This video is just disgraceful to the autistic community.
Well, I tried to answer it the best I could with the answer that made most sense to me. I must have misjudged. Maybe others just don't function with compassion or kindness? Could have fooled me. lol
Any who, I should probably be going to bed, it's late.
Thank you for your opinions on this post, it means a lot to me that others took the time out to read it and comment. I'm also sorry if I have offended you in any way - It was not my intention at all. Usually when i'm in a debate I try to just put everything on the table.
What's in the past is in the past, much like this video. lol
I'm on this site to make friends, not enimies.
Good night to you.
CockneyRebel
Veteran
Joined: 17 Jul 2004
Age: 50
Gender: Male
Posts: 116,970
Location: In my little Olympic World of peace and love
First of all, I'd rather be the parent of a disabled child than an aborted child. I have no problem with the idea of having a disabled child. What I have a problem with are the perfectionists in that video who call themselves parents. If a parent isn't willing to accept any child that they could end up bringing into this world, they should stay on Birth Control. Now everybody presumes that everybody on the spectrum are exactly like those kids in that video and they see autism as a life sentence. Autism isn't a life sentence. It's just a different way of being. There's ABA. Instead of bitching about their children, those parents should be working with them and believing that they have potential. There is someone who wouldn't mind having a disabled child, and that person is me, because I feel that every life is precious and everybody who's conceived should have a Birthday. Life is the first basic human right and without it, we wouldn't be here.
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The Family Enigma
Looks like I'm the only one who thinks so ... but I really didn't see anything that terrible. All I saw was some parents of low functioning autistic children being honest about how challenging life can be. I can't believe so many of you are demonising them for that.
It frustrates me that so many higher functioning people think that because they lie somewhere on the autism spectrum it's their God-given right to speak on behalf of low functioning individuals. Who are you to tell these parents they shouldn't wish their kids had a better quality of life? Nobody is trying to "cure" you. If you have no problems with your level of autism, that's great. Heck, I don't deny that in some cases it can make you a better person. But what about those kids who will never speak? Who will never live independently? Who will spend the rest of their lives being passed from home to home?
It frustrates me that so many higher functioning people think that because they lie somewhere on the autism spectrum it's their God-given right to speak on behalf of low functioning individuals. Who are you to tell these parents they shouldn't wish their kids had a better quality of life? Nobody is trying to "cure" you. If you have no problems with your level of autism, that's great. Heck, I don't deny that in some cases it can make you a better person. But what about those kids who will never speak? Who will never live independently? Who will spend the rest of their lives being passed from home to home?
This.
Verdandi
Veteran
Joined: 7 Dec 2010
Age: 55
Gender: Female
Posts: 12,275
Location: University of California Sunnydale (fictional location - Real location Olympia, WA)
It frustrates me that so many higher functioning people think that because they lie somewhere on the autism spectrum it's their God-given right to speak on behalf of low functioning individuals. Who are you to tell these parents they shouldn't wish their kids had a better quality of life? Nobody is trying to "cure" you. If you have no problems with your level of autism, that's great. Heck, I don't deny that in some cases it can make you a better person. But what about those kids who will never speak? Who will never live independently? Who will spend the rest of their lives being passed from home to home?
I don't think anyone in this thread is speaking for anyone you would describe as "low-functioning individuals." However, it is not inappropriate to react to material like this intended to prompt a particular kind of reaction to the idea of autistic children.
I don't think it's necessary to try to tell people they have no business speaking because they're not autistic enough. I know I've heard that one often enough just in the past week.
I don't think anyone in this thread condemned any parents for wishing their children had a better quality of life. The criticisms I noticed were: Characterizing the children as deficient because they're autistic and "It's inappropriate to say right in front of your own child that you wanted to kill said child and yourself" because odds are good that child will know about and understand what that means at some point. This is not unique to nonverbal autistic children with very few self-help skills. This shouldn't be said in front of <em>anyone</em>.
I find the bolded part in the quoted text to be fairly trivializing. Unless someone explains it, you cannot determine from this thread how many problems anyone experiences with their "level of autism." I doubt there's really such a thing as a "level of autism" in the first place as "skill scatter" is extremely common on the spectrum, whatever apparent functioning level may be.
And, you know? I may never live independently - every attempt I've made has failed badly. You don't have to be non-verbal to have serious difficulties. I'm not using this to justify speaking for anyone because I don't speak for anyone but myself.
