but it just gives me a bit of a better idea since he is unable to explain these things to me.
Thanks for explaining. This reminds me a lot of my mom and her frame of mind in regard to autism. It can be really damaging when a parent doesn't understand and refuses to listen; a lot of them may even think the child is making up excuses when they are disrespectful, etc., so it is good when people come here to get a better understanding. Doesn't mean you can all necessarily relate, which is why it confuses me a bit. Too many emotions and feelings come from eyes, and it's a powerful experience being able to maintain eye contact for me, personally. I can maintain eye contact with my aspie boyfriend, though, which is a statement in itself. I think eye contact can be overwhelming for some of us; the lucky ones who it doesn't bother as much are so much better off.
After some time, I started to develop a very deep empathy and caring for some of the people I met here, and wanted to find ways to help people and give back to the community, and so then I tried to offer advice or at least encouragement. At first it was in the area I know best, parenting. But I don't think I've had much impact in parenting because either I don't relate to the other parents or they don't relate very much to me. So then I tried to befriend members on the spectrum because everyone needs friends, even in the virtual world. However, this has also proved challenging. So then I changed focus and have tried to become more involved helping in my local community and that has also been frustrating. Its very ironic: here you have a guy who wants to help improve the quality of life for others, but hasn't been able to find the right "fit" for accomplishing anything truly meaningful. But I haven't given up. I still do what I can locally. And every now and then I pop onto WP, reply to a few posts, try to spread optimism, offer advice when it makes sense.
If anyone reading this needs a friend, advice, or maybe just a few encouraging words, please send me a message. I don't check in very often any more, but I will reply to all messages eventually.
Sincerely, -DenvrDave
Dave I think what you're looking for is feedback to let you know that you're having an impact on people. I think you already understand that many people on the spectrum have severe problems with social interaction. You have to remember that people 'on the the spectrum' will often not know how to give what most people would consider normal feedback. They may not understand your motive. They may not be able to put themselves in your shoes. It may very well be that they do appreciate you but don't know how to tell you or, odd as it might sound to you, assume that you know how they feel. This might be a matter of faith for you- knowing that you are doing something good and continuing to do the right thing despite a seeming lack of appreciation. Just remember what kind of problems you are dealing with here and remember that at least some of the people appreciate you even if they are unable to tell you.
I think it is beneficial and important for NTs to come here, as they can learn something more about us.
ASD and AS are not things you can just describe, and there is no simulator that can allow NTs to experience being an Aspie. You just have to spend time with this kind of people and get to know them. Then, you will hopefully begin to understand, even if only a little.
I don't think NTs really have to "understand" us. Not directly anyhow.
What they have to learn really just boils down to flexibility--being able to understand that other people are not necessarily like themselves, and that the usual assumptions may or may not apply; being able to drop those assumptions and gather information about somebody instead of trying to fit them into pre-made patterns.
Once an NT understands that, their natural facility with connecting with others comes into play, and things are about as good as they can be between any two human beings.
_________________
Reports from a Resident Alien:
http://chaoticidealism.livejournal.com
Autism Memorial:
http://autism-memorial.livejournal.com
After some time, I started to develop a very deep empathy and caring for some of the people I met here, and wanted to find ways to help people and give back to the community, and so then I tried to offer advice or at least encouragement. At first it was in the area I know best, parenting. But I don't think I've had much impact in parenting because either I don't relate to the other parents or they don't relate very much to me. So then I tried to befriend members on the spectrum because everyone needs friends, even in the virtual world. However, this has also proved challenging. So then I changed focus and have tried to become more involved helping in my local community and that has also been frustrating. Its very ironic: here you have a guy who wants to help improve the quality of life for others, but hasn't been able to find the right "fit" for accomplishing anything truly meaningful. But I haven't given up. I still do what I can locally. And every now and then I pop onto WP, reply to a few posts, try to spread optimism, offer advice when it makes sense.
If anyone reading this needs a friend, advice, or maybe just a few encouraging words, please send me a message. I don't check in very often any more, but I will reply to all messages eventually.
Sincerely, -DenvrDave
_________________
Reports from a Resident Alien:
http://chaoticidealism.livejournal.com
Autism Memorial:
http://autism-memorial.livejournal.com
I signed up to learn more about ASD so that I can help my 3 yo son. My husband has 2 family members on his mother and father's side who were severly affected by autism. They are in their 40s now. I don't know if they had received better help back then things would have been better for them (they are both mute) but I want to make sure that I give my son every chance to reach his potential.
So now, I read stories about people with ASD and what work and what didn't work for them. I ask questions, so that I can put myself in my son's shoes, and I try to approach my son with an open mind. I learned I have to parent him differently, I learned he is very bright, and has a ton of potential. I also learned that there is such a wide variety of traits and severity with ASD.
I also spend a lot of time in the parenting section, I get support there and ideas about different approaches to everyday challenges.
I like having NTs around here, and wish there were more. I feel like most of the NTs around here are also around 40+, and mostly just parents of children on the spectrum, which I don't like, because I wish I could interact with more NTs my age who understand what it is and all that, and talk about autism related topics with them.
I also wish I could just tell everyone I have autism without having to worry about their reaction or having to explain it to them.
That again is why I am here - Hubby and I have been through so much in the past 10 years and now understanding it was mostly because we didn't Know he had AS, has made a huge difference already in our communication and relationship. I will do whatever it takes to understand what he is going through and have already read many of the books suggested on this site.
WW
<--- Would rather not have it shoved in his face how NT's are happily married with wonderful spouses, wonderful children, wonderful friends and wonderful jobs.
<--- Didn't sign up to be reminded what a loser he is.
<--- Signed up to meet like minds, that is, people with such special interests that they neglect "normal" things, people who are social misfits, people who could only go to a parade or an airplane show or a family reunion kicking and screaming, people who are sensitive to light or sound, people with marked impairments in social interactions, people who are prone to saying the wrong things at the wrong time. Isn't that why this is called Wrong Planet?
<--- Can't understand why WP has such an infestation.
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I also wish I could just tell everyone I have autism without having to worry about their reaction or having to explain it to them.
I'm a parent to a child on the spectrum, but I'm 27 and go to college, so I'm still kind of involved in a younger crowd.
<--- Didn't sign up to be reminded what a loser he is.
<--- Signed up to meet like minds, that is, people with such special interests that they neglect "normal" things, people who are social misfits, people who could only go to a parade or an airplane show or a family reunion kicking and screaming, people who are sensitive to light or sound, people with marked impairments in social interactions, people who are prone to saying the wrong things at the wrong time. Isn't that why this is called Wrong Planet?
<--- Can't understand why WP has such an infestation.
You sure have a bad case of aspie arrogance.
I came here originally because I wanted to learn more about Aspergers, and this website was mentioned in a Wiki article. The more I read, the more I recognized myself in these posts. I have gone to professionals and asked about this, and they look at me like I am crazy and say "You can make eye contact," or "you can hold down a job," or "you aren't like Dustin Hoffman in 'Rainman.'"
I feel for those who can't get an official diagnosis. Maybe they can't afford it, or maybe the doctor or psychologist that they go to is totally ignorant on Aspergers and Autism and will not even bother with testing them. Or they might have lived their entire lives in an NT world and have had a lot of their interesting Aspie edges ground down by years of brutal trial and error. I've been diagnosed with Dyslexia, ADD and Social Anxiety Disorder. It seems to me you put those three things together and that sounds like Autism. I don't score like an Aspie on the on-line tests though, so I doubt that I would meet the diagnostic criteria.