My Kafkaesque/Orwellian diagnosis nightmare

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Adamantium
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19 Dec 2014, 12:18 pm

androbot01 wrote:
Adamantium wrote:
androbot01 wrote:
I take 75mg of Seroquel a day specifically for symptoms of autism. It helps me think more clearly.

Does it make you drowsy?


It did at first, but not anymore.


My psychiatrist suggested it as potentially helpful with Exec Function issues. She did not want to give me any of the things she normally uses with ADHD people because of my Panic Disorder and suggested Seroquel as a useful alternative specifically for EF issues in autism. I have been afraid to take it because I need to be mentally sharp for my job, so it's very interesting to read your account.



androbot01
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19 Dec 2014, 12:26 pm

Adamantium wrote:
androbot01 wrote:
Adamantium wrote:
androbot01 wrote:
I take 75mg of Seroquel a day specifically for symptoms of autism. It helps me think more clearly.

Does it make you drowsy?


It did at first, but not anymore.


My psychiatrist suggested it as potentially helpful with Exec Function issues. She did not want to give me any of the things she normally uses with ADHD people because of my Panic Disorder and suggested Seroquel as a useful alternative specifically for EF issues in autism. I have been afraid to take it because I need to be mentally sharp for my job, so it's very interesting to read your account.


It absolutely helps me with executive function. And it helps with black and white thinking. It's like all the details and nuance of things become mentally visible.
If you do decide to try it, start taking it when you've got a few days off, because you will feel very tired for about a week.



Felinelover
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19 Dec 2014, 12:45 pm

I appreciate seroquel may help some people.

However, I am not bipolar. Wearing bright clothes does not a bipolar make. Aspie women are also notorious for lack of grooming. Therefore, do I want 300 mg of seroquel? Wouldn't I be insane if I did?

Whatever happened to self-management? Been managing myself for 30 years and the past 5something yrs with SSRIs, something that I couldn't have done if I actually was bipolar, as they push bipolars to mania.

The shrinks did not even write in their reports that I had started an exercise regime, meditation and re-engaged in my special interests (that I tried to fight due to lack of time, prioritizing work commitments) and this has all boosted my mood over the past 6 months so much so I have reduced citalopram from 40 to 30 mg with the supervision of my GP. One would assume I would eventually be able to recover from my depression, but no, it is twisted into 'a manic episode'. Innocently going in for aspie diagnosis, all hell breaks loose.

I am a sometime journalist and am contemplating writing about this to a national newspaper. Thoughts? Also, husband is keen to take legal action.

Sorry to waffle on about myself. I feel bad I haven't commented much on others' experiences. I love reading them and sympathise greatly.



Adamantium
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19 Dec 2014, 12:50 pm

Sorry, did not mean to hijack thread about your urgent situation.

androbot01 wrote:
It absolutely helps me with executive function. And it helps with black and white thinking. It's like all the details and nuance of things become mentally visible.
If you do decide to try it, start taking it when you've got a few days off, because you will feel very tired for about a week.


Thanks for the information, it's very helpful.

When she first suggested it, she didn't really give me much info about it except to say that it might help, so I was disturbed when I read that it was an antipsychotic. The thought went through my mind, "does my doc think I am psychotic!! !???" She laughed when I expressed this concern and explained the off-label use for EF issues in autism and said it would help with any anxiety related insomnia.



androbot01
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19 Dec 2014, 12:53 pm

Felinelover wrote:
Therefore, do I want 300 mg of seroquel?

That is a huge dose. You wouldn't be feeling much of anything after taking that much.

Adamantium wrote:
When she first suggested it, she didn't really give me much info about it except to say that it might help, so I was disturbed when I read that it was an antipsychotic. The thought went through my mind, "does my doc think I am psychotic!! !???" She laughed when I expressed this concern and explained the off-label use for EF issues in autism and said it would help with any anxiety related insomnia.

Yeah, I thought the same thing, lol. But apparently it's used a lot for autistic people.



AardvarkGoodSwimmer
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19 Dec 2014, 2:08 pm

You're very welcome, Felinelover. I'm glad I was able to help if only a little. :D

I feel I have talents writing, including health topics these days. When I worked at a tax place, I was also good at direct dealing with clients. At the same time, I'm behind in my own taxes. Applying for new health insurance feels like a major mountain. So, I have patchy skills, probably like every human being on the face of the Earth, but for those of us on the Spectrum, more patchy than average. It's like I have an A game and a C game, and not too many skills of a low-energy, good enough B game.

And yes, by all means, her saying that you are an unfit parent is very serious.

Okay, with your clothes, I think it's okay to wear vintage clothes and at the same time okay to dress more formally. If you can wind to a place where either option feels like an okay option, that's a pretty good place to be. As long as you are relaxed and have good present energy. And for them to so focus on clothing kind of exposes them.

As far as political activism in general, I protested my country going to war in the first Persian Gulf war back in 1991 and have some other activism since, and the main coin of the realm seems to be slightly understating your case. Here we're among friends and can put it on the table plainly. And I'll say, this first shrink is either glaringly incompetent and/or mean-spirited in trying to crush you down to "prove" that she's right. But as far as any kind of formal written complaint, I'd really go the method of slight understating. For example, maybe write, a bus driver was rude to me and my husband wanted to report the driver, but I decided to let it go. And hopefully another halfway competent mental health professional can see that she is cooking the books so to speak. But I wouldn't use the phrase, cooking the books. And I wouldn't use the expression, big porky pie. I haven't heard that in the states, and I kind of like it!

