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Mikomi
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26 Feb 2008, 8:58 pm

I beg to differ. My daughter is very high-functioning and has been diagnosed with Autism. They call it a spectrum for a reason. For people like her, much of the difficulty is with sensory stimuli rather than behavior or level of social functioning (though those are not exactly neurotypical, but close).


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Griff
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26 Feb 2008, 9:04 pm

Now that is a very interesting point, Mikomi. I had not thought of the fact that many sensory issues are tied to autism.



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26 Feb 2008, 10:31 pm

Well, I could make a fairly strong case that Asperger's is a misdiagnosis for me and classic HFA would be a better fit. In any case, the two are similar enough that it is often difficult to distinguish between the two, especially in adulthood once any language delays have been overcome. I don't think anyone here really wants this board to degenerate into exclusivist elitism that rejects "low functioning" autists to focus solely on Aspies. We're primarily Aspies here, but from what I've seen we're also very understanding and accepting of anyone who wants to be part of our little community. Aspies are just a type of Autist, much like a robin is a type of bird. We may not be the same as all others, but we have a lot in common.


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ShadesOfMe
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27 Feb 2008, 3:44 am

Griff wrote:
ShadesOfMe wrote:
we aren't. we are on the autism spectrum which is DIFFERENT. It is not Autism. We are on the spectrum, but not Auties.
I think that this is a very important distinction. We are not autists. We are their non-autistic doppelgangers. To be slightly cornball, it could be said that we "walk in both worlds, but a shadow in either."

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and I think if we even have a Advocacy board, it should be AS advocacy not Autism advocacy! and doesn't that stuff go in the general section anyways?!
Aspies don't need advocacy. It's in the same class of disorders as ADHD and schizotypal personality disorder. It shouldn't even be considered, in itself, an Axis I disorder. We are sympathetic toward those who are truly disabled, though, because we see ghosts of ourselves within them.

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The thing is, it's thought to be genetically related, but it isn't the same thing.
It's not. One severely damages development...and the other does not.

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I went to a school for aspies and Auties for a few days, and those kids were really bad off. One of the girls just wandered around in circles, acting like no one was there, reciting what seemed to be a line from a movie, over and over and over.
You mean...you've never done that? O.o o.O O.O I like to spin in circles while I walk! It's really fun! You should try it!

Of course they were acting like no one was even there. That's the definition of autism. Rather than being stupid, which isn't quite the case with them, they simply have little, if any, connection with their surroundings. They're in "lala land." It isn't a lack of awareness, though: it just doesn't occur to them to care. Even so, this isn't quite intentional. It's like the semi-voluntary attention-getting behavior that marks ADHD, for, although this attention-getting behavior seems voluntary, the person doing it is often mortified by its consequences and may earnestly want to stop doing it. The same is so in autism: although they may understand the concept of coming out of their fairy land, can even do so for brief periods and dearly want to stay out of it, they are simply doing what is in their nature. Am I being clear here?

Think of it as a good husband who's had a few too many drinks, for analogy: he may know that he's being offensive toward his wife, he may even try to tearfully apologize to his wife even during his state of drunkeness, but he wakes up with his bags packed and a notice that his wife is staying with her mother until he leaves. During his state of drunkeness, he's aware of the impropriety of his actions and feels that they are wrong, but he finds he can't help himself.

When I try to explain these things to dedicated NTs, it feels like talking to a brick wall. Essentially, human beings are nothing but big bags of narcotics. Whether you're NT, AS, or schizophrenic, that's all you are and all you'll ever be: a big, fat bag of narcotics. It's a crude, analogous way of stating it, but accepting this causes all these disorders, ranging from ADHD to catatonic schizophrenia, to make ten million times more sense. You're a pretty sophisticated, little bag, though, I'll grant you.

Gah. I got side-tracked, so I'm having to come back and edit behind myself. Instead of fiddling with the above, let me append.

Think of high functioning autists, such as Aspies, as being on a drug. This drug sometimes makes them slightly, even significantly, more intelligent than most people. However, it can also make them very dull in character and narrow in their patterns of thought. Think of a severely low functioning autist as someone whose exposure to similar substances has led to lasting brain damage and pervasive, debilitative developmental impairments. This is kinda why we are associated with autists. Similar principles seem to be at work.


at least *someone* gets what i'm trying to say. everyone here seems to be taking what I said waaay out of what i meant. and for those of you who are all,talking about the "we" in the title, this website was originally for people with AS. Most of the people here, have AS. That is why in the diagnoses section of the profile, it starts with "have aspergers diagnosed" and have aspergers undiagnosed. Not a whole bunch of different things on the damn spectrum.

http://www.washingtonpost.com/wp-dyn/co ... 00899.html
http://www.emediawire.com/releases/2004/7/emw137362.htm,



zen_mistress
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27 Feb 2008, 5:07 am

Yes but its a bit broader than that. Some parts of the website say Aspergers, such as the title bar, but on the other hand the home page says:

"Wrong Planet is the web community designed for individuals (and parents of those) with Asperger's Syndrome, Autism, ADHD, and other PDDs."

