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25 Oct 2013, 7:10 pm

Forevernuts wrote:
.. I really do plain and simple.

It has made so many aspects of my life impossibly difficult and I endured so much misery because of the effects of the condition over the years. I've worked impossibly hard to appear normal and manage the A.S but I feel like it still has a grip on me sometimes.

A.S is not who I am and not who I want to be and I don't see how any of you can enjoy having it or enjoy being defined by it. Obviously this doesn't apply to everyone but I've lurked this site for years and have seen dozens of posts of people writing how they "love being an Aspie", "wouldn't change it for the world" and thought it made their life more meaningful. I don't understand these people at all, these must be completely out of touch because having Asperger's or an ASD is like having a chronic painful illness in my opinion that makes your life on this earth much more difficult than it needs to be and for this reason I truly hate it.

This is not a blessing, it's a curse.


I feel you, brother.



Kuribo
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25 Oct 2013, 8:17 pm

You are more than welcome to your opinion, but don't you dare insult those with a positive view of themselves.



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25 Oct 2013, 8:59 pm

I'm sorry that you feel this way. :(
The reason people are happy about it is because we are noticing it from the prospective of not including the problems that are really about other people. Imagine if everybody surrounding you was an aspie, and their brains all generally were like yours. It'd be different then. If you think about it from the perspective of people who do not think at all like you and are difficult for you to kinda be around, then it's harder, but it's not something either person is doing wrong really; it's just not the same connection that you'd have if it were all aspies or something. Anyway, who's to prove that it's aspies that have the "disorder?" Maybe it's the people without AS. It doesn't really matter, but the only thing miserable is other people finding the way we do things to be bad or wrong, whether it's the way we think, the way we react to things, or just the way we do anything.
Some people would wish that they were "neurotypical." Some people would wish that everybody around them was an aspie. Some people just want everybody to get along.
If you feel miserable, it's doesn't mean that your brain is wrong and terrible and under a horrible curse.


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ASPartOfMe
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25 Oct 2013, 11:42 pm

Joe90 wrote:
No, there is nothing good about Asperger's. I just want out of this f***ing pathetic life. I hate my job, I hate my life, and I hate who I am. Of all the things in the world I have to have f***ing Asperger's. It's the most cruelest non-life-threatening thing ever. The isolation caused by such vivid shyness is dreadful. The double standards I see every day of my life are frustrating. The unfriendly stares I get from people in the street, all because I look a teeny bit nervous, otherwise nothing else but normal. What the f**k is wrong with people?

And my lacking social skills. It is really starting to f***ing cause problems in every area of my life. It's even interfering with my job. But I am not ''disabled'' enough to not work, yet work is so daunting for me. It's not fair being caught in this trap. It's not Asperger's itself what is the issue, it's the way Asperger's affects me, and it affects me in the most awkwardest ways. I think the more social skills an Aspie has, the more the Aspie is going to struggle, because it makes the Aspie self-aware and have a strong desire for friendships and get more depressed the more they feel isolated, and it all just affects them more. I think an Aspie is better off when they aren't so self-aware, not hypersensitive to what other people think of them, is comfortable and happy with having no friends, and can just focus on a special interest for hours alone, and can receive disability benefits so that they can only work, like, a few hours a week or do volunteering or just help out somewhere remote and solitary like a farm, with somebody who knows them well, like an understanding relative. I can't do that. I've got to do everything the NT society way, which to me is the ''hard way''.

Then I become self-loathing because I worry that it's not anxiety what is holding me back from working, but is laziness instead. But then, when I do work, I'm very self-sufficient and willing to get the tasks done thoroughly, and I am very reliable too. So that proves to myself that it probably is not laziness, but just lack of motivation to go into work, especially when the job involves some stressful tasks. It's tasks what involve being loud and assertive to people what stresses me out, but I don't want special consideration from the managers either. I just want to be safe in a job what doesn't involve being in awkward contact with customers or any other client type where assertiveness is essential. I just want a non-stressful job. But is there such a thing?

I f***ing HATE Asperger's. :cry:


What is your job?


