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skibum
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21 Nov 2019, 12:51 pm

firemonkey wrote:
skibum wrote:
firemonkey wrote:
The nearest I got to anyone realising something untoward was up was my first school in Thailand showing their concern . I was 5 or 6 then . I was assessed at Great Ormond street for what we now call cerebral palsy(the S word used to be used back then) The result was negative and no other possibilities were explored.

How much that was to do with my parents not wishing to explore things further I don't know. I'm not sure they looked beyond my being an awkward and badly coordinated child.
What is the S word?


Spastic

https://en.wikipedia.org/wiki/Spastic#UK_and_Ireland
Ah, I understand. Thank you


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plokijuh
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21 Nov 2019, 3:58 pm

Diagnosed age 31, ASD level 2


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Diagnosed ASD

AQ: 42 (Scores in the 33-50 range indicate significant Austistic traits)
RAADS-R: 165
RDOS: Your neurodiverse (Aspie) score: 159 of 200
Your neurotypical (non-autistic) score: 44 of 200
You are very likely neurodiverse (Aspie)


SharonB
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21 Nov 2019, 4:36 pm

It's related to severity and cultural and medical knowledge, among other factors. My grandmother, mother and I all are verbose (less severe in that way) and were DX'd in our 20s but not with ASD (lack of ASD knowledge pre 1990s), so we got schizo, depression, bipolar DXs. Our symptoms were noticeable, but not "recognizable". My grandmother was institutionalized for paying more attention to electrons -a Special Interest- than her kids (too bad tech companies didn't hire women back then). When I used to cry non-stop in my childhood and have fits, my parents merely said I was dramatic, too sensitive and grandiose. So by 1990 rather than learning productive skills, I had learned to hide my difficulties and retreat into shame (but I was self-aware enough to find a nurturing NT husband to pay attention to the kids). I will request diagnosis for my daughter (age 8) sooner than later. Still her teachers and her doctor say "they don't see ASD" b/c of ignorance (which I was a part of less than a year ago; but she didn't "grow out of it" and apparently neither have I :wink: ).



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21 Nov 2019, 10:38 pm

Some articles suggest that childhood trauma (e.g. ACE adverse childhood experiences) delay diagnosis or treatment. I am an ACE 4/10 (resilience 8/16).



dragonsanddemons
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21 Nov 2019, 11:35 pm

For what it's worth, I was diagnosed with Asperger's syndrome (no speech delay) when I was about 10 (and yes, I'm female). These days, though, my functioning level is much closer to moderate than to high.


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livingwithautism
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29 Nov 2019, 12:38 pm

It seems like the later the diagnosis, the milder the autism. However, there may be some Level 2 and even maybe some Level 3 whose autism was misunderstood and was only recognized and diagnosed in adulthood.



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29 Nov 2019, 1:20 pm

Joe90 wrote:
Ha! I'm Asperger's and yet I got my diagnosis when I was 8. And I'm a FEMALE!! ! 8O 8O 8O 8O

I've always been angry about receiving a diagnosis in childhood because it makes me feel more severe than what I am.

I didn't have any delays when I was a baby; no speech delays or anything. And I was a very chatty, sociable child. But I had poor behaviour issues and difficulties controlling my emotions, so I was prone to temper tantrums, whinging a lot and crying. I was very hyperactive too. But because I had social anxiety in the classroom, they didn't diagnose me with ADHD because back then everyone thought ADHD meant being loud and obnoxious in the classroom (which is just a stereotype). But my behaviour at home (and social awkwardness at school) was what put me in the Asperger's spotlight.

I wish I wasn't such a brat when I was a child, then I would have been diagnosed in adulthood like everybody else. :roll:


My mom spotted autism in me when I was eight, but chose not to do anything about it. My school just thought I was shy and smart, and that any difficulties I had were linked to my prematurity, for which I had a 504. I was diagnosed at 21 but would have given anything to have received a diagnosis during childhood, because then I could have gotten proper supports to meet my needs, instead of struggling, barely scraping by, and thinking there was something inherently wrong with me for so long. I'm a level 2 though, so I'm more severe than traditional Asperger's. It was only because my mom supported me so much socially (read: did things for me that other kids my age could do for themselves) and because of my academic intellect that I managed as well as I did until I left home at 24. Now my life self-care wise is a bit of a trainwreck.


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skibum
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29 Nov 2019, 6:13 pm

livingwithautism wrote:
It seems like the later the diagnosis, the milder the autism. However, there may be some Level 2 and even maybe some Level 3 whose autism was misunderstood and was only recognized and diagnosed in adulthood.
I am a level three and I was diagnosed at 47


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livingwithautism
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29 Nov 2019, 11:53 pm

skibum wrote:
livingwithautism wrote:
It seems like the later the diagnosis, the milder the autism. However, there may be some Level 2 and even maybe some Level 3 whose autism was misunderstood and was only recognized and diagnosed in adulthood.
I am a level three and I was diagnosed at 47


I didn't say it never happens.



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30 Nov 2019, 5:52 am

I would say "The later the diagnosis the milder it is" only applies to those born post 1989-1991 . I suppose you could try and say a man getting a dx this year at 35 is more severe than me, as I got mine at 62 . However you'd have to eliminate other reasons why a dx came at a later age for me ,i.e mental illness and everything seen as being connected to that, failure to adopt a holistic approach, incompetency of mental health professionals .


There were obviously signs as a first appointment here with a new pdoc , and the mention of autism , resulted in a letter giving an assessment date about a fortnight later .

Had the signs suddenly appeared at 61? No!! They'd always been there , but it took a more intelligent and observant MH professional to see that they were there .



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30 Nov 2019, 9:23 am

So far I've tracked: function of severity, comorbidities, cultural awareness (individual, family, community, national, global)...

Firemonkey, that reminds me of my grandmother.

Warning trigger deceased. Thinking of a few individuals in my family whom I miss. For those born in the early 1900's (the Other Millenials), diagnosis would need to be done posthumously. Even for those born closer to 2000, but tragically passed already.



skibum
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30 Nov 2019, 11:02 am

Yes, being born sooner than later definitely had an impact.


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