My new theory on self diagnosed autistics

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kraftiekortie
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02 Oct 2015, 3:19 pm

This Forum's primary focus is Autism in general.

It is not required that one be autistic to be a member of this Forum.

It should be seen as a place where autistic people will feel comfortable.



bookworm360
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02 Oct 2015, 4:12 pm

I think your theory is very flawed, sure there probably are several people who just like the romanticized idea of high functioning autism/aspergers, but honestly I would think they would be a minority.

I for one self diagnosed before I ever sought my official diagnosis. I'm sure several others have as well, and I'm sure several people who legitimately recognize their traits as part of the autism spectrum choose not to get diagnoses because its expensive and if you are functioning to some degree in society already you get few benefits from a diagnosis besides self knowledge and validation.



Aniihya
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02 Oct 2015, 4:17 pm

The jeering has commenced. While I see the theory as flawed, I would like to add that there are some self-diagnosed people who just want to fit in even though they might not have ASD. But there is no safe possibility to know if a self-diagnosed person is not autistic.



HisShadowX
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02 Oct 2015, 5:47 pm

kraftiekortie wrote:
I, myself, wouldn't apply for disability at this point--but there probably are Aspergians who are having great difficulty with everyday life--and who just might need SSDI/SSI because of extreme difficulty related to obtaining/maintaining employment. They are many who are not "faking it."

I am fortunate in being able to keep a job for so long.


True but they also can get vocational rehabilition provided by the state for job training or even job preference for state jobs. I thinking building skills or having skills makes you a worthy candidate. Plus having job preference for an over paid state job doesn't hurt either



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02 Oct 2015, 5:49 pm

Fern wrote:
This kind of thread keeps coming up again and again. My feelings on this topic are simple:

1. Not all self-diagnosed people are the same, so it's illogical to generalize.
Some people who self-diagnose are actually on the spectrum, some aren't. However, the people on these forums are either not qualified or do not have enough information to make a diagnosis. So we should all really stop trying.

2. All diagnosed people were once undiagnosed people.
Be kind to others. That person you say is a "poser" could be someone just like you, back in that awful part of life when you didn't know why you were different.


Very sensitively stated. :)

ETA: We have Anthem Blue Cross. My estimate was given based on in-network psychs only. I was not seeking an out-of-network doctor.



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02 Oct 2015, 6:05 pm

Fern wrote:
This kind of thread keeps coming up again and again. My feelings on this topic are simple:

1. Not all self-diagnosed people are the same, so it's illogical to generalize.
Some people who self-diagnose are actually on the spectrum, some aren't. However, the people on these forums are either not qualified or do not have enough information to make a diagnosis. So we should all really stop trying.

2. All diagnosed people were once undiagnosed people.
Be kind to others. That person you say is a "poser" could be someone just like you, back in that awful part of life when you didn't know why you were different.


I like these points. My points are somewhat different.

1. All self-diagnosed people were diagnosed by nonprofessional, but who may have read a great deal about the various ways autism can effect someone.

2. All diagnosed people were diagnosed by a professional who may or may not actually know that much about autism. A lot of people with the appropriate letters after their names to make a "real" diagnosis will just treat the DSM like a check list.

I don't doubt that there are people in both categories who don't actually have autism and a lot that do. The numbers are impossible to guess, and it's not really that important. The diagnostic criteria are still evolving. If joining the autistic community helps you find the support/help you need that's a good thing. Trying to draw equivalence to something like cancer, with clear diagnostic tests and criteria just won't do.



kraftiekortie
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02 Oct 2015, 6:10 pm

Right...autism is not as clear-cut as cancer. There are few objective symptoms--especially in the "high-functioning" realm. There is no lab test for autism like there is for most, if not all, cancers.



Phemto
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02 Oct 2015, 6:20 pm

kraftiekortie wrote:
Right...autism is not as clear-cut as cancer. There are few objective symptoms--especially in the "high-functioning" realm. There is no lab test for autism like there is for most, if not all, cancers.


Quite right. To me, the biggest difference between "real" and "self" diagnosed is will, ability, and effort. I'm sure I could get a diagnosis if I wanted to spend the time and money. When my son had issues we went through many tests. Several thousand dollars of later, we can now basically pick from any number of diagnoses if we wanted. Depending on which professional we go with, it could be ASD, SPD, ADHD.... Not everyone has those resources. This isn't a club with entry dues.



