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MotownDangerPants
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14 Jun 2010, 9:32 pm

katzefrau wrote:
MotownDangerPants wrote:
They may not really be thinking about what they're saying, and are more fed up with this new internet culture of "fake Aspies" who actually ARE making it trendy than you personally.


where is this "culture" of fake aspies, anyway? where is it that Asperger's is trendy?

and - assuming there are some people deliberately misleading - why are these people not simply written off as occasional trolls, rather than blown to epidemic proportion and used as ammunition to discredit self-diagnosers?

in all this discussion, no one has offered any evidence of this "trend"


I believe there is a culture but it may not be as popular here as it is on the rest of the internet. I have seen a lot of people discussing AS on some other boards(not autism sites) and some people claiming that they have it who DO act like jerks and may just be using it as an excuse to say whatever they feel like.

It has become much more prevalent in the media lately, and like anything it's getting it's 15 minutes. I think that naturally attracts some people as the "next big thing" that they can blame all of their problems on, but it will pass. If this awareness hadn't happened many people who probably do have AS may not have realized it, so I don't think accusing people of being fake is a good idea unless they are trolling. Some people may not have the disorder and truly believe that they do, they don't deserve to be called fakes either.

I don't know why this isn't dismissed as trolling. I think it is on some other boards, maybe less os here because people realize that this is a more serious website. Doesn't seem like general trolling happens as much here.



kiwigoddess
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14 Jun 2010, 10:58 pm

I'm not sure I understand the argument here. If having AS doesnt make me any less of a person. then thinking I have AS shouldnt either.

Why should I have to go to a complete stranger to find out something about myself? Why would a complete stranger know me better then I do?
I can read books, I can learn the DX critera, I do not believe that just because someone went to school, meant they learned anything from it.

Having a label doesnt change who you are. It just changes how other people Label you. Since I dont really care about what other people think of me, I am not concerned with adopting any Labels and instead find it much more facinating to see what Labels are chosen for me.

I could care less if AS was considerd "cool" or not. I dont care if I have AS, or am considered "weird"

Newsflash.....EVERYONE is weird. the more you get to know people, the more you understand how very weird we all are. (as anyone who has ever had a roomemate or children can atest to)

It seems to me that the Real Aspie vs Fake Aspie argument is only a step on a path to a greater understanding of weirdness. I think it is sad that there are people out there with negative opinions of anyone, however, you can not "not offend" anyone. There will always be somone to take offense to something. Might be your Lack of DX on this fourm, or it might be because you prefer strawberry over chocolate Ice cream..or god forbid, that you dont like Ice Cream at all!! !

moral of the rant...Embrace your inner WEird, and accept others for theirs.
(maybe strawberry peach Ice cream isnt that bad after all)



Michhsta
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14 Jun 2010, 11:18 pm

Hi to the OP,

Your queries are valid and always will be, as are everyones queries. Whether we are right or not is hypothetical. I salute you for seeking the truth, or A truth. However you want to put it.

I did not seek a dx, in fact I vehemently denied it. I was dx after 2 years of intensive therapy, and this following a very long and complex/convoluted psych history. My psychologist does not have AS, but she is shrewd, intelligent and cares about my mental health outcomes. In order to convince me, I had to have "evidence". I am an evidence based thinker, to my detriment at times. I live by the truth and I am often disappointed by others lack of commitment to finding the truth. Yes, I can be quite single-minded.

My therapist understood my process, so it was argued to the bone, week after week. She also sent me off to be officially assessed so that the "scientific process" for want of a better expression was followed.

According to the evidence, and based on the proposals put before me by the professionals in the field of neuropsychiatry, psychology and so on, I grudgingly agreed with their diagnosis.

So it is not that someone told me I had it as a bit of an off the cuff remark, or by NT therapists or whatever, it was by gathering as much evidence and testimonials as I could. It was not the people that confirmed it, it was the evidence that did. And if your evidence tells you that AS is the case for you, then so be it.

Strangely enough, despite the fact that I have an answer of sorts, I still feel as isolated as I ever did, really. I have never felt part of a club and probably never will. I don't think I like clubs, but I do like people, and I take each person individually on their merits. It is what you think of your life that is important, not what others think.

Good luck in finding your truth. That is the journey I am on as well. Take good care.

Mics


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Avarice
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15 Jun 2010, 3:14 am

PunkyKat wrote:
Yes. Why can't people say something such as "I fit a lot of the criteria and wonder if I would have been diagnosed with AS if I was a child today?" The self diagnosers use it as an excuse to be an ass on various messageboards and as a result other people think AS is just an excsue to be an as*hole. Self diagnosers make people feel it is okay to cyber bully someone who is authenitcaly AS and I have no sympathy for them...so sue me.


Thanks for grouping everyone together like that. Everyone knows that all self-diagnosed people are as*holes. Just like how all people with depression commit suicide, how all NT's are violent bullies and how all people diagnosed with Autism are mentally ret*d. (Sarcasm)

This is the attitude the OP talked about, the attitude that unless a doctor says so having AS is impossible. If somebody thinks they have it, and they're not trolling on purpose then who are you to say they don't have it? You don't know a thing about them or their life and you prefer to group everyone together on purpose to make up for that. I've used a lot of message boards and not once have I seen AS used as an excuse to bully others. Of course, according to you EVERY LAST person who has self-diagnosed has no desire other than that of "being an ass."



