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iliketrees
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19 Jun 2015, 12:16 pm

.... time to go wildly off topic again.

It was implied meaning. You were speaking to me and btnnyr. You didn't say it directly but it's clear who you were talking about.

Yes you did. Intentional or not you did.

Perhaps not but you don't need to swear to hurt someone.

No, you didn't. Point is what? It was a conditional thing. If you thought what I was trying to do was ill-intended.

No, but you intended to.

Yes, you did. Intentional or not.

And no, I did not see my behaviour. Actually the opposite which is what I was defending until you posted the second reply as you could see clear guilt. And damn right I felt guilt that my response was even read in that way. I was not trying to get rid of OP, I was just bringing up something I've heard.

And no, I do not want you to be nice to me. I actually don't want anything at all from you. I don't want another message. There is a reason I'm like this at the moment. A reason my emotions are so on edge. The same reason is effecting everyone in my family and we are all like this. I haven't ever mentioned it on WP nor intend to. Something you'd probably find amusing given your reaction to this.



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19 Jun 2015, 12:24 pm

iliketrees, I find that there is nothing I can do if someone does not take my posts in a straightforward way without assigning nasty motives to me (this happens to me often on wp, rarely in real life, perhaps it is due to my general communication style in posting, but I am not sure which details influence it the most), but one thing that helps is to continue making straightforward posts with information, suggestions, opinions.


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19 Jun 2015, 12:28 pm

BTDT wrote:
Consider this situation.

You are a newly minted clinician who has to deal with a huge increase in workload.
Suppose you have a patient that is clearly not on the autistic spectrum, but desperately needs the services given to those on the spectrum. You could give him the correct diagnosis, but that would lead to a counterproductive drug regimen. What do you do?



That would be messed up because I think help should be available to anyone who needs it, not for anyone who has a specific diagnoses. If a kid has to be falsely labeled with something they don't even have just to get services they need, do not tell them they are autistic or else it would be a lie. If you have to falsely diagnose someone with it just so they can get services they need, make it clear to them they do not have autism but you are just giving them the diagnoses so they can use it to get the help they need. I wouldn't go around telling people I have it if that happened to me and I am sure my mother wouldn't have told me I had it if that happened to me.


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19 Jun 2015, 12:30 pm

No matter how I word things and try and make sure it won't be interpreted in a different way, someone will still interpret it in another way and there is nothing I can do about it. I try and not take it personal and this happens to everyone.


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iliketrees
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19 Jun 2015, 12:32 pm

btbnnyr wrote:
iliketrees, I find that there is nothing I can do if someone does not take my posts in a straightforward way without assigning nasty motives to me (this happens to me often on wp, rarely in real life, perhaps it is due to my general communication style in posting, but I am not sure which details influence it the most), but one thing that helps is to continue making straightforward posts with information, suggestions, opinions.

I'll consider that, thank you. It's happened plenty of times before. Cryos gave me a whole list of what I was apparently doing before. :? It happens a lot on other sites. Recently it definitely has been happening here. I want more people to read my posts literally because that's the way I wrote them.



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19 Jun 2015, 12:35 pm

Judas wrote:
It seems a lot of people here and with aspergers in general have problems I simply find hard or nearly impossible to relate to. Such as social awkwardness, fearing change, needing to stick to routines, needing to do things in a certain way, irrational fears and beliefs about things, getting caught up and going on and in about narrow subjects and getting caught up in what I would consider trifles, which I had honestly I would not give two s**ts about.

I have no idea if your diagnosis is correct (or not). I do know that, after I was diagnosed, I had lingering doubts as well. Was the clinical psychologist qualified? Was the diagnosis process suitable? Were the correct tests administered? But, that’s just me. I am skeptical of just about everything.