So wrongplanet also seems to be designed for people with Autism, or PDD-NOS or ADHD... and there are other neurological differences which people might also want to talk about here , such as Tourettes.

It is also a website for parents as well, so NTs will be on here too. It is not just an aspergers website.


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sarahstilettos
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27 Feb 2008, 5:51 am

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at least *someone* gets what i'm trying to say. everyone here seems to be taking what I said waaay out of what i meant. and for those of you who are all,talking about the "we" in the title, this website was originally for people with AS. Most of the people here, have AS. That is why in the diagnoses section of the profile, it starts with "have aspergers diagnosed" and have aspergers undiagnosed. Not a whole bunch of different things on the damn spectrum.


But don't you think that having autistic people on here too makes it better? I think it adds to the debate. On this forum at the moment, we have everything ranging from people who are non verbal and need constant support to people who are married, live independently, have good jobs. That's actually why I like this forum! I like hearing all sides of he story!

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It's not just whether people care or not, or like it or not. It's about whether they're even able to send the right signals to show they care or like it. A lot of people assume that it's about a lack of motivation, when it can be about a lack of ability to look a certain way. A person can be very involved with and caring about other people, and quite motivated, and not look the way most people would expect such a person to look, and that is actually quite common.


People frequently assume that I have no idea whats going on around me, especially at work. People say things in front of me that they'd never dream of saying in front of everyone else, they do this in a way that's as if I was deaf. I think my body language and being very quiet say to them that I either don't listen or don't know what they're talking about. And I'm considered a *Mild* aspie.



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27 Feb 2008, 9:30 am

You know... that second website calls Asperger's Syndrome autism in the title...

I asked a neurologist (friend of mine, not in his professional capacity) what he thought. His answer was, "A talking dog is still a dog."



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27 Feb 2008, 10:26 am

I have wondered often about how much confusion in Autism Spectrum labels is due to the interaction of two separate features: intelligence and autism. I am pretty smart (advanced degree in math) and have figured out on my own many ways to deal with the problems that occur due to my autisitc traits like stimming and taking things literally. My therapist labels me as AS. What would have happened if were born with very few smarts, independently of any effects of my autistic traits. I can easily believe that I might never have spoken. Sometimes I find it VERY hard to speak as it is. What would I have done without the powers of my reasoning to help?

Simon Baron-Cohen makes a statement somewhere that suggests that Asperger's and HFA (interchageable labels in his mind) are just the more intelligent people with the same disorder as the classically autistic. I think this is an oversimplification since it may be that some autistic traits somehow interfere with brain development and thus intelligence. However, I don't think such interference is universal. It may be that a lot of folks with classic (Kanner's) autism, if suddenly freed of all autistic physiology, would simply become folks on the lower end of the intelligence spectrum.

Any thoughts on this from the group?



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27 Feb 2008, 10:55 am

skeeterhawk wrote:
I have wondered often about how much confusion in Autism Spectrum labels is due to the interaction of two separate features: intelligence and autism. I am pretty smart (advanced degree in math) and have figured out on my own many ways to deal with the problems that occur due to my autisitc traits like stimming and taking things literally. My therapist labels me as AS. What would have happened if were born with very few smarts, independently of any effects of my autistic traits. I can easily believe that I might never have spoken. Sometimes I find it VERY hard to speak as it is. What would I have done without the powers of my reasoning to help?

Simon Baron-Cohen makes a statement somewhere that suggests that Asperger's and HFA (interchageable labels in his mind) are just the more intelligent people with the same disorder as the classically autistic. I think this is an oversimplification since it may be that some autistic traits somehow interfere with brain development and thus intelligence. However, I don't think such interference is universal. It may be that a lot of folks with classic (Kanner's) autism, if suddenly freed of all autistic physiology, would simply become folks on the lower end of the intelligence spectrum.

Any thoughts on this from the group?


I think it is more likely that non-high functioning autistics are the ones who had the most difficulties dealing with their sensory overload, and difficulty processing verbal data in their minds.

I will edit because i dont want the post to be misunderstood.

I think there could be other factors that effect some autistic people- not all- suffering a trauma at some point in life which leads to depression or anxiety developing in the autistic person.

But each person may have a different reason why they have difficulties with the world.


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Last edited by zen_mistress on 27 Feb 2008, 11:39 am, edited 1 time in total.

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27 Feb 2008, 11:10 am

skeeterhawk wrote:
Simon Baron-Cohen makes a statement somewhere that suggests that Asperger's and HFA (interchageable labels in his mind) are just the more intelligent people with the same disorder as the classically autistic. I think this is an oversimplification since it may be that some autistic traits somehow interfere with brain development and thus intelligence. However, I don't think such interference is universal. It may be that a lot of folks with classic (Kanner's) autism, if suddenly freed of all autistic physiology, would simply become folks on the lower end of the intelligence spectrum.

Any thoughts on this from the group?