Don't worry. This will come back to bite the women horribly when their children are teens, feeling rebellious/alienated/angry anyway (with the autism amplifying it even more), and see the videos. Assuming, of course, the kids don't have instant flashbacks and remember their mothers saying it right in front of them.
I don't think the mothers realized that the fact that their kids might not TALK doesn't mean they don't UNDERSTAND and won't REMEMBER it (possibly in a distorted context) years from now.
There are lots of things I remember, and routinely freak out my parents by bringing up things they (and others) said and did when I was 3-5 years old. My parents couldn't believe, for example, that I have any memory of the basement floor at our old house being red instead of green, because they painted it the summer when I was 3 (however, they DO apparently remember the epic tantrums I threw afterward, because I liked red better). Or that I remember the old furnace that got replaced the winter after I'd just turned 3 (the old furnace made noises and scared me. I don't remember much about the actual replacement itself, but I remember feeling like a monster that used to live in the basement had just been slain, and for the first time in my life could go down to the basement without fear).
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Your Aspie score: 170 of 200 · Your neurotypical (non-autistic) score: 34 of 200 · You are very likely an Aspie [ AQ=41, EQ=11, SQ=45, SQ-R=77; FQ=38 ]
It frustrates me that so many higher functioning people think that because they lie somewhere on the autism spectrum it's their God-given right to speak on behalf of low functioning individuals. Who are you to tell these parents they shouldn't wish their kids had a better quality of life? Nobody is trying to "cure" you. If you have no problems with your level of autism, that's great. Heck, I don't deny that in some cases it can make you a better person. But what about those kids who will never speak? Who will never live independently? Who will spend the rest of their lives being passed from home to home?
I don't think anyone in this thread is speaking for anyone you would describe as "low-functioning individuals." However, it is not inappropriate to react to material like this intended to prompt a particular kind of reaction to the idea of autistic children.
I don't think it's necessary to try to tell people they have no business speaking because they're not autistic enough. I know I've heard that one often enough just in the past week.
I don't think anyone in this thread condemned any parents for wishing their children had a better quality of life. The criticisms I noticed were: Characterizing the children as deficient because they're autistic and "It's inappropriate to say right in front of your own child that you wanted to kill said child and yourself" because odds are good that child will know about and understand what that means at some point. This is not unique to nonverbal autistic children with very few self-help skills. This shouldn't be said in front of <em>anyone</em>.
I find the bolded part in the quoted text to be fairly trivializing. Unless someone explains it, you cannot determine from this thread how many problems anyone experiences with their "level of autism." I doubt there's really such a thing as a "level of autism" in the first place as "skill scatter" is extremely common on the spectrum, whatever apparent functioning level may be.
And, you know? I may never live independently - every attempt I've made has failed badly. You don't have to be non-verbal to have serious difficulties. I'm not using this to justify speaking for anyone because I don't speak for anyone but myself.
Nice one Verdandi.
But what I find ironic is that such arguments always boil down to this: "Oh high functioning Autistics can't speak on behalf for lower functioning ones. But we parents/organisations who likely don't even have Autism can and will, so STFU."
I mean talk about marginalizing the very group who could provide greater insight of an Autistic mind in favour of those guessing. I find it all amusing.
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"Have a nice apocalypse" - Southland Tales
It frustrates me that so many higher functioning people think that because they lie somewhere on the autism spectrum it's their God-given right to speak on behalf of low functioning individuals. Who are you to tell these parents they shouldn't wish their kids had a better quality of life? Nobody is trying to "cure" you. If you have no problems with your level of autism, that's great. Heck, I don't deny that in some cases it can make you a better person. But what about those kids who will never speak? Who will never live independently? Who will spend the rest of their lives being passed from home to home?
I concur.
I see long and wide. This is 'why' parents of adult autistic children will eventually come together to speak on behalf of their children on the spectrum.
Frankly, i find this video tame. They did not go far enough in depicting the trials and tribulations of both children and parents dealing with Autism.
TheSunAlsoRises
This video was specifically made to make autistic people look bad, too. See here:
This film was alleged to depict the realities of autism, described by the film's Producer Lauren Thierry as:
"At this point we need to be showing the world what the vast reality truly is. [Lauren says]…that reality includes images of kids not sleeping through the night, banging their heads against the wall or running into traffic – not images of kids setting basketball records or passionately playing the violin."
