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nessa238
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13 May 2013, 5:05 pm

MjrMajorMajor wrote:
nessa238 wrote:
-

If a person is leading a functional life with a job and friends and partner though, to what extent are they actually disabled?

Also one person said they were a therapist, only one. Plus she said she didn't disclose her Aspergers.

I just feel the focus is often too much on the people with the family/partner/job/collection of friends/extensive community links, as if these people are the norm of Asperger's Syndrome when I don't think they are. They are extremely high functioning Aspergers shading into NT basically and when they talk of all their achievements it puts a lot of pressure on those who have no hope of emulating them as they do not have the same neurology. We aren't playing on an even playing field in other words.


I don't consider myself extremely high functioning at all, and yet I have a partner/family/job/acquaintances. I can live independently, but I kept everything to the bare boned basics when I did. I resent the implication there that to acquire any relationship whatsoever you must not be truely "disabled" as if the above solves all problems. Case dismissed.
I push myself, I play to my strengths, and I can be extremely dogged about reaching a goal. I've also seen people who have posted on WP who have significantly more difficulties than myself, and have achieved a great amount in some areas. Why not applaud them vs throwing our hands up because we haven't done the same?
And yes, I feel alone.


What are you then compared to people who have none of these things?

What exactly do you think 'high functioning' means?


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GregCav
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13 May 2013, 9:48 pm

Nessa238 is trolling.
He or she is misrepresenting what others has said, then blasting them for what he or she states they said. Many instances of it on this thread.

Did I hear you scream "evidence"?

MannyBoo wrote: Even if I am with a lot of friends in a noisy room, I am alone.
nessa238 wrote: So you spoke about something as if it was your current experience...

Nothing in MannyBoo's words is there any concept of current. She is stating that when she is in a full room, whenever that happened to have been. It happened, that is how she felt. You misconstrued her words.

nessa238 wrote: If a person is leading a functional life with a job and friends and partner though, to what extent are they actually disabled?

Disabled? seriously? You're using emotive language probably for the reaction. It's called Asperger's Syndrome, and many don't consider it a syndrome at all. Also, and this is more important for you to understand, it's a spectrum disorder. It goes from very severe to very mild. Some are functionally disabled, some are emotionally disabled, some simply struggle, and some enjoy every minute of it.

I'm going to accuse you of purposefully misconstruing what others have said on these forums.



MjrMajorMajor
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13 May 2013, 11:39 pm

nessa238 wrote:

What are you then compared to people who have none of these things?
?


I am a woman on the spectrum with perseverance, luck, and the internet.



sixteenornumber
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14 May 2013, 7:10 am

I face a similar problem myself. I'm 28 and I only two days ago realized I like being alone but also fear it. The best relationship I've ever had in my adult life was with a girl I knew was leaving in a month. Those relationships that have lasted for a good ammount of time longer were plagued with long distance. Reflecting on them now, I think I want to be alone but I don't feel like I am as long as i know there is someone out there. I saw an old man a couple months ago walking his dog. One of my greatest fears is that I'll be that man one day.



JacobV
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04 Jun 2013, 4:51 pm

You are extremely lucky if you have family or decent coworkers you can talk to. Many aspies have none of those things. their entire existance is lonely. They get their social contacts from the cashiers they talk to when buying necessary things and they cringe every morning at the thought of a new day ahead. If you have family embrace it. until the very last day.


briankelley wrote:
I think I'm asking this to confirm that I'm not alone in being all alone.

Even though I was diagnosed at a young age and put into special schools for kids like me, no one ever took me aside and told me pointblank in these exact words, "you are autistic" much less explain what that was and what it would mean to me during my lifetime. I just knew I had behavior problems, not otherwise specified. I think in general, no one wanted to use the "A" word in those days.

I don't remember thinking anything about being all alone until I was starting adolescence. I remember there was some kind of 30 second commercial, like one of those public service bits. I don't know what it was for, but it depicted a woman who was all alone. I remember it showed her getting a movie ticket and in a shy embarrassed way saying, "one please". Then it showed her in bed with one hand splayed out on the pillow next to her, while she traced the fingers with her other hand... I guess imagining/pretending it was her significant other.

I got two distinct messages from that thing.
1: I was going to be all alone just like her my entire adult life.
2: That was not supposed to be a good thing whatsoever.

It wasn't until I was in my late 30's that I really started to be really bothered by and question my being totally alone.
And by that time I wasn't taking my childhood experiences with clinics and special schools into consideration. Everyone else has someone, why don't I? I don't think I was really longing for a companion, I just was bothered by the fact that "everyone" had someone except for me.

Finally autism was brought to my attention in a way that I could relate to, I got my pediatric and school records from my mom the aspie packrat, and did one of those head slap things. Duh. I guess that's what happens when you put your past too far behind you.