Regarding the things that you find hard to relate to:
- I am not certain what being socially awkward “feels like”. While I am quite OK at interaction when exchanging information (such as, at work), I am not very good at ad hoc interaction. I remain unclear what social-emotional reciprocity actually means. How do I know when I see it (with others)? What does it feel like?
- I do not fear change, I dislike it. There is a huge difference.
- I don’t need to stick to routines. I like having routines. Again, there is a difference.
- I don’t need to do things in a certain way, I like to do things in a certain way, the most optimal way, of course.
- I certainly don’t have irrational fears and beliefs. All my thoughts are 100% rational (from my perspective, of course).

By the way, if you are really that curious, I would check the diagnosis criteria and see if you think it applies. If it doesn’t, maybe you were misdiagnosed.

Judas wrote:
Honestly, though I've been diagnozed with aspergers, it feels like I have an entirely different set of problems than everyone else who has the same diagnosis. I just don't get it. I'm starting to question if I even belong here, or in any one group for that matter. I feel like I'm caught between two groups.

With the exceptions of several topics, I have found WP to be quite inclusive. It’s sort of like the “Island of Misfits”. Anyone is welcome.

---

As a side note, what I find interesting about the responses to this thread is as follows:

- This thread is about questioning (or having doubts) about one’s diagnosis. From my perspective, it’s OK to doubt a diagnosis.
- Because the OP suggested that he/she was misdiagnoses (and provided accompanying reasons to support that belief), it’s quite ok for anyone to suggest that, perhaps, maybe, the OP was misdiagnosed. The purpose of this forum is to discuss autism issues. Since the OP asked, it’s fair game to reply accordingly. Obviously, the OP should be circumspect of any advice received in an anonymous online forum.
- At least one poster referred to a recent thread discussing the merits and validity of self-diagnosis. Some posters in those threads preferred self-diagnosis over professional diagnosis, referring to the fact that professionals can misdiagnose. So, now we have a person (the OP) who suggests that this (misdiagnosis) may have occurred. But, then people get upset, that members of the community agree that this may have occurred. As the title of the thread states, "I don’t get it".



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19 Jun 2015, 1:29 pm

http://www.helpforadd.com/educational-rights/
Prior to 1991, children with ADHD/ADD were not eligible to receive special educational services unless they were determined to have some other disability (e.g. a specific learning disability). Lobbying efforts to rectify this situation were successful, however, and children with ADHD/ADD who require special assistance must now receive access to special education and/or related services according to two federal laws.

Around here, services vary tremendously depending on where you live and what school you go to. There are some excellent private schools, some towns with great public schools, and some not so great cities that folks try their best to avoid but can't due to poverty.

And, just because a law has been passed doesn't automatically mean you will get those services. :roll:

There is also the concept of plausible deniability--you don't want to document anything that will get you fired. Helping kids as best you can is the ideal, but there is also the reality that you need to look out for yourself.

A newly minted clinician may not have the experience to teach the upset parent the finer points of what she is actually doing. This can be a very emotionally charged issue, and the parent may have similar learning issues as well. 8O

If you think about it, someone has to hire those new inexperienced people looking for their first real job.



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19 Jun 2015, 3:16 pm

I don't trust the Psychiatric-Industry for reasons that it's a CORPORATE Pseudo-Science, the way that it's practiced these days, and the DSM has more to do with collecting Insurance-Money than it does to do with anything genuinely scientific. READ THE FACTS FOR YOURSELF (hyper-linked here for your reference). The fact is that your typical general-public is all like... "I saw it on television so it MUST be TRUE" and that the "television SAID it was SCIENTIFIC" (even though the FACT of the matter is that they are NOT scientists... they are SALESMEN who DRESS-UP as people who LOOK like Doctors/Scientists).

Judas wrote:
Thank you so much for your insights, it's been an intetesting read. Again my sincerest apologies for my lack of understanding, but hey that's the whole point of this post.

As for the possibility of misdiagnosis I too feel unsure about it. I have been diagnosed with ADD and longterm depression. Prior to this I had a bipolar diagnosis wich was replaced by the Aspergers.