It later transpired that the film had been 'set up' and that Thierry had purposefully attempted to display the worst possible view to the world:
"Thierry told her subjects not to do their hair, vacuum or bring in the therapists. She showed up with her crew at their homes sight unseen and kept the cameras rolling as a mom literally wrestled with her son to get him to brush his teeth, as a 9-year-old had a public meltdown, as a 5-year-old had his diaper changed. And, as moms revealed dark and uncomfortable truths about living with autism. The result is a window into an exhausting world of interminable work."
The film itself contained a segment where one of the mothers interviewed said that:
"I remember that was a scary moment for me when I realized I had sat in the car for about 15 minutes and actually contemplated putting Jody in the car and driving off the George Washington Bridge. That would be preferable to having to put her in one of these schools."
The mother in question made this statement whilst her autistic daughter was in the room with her. She further added that the only reason she didn't kill her autistic child and herself was the thought of her non-disabled daughter.
Producer Thierry called this section 'gutsy and courageous' and added that:
"If most mothers of autistic children…look hard enough within themselves they will find that they have played out a similar scenario in their minds. If this is not your reality, then God bless you."
http://www.autism-hub.co.uk/autism-spea ... /index.php
This is the kind of s**t which makes us all hate Autism Speaks.
This film was alleged to depict the realities of autism, described by the film's Producer Lauren Thierry as:
"At this point we need to be showing the world what the vast reality truly is. [Lauren says]…that reality includes images of kids not sleeping through the night, banging their heads against the wall or running into traffic – not images of kids setting basketball records or passionately playing the violin."
It later transpired that the film had been 'set up' and that Thierry had purposefully attempted to display the worst possible view to the world:
"Thierry told her subjects not to do their hair, vacuum or bring in the therapists. She showed up with her crew at their homes sight unseen and kept the cameras rolling as a mom literally wrestled with her son to get him to brush his teeth, as a 9-year-old had a public meltdown, as a 5-year-old had his diaper changed. And, as moms revealed dark and uncomfortable truths about living with autism. The result is a window into an exhausting world of interminable work."
The film itself contained a segment where one of the mothers interviewed said that:
"I remember that was a scary moment for me when I realized I had sat in the car for about 15 minutes and actually contemplated putting Jody in the car and driving off the George Washington Bridge. That would be preferable to having to put her in one of these schools."
The mother in question made this statement whilst her autistic daughter was in the room with her. She further added that the only reason she didn't kill her autistic child and herself was the thought of her non-disabled daughter.
Producer Thierry called this section 'gutsy and courageous' and added that:
"If most mothers of autistic children…look hard enough within themselves they will find that they have played out a similar scenario in their minds. If this is not your reality, then God bless you."
http://www.autism-hub.co.uk/autism-spea ... /index.php
This is the kind of s**t which makes us all hate Autism Speaks.
Wow, I didn't know that until just now. Well if that's the case, then this video falls more under propaganda than documentary.
_________________
"Have a nice apocalypse" - Southland Tales
This film was alleged to depict the realities of autism, described by the film's Producer Lauren Thierry as:
"At this point we need to be showing the world what the vast reality truly is. [Lauren says]…that reality includes images of kids not sleeping through the night, banging their heads against the wall or running into traffic – not images of kids setting basketball records or passionately playing the violin."
It later transpired that the film had been 'set up' and that Thierry had purposefully attempted to display the worst possible view to the world:
"Thierry told her subjects not to do their hair, vacuum or bring in the therapists. She showed up with her crew at their homes sight unseen and kept the cameras rolling as a mom literally wrestled with her son to get him to brush his teeth, as a 9-year-old had a public meltdown, as a 5-year-old had his diaper changed. And, as moms revealed dark and uncomfortable truths about living with autism. The result is a window into an exhausting world of interminable work."
The film itself contained a segment where one of the mothers interviewed said that:
"I remember that was a scary moment for me when I realized I had sat in the car for about 15 minutes and actually contemplated putting Jody in the car and driving off the George Washington Bridge. That would be preferable to having to put her in one of these schools."
The mother in question made this statement whilst her autistic daughter was in the room with her. She further added that the only reason she didn't kill her autistic child and herself was the thought of her non-disabled daughter.
Producer Thierry called this section 'gutsy and courageous' and added that:
"If most mothers of autistic children…look hard enough within themselves they will find that they have played out a similar scenario in their minds. If this is not your reality, then God bless you."
http://www.autism-hub.co.uk/autism-spea ... /index.php
This is the kind of s**t which makes us all hate Autism Speaks.
