Why early detection is so critical
starkid wrote:
Sweetleaf wrote:
linatet wrote:
I don't think he needs a diagnosis, in his case it could even be counterproductive. He is healthy and happy, so why bother him with a label?
Everyone has at least one label, most people have multiple labels.....people act as though a 'label' is some kind of sentence being handed down by a judge. When in fact labels actually just help explain things, if someone has autism the label of autism helps explain some of their oddness compared to neurotypicals. Unfortunately society might add stigma to labels and such, but then its not the label that is the problem but rather how someone with the label is treated.
I agree so much! I have noticed a lot of people with this "f*ck labels!" attitude lately and it makes no sense to me. If people are treating you poorly because of a label, the problem is people, not the label! And it's usually pick and choose which labels to complain about; they don't get very far before they are labeling themselves with something...if a person is even just calling herself a human being, that too is a label. I'm thinking, be consistent! If you don't like labels, don't use any.
Autism isn't a label, it's a diagnosis. Huge difference. Could you imagine if someone told you they had cancer and you replied with "why do you need to label yourself?". It wouldn't happen and it shouldn't happen because it's a diagnosis, not a label.
Soccer22 wrote:
Autism isn't a label, it's a diagnosis. Huge difference. Could you imagine if someone told you they had cancer and you replied with "why do you need to label yourself?". It wouldn't happen and it shouldn't happen because it's a diagnosis, not a label.
I feel uneasy with this because to me, yes, autism is a diagnosis. Yet when I told someone above me at work because he kept pointing out how I was so literal, and noticing me flap my arms when I get upset, and not figure out how to have a group conversation, and other kinds of things and knows about ASDs, so I finally said I have this diagnosis, because hearing continual references to it as if it was some kind of thing I put on was so frustrating and confusing.
Since that time, I feel like I've become different, he can no longer relate to me or is not willing to, I am now an object, a label
I understand this was my choice to say out loud, and that this is a person not the word. But given that people seem to see autism and Aspergers as both diagnoses and labels, at least in the grown up world, I guess I feel that trying to exist, survive if I can, depends on understanding and acknowledging as much of what really happens that will need to be considered in the future as possible.
Maybe it's just the person, though. But of the two people above, I think both know, though I'm not sure. One is nicer than he used to be, the other seems not to like me or want to talk to me if possible since then.
So to me, autism and Aspergers are more then diagnoses. That's not how I wish things were, it's just a description of things that have happened and hurt me because I worry for people and it really isn't easy being labeled by not only ones speech and behavior but also separately by having a diagnosis, too.
Waterfalls wrote:
Soccer22 wrote:
Autism isn't a label, it's a diagnosis. Huge difference. Could you imagine if someone told you they had cancer and you replied with "why do you need to label yourself?". It wouldn't happen and it shouldn't happen because it's a diagnosis, not a label.
I feel uneasy with this because to me, yes, autism is a diagnosis. Yet when I told someone above me at work because he kept pointing out how I was so literal, and noticing me flap my arms when I get upset, and not figure out how to have a group conversation, and other kinds of things and knows about ASDs, so I finally said I have this diagnosis, because hearing continual references to it as if it was some kind of thing I put on was so frustrating and confusing.
Since that time, I feel like I've become different, he can no longer relate to me or is not willing to, I am now an object, a label
I understand this was my choice to say out loud, and that this is a person not the word. But given that people seem to see autism and Aspergers as both diagnoses and labels, at least in the grown up world, I guess I feel that trying to exist, survive if I can, depends on understanding and acknowledging as much of what really happens that will need to be considered in the future as possible.
Maybe it's just the person, though. But of the two people above, I think both know, though I'm not sure. One is nicer than he used to be, the other seems not to like me or want to talk to me if possible since then.
So to me, autism and Aspergers are more then diagnoses. That's not how I wish things were, it's just a description of things that have happened and hurt me because I worry for people and it really isn't easy being labeled by not only ones speech and behavior but also separately by having a diagnosis, too.
You got a weird reaction because no one understands what autism is. It's really sad and I'm sorry to hear that you're getting a bad reaction from people at work. I hope one day people will react better to those with autism because they're educated on it.
Soccer22 wrote:
starkid wrote:
I agree so much! I have noticed a lot of people with this "f*ck labels!" attitude lately and it makes no sense to me. If people are treating you poorly because of a label, the problem is people, not the label! And it's usually pick and choose which labels to complain about; they don't get very far before they are labeling themselves with something...if a person is even just calling herself a human being, that too is a label. I'm thinking, be consistent! If you don't like labels, don't use any.
Autism isn't a label, it's a diagnosis. Huge difference. Could you imagine if someone told you they had cancer and you replied with "why do you need to label yourself?". It wouldn't happen and it shouldn't happen because it's a diagnosis, not a label.