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02 Oct 2015, 6:45 pm

HisShadowX wrote:
kraftiekortie wrote:
I, myself, wouldn't apply for disability at this point--but there probably are Aspergians who are having great difficulty with everyday life--and who just might need SSDI/SSI because of extreme difficulty related to obtaining/maintaining employment. They are many who are not "faking it."

I am fortunate in being able to keep a job for so long.


True but they also can get vocational rehabilition provided by the state for job training or even job preference for state jobs. I thinking building skills or having skills makes you a worthy candidate. Plus having job preference for an over paid state job doesn't hurt either


I was just completed vocational rehab and had started the interview process when I had a stroke and cancer intervene. Even if the stroke and cancer had not occurred it is far from conclusive the job search would have been successfull (or will be if I recover enough). Besides the autistic traits that might be off putting during the interview process there might be lack of ability to work in a team, much more required these days, inconsistant job history a red flag for many, and rampant age discrimination a factor since many of the self diagnosed here seem to be in ther 40's and up.


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Nicola2206
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03 Oct 2015, 6:11 pm

I wouldn't tell everyone about autism after getting diagnosed, only to very close people who I'm sure will understand. Most of the time it's more convenient to just stay in the dark and act as neurotypical as possible (it's really hard for me and for many others as well, but sometimes it needs to be done). I wish I had actual "acting neurotypical skills" so people stopped making fun of me for being quiet or socially awkward or for lining up objects. However, I want to be myself instead of acting like someone I'm not, which is also impossible to me. I just can't, no matter how hard I try.

In this world acting autistic is not acceptable, whether you're officially diagnosed or not, whether you tell people or not. Let's face it, there's so much stigma and so much ableism all over the world.
Whatever we do is not acceptable, unless we somehow manage to pass as neurotypical as possible. This world (society, rules, etc.) was made for neurotypicals and they're the majority. It's normal we will never really fit in.

Sorry about my pessimistic views, but we should be more united, no matter who's officially diagnosed and who's self-diagnosed. The world is already hostile towards us, we should be united to defend our interests and rights as human beings.
The "I'm more autistic than you" or "I'm real because I have an official diagnosis and you're fake" arguments not only are they hateful and unfair, they're also a damage to our community because they divide us.


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Norny
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04 Oct 2015, 3:40 am

I think that anybody and any views outside of the outright bigoted should be accepted here. I don't think it matters whether a person is diagnosed, self-diagnosed or NT, though it still feels hard for me to accept some accounts from self-diagnosed 'very high-functioning' autistics as autism. I don't mean that I doubt the ability of any specific person to know themselves but I do have that feeling of disinclination especially if what is posted strays too far from the diagnostic criteria and more importantly current reputable research.

If somebody comes here self-diagnosed with autism but states that they have no trouble with something I perceive as hallmark such as social cognition impairments then I (in my mind) will consider that person BAP or NT, but that is only for my personal thinking and should/would not affect them.

I think that the sub-forums should be re-purposed to show what is acceptable discussion for each section. For example, NT/autistic hate speech ideally shouldn't belong in the General Discussion section, but a new ranting section. Strict social rules related to emotional support should belong to the Haven section. General Discussion should be as freedom of speech as possible if it is to exist (I think it shouldn't), because it's by far the most popular autism section and nobody is going to want to post in the relevant sub-forum/section if that remains the case.
Perhaps there should be a self-diagnosis section free of debates like this. That way, people can choose to segregate themselves from what they deem too offensive.


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ASPartOfMe
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04 Oct 2015, 7:51 am

Norny wrote:
I think that anybody and any views outside of the outright bigoted should be accepted here. I don't think it matters whether a person is diagnosed, self-diagnosed or NT, though it still feels hard for me to accept some accounts from self-diagnosed 'very high-functioning' autistics as autism. I don't mean that I doubt the ability of any specific person to know themselves but I do have that feeling of disinclination especially if what is posted strays too far from the diagnostic criteria and more importantly current reputable research.

If somebody comes here self-diagnosed with autism but states that they have no trouble with something I perceive as hallmark such as social cognition impairments then I (in my mind) will consider that person BAP or NT, but that is only for my personal thinking and should/would not affect them.