I don't see myself as autistic, although lacking certain emotions. Such as pride and a traditional sense of an ego are lacking.
The way I experience pain also differs from most neurotypicals. But I do have problems with executive functioning, concentration and organizing. I have no sense of linear time or can recall wich order events took place.

The advice you have given so far has helped a lot since I have my girlfriend over this week I've tried it out and our relationship is getting much better.

Please feel free to share more of your experiances however trifled they may seem to you, they may help give me a better insight. Again thank you for your time.

You can even hear it directly from one of those salesmen (former salesman) themselves here...

Make sure to also Read Her Book (including all of the Reviews to said Book as well as all of the comments made in response to each of the Reviews for yourself).


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19 Jun 2015, 3:50 pm

iliketrees wrote:
btbnnyr wrote:
iliketrees, I find that there is nothing I can do if someone does not take my posts in a straightforward way without assigning nasty motives to me (this happens to me often on wp, rarely in real life, perhaps it is due to my general communication style in posting, but I am not sure which details influence it the most), but one thing that helps is to continue making straightforward posts with information, suggestions, opinions.

I'll consider that, thank you. It's happened plenty of times before. Cryos gave me a whole list of what I was apparently doing before. :? It happens a lot on other sites. Recently it definitely has been happening here. I want more people to read my posts literally because that's the way I wrote them.



Isn't it ironic how we are supposed to be literal but not every aspie will be when they read our posts? That just shows how human they are too and how we are no different than NTs.


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19 Jun 2015, 5:04 pm

Judas wrote:
League_Girl wrote:
ProfessorJohn wrote:
ToughDiamond wrote:
Quote:
going on and on about narrow subjects

My own experience of this is that it's a powerful compulsion. At first I didn't even know how annoying it was to others, how much it was overloading them, how much I was putting people off me by doing it. When I started to realise that, I thought it would be a fairly simple matter to stop doing it. But to my horror I found I couldn't stop, even though I knew how important it was to normalise my conversational style. It's taken me years to learn how to regulate it, and even now I'm still prone to dropping back into my old ways. It's a brain wiring thing, not a matter of choice. If it were a matter of choice, I'd simply have chosen a normal conversational style for myself, and become socially successful, obviously.


Kind of like drinking for alcoholics. They know they should stop, they know that it is destroying their lives, but they keep doing it anyways.


Can you please elaborate?

Thank you iliketrees, for the links.

Except some of them do quit and never go back. They just can't have another sip. I guess the same with AS, some are able to stop and not do it anymore.

I think it's more complicated than that. To take this excellent "alcoholics" analogy further, an alcoholic typically has to completely stop drinking alcohol in order to control the habit - just one drink can break their resolve. Obviously it takes a lot of self-control to abstain forever, and there may be some pressure from society to drink, and refusing to drink may lead to some social rejection. And that's been much like my early experience with trying to control my "going on and on about narrow subjects," which for brevity I'll call "data-dumping" from now on. If I began to speak, I couldn't stop. So I remained silent, and experienced some social pressure to speak.

But the thing is, it was worse than being an alcoholic in a way: which takes a bigger hit on your social success, absolute teetotalism or absolute silence? Obviously, if you don't speak at all, your social life is dead. The teetotaller at least has a chance, (s)he can find people who don't worship alcohol. What was I to do, look for Cistercian monks? So I went back to speaking, and naturally I regressed into data-dumping time and time again. The fix, if it can be called a fix, was that I somehow learned to pick up on the body language and social cues I was getting from others. I noticed people starting to look bored, tired, or overwhelmed. They might turn their faces or their whole bodies slightly away from me. And the best of them, the ones I used to think were jerks for this, would interrupt me. I guess it's the equivalent of a responsible bartender saying "don't you think you've had enough?"

To this day I feel sorry for the people in my life who are so nice that they feel they have to keep pretending they're still interested in what I say even though I've been banging on for ages and they haven't had the chance to say anything. Because they don't help to shut me up, they're the ones who risk getting my data dumps. It's a work in progress.

Hope that's a good enough elaboration of how this data-dumping operates and what a struggle it can be to set it right.