Yeah, it's not remotely backed up by research (which does not usefully differentiate "HFA" and "LFA" by intelligence if the proper tests are given), and it gets back to a pet peeve of mine I discussed earlier on this thread: People tend to assume that if you have the following three traits about something then you will be able to do it:

1. Understand how to do something
2. Want to do something
3. Are unafraid to do something and otherwise emotions are not getting in the way

That's not accurate, especially when it comes to autistic people. Other factors not discussed include:

1. Having to juggle a whole lot more things in one's head consciously to do that thing than other people would
2. Having trouble connecting conscious intent with action
3. Being able to perceive everything necessary to do that thing
4. Being able to remember, at the exact time necessary, to do that thing
5. Having to find one's body in order to use it

Etc. There are of course lots more things that can happen in autistic people as well, to prevent them from doing something even if they're intelligent enough to understand it and willing enough to do it. I don't know a lot of people who, after reading what I write, would call me unintelligent, in fact I was considered extremely gifted as a child. But there are things I never learned how to do, that most people here probably did learn how to do, and there are other things that I did learn how to do but that I was unable to sustain the ability to do it. Intelligence and ability to do assorted things are usually completely separate in autistic people.

So it's not just that you're able to understand, it's that you're able to put your understanding into action on a regular basis. Not all autistic people can do that even with all the understanding in the world.

And not understanding that is the reason why, on this board, people who can tell I'm intelligent by my writing, have suddenly assumed that I have some bizarre emotional block about doing certain things, because to them the only things that could get in the way of being able to do something are lack of desire, lack of understanding, or emotions interfering with it. The idea that there are other things is completely foreign to some people.


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skeeterhawk
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28 Feb 2008, 10:05 am

Quote:
1. Understand how to do something
2. Want to do something
3. Are unafraid to do something and otherwise emotions are not getting in the way

That's not accurate, especially when it comes to autistic people. Other factors not discussed include:

1. Having to juggle a whole lot more things in one's head consciously to do that thing than other people would
2. Having trouble connecting conscious intent with action
3. Being able to perceive everything necessary to do that thing
4. Being able to remember, at the exact time necessary, to do that thing
5. Having to find one's body in order to use it


Put in another way, AUTISM DOESN"T MAKE YOU STUPID. When I look around, I can see people in four classes:

1) Really smart and have few autistic traits
2) Really smart and have many autistic traits -- Danniel Tammet and Ballastexistence (Amanda Baggs) for example
3) Not so smart and have few autistic traits.
4) Not so smart and have lots of traits.

The fact that there are people in all these groups seems like strong evidence that autism is a different brain type more than it is a dysfunction in itself. The dysfunction or problem seems like it is most often a matter of communicating with other mind-types.

Yes, there are problems like sensory overload (which is painful and few of us like pain) or coordination weakness that prevents us from doing a physical activity that we might desire.

But the really big problems in my life and in the lives of other autistics seem like they are about bridging the gap, not about intelligence or mind dysfunction.

This has been kind of a rant, and I apologize if it offends. I will summarize by saying that I definitely believe the whole spectrum is autistic. I also believe that the opposite ends of the spectrum have possibly been made to appear more different than they already are by an underlying inclusion of differences in intelligence that are there independently of autistic traits.

When I hear about or interact with an "LFA" my gut feeling is often (not always) that of seeing somebody who is just not as smart as me rather than that of seeing somebody who is "sicker" than me.



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28 Feb 2008, 10:14 am

Then you have those who say that autism can occur in any level of intelligence, just like other neurological disorders. If you have autism in someone with profound mental retardation, it's hard to distinguish between the autism itself and the MR; those with profound MR are severely affected anyway [compared to objective standards]. Then you have autism in those with a normal level of intelligence [or above], and it's easy to distinguish what's autism and what's not (I had a verbal impairment).

Personally, I like this one.

Sitting down as a child, playing next to others (if that, my mother said I never interacted with anyone but her and my grandmother; no peers), but not with them; able to put square blocks in square holes when told to. Easy to see autism compared to MR in my case.



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28 Feb 2008, 10:17 am

Jeyradan wrote:
I asked a neurologist (friend of mine, not in his professional capacity) what he thought. His answer was, "A talking dog is still a dog."


Doesn't he mean, "A talking cat is still a cat"? ;)


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richardbenson
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28 Feb 2008, 12:58 pm

i make theads like this when i get drunk, and get really bossy with such hits as: stop spelling you with u and so on

who cares what the board is about or if people post here that dont have full blown autism


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ShadesOfMe
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28 Feb 2008, 5:26 pm

richardbenson wrote:
i make theads like this when i get drunk, and get really bossy with such hits as: stop spelling you with u and so on

who cares what the board is about or if people post here that dont have full blown autism


Thats Not what this thread is about.



richardbenson
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28 Feb 2008, 6:19 pm

well reguardless someone is a little miss bossy pants. i think i'll start saying i have autism instead of arseburgers just because. yes hello there, i now have autism


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