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Quinntilda
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26 Oct 2013, 11:55 am

I hate it because of the social problems. I had been with friends a lot but my best friends moved and after the cool ones moved it basically went down hill from there. There was the worst kind of bully who moved in ,the ones who get you thinking you are hated and your friends are really just people who just feel bad for you. I remember what eh told me. People said "If you start fighting him you won't be hated or mistreated by them either." I remember him slapping me with his shirt and I grabbed it from him and ripped it he did NoT say or do anything after that. In other words it is a thing that people hate Aspies. I think many people NTs and Aspies alike are born programmed to hate other aspies. No matter how you see Aspergers. I know Some NTs won't. ,most of the time people will give the un desirable ones that they see lower then them a living hell for being different. I really think people are programmed to hate aspies for some reason.
A couple examples of "Aspie bashing": AT the race track my dad and another person were talking and his son had AS, he said his son can be so idiotic because he barely does anything right unless he is on the dirt bike and then he knows how to ride, My dad said "Yeah that's the last thing he needs to learn" They both laughed.
-After fainting in gym class being ashamed another kid said "At least you don't have something like Aspergers or something stupid like that" I went with it
-Over hearing a converasation about it someone was talking about an autistic student with it and said "He should just go die he talks about it so much"
-A speaker who had the exact opposite views as me about AS when everyone was asked what they thought my mom said "We hated it". One of the times I agreed



realityIs
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26 Oct 2013, 4:58 pm

Quinntilda wrote:
I hate it because of the social problems. I had been with friends a lot but my best friends moved and after the cool ones moved it basically went down hill from there. There was the worst kind of bully who moved in ,the ones who get you thinking you are hated and your friends are really just people who just feel bad for you. I remember what eh told me. People said "If you start fighting him you won't be hated or mistreated by them either." I remember him slapping me with his shirt and I grabbed it from him and ripped it he did NoT say or do anything after that. In other words it is a thing that people hate Aspies. I think many people NTs and Aspies alike are born programmed to hate other aspies. No matter how you see Aspergers. I know Some NTs won't. ,most of the time people will give the un desirable ones that they see lower then them a living hell for being different. I really think people are programmed to hate aspies for some reason
.

Ok but put it in perspective. It's not just aspies. Some people hate different religions or races or sexual orientation.

Personally, I think everyone sometimes has difficulty when things are different than they are used to and they don't know exactly what to do. Some people have a stupid idea that they can force things to be a way that makes them come out better.



Last edited by realityIs on 26 Oct 2013, 6:15 pm, edited 1 time in total.

methamphetamine
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26 Oct 2013, 6:00 pm

It think that the reason that people say that aspergers "makes me who i am" are referring to how social they think that they are. Because when I was a kid, I was an extreme extrovert and social rules didn't apply to me, which made me normal as if I were drunk. So yes, aspergers made me who I was.



pensieve
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27 Oct 2013, 4:36 am

Joe: at least you have a job. I'm unsure if I'll ever get a basic 9-5 job or even part time. I may have been able to handle a job before I developed bipolar but I was never given the chance by job interviewers. I always came so close to getting a job but it always fell away from me. And a fool like me can't help but think it happened for a reason.

Currently, the only problem I'm having with my autism is that I can never seem to talk to the people I want to. I have a very narrow focus view when it comes to feeling socially awkward. The many years I spent on Ritalin and the brief manic days make me more able to communicate with people.

I suppose my fear of change and rigid routines still hold me back from doing a lot of things. I have severe sensory issues too but they were also a medication side effect. Since I went off meds I'm not nearly as sensitive.

These days my autism isn't much of a problem, though it is. I'm unfit for work and I've been feeling so lonely about the idea I will never get into another relationship. I only like one person and of course they have to be a popular musician that is way out of my league. I'm hardly bothered by my autism though compared to my ADHD my mental health issues.