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19 Jun 2015, 10:21 pm

ToughDiamond wrote:
Judas wrote:
League_Girl wrote:
ProfessorJohn wrote:
ToughDiamond wrote:
Quote:
going on and on about narrow subjects

My own experience of this is that it's a powerful compulsion. At first I didn't even know how annoying it was to others, how much it was overloading them, how much I was putting people off me by doing it. When I started to realise that, I thought it would be a fairly simple matter to stop doing it. But to my horror I found I couldn't stop, even though I knew how important it was to normalise my conversational style. It's taken me years to learn how to regulate it, and even now I'm still prone to dropping back into my old ways. It's a brain wiring thing, not a matter of choice. If it were a matter of choice, I'd simply have chosen a normal conversational style for myself, and become socially successful, obviously.


Kind of like drinking for alcoholics. They know they should stop, they know that it is destroying their lives, but they keep doing it anyways.


Can you please elaborate?

Thank you iliketrees, for the links.

Except some of them do quit and never go back. They just can't have another sip. I guess the same with AS, some are able to stop and not do it anymore.

I think it's more complicated than that. To take this excellent "alcoholics" analogy further, an alcoholic typically has to completely stop drinking alcohol in order to control the habit - just one drink can break their resolve. Obviously it takes a lot of self-control to abstain forever, and there may be some pressure from society to drink, and refusing to drink may lead to some social rejection. And that's been much like my early experience with trying to control my "going on and on about narrow subjects," which for brevity I'll call "data-dumping" from now on. If I began to speak, I couldn't stop. So I remained silent, and experienced some social pressure to speak.

But the thing is, it was worse than being an alcoholic in a way: which takes a bigger hit on your social success, absolute teetotalism or absolute silence? Obviously, if you don't speak at all, your social life is dead. The teetotaller at least has a chance, (s)he can find people who don't worship alcohol. What was I to do, look for Cistercian monks? So I went back to speaking, and naturally I regressed into data-dumping time and time again. The fix, if it can be called a fix, was that I somehow learned to pick up on the body language and social cues I was getting from others. I noticed people starting to look bored, tired, or overwhelmed. They might turn their faces or their whole bodies slightly away from me. And the best of them, the ones I used to think were jerks for this, would interrupt me. I guess it's the equivalent of a responsible bartender saying "don't you think you've had enough?"

To this day I feel sorry for the people in my life who are so nice that they feel they have to keep pretending they're still interested in what I say even though I've been banging on for ages and they haven't had the chance to say anything. Because they don't help to shut me up, they're the ones who risk getting my data dumps. It's a work in progress.

Hope that's a good enough elaboration of how this data-dumping operates and what a struggle it can be to set it right.




What if they were to tell you you had been going on and on about it or telling you to talk about something else? Would you then be able to stop.


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19 Jun 2015, 10:26 pm

Maybe look at your watch and learn to only talk about a certain subject for a limited amount of time.



Judas
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20 Jun 2015, 7:41 am

Hm. This is so facinating, thank you so much for all your contributions.

Well I got s**t faced last night and hung out with an other aspie. He went on and on about radar communication and the cold war. Its like listening to a documentary. Omg I could just sit back and be entertained. I get it now when he spoke so passionettely about it it kinda rubbed off on me. Awsome.



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20 Jun 2015, 10:18 pm

League_Girl wrote:
ToughDiamond wrote:
Judas wrote:
League_Girl wrote:
ProfessorJohn wrote:
ToughDiamond wrote:
Quote:
going on and on about narrow subjects

My own experience of this is that it's a powerful compulsion. At first I didn't even know how annoying it was to others, how much it was overloading them, how much I was putting people off me by doing it. When I started to realise that, I thought it would be a fairly simple matter to stop doing it. But to my horror I found I couldn't stop, even though I knew how important it was to normalise my conversational style. It's taken me years to learn how to regulate it, and even now I'm still prone to dropping back into my old ways. It's a brain wiring thing, not a matter of choice. If it were a matter of choice, I'd simply have chosen a normal conversational style for myself, and become socially successful, obviously.


