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Coda
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10 Jun 2015, 7:06 pm

B19 wrote:
What do you think in response to this, then, Coda:

You seem to apply your idea indiscriminately; your opening post indicates you think for example that much older members "should be diagnosed" along with everyone else regardless of personal circunstances or choices.

How is it that you know what is (or is not) good for older people? What part of your life experience suggests to you that you know what is best for older members here? Or even your peer group?


I am 18 and so I am an adult now. The services and help in which I receive is just as good as what I received as a child. If someone believes they have autism then they should get it diagnosed so as to get access to different services like the ones I mentioned in my original post. It could help them a whole lot. I wouldn't be able to function without these services. I know that if I was never diagnosed, I would probably be just as violent as I used to be, I wouldn't be in college... I wouldn't have even made it through high school. (I already got kicked out of high school before I was diagnosed and then kicked out another a year after I was diagnosed.) I would be stuck in some care home as my mum is quite ill and would never be able to cope with my old violent self and I would be very unhappy and would probably suffer with some sort of severe depression as I suffer from depression from time to time now and couldn't imagine what it would be like without help.

I don't know what is good for other people... I can't even make a decision on what breakfast I want in the morning, never mind making decisions for other people but, like I've said, I'm a very white and black thinker so I can't imagine someone saying they're autistic without an actual doctor diagnosing them as autistic. That's like me diagnosing myself with cancer without an official diagnosis except autism isn't like cancer because it doesn't kill you. It just feels right to get it checked by a qualified doctor. But like I've said, I know my opinion is wrong and not fair but I find it hard to change my view as my thought process is very rigid. Please don't see my opinion as hatred because I like this forum and don't want to be hated by people for understanding/processing things differently.

I don't know what else to say. I don't understand what you mean by personal circumstances or choices. I can't think 'in someone else's shoes' so I don't know what kind of personal circumstances a person could have. I guess not having enough money could be one but I've never dealt with having to pay actual money towards my health care because it's free. I've never dealt with not having enough money either because when I don't have enough money at the shops, my mum pays the extras that I don't have. It's hard to understand the scenario when I've never experienced it.


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Coda
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10 Jun 2015, 7:12 pm

Also, people are being very ambiguous lately not only in this topic but a lot of topics that I've visited. Using idioms and sayings... Are you sure you lot are even autistic (that was a joke) because I'm having a hard time following all of this. I'm going to have to go and hire an interpreter or something at this rate.


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androbot01
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10 Jun 2015, 7:16 pm

You seem to be aware that others' experience differs from yours. Remember that and always question your assumptions.



jimmyboy76453
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10 Jun 2015, 7:18 pm

Regarding psychologists needing a parent interview for adult diagnoses, I'm SO glad my psychologist didn't require this. Instead, she asked me some stuff about my childhood, and I'm guessing she could see it in me well enough that a parent interview really wasn't necessary.
My parents would have been a huge problem. I would never have gotten my dad into the office; he's nearly impossible to pin down even for family events like birthdays, plus I would have had to talk to him, which I prefer not to do. And when I told my mom (who I think is also on the spectrum) about my diagnosis and some things I do that are indicative of ASD, she said she thought everyone did those things (everyone doesn't). For example, she thinks everyone hates parties and dreads needing to socialize.
Looking back, my ASD was really obvious, but it got missed between my mom's ASD (she saw my odd behavior as normal) and my dad's narcissism (he never paid anyone any attention but himself).


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ASPartOfMe
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10 Jun 2015, 7:36 pm

Coda wrote:
Also, people are being very ambiguous lately not only in this topic but a lot of topics that I've visited. Using idioms and sayings... Are you sure you lot are even autistic (that was a joke) because I'm having a hard time following all of this. I'm going to have to go and hire an interpreter or something at this rate.

:D


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10 Jun 2015, 7:49 pm

Ronald Regan (who became our president) got together with the other party with a mutually beneficial idea.
He would cut state/federal government services to the mentally ill who were incarcerated. The other party though it was a good idea to give them their release from involuntary incarceration--more personal liberty. Supposedly the smaller local governments would take care of these people, though the funding that these governments got from the state/federal government was also cut. A lot of mentally ill people got put on the street without services three decades ago in the USA. Even today, mental health support often disappears when folks turn 18. How do I know?--I recently asked a lady who is on mental health disability because she can't hold a job. I know an awful lot for an Aspie--my wife who recently passed away was a mental health advocate who ran support group meetings.