I like to have a balance between negative symptoms and good traits autism/ADHD/bipolar gives me. Autism only makes me who I am because it's the way in which my brain grew and every experience was influenced by it. All my interests and decisions made were made because of it, and that's the same with my other conditions. I take advantage of the good it gives me like an attention to detail which makes my band photography stand out from the rest and my intense focus on other art projects. Or the way I can quickly memorize facts despite having barely a short term memory at all. I ignore pop culture, peer pressure and the mass media. I can spend a lot of time alone and I'm probably better off than when I'm surrounded by people. I'm pretty good at planning and problem solving too. I really hate gossip too. My extended family have a lot of problems getting along and as for me, I hang out with my young nephews. We talk Skylanders and about other video games. And then I have to hear people b**** about not only the other adults but the children in the car ride home. It seems some people just always have to be complaining about other people. It shows how self-centered they are. I'm just talking about the three people I usually share a car with and nobody else at the moment. I was actually surprised they could be that 'catty.'

So, there are some good parts and bad parts about having to live with autism. I do self-advocacy too so I have a chance to get people to understand autism, and one such project involves not only being artistic but having to build on my artistic skills. And I love a good challenge.

By the way, I'm really obsessing about that one person I love and I have a lot of anxiety and depression over it and many other things going on in my life, so it's not like things are going any easier for me.


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27 Oct 2013, 7:08 am

Joe90 wrote:
OP, I know how you feel. I absolutely hate having it as well. Not just sometimes, but all the time.
I was diagnosed with it when I was only 8, and I hated it then. I was always like, ''why me? Why me?'' I used to hit my mum when I had to be took to all these therapist places (I didn't hit her violently, and it didn't hurt her, it was just gentle punches). This was because I didn't want to be pulled out of school to have meetings about my insanity. I wanted to be a normal kid.

I've always hated myself because of stupid weird things I have done in the past, and the not-so-long-ago past as well. I know people say I have to let the past go, but I can't help it coming back to haunt me every so often. I know everybody says and does stupid things when they were young, but a few things what I did were because of Asperger's. Like at school when I was 14 I followed this crowd of girls around because I so desperately wanted friends, and I creeped them out then they told on me. After that it made me feel that I'm some sort of freak, and even now I won't get a job anywhere if I know one of those girls work there, because I still feel so embarrassed. Yes I know they might have forgotten about it, but what if they haven't? They might have forgotten about it for now, but if they ever saw me again, it might remind them of how weird I am. If I didn't have Asperger's, I wouldn't have done that. I would have already had friends to hang out with.

I can't understand how some people with ASDs can say ''Asperger's makes me who I am''. That has been said so many times on this forum that it has lost it's meaning. It totally scares me to think I have something wrong with me, that I can't be socially accepted as much as I should, and I will always struggle socially. I suppose I've said ''I hate Asperger's'' so much on it's forum that it's lost it's meaning, but I can't think of another way of saying it without cussing hysterically.

Another thing, I hate hearing the word ''Asperger's'' said out loud to me too. I just feel like hiding under the table when someone says it to me. I don't know why people don't just say AS or ASD. I don't know why I even have to have anything at all, then people won't have to even say it to me.


Joe90, your post made me cry. I really get what you mean. I've had the same struggle to try to remain positive about the future when I consider that I will always walk in the shoes of AS. I also understand what you mean about not wanting to hear the word 'Asperger's'. It's such a burden when you think about it. But I think that's only because of the illusion that we have the choice to act NT or act like ourselves. We don't really have that choice, because if we try to act like them, we'll only make a mess of it. Think of it this way: When a person has a missing limb, they are seen as missing a limb by everyone; they have no choice who sees their disability. So they just have to deal with it. But when people look at someone with AS, they can't see the social disability. To let them know is to give yourself a label but also give others the chance to go easier on you. To hide it is to mislead people and usually ultimately disappoint them due to those inevitable social misunderstandings.

I think you should rock your AS. :D I totally believe things will not be anywhere near as bleak in the future as you expect. People are becoming more and more aware of AS every day. Who knows what the situation will be in even 5 years for people like us? Just internet advances alone are turning the world into one that is inherently more AS-friendly. We could be ruling the planet in a few years!

Meanwhile, it will be tough sometimes, but just remember, you're not alone. You're part of the AS family, that's growing bigger every year, and its members are some of the most fantastic human beings on earth. I know I'm sounding corny but! You have a perfect purpose in this life and you can't fulfil it as someone else. Always believe in yourself. :wink:


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Daydreamer86
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27 Oct 2013, 9:59 am

Sometimes I hate Aspergers. I really hated it the day that I went for my dream job of being an autism trainer at work and failed the group interview because of my autistic traits. The people on the panel thought I was too socially awkward to be able to deliver training to people. I really, really hated my AS that night. Most of the time, though, I live with it as best as I can. I am aware that I don't experience quite as much isolation as some other people with it though as I am quite a sociable person with people I know so a lot of people just see my eccentricities as "random" and say that they enjoy being around me for this reason.


