structrix wrote:
That said being autistic is HARD with or without diagnosis. There are so many RULES that you have to remember to fit into the neurotypical world. Rules at work, rules at home (NT husband and son), rules in the public. I am pretty good at APPEARING neurotypical (eventually my friends find out that I am a bit "different" e.g. human encyclopedia and things like that) but STILL even then it comes out. The other day my son and I were in the mall and both of us got excited at seeing something (I can't remember) and yes, I as a grown adult woman was jumping up and down along with my son. Then I caught myself because grown adult women do not jump up and down out of excitement "in public" at least.
So much this. So many rules, and constantly trying not to slip up and let anyone see how weird I am (ruined a lot of friendships and relationships that way). That part of it really sucks. But yes, I do jump up and down out of excitement, with my teenage stepdaughter or by myself, quite frequently.
Like a lot of people said, school was hell. I had a bullseye painted on me or something, I was always the target for bullying - the entire school got in on it in 6th grade, even people who didn't know me, and it didn't let up till I graduated high school. That part also sucks a lot.
I finally got diagnosed just recently, and the diagnosis itself has taken such a weight off my heart. One of my earliest memories (about age 3?) was the thought that there was something inherently *wrong* about me that would keep me from ever being as good as other people, and my whole life I've thought I was just broken, somehow. But now I know that I'm not a failure at being a person - I'm just autistic. It's been life-changing, liberating. It doesn't make living with practically no executive function, crazy anxiety, and a total lack of social ability any easier, but claiming it and owning it has taken away a lot of the shame I used to have about my differences. That part, I love.
And I love the way my brain works, it keeps me endlessly entertained in lieu of social interaction. The weird way I don't recognize language at times is helping me create a post-apocalyptic language for a book I'm writing. Even though - or because - I'm as high functioning as I am, I can help my friend understand his autistic child, thereby improving both their lives. Maybe I can even work with HFA kids - especially young girls - and help them understand they're not broken, either. I love that part, too.
Would my life be easier if I were NT? Yes.
Would it be *better*? I'm not sure of that.
Would it be as interesting? No way.
StarTrekker - I'm really sorry you're going through such a hard time, and I hope things get better for you. Please don't take anything I've said (or anything anyone says, for that matter) as meaning that you're wrong or weak for wanting to be like "normal" people. Nobody really knows your struggles but you, and your own feelings are what matter, not anyone else's opinions. Sending you all good wishes, and hugs if you're comfortable with them.