But I digress. Have you to experienced being completely totally alone, your entire life, outside of family, co-workers and acquaintances (if any)?



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04 Jun 2013, 10:01 pm

Except for a couple of friends in my childhood, and my family, I have always been alone. I was never married either, I had a few boyfriends but was never able to form a long term relationship. I was a single mom. It was a struggle. I don't know how not to be alone, it is a natural way of being for me. Social networking is something I would never be able to do. I have lived my life in my own world.
And yes, I am extremely lucky to have my family.



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05 Jun 2013, 3:13 am

Alone is home.


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Skilpadde
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05 Jun 2013, 8:48 am

briankelley wrote:
Have you to experienced being completely totally alone, your entire life, outside of family, co-workers and acquaintances (if any)?


Outside of family and schoolmates (never had a job), I've always been alone, except for a few months spent in a bad relationship.
It has never bothered me though, because I have my family, and I've never cared about people. As long as I can reach my family, there is no such thing as too much me time (for me).


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Adamantium
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05 Jun 2013, 9:16 am

briankelley wrote:
Have you to experienced being completely totally alone, your entire life, outside of family, co-workers and acquaintances (if any)?


Yes and I actually can't stand being completely alone. I lived alone for a while in New York when I was a college student, and my anxiety went off the charts. I used to go to movies or diners just to be with people, but this often made me more lonely and very self-conscious.

It was not a good way for me to be and I have done everything in my power to avoid it since. I like to be alone in nature, as long as I go home to family. I like the degree of social exchange at work, except for lunches, diners and parties, which get to be a bit intense--but I feel that I need some kind of grounding from other people--some sort of check on my own thoughts.

I am very impressed by the inner resources of people who can live completely on their own. They seem immensely strong to me.



zer0netgain
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05 Jun 2013, 11:06 am

briankelley wrote:
I remember someone once wrote something like, "I never feel more alone than when I'm in a room full of people".


That might have been me. :cry:

Truthfully, "alone" is the status quo I've learned to accept. Sometimes I meet someone I become friends with, and we do a lot together, but those come and go. My best "friend" right now, we're lucky if we get together for a weekend once a year.

I made my peace with this reality long ago.



BigD84
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05 Jun 2013, 2:30 pm

I HAVE always been alone, I feel, and it's been a long time coming but now that I'm talking with autisties, I feel a peace within myself. :)



Apple_in_my_Eye
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05 Jun 2013, 3:59 pm

briankelley wrote:
Have you to experienced being completely totally alone, your entire life, outside of family, co-workers and acquaintances (if any)?

Yeah, never made any friends at school, work, or college. The neighbors know who I am because I grew up here, but I haven't done more than wave to them in... well, ever, come to think of it. Tried during college, to the kindergarten-like level I knew how to, but that and too much schoolwork led to a null result. In grade school I some aquaintences, but was never invited to anyone's house or to hang out after school.

I had a friend of sorts once for 6 or so years (just online, only met once IRL), first friend ever, but due to various things that disintegrated. Not sure if having-had-and-lost is better than never-having-had-at-all. I've slowly realized, though, that I am bad at friendship and my life/existence/mind/psychology isn't well suited to it (boring, as everything I do is solitary, and I find it hard to trust).

I live with my parents nowadays, and talk to them a little every every day or two, but that's it as far as verbal communication with life forms that aren't cats. Sometimes I wonder if my vocal cords are going to atrophy.

Oh, and not officially dx'ed if that matters to you.



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05 Jun 2013, 10:56 pm

Haha yes, i remember once i threw a birthday party and after i got my presents i just went upstairs alone and left my guests to entertain themselfs. At the time i didnt know i wasnt suppose to do that, my father and sister had to explain it to me. I was ten.


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06 Jun 2013, 4:38 am

As already mentioned on the previous page, affirmative.

I have a real hard time calling it being all alone though, when I have a loving family who I in return love very much. :?


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redrobin62
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06 Jun 2013, 1:04 pm

Being alone is no fun.

When you get sick you have to drive yourself to the hospital.

When the cupboard runs dry you have to head out to the supermarket or food pantry.

When you see a scary movie, there's no one around to comfort you.

When you see a sad movie, there's no one around to console you.

When the bill collector comes a-knockin', it's just you writing the check.

When a movie you want to see is in the theatres, you just wait until it comes out on DVD or Blu-Ray.

When you want to eat at a nice restaurant, you pass on it in favor of a McDonald's, Wendy's or Subway.



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06 Jun 2013, 1:21 pm

Kinda, though it's become more so in the past few years. It's just a combination of anxiety, lack of motivation, etc.