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27 Oct 2013, 3:54 pm

Joe90 wrote:
No, there is nothing good about Asperger's. I just want out of this f***ing pathetic life. I hate my job, I hate my life, and I hate who I am. Of all the things in the world I have to have f***ing Asperger's. It's the most cruelest non-life-threatening thing ever. The isolation caused by such vivid shyness is dreadful. The double standards I see every day of my life are frustrating. The unfriendly stares I get from people in the street, all because I look a teeny bit nervous, otherwise nothing else but normal. What the f**k is wrong with people?

And my lacking social skills. It is really starting to f***ing cause problems in every area of my life. It's even interfering with my job. But I am not ''disabled'' enough to not work, yet work is so daunting for me. It's not fair being caught in this trap. It's not Asperger's itself what is the issue, it's the way Asperger's affects me, and it affects me in the most awkwardest ways. I think the more social skills an Aspie has, the more the Aspie is going to struggle, because it makes the Aspie self-aware and have a strong desire for friendships and get more depressed the more they feel isolated, and it all just affects them more. I think an Aspie is better off when they aren't so self-aware, not hypersensitive to what other people think of them, is comfortable and happy with having no friends, and can just focus on a special interest for hours alone, and can receive disability benefits so that they can only work, like, a few hours a week or do volunteering or just help out somewhere remote and solitary like a farm, with somebody who knows them well, like an understanding relative. I can't do that. I've got to do everything the NT society way, which to me is the ''hard way''.

Then I become self-loathing because I worry that it's not anxiety what is holding me back from working, but is laziness instead. But then, when I do work, I'm very self-sufficient and willing to get the tasks done thoroughly, and I am very reliable too. So that proves to myself that it probably is not laziness, but just lack of motivation to go into work, especially when the job involves some stressful tasks. It's tasks what involve being loud and assertive to people what stresses me out, but I don't want special consideration from the managers either. I just want to be safe in a job what doesn't involve being in awkward contact with customers or any other client type where assertiveness is essential. I just want a non-stressful job. But is there such a thing?

I f***ing HATE Asperger's. :cry:


sounds like you are having a hard time accepting that you are slightly outside the norm. and i said 'slightly', meaning not 'completely'.
just think of the traits you DON'T have.

i see autism in a different light, probably because ive always been very content in being in my own company. i suppose autism and this aspergers affects people more if they dislike feeling isolated or different. i would love to tell you why some people on the spectrum instinctly want friends but cant get what they want because of their autism. nature has made a cruel mistake with mild/high-functioning conditions there. :(

you also sound like your angry at yourself, and you would rather step aside a let other people through than to think of yourself first. thats ok in small doses, but it does start to make you feel unhappy about yourself and it gets you feeling just like you are today; angry and resentful with not other people, but at yourself.
i am the opposite; im angry at other people but not at myself. i think im a great person and i always have been. a lot of people hate my guts, and i just hate them back. but my motto is 'i dont care'. i really could not give a f**k of what those people think of me. they are nasty bullies, and i just focus on the people who do like me. well, sometimes i cant even be bothered with them either. i dont want friends. i am very content with just having my husband who has got adhd and some intellectal learning difficulties, and nobody else really. i think people cause me stress anyways.

but everyone is different, unfortunately. i suppose when i was your age though, i did have bouts of depression because of lonliness and also my lack of inteligence. but depression is beneath me now. all i get is stressful and sometimes anxious, and easily wound up. i can say depression is by far the worst feeling i have ever experienced. im so glad i dont feel like that any more. who knows, you might change as you get older.

and you are not lazy. i do full time work, but thats only because im in the job that i love. if i were in any other job, i would demand to do part time. but i am a bus driver and i love being a bus driver, so i love going into work. and yes i do get stressed in my job but that doesnt stop me how i feel about my job. i dont know if its an autism thing or not but if i love doing something, the stresses attached to it doesnt stop me from doing it. stress attached to anything else is a different story.... :)