I think that the sub-forums should be re-purposed to show what is acceptable discussion for each section. For example, NT/autistic hate speech ideally shouldn't belong in the General Discussion section, but a new ranting section. Strict social rules related to emotional support should belong to the Haven section. General Discussion should be as freedom of speech as possible if it is to exist (I think it shouldn't), because it's by far the most popular autism section and nobody is going to want to post in the relevant sub-forum/section if that remains the case.
Perhaps there should be a self-diagnosis section free of debates like this. That way, people can choose to segregate themselves from what they deem too offensive.


I agree the way the sections are set up is confusing for the reasons you state and a lot of unrelated reasons. I would not support segragating self diagnosers and I am confident a lot of people would find that suggestion offensive. Other autism forums have a diagnosis section, so that may be place where people can discuss the merits of professional vs self diagnosis or just why they chose not or have not gone to a pro às well as thier own road to professional diagnosis. Tips and suggestions for how to get insurence and competent clinitions could belong here.


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iliketrees
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04 Oct 2015, 7:54 am

Has this turned into suggestions? :P I'll put my contributions.

Make the haven member's only.
Have a research sub forum where people doing research can post polls/surveys and such.



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04 Oct 2015, 2:57 pm

I think the OP's ideas have some merit, they seem plausible and possible to me.
I wouldn't say they apply to all people who self-diagnose with autism, but they probably do to some.


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Suncatcher
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04 Oct 2015, 6:49 pm

i am self diagnosed but i have had good reasons for that. My dad shows alot of autistic traits and my brother is diagnosed. I have had a few colleagues speculate what is wrong about me over the past few years. Some even asked if i was autistic without ever saying a word about it.


I do agree with the OP. Alot of people need a good reality check.

Just because you were bullied at school, which still ruins your social life today, probaly because you isolated yourself and sat behind the computer gaming for years, doesnt mean you are autistic. neurotypical's social skills change ALOT from puberty into adulthood. If you isolated yourself due to bullying, it may be possible that your own social skills 'got out of sync' with your peers. Like you were stuck in time and havent matured. Ofcourse this brings social awkwardness.

This generalisation of autism kind of needs to stop. There are some clear symptoms and indicators for autism. i am pretty sure 90% of the people who got bullied, then isolated themselves as a result and are now socially awkward are NOT autistic.

On the other hand, i sense a pretty strong 'superiority complex' in this topic. Diagnosed people should feel superior i guess...

I have also encountered some topics over the past few weeks in which was stated that people with autism dont know empathy. "If you have empathy you are not autistic..."

What?!

Have you guys even read the books about autism?

Just because you have alexithymia (about 60% of the people with autism have it..) doesnt mean EVERYBODY with autism has it. Some people with autism can empathize with others... but sometimes we just have to ask 1000 questions about what happened before we can realise why the other person is feeling sad. Sometimes it is easy (if we know the person really well..)



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04 Oct 2015, 7:00 pm

kraftiekortie wrote:
That's pretty nifty that you're a disability advocate. I would bet that you could be of considerable assistance here, actually.

I do understand that there are some people who would make use of the "autism" card in order to continue to live a lazy existence. The potential for abuse in this sense is high.

But Asperger's (Yes, not on the DSM V), is a such a subtle disorder at times--to the point where it would owe it to the "sufferer" not to make snap judgments as to their ability to function in the outer society--especially as to the acquisition and maintenance of employment.

I'm been employed steadily for 35 years. I'm fortunate that I am very skillful in what I do--otherwise, I would have been fired long ago for my quirkiness.

I'm not one who believes one should go on something like SSI or SSDI on a whim--I happen not to believe in people going on it in most cases--but I also believe that there are more people than meets the eyes who just might benefit from SSI/SSDI (at least temporarily).


Same. Well, not 35 years..

8 years now as a security guard, mobile patrol.
First 6 months were hard.. especially talking to people. I had to learn alot of scripts, now talking to people is easy.. eye contact always remains a problem but i can camouflage it better now. If i encounter a new (or weird) situation in which i cannot apply my social scripts, i sort of get a blue screen of death in my brain and when the situation is over, i analyze it 1000 times and develop new scripts :lol: almost like commander data.

Come to think of it, i have had to experience so many painful and awkward stuff at work over the years. I am very suprised no one has ever filed in a complaint and that i still work here

If you 'feel' like you really cannot work due to social anxiety, meltdowns etc, like my brother, then you should not work. I am the type of guy who tries to make good lemonade out of lemons.

You cannot be free if you judge over people.



Last edited by Suncatcher on 04 Oct 2015, 7:17 pm, edited 1 time in total.