Why does everyone hate Autism Speaks?
goldfish21 wrote:
Misery wrote:
goldfish21 wrote:
I've already stated dozens of times over that I never sought a professional diagnosis because I didn't want the stigma of it. Regardless, just like any of the self diagnosis discussion threads, I know what I know and don't need a third party to tell me it. I know what my entire life's experiences add up to. Period.
Further, while I am the only person on the planet who has done exactly what I have to treat my ASD symptoms, I am far from the only person to alleviate symptoms via diet/probiotics. I've read about many. Also, there's an episode of "The Nature of Things" with David Suzuki (host) called "The Autism Enigma" that's about a couple of families with autistic kids who improve symptoms via diet & in one's case, mass amounts of probiotics. That kid's mother goes on to talk about some specific gut bacteria they believe may create a neurotoxin that exacerbates symptoms. Go find & watch the episode - everything presented there jives 100% with what I've been sharing here about myself for the last couple of years.
Further, while I am the only person on the planet who has done exactly what I have to treat my ASD symptoms, I am far from the only person to alleviate symptoms via diet/probiotics. I've read about many. Also, there's an episode of "The Nature of Things" with David Suzuki (host) called "The Autism Enigma" that's about a couple of families with autistic kids who improve symptoms via diet & in one's case, mass amounts of probiotics. That kid's mother goes on to talk about some specific gut bacteria they believe may create a neurotoxin that exacerbates symptoms. Go find & watch the episode - everything presented there jives 100% with what I've been sharing here about myself for the last couple of years.
And I've explained why people keep not believing what you say. Regardless of "evidence".
One way or another, YOU may not care about getting a diagnosis for whatever damn reason (no, I dont care why...), but REGARDLESS of that, it makes it MUCH harder to believe you. And like I (and others) have said: One way or another, it's just not that easy. Do all the damn research you want: one person alone (or even a small group), VS about a billion researchers that, themselves, have no answers (and cant even agree on the concepts behind the whole thing!), yeah... that dont add up. What works for you, likely will work for certain others... and fail entirely on others beyond that. Which means it doesnt even qualify as a "general" treatment. I dont believe for the tiniest, most miniscule fraction of a millisecond that it'd come close to working on everybody, or even most people. Not. For. A. Second. Like I said also.... there's no way in hell you're the only one that's tried this "brilliant" idea. No, I dont care how much you think you're the "only one on the planet" (....seriously? I mean.... seriously? NOW you're getting a bit into "totally absurd" territory. That kind of arrogance, to even say such a thing in any context, makes it even harder to take your arguement seriously) that has done... anything at all. Lots of people like the idea of getting a hyper healthy diet, and lots more will have researched this in the same way that you did, and the ideas behind the diet itself (and similar, related things) arent exactly unique to you. You even mention this yourself. Yet you might notice: nobody has come forward and cured it yet. Or come anywhere near it. Theories still vary extremely wildly. Those things, they should say something.
Regardless of any of that though... this conversation ends here. My points have been stated in extreme detail, others have also chimed in a whole bunch, and really, this topic has been derailed enough. And I prefer to stop before I get... incensed, which happens to me easily if a debate of any sort goes on too long; this is why I made the short post just previous to this one. I can be negative and abrasive enough without entering that particular state; I'm *really* nasty if I do start to reach that point; not to mention I start to get more absentminded and rambly as I get closer to that, which may be apparent in this post. I'm reaching the point where I stop being entirely sure that I'm making much sense.
You can think what you want of my opinion on the matter; as usual, I really dont care all that much, irritable though I may be. You can also repeat that tired rhetoric as much as you want on the forum here... it's not like it breaks any rules or anything, though it does seem to annoy some people, but that's nothing special in and of itself, as LOTS of things annoy people in this place. Which is fine.
Either way, my part in this ends. Others of course may feel free, I suppose, to jump in and comment on it again if they like, though I rather suggest that they dont (again, derailment, among other things), but it's not actually my problem in any case. And one way or another, this is likely to repeat.... again.... later on, though not likely with my presence; it'll be someone else, next time.