It does not make me hate Autism Speaks.
TheSunAlsoRises
All the videos Autism Speaks have done are propaganda - their sole purpose is to make autism look as bad as possible so that they get as much money in as possible, that's the cold hard truth. To be fair, this is no different to any other charity, since they all exploit empathy, but they shouldn't be intentionally making things look worse than they actually are.
In fact, here's a secret internal Autism Speaks video which was leaked around the time Autism Every Day was made:
[youtube]http://www.youtube.com/watch?v=ON-7v4qnHP8[/youtube]
TheSunAlsoRises
You're in the minority there.
I have some thoughts about this video:
1)The thoughts these women have don't make them bad people, or even bad mothers. These thoughts come from emotional exhaustion and possibly depression, not from badness.
2)The appropriate place to express these thoughts is in a therapist's office. Therapists understand that venting these thoughts and working through them in an appropriate therapeutic venue can help restore the emotional strength of these mothers. They should not keep these thoughts bottled up inside, but they should also let them out just in the appropriate venue of the therapist's office and/or in private conversations with their husbands, mothers or other non-judgemntal confidants. For me, the social goal should be preventing these women from mentally and emotionally unraveling to the point that they actually commit violence or even murder. This requires both a private venue for venting and more community support with the caretaking duties.
3)These thoughts should not have been expressed in front of their children and certainly not on camera. Unfortunately we are living in a "tell-all" culture that puts a premium on people being candid and outspoken about their darkest feelings and experiences (there are countless memoirs that describe family members in a cruel light) and also a reality TV culture that does not see children as off-limits. Shows like "Supernanny" and "Eight Is Enough" paved the way for this. Those and other reality shows normalized putting children on TV in the throes of behavioral challenges while parents vented about it. Once that happened, it was a very short jump to this video. It is perpetuated on Youtube where parents of NT and AS kids alike post thousands and thousands of videos of their kids in the throes of behavioral challenges. They post videos of the good times too, but there are many Youtube videos I don't personally think should have been posted.
It is by design that I leave out identifying details about my own life and tell non-unique anecdotes about my daughter. It should be possible for anybody who knows her or eventually even her to read my posts without realizing they are about her. I am deliberately vague, and the few times I am specific it is to describe things that apply to many, many autistic children. This would be the same if she were NT.
4)Many posters feel that they would be better able to rise to the challenge of raising autistic children (or children with a related disability) than these mothers are. That's quite possibly so. Many autistic parents on WP use their own neurology and childhood experiences to get an accurate understanding of their childrens' behavior (which baffles NT parents) and know what to do (or not do). I am probably BAP and my daughter is medium functioning ( a non-identifying detail ) which means the neurology gap between us is nowhere near as large as it is between the mothers and children in the video. It's less emotionally difficult to raise somebody that you "get" (or at least "get" partly) than somebody who baffles you at every turn.
This is why APerfectStorm brought up ASPD (Anti-Social Personality Disorder). If indeed it is neurological, a parent, including an autistic parent, might find themselves with such a child. The gigantic neurology gap would make that a true challenge. What would you do if you found out your child with ASPD was the school bully? You can't give in to traumatic childhood memories of bullying (except in a therapist's office or in private conversations with adult confidants) and reject them as "evil kids". You have to figure out a way to turn that behaviour around. I have no idea how I would do it. But parents of ASPD kids have to figure out a way. It's one thing to envision rising to a challenge similar to your own. It's quite another to rise to a challenge you don't understand and even find disturbing.
And, you know? I may never live independently - every attempt I've made has failed badly. You don't have to be non-verbal to have serious difficulties. I'm not using this to justify speaking for anyone because I don't speak for anyone but myself.
Oh, please. Let's not be wishy-washy here; by "low functioning" I mean individuals who in a previous generation would have been termed "mentally redarded" and put in an institution. I'm talking about people who are too low functioning to use wrongplanet.net.
I, too, may never live independently - but I'm astute enough to know that there's a huge different between me not being able to live independently because I burn food sometimes and forget to wash, and a severely autistic individual not being able to live independently because they need 24/7 supervision and intensive care.
I actually found this more sad than offensive. It was made clear in the video, that the actual problem is that there's not enough support for children with autism/asperger's (and their families). The message the mothers seemed to send was that they were exhausted, not because their children had autism ,but because they didn't have enough support.
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