Alright, here's the part where you really want a co-activist or co-advocate who maybe has at least a half dozen different cases of challenging a NHS report and/or reporting a bad practitioner. This can be someone from an advocacy group who might be excellent, or it can be a lawyer. In the best of all worlds, it might be both, but that may not be obtainable. If you can find a person who's gone the distance even three times, that might be helpful.



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19 Dec 2014, 2:31 pm

In response to the original post since I have not read the whole thread yet - Wow, this is terrible. I am sorry that you are going through this. I wish you could find someone else if you have not already.


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AardvarkGoodSwimmer
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19 Dec 2014, 2:58 pm

Felinelover wrote:
I saw another shrink early this week (as per the crisis team being on my case, spurred on by the woman shrink), this time with my husband, he seemed to write I do not have bipolar symptoms but yet he still diagnosed me as bipolar and wanted me off antidepressants and onto major antipsychotics/tranquilizers (Seroquel).
Besides recommending the wrong medicine, he may have been encouraging you to abruptly discontinue the antidepressant and that's a mistake, too.

I have read that if a person is going to discontinue an SSRI, it's generally better to phase it out. And of course if it's working, keep using it. And it seems to me this should be the general starting position for a good doctor.



B19
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19 Dec 2014, 4:29 pm

I have an ongoing private correspondence with a psychologist in the US who specializes in treating victims of (parents, partners) Narcissitic Personality Disorder (Cluster B).

She is constantly picking up the pieces after clients have previously and unknowingly gone for help and have been abused by NPD therapists. She says it is one of the main professions that NPDs are very attracted too, because they go for maximum power over people, and psychiatry particularly.



Data001
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19 Dec 2014, 5:00 pm

Hi Felinelover,

Sorry to hear about your issues with your diagnosis for ASD. What part of the UK do you live? Are you going private or via the NHS?

I live in Surrey, UK, and have got diagnosed in October. For me the process was see my GP who referred me to the OATS service that the Surrey NHS Trust has setup because of the Autism Act (2003). Once I got assesed and then a few motnhs later got my report throght. It was a very simple process but it a few months.

The one thing I'd look at is find out if you have a local branch of the NAS (National Autistic Society) as they'll have advice on how go about getting the diagnosis. You can even become a member for free without being medically diagnosed.

The Surrey Branch of the NAS have been very helpful in doing talks, holding and running various meeting and groups for teens, parents, boys, and girls. They also run a service called ASSIT where you get free one and one help with forms being filled out, help with other things.

If I can be of help or give you any advice then let me know. I can put you in touch with the person that did my assement as he has over 15 years working with people on the ASD spectrum.

Regards

Data001



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19 Dec 2014, 5:13 pm

Felinelover wrote:
Long story short, her view of me was that I was 'at moderate danger to others'

I would hope that it's impossible to force anybody into care or onto drugs without specifying plausibly just how that "moderate danger" might express itself.

Quote:
I am a sometime journalist and am contemplating writing about this to a national newspaper. Thoughts? Also, husband is keen to take legal action.

The Guardian might be worth asking, also Radio 4 like exposing rogue traders and probing corruption, up to a point.



Last edited by ToughDiamond on 19 Dec 2014, 5:30 pm, edited 1 time in total.

btbnnyr
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19 Dec 2014, 5:29 pm

I googled vintage clothing, but it didn't seem that weird to me, quite attractive ackshuly, better looking than conventional clothing.


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19 Dec 2014, 7:22 pm

B19 wrote:
I have an ongoing private correspondence with a psychologist in the US who specializes in treating victims of (parents, partners) Narcissitic Personality Disorder (Cluster B).

She is constantly picking up the pieces after clients have previously and unknowingly gone for help and have been abused by NPD therapists. She says it is one of the main professions that NPDs are very attracted too, because they go for maximum power over people, and psychiatry particularly.



That is very interesting as I had not thought of that.
Looking back I think I have had at least a couple of NPD docs.
One was especially so and made sure everyone knew he was a PHD by putting it on his license plate of his car.


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B19
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20 Dec 2014, 1:42 pm

What's your eye contact like? Some of them leap to the bizarre conclusion that lack of this equates to mental illness unfortunately, just on the strength of that people have been terribly misdiagnosed. In future take a support person with you who knows you and can advocate for you; it also acts as a monitor on their behaviour and they tend to act more appropriately with a witness present. If they won't see you without your nominated support person (that's your right), then that itself warns you that you are seeing someone who won't respect you, so give them a wide berth. The good ones will welcome the participation if it is beneficial for you.



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20 Dec 2014, 1:51 pm

B19 wrote:
What's your eye contact like? Some of them leap to the bizarre conclusion that lack of this equates to mental illness unfortunately, just on the strength of that people have been terribly misdiagnosed. In future take a support person with you who knows you and can advocate for you; it also acts as a monitor on their behaviour and they tend to act more appropriately with a witness present. If they won't see you without your nominated support person (that's your right), then that itself warns you that you are seeing someone who won't respect you, so give them a wide berth. The good ones will welcome the participation if it is beneficial for you.


I would've been sectioned years ago if there was a common assumption afoot that poor eye contact = bipolar disorder.



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20 Dec 2014, 1:53 pm

Some, not all, nor the majority I hope. I am glad that you weren't sectioned though! We have enough challenges without incompetents adding to them.