I have no idea why you are quoting me. Your comment has nothing to do with mine. I've never actually said that autism is a label.
Soccer22 wrote:
You got a weird reaction because no one understands what autism is. It's really sad and I'm sorry to hear that you're getting a bad reaction from people at work. I hope one day people will react better to those with autism because they're educated on it.
I hope someday things are better, too, thank you for saying that. The whole situation makes me very afraid and ashamed though I'm not sure of what because I feel I have been able to do a lot of things. Just not able to escape being labeled. So I really appreciate that you think the reaction is weird.
starkid wrote:
Soccer22 wrote:
starkid wrote:
I agree so much! I have noticed a lot of people with this "f*ck labels!" attitude lately and it makes no sense to me. If people are treating you poorly because of a label, the problem is people, not the label! And it's usually pick and choose which labels to complain about; they don't get very far before they are labeling themselves with something...if a person is even just calling herself a human being, that too is a label. I'm thinking, be consistent! If you don't like labels, don't use any.
Autism isn't a label, it's a diagnosis. Huge difference. Could you imagine if someone told you they had cancer and you replied with "why do you need to label yourself?". It wouldn't happen and it shouldn't happen because it's a diagnosis, not a label.
I have no idea why you are quoting me. Your comment has nothing to do with mine. I've never actually said that autism is a label.
You were discussing labels and I wanted to throw in my opinion about labels and how autism (since we are on an autism forum) relates to the label issue. I wasn't attacking or responding to you, I was just adding to the topic you were discussing. Also, I quoted you and 2 others at the same time, not JUST you.
That´s right. No one knows much about it.
My psychiatrist wrote "Aspergers personality disorder"! !! He didn´t assess me, but accepted it as an explanation to my "failing contact and communicative weakness". Well, he´s a kind man anyhow.
A doctor wrote in my papers: "Wants to talk to a psychologist because of "fear of the asperger lunacy". (:lol: ) when she referred me to the psychologist. She was very ok.
_________________
Femaline
Special Interest: Beethoven
Soccer22 wrote:
starkid wrote:
Autism isn't a label, it's a diagnosis. Huge difference. Could you imagine if someone told you they had cancer and you replied with "why do you need to label yourself?". It wouldn't happen and it shouldn't happen because it's a diagnosis, not a label.
It's a label if you say "autistic person".
It's a diagnosis if you say "person with autism".
babybird wrote:
I'm way behind where a lot of other women in their 40's are too. I reckon I'm at the stage of someone in their late teens or early 20's.
Sometimes I do get a bit down about it but I'm proud of myself though.
Sometimes I do get a bit down about it but I'm proud of myself though.
Hi babybird,
I am also proud of myself. Like yourself I am way behind where the majority of people my own age are.
I have done VERY WELL considering that 7 years ago a psychiatrist said that I had the mind of a 12 year old in some aspects & of a much younger child in others. But then I was put on ADHD meds & I was then able to develop.
I'd now say that most of me is at the same stage of most 19 or 20 year olds.
_________________
We, the people on the Autistic Spectrum have a choice.
We can either try to "fit in" with the rest of society, or we can be so egocentric that we can't be bothered.
I choose the actor. I observe NT's. I listen to their socializing. I practice it, so in social situations I can just emulate/mimic what is expected.
It isn't natural for me, but it enables me to "fit in".
It is VERY tiring and draining, but at least we can appear like them even though it is an act. Like being on the stage.
They can't see it is emulation, and so we are accepted.
rdos wrote:
The main reason why early detection and diagnosis is not a good idea is because there are no treatments that are appropriate. Early intervention relies on trying to make the child neurotypical (which is NOT what the child needs), and later diagnosis is used in order to excuse the problems and can easily lead to the individual stop trying to fit in and instead use their labels as an excuse. Proper treatment would be to help acquire NT-type interpersonal skills WITHOUT an aim to make the "client" neurotypical. These things are most appropriate for teens, and not for small children.
Yes!
_________________
Everything is falling.
rdos wrote:
I think I disagree on this. Getting early diagnosis will too often lead to getting straight into a non-productive life. Really early diagnosis will lead to forced ABA programs which could destroy the child for life. The ultimate solution to this is not diagnosis, but acceptance.
I'm very fortunate to have been able to go through the ordinary school system almost totally mute and getting a career instead of social welfare.
I'm very fortunate to have been able to go through the ordinary school system almost totally mute and getting a career instead of social welfare.
Agreed. I'd say I'm in the road to a successful and profitable life... Only time will tell. If I had suspected and gotten dx'd early I might have a pathetic attitude toward my future. (I'm NOT pointing fingers to ANYONE this is solely what I expect of myself)
It's like helping a bird out of its egg. What doesn't kill you makes you stronger.
_________________
Do I have HFA? Nope, I've never seen a psychiatrist in my life. I'm just here to talk to you crazies. ; - )
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