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27 Oct 2013, 10:58 pm

I think co-morbid disorders like anxiety and depression really play a part in how much people hate their Asperger's. I also think people need to learn to detach from their obsessional hatred of certain conditions. I was the same way when I came off ADHD meds after 3 years. I was suddenly faced with a lot of symptoms I didn't have to deal with because the medication made them easier to manage. And the meds made me motivated and capable of absorbing so much information and learn pretty much anything. People thought I was capable of anything, but it was just the meds. Without them I can barely focus and when I can I get bored or exhausted easily. I'm really struggling with motivation too.

I've dealt with mood disorder related depression for years and I've tried to kill myself over it, because of my AS symptoms. But now my depressive episodes are less about AS or ADHD and more about my relationships with other people. But even my own depression, criplling as it is can be overcome for a time until the next bout begins.

I know people don't want to hear this. It's difficult to find your own ways of coping with your issues, especially if you hate something that's going to be a part of you forever.

My mixed episodes can switch so rapidly that I don't want bipolar anymore. It all seems like a bit much, so I guess I can understand, but I try to look at my strengths and take advantage of the symptoms.

I'm a practical person and some worries just seem counter-productive. I can be disabled by panic attacks and whatever else so I understand that sometimes you can't just ignore a problem and it goes away, but personally I'd rather focus on things that make me content.
My social skills are a little bit better but I still say things that would say otherwise and there's still a lot of awkwardness and cluelessness. I suppose all I really care about is just to talk to and get to know one person and I hardly care about anything else.

When I'm depressed, I mean like severe so f***ing suicidal and angry at every person for being whatever way they are, I just leave them and go do the things I enjoy: watching TV, reading comic books, playing video games or doing something creative. It cheers me up enough to completely change my mood.

I mean right now I'm unsure of what to do with this time and energy I have but I'm trying not to get frustrated or depressed over it. I suppose you have to understand what can happen when I'm in this situation.


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thelongroad
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28 Oct 2013, 1:18 am

I don't know if this has been say or not. I mean there is about four pages here of responses and I am not going to read all them. So forgive me if I only repeating something already said.
I just want to tell you as was where you r at about six months and some change ago. I spent years hating the fact of this thing called aspergers and wish some day I would snap out of it or figured out a way to act normal enough so I could fit in. I was so tired of people leaving my life over and over again that if I ever wrote a book about my life it would be called 5 minutes because that seemed about how long my friendships lasted. I was postive this was because of the aspies but it wasn't it was because I was filled with so much self hate that I was pushing people away because I had become so gaurded and proteccted that I did not want anyone close to me. I was so gaurded that if people no longer wanted to stay it would be a tounge lashing and a good bye but no tears or sorrow at the loss. I was so convienced I was unable to feel anything deep about other people. I was afraid concepts like love and hurt at a goodbye where lost on me. I had convinced myself it was all because of this label. I was wrong and thank God I was. I finally about six months ago and some change ago felt true loss for maybe the first time as my first love said goodbye and the break up was becuase of something I did. So here I was with a broken heart and the guilt of knowing I hurt the only person I ever trully cared about. I thought my life was over and because of my limitations I would never have this again. I was more than suicidal at the time and the fact I made it threw with no help is merical. Yet sometimes the greatest blessings come at the darkest moments. See I had been given the gift of honesty and for the first time look at myself with more honesty than I ever had before. I did what I had learned in my days of 12 step meetings and I put pen to paper and became fearless in analizing my life because I did not want to be the person that could cause someone I loved that kind of pain. I was desperate for change and change came. As I wrote and looked at my life changed. The parts that changed where my views on life as a whole and slowy all the self hatred and anger died. I got to see beyond my aspergers and come face to face with my humanity. The label no longer mattered and I got to step from the world of different that I lived in my entire life and join the human race. I saw what they called aspergers as just my shortcommings but my trouble with people no longer made me different it made me human because all of us have our strengths and weakness that life. So from their I got to loose my label and become dave. I also realize that I had without realizing it been so focused on the problems and hoping that if some day I could afford the right specilist I might get better and then I would be ok. Yet I am ok and I always have been and I almost allowed this label to rob me of that and my humanity. I not on the wrong planet any longer. I am on the right planet for people who are just like me perfectly flawed. Today I look at my shortcommings as my gift because this is where I can grow,learn and accept and in time pass the knowledge on to a person who is like me and might be where I was and share with them my change and help them show them their change. I also learn this is my life and my fault. What that means is I no longer blame my bad behavior or lack of social contacts on aspies because there is no aspies there is only me and the rest is so what. As longer as you focus on problems your bliinded to solutions. No solution is found in the problem. I hope you can find your peace and move from a life where there is problems to a life where you realize that your life is as limitless as your willing to let it be.