I think I removed all the idioms and sayings--you should be able to interpret this literally.



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10 Jun 2015, 7:52 pm

starkid wrote:

Lie by implying that lack of money or qualified doctors forced them to self-diagnose?




That's interesting. Are you saying that literally everyone who wants a diagnosis has the financial means to do so?


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ASPartOfMe
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10 Jun 2015, 8:06 pm

Coda wrote:
I am 18 and so I am an adult now. The services and help in which I receive is just as good as what I received as a child. If someone believes they have autism then they should get it diagnosed so as to get access to different services like the ones I mentioned in my original post. It could help them a whole lot. I wouldn't be able to function without these services.


Many have told you that unlike where you live in other countries it is very expensive to get an assessment and that services especially for older adults are minimal or non-existent. I understand very well it is hard to for you to read the mind of other people. So I will instead ask you to be you but in very different circumstances. So lets create a hypothetical situation. You woke up one day you are 45 years old in a rural part of America, you diagnosis is gone, you are unemployed, their no competent specialist within several hundred miles of where you live, an assessment costs $1,000-2,000 dollars, neither government nor insurance companies will pay for it but you suspect you are autistic. What would you do? Would you consider self diagnosis or wait until circumstances possibly improve then get a professionally diagnosis or some other option? I am going to change the hypothetical circumstances somewhat you have the money to pay for a diagnosis but there are minimal to no benefits available beyond validation and confirmation that you are autistic. What would you do?


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10 Jun 2015, 8:17 pm

starkid wrote:
Lie by implying that lack of money or qualified doctors forced them to self-diagnose?


There are lots of studies confirming very high un and underemployment amount autistic even higher rates then other people with disabilities. Are substantial percentage being studied and saying these things here at WP lying lazy bastard attention seekers? Since you believe only professional things can be valid please back up your accusations with peer reviewed studies or confirm that a large percentage of autism specialists agree with this.


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“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


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10 Jun 2015, 8:33 pm

For the cost of an autism diagnosis in Connecticut, I could buy fifty fresh lobster dinners at places with nice shoreline views.



B19
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10 Jun 2015, 8:53 pm

I have noticed that a lot of 'diagnosis only' members on WP, who say that only 'professionals' can made a valid diagnosis, self-diagnose themselves with anxiety, depression, adhd, OCD, personality disorders, all sorts of medical conditions both physical and psychological. How does that logic work, exactly?



artfulldodger
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10 Jun 2015, 9:30 pm

Lots of folks I know that are self diagnosed dont get the formal one as it really gains one nothing here in the USA. Unless your really bad off, there is little to no support for adults here in the states. Its very unfortunate and add to the fact that if you lack insurance, getting that formal diagnosis can be quite expensive. My therapist gave my my initial diagnosis and the state just ran me thru some tests for a formal diagnosis as I am filing for state healthcare and disablity. Dodger


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JenniferJones2015
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10 Jun 2015, 9:59 pm

Coda wrote:
Also, people are being very ambiguous lately not only in this topic but a lot of topics that I've visited. Using idioms and sayings... Are you sure you lot are even autistic (that was a joke) because I'm having a hard time following all of this. I'm going to have to go and hire an interpreter or something at this rate.


You very probably meant this literally, Coda, but this was quite humorous. LOL! Good job!



JenniferJones2015
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10 Jun 2015, 10:04 pm

jimmyboy76453 wrote:
. . . And when I told my mom (who I think is also on the spectrum) about my diagnosis and some things I do that are indicative of ASD, she said she thought everyone did those things (everyone doesn't). For example, she thinks everyone hates parties and dreads needing to socialize. Looking back, my ASD was really obvious, but it got missed between my mom's ASD (she saw my odd behavior as normal) and my dad's narcissism (he never paid anyone any attention but himself).


This resonated with me SO much! Thank you for putting is so well.



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10 Jun 2015, 10:30 pm

I always find these threads on “self-diagnosis” interesting. I wonder if certain people’s viewpoints are an example of black and white thinking.



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11 Jun 2015, 12:02 am

Not being able to get professional assessment doesn't mean that someone has to self-diagnose and say that they have autism without diagnosis.


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