Again, told ya - stigma. Further, I'm not willing to take antibiotics and send myself back to autistic hell by reamplifying my symptoms like last October just to please some random person on the internet with an official diagnosis. No chance. The ONLY way I'd do it is if I were being paid to do it as a medical study, because it would literally cost my ability to function & work and earn a living if I did it to myself. If the bills were paid, I'd give up my time for the purpose of advancing medical knowledge. Otherwise, get bent lol. Not you, just anyone in general who thinks I should do that to myself vs. function as optimally as possible.
I don't care what you don't believe. I know my diagnoses, as well as the effectiveness of the treatment protocol I've developed for myself, and that my prognosis = healthier, happier, wealthier, second life.
Find me ONE other person on the PLANET who has followed the exact same diet, intestinal cleanse, herb/supplement & probiotic treatment protocol and I'll give you every penny I have to my name. Exactly. You can't, because I am the only person on the planet who has done exactly what I have done to treat my symptoms.
Further, I couldn't care less what teams of researchers are busy not figuring out. I know what I've learned and done and how it's changed my life. I also know that the vast majority of Autistics have GI issues - and I know why; and that the GI issues directly cause or exacerbate ASD symptoms. Period. There have been many articles published about this over the past couple of years - some of them by Autism Speaks. I don't know why you think I'm the ONLY person stating these facts. Chances are pretty damned good that this is the cause of MANY other peoples' symptoms, too. I am not a unique snowflake one-off case of autism that's caused/exacerbated by antibiotic induced intestinal dysbiosis. I'd bet money I don't have that it's the most common cause of autism & in time your holier-than-thou researchers will be able to tell you that and maybe then you'll believe it.
I'd just like to point out one more time that there is NOTHING in it for me to make any of this up. I'm not, and never have been, selling anything. Feel free to look up my posting history here as others have done. I've been around a few years and posted about all the same issues the rest of you have.. except for the last couple years-ish as I've been infinitely healthier & happier now that I've figured out how to turn my brain on and have it work for me vs. against me. You're welcome to stay in your own state, (of?), Misery.
*sigh*
What part of "not going to continue this debate" isnt making sense here? Though honestly, I think I can grasp why you try to continue it nonetheless. Mostly because I frequently (too frequently) have the constant, constant urge to keep debating things till the cows come home, on most subjects. It occurs to me that I have no idea what that phrase actually means.
This being said, I only skimmed over all of that; one way or another, I've lost interest, which I suppose you could say I forced myself to do. My anger, fortunately for everyone's peace of mind, is gone at this point. I must apologize for the flare-up, though my points remain, distorted though they may have been. Though, as always, I never claimed to be a positive individual... quite the opposite. Which is fine by me.
Now that being said, it's damn near impossible for me to NOT notice that final bit at the end, since I'm kinda typing directly under it. No, I'm not in a state of "misery". And frankly, anyone who perceives that of me A: doesnt know me very well, but moreso, B: hasnt heard me talk much on here, particularly of my living situation. I'll not repeat it here (unless someone asks me directly, and that's fine if anyone wants to), as I think you've already heard it from me before. With the situation I'm in, well... nobody in their right mind (unless depression was, regardless of it, quite extreme, or something like that that exists completely seperately) would say they're miserable. It'd almost be like an insult to those that really do have difficult situations. I call myself Misery for alot of reasons.... but that's not one of them. I'm not sure WHAT I'd call myself if I did base the name on my living situation or continuous mental state, but it'd probably sound corny and/or bloody stupid.
For what it's worth though, regarding my current shorter-fuse-than-usual, I've been in a bad mood lately, so I'm easily triggered right now. This being because of the #)%R&-ing weather, which tends to be what controls my mood the easiest. I'll not go into that though, it's like 5 pages of rambly complaints. Granted, I could probably travel somewhere else if I really wanted to, there's nothing stopping me, but it's still summer (er.... I think) so it's likely to stablilize soonish anyway.
I've forgotten whatever other damn thing I was going to say. This animation with the guy eating the popcorn is just a BIT distracting here at the bottom of the screen. I'll save it to disk, I will. Or, well, "HDD" I think they call it these days.
This thread has gone off-topic. Thread locked.
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