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15 Jun 2010, 3:50 am

katzefrau wrote:
Apple_in_my_Eye wrote:
I've seen a number of people say they felt intimidated by the "self-ex'ers are fake" threads here (there was an onslaught of many such threads some months ago). I have have no doubt that those threads have a chilling effect on people joining, posting, asking questions, and/or generally feeling safe and welcome here.


i think this is the most important point of all this discussion.

eventually it doesn't matter whether anyone is right or wrong about any of it; it's creating a toxic atmosphere.


I completely agree. Just seeing the titles of this type of thread gives me a knot in my stomach. It seems though that people are either completely missing the point or are choosing to ignore it in the quest to be right. It makes me very sad.



capriwim
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15 Jun 2010, 7:50 am

Surely if someone was coming to this forum as a fake Aspie, then they wouldn't claim to be self-diagnosed. They'd say they had an official diagnosis. There's nothing to prove that anyone here is diagnosed or otherwise. In theory we all could be lying! And if someone is intending to pretend to have a disorder, they will surely pretend a diagnosis too.

But my question would be 'What is to be achieved by faking a disorder on a forum which is specifically for people with that disorder?' I can't see what anyone would achieve from this. I've come across people who fake disorders or illnesses online - some people pretend they are dying for instance, to get sympathy and attention. But to get sympathy and attention, you'd surely go to a forum full of people who don't share the condition you are claiming to have. I mean, on a forum full of people with Aspergers, someone new who claims to have Aspergers is hardly going to be met with sympathetic cries of 'Oh, you poor thing! How awful for you!' because Aspergers is the norm here!

My assumption is that most people come to a forum because they can identify with what people are talking about. That's certainly why I come here - in 'real life' the majority of people I know do not have Aspergers, and so it's nice to come to this site and talk to others who have it and to know I'm not alone in my experiences. It's also really good to learn from other people's strategies - I mean, we've all spent years dealing with similar issues and have our own strategies to deal with it, and some are more effective than others, so discussing strategies here is a good way of pooling resources.

Whether or not people have a diagnosis, and whether they are full-blown Aspie or just share some Aspie traits, to me is totally irrelevant. If they can describe something that I relate to, or share a strategy, then I appreciate that. If their experience is different from mine (as many will be, as it is a spectrum and we are all different) that doesn't bother me - I imagine that others may appreciate their posts. If a few people here are deluded and really don't have Aspergers, I assume that the forum won't be much use to them, because they are not really going to be able to relate to the kind of things described here. If a few people here are deliberately lying, and are secretly totally NT, then I simply can't imagine what they would get out of that. But I also can't imagine how it would harm anyone. I'd feel more sorry for the person lying - I'd imagine they must have some mental disturbance.


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rossc
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15 Jun 2010, 7:59 am

I think that Aspie elitism is like a bunch of one legged guys trying to argue who has a better kick. It is faulty thinking in the extreme. To make assumptions of anyone as a generalised group is bigotry and anyone in a minority ought to know the sting of this first hand and be actively against it. Sadly it happens.
I will say though in some sense that knowing what you have as tried and tested and diagnosed will allow you better understanding of yourself.



eon
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15 Jun 2010, 10:01 pm

capriwim wrote:
Surely if someone was coming to this forum as a fake Aspie, then they wouldn't claim to be self-diagnosed. They'd say they had an official diagnosis. There's nothing to prove that anyone here is diagnosed or otherwise. In theory we all could be lying! And if someone is intending to pretend to have a disorder, they will surely pretend a diagnosis too.

But my question would be 'What is to be achieved by faking a disorder on a forum which is specifically for people with that disorder?' I can't see what anyone would achieve from this. I've come across people who fake disorders or illnesses online - some people pretend they are dying for instance, to get sympathy and attention. But to get sympathy and attention, you'd surely go to a forum full of people who don't share the condition you are claiming to have. I mean, on a forum full of people with Aspergers, someone new who claims to have Aspergers is hardly going to be met with sympathetic cries of 'Oh, you poor thing! How awful for you!' because Aspergers is the norm here!

My assumption is that most people come to a forum because they can identify with what people are talking about. That's certainly why I come here - in 'real life' the majority of people I know do not have Aspergers, and so it's nice to come to this site and talk to others who have it and to know I'm not alone in my experiences. It's also really good to learn from other people's strategies - I mean, we've all spent years dealing with similar issues and have our own strategies to deal with it, and some are more effective than others, so discussing strategies here is a good way of pooling resources.

Whether or not people have a diagnosis, and whether they are full-blown Aspie or just share some Aspie traits, to me is totally irrelevant. If they can describe something that I relate to, or share a strategy, then I appreciate that. If their experience is different from mine (as many will be, as it is a spectrum and we are all different) that doesn't bother me - I imagine that others may appreciate their posts. If a few people here are deluded and really don't have Aspergers, I assume that the forum won't be much use to them, because they are not really going to be able to relate to the kind of things described here. If a few people here are deliberately lying, and are secretly totally NT, then I simply can't imagine what they would get out of that. But I also can't imagine how it would harm anyone. I'd feel more sorry for the person lying - I'd imagine they must have some mental disturbance.



Amber-Miasma
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15 Jun 2010, 10:29 pm

Autism and Aspergers is just an umbrella term for a set of attributes commonly found together. Just like pretty much all psychological "conditions". To be honest I don't believe in psychological deviations, I do believe in people and how all people view the world in a completely different way to everyone else.

In that respect why does it matter if some suit says you're "AS" or "NON-AS"? You are only making a bad situation worse by compounding your attributes and attaching human-like qualities to them. If you do come back with a positive diagnosis how is that going to make your life anymore fulfilling?

Anyway, this is just my viewpoint.


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