Kind of like drinking for alcoholics. They know they should stop, they know that it is destroying their lives, but they keep doing it anyways.


Can you please elaborate?

Thank you iliketrees, for the links.

Except some of them do quit and never go back. They just can't have another sip. I guess the same with AS, some are able to stop and not do it anymore.

I think it's more complicated than that. To take this excellent "alcoholics" analogy further, an alcoholic typically has to completely stop drinking alcohol in order to control the habit - just one drink can break their resolve. Obviously it takes a lot of self-control to abstain forever, and there may be some pressure from society to drink, and refusing to drink may lead to some social rejection. And that's been much like my early experience with trying to control my "going on and on about narrow subjects," which for brevity I'll call "data-dumping" from now on. If I began to speak, I couldn't stop. So I remained silent, and experienced some social pressure to speak.

But the thing is, it was worse than being an alcoholic in a way: which takes a bigger hit on your social success, absolute teetotalism or absolute silence? Obviously, if you don't speak at all, your social life is dead. The teetotaller at least has a chance, (s)he can find people who don't worship alcohol. What was I to do, look for Cistercian monks? So I went back to speaking, and naturally I regressed into data-dumping time and time again. The fix, if it can be called a fix, was that I somehow learned to pick up on the body language and social cues I was getting from others. I noticed people starting to look bored, tired, or overwhelmed. They might turn their faces or their whole bodies slightly away from me. And the best of them, the ones I used to think were jerks for this, would interrupt me. I guess it's the equivalent of a responsible bartender saying "don't you think you've had enough?"

To this day I feel sorry for the people in my life who are so nice that they feel they have to keep pretending they're still interested in what I say even though I've been banging on for ages and they haven't had the chance to say anything. Because they don't help to shut me up, they're the ones who risk getting my data dumps. It's a work in progress.

Hope that's a good enough elaboration of how this data-dumping operates and what a struggle it can be to set it right.




What if they were to tell you you had been going on and on about it or telling you to talk about something else? Would you then be able to stop.

That's only happened a couple of times, in the distant past when I still thought that if I thought a subject was fascinating, so would they. They did it very rudely and I just felt offended, so it was counter-productive. I think if it happened now I'd be more likely to see their point, though people can be very sensitive to such bluntness - I guess that's why NTs often prefer to drop subtle hints when they want somebody to shut up - so it would probably depend on what mood I was in and how gently they broke it to me. A guy I knew would sometimes use a very clever method - he'd interrupt with a question about me. So he was indirectly saying that he didn't think I was inherently boring but that he'd got my point and wanted to exert some control over the subject matter and to move it on.



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21 Jun 2015, 12:38 pm

^Both my husband and mom will tell me if I have been going on and on about something but they are nice about it^ they won't tell me to shut up but they will tell me they don't want to talk about it anymore or that they are getting tired of it or ask me to switch topics. Sometimes my husband will tell me how long I had been talking about it but that might not be enough to tell me I should stop that topic literally so he tells me is he tired of it.


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21 Jun 2015, 12:59 pm

gamerdad wrote:
I'll chime in with my take here. The ways in which ASD effects me are often very minor. There are times when I struggle to understand people here who talk about traits that I don't share as well. For example, I don't have any issues recognizing facial expressions, which is often one of the main things people talk about that contributes to social isolation. So when I see people talking about their issues with that, I sometimes feel like an impostor; like even though I don't belong with neurotypicals I don't really belong here either.

I find that myself. With there being some things on WP which I just can't relate to at all. (Along with quite a few issues where I prefer forums populated mostly by NTs.)

Quote:
However, when I pull back and look at it objectively (as my therapists keep reminding me), I'm still unquestionably on the spectrum. As often as I see things that I don't relate to, I also see things that are almost scary in how specifically I relate to them; things that bring random bits and pieces across my entire life into a much clearer and cohesive picture of who I am.

Ditto