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28 Oct 2013, 3:27 am

OP and Joe90, I agree completely. Having AS is like being cursed! There is absolutely nothing good about it whatsoever. Everything that gives me joy are things I only like because my brain is faulty in the first place.
There was a time I didn’t want a cure because I feared it’d change my personality, since it would have to mean changing my neurons. Now I don’t care, if it changes my personality who cares? I just want a cure!

The only thing I can do is kill my traits as best I can. One by one. Working on them and unlearn them depending on the trait. I’m not sure if all are possible to unlearn but I am sure working on stopping those I can and easing those I can’t. I’ve never stimmed in public for instance, but in private I would at times (although never a lot). Now I am fighting it in private, so it’s less part of me. Since I never done it all that much it doesn’t cost me much at all, it’s only a matter of remembering not to. I’ve been making good process with eye contact, which was a big issue for me. I try hard to be more aware around people as opposed to in a way being ‘turned off’ as I often am.
I wanna de-aspie myself every way I can.


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28 Oct 2013, 4:50 am

I think it's also confusion what upsets me too. I am very confused. I don't know what I really want out of life. Everything seems so stressful, things like work. I want to work, I don't want to be one of these scroungers, and I have to work because I am too high-functioning not to work. But when I'm at work, I find lots of little things stress me out. I feel claustrophobic at the thought of having to be somewhere and having to follow these certain rules and there is no escape unless you become ill or laid up or something. People just say to me, ''everyone feels like that, we can't all have what we want, you've just got to get your arse into gear''. Yes I know if most people got the opportunity to not have to work, they wouldn't, and I know nobody really likes having to be somewhere every day, being told what to do. But I feel it affects me more than the average person. It seems most NTs (if they don't suffer with stress, anxiety or depression) can just get on with it and manage to cope. Besides, work is much more fun when you've got better social skills anyway.

I work at a care home as a cleaner (answer to a question I saw earlier in the thread) and although it may sound simple, there are still stresses attached to it. It's a big, huge building with about 80 rooms, and although I don't have to clean all those rooms in one day, it's still stressful, because they can't seem to get the staff, people keep on leaving, and they're making us do more work for less money. Also they have made the cleaners do things like feed the residents at lunchtime, all because they haven't got enough care staff, and I did not sign up to do anything like that. Also I haven't been trained for that sort of thing either, and they won't give us the training. And it's more little things what are starting to stress me out there, and I've had enough talks with the manager. I just want to leave and do something what doesn't involve much awkward contact with people like customers, clients or patients. Just general interaction with other co-workers I can manage. I have been in this job for a year now and I have found it isn't something I want to do. I don't think there's anything wrong with wanting to change what job I want to do, as I've been told that's what life is all about; realising your strengths and weaknesses and following your goals. But it feel like I am being fussy. But why not? I'm unhappy with who I am and where my life is going at the moment, I just want to be happy in my job at least, and I'm not going to stop trying until I get there. Yeah, people are right, I AM going to get my arse into gear. :D


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Joe90
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30 Oct 2013, 11:34 am

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i dont know if its an thing or not but if i love doing something, the stresses attached to it doesnt stop me from doing it. stress attached to anything else is a different story....



I can relate to that! This is another reason why I hate having Autism, though. Some of it is so unexplainable, and people end up asking you all these questions going, ''but if you can do X, why can't you do Y?'' And then people just think there ain't no pleasing you or you're impossible. This is probably one of the main reasons why I dislike the condition.


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