How come there are so many books about Asperger's and Girls?
The_Walrus wrote:
Tawaki wrote:
A question for people in the UK, would the school be private pay or funding by the government? In the states, that place would most likely be private pay and only the six figure income plus types could afford it.
The documentary answers that. It is the only state-funded boarding school for girls with autism in the country.
The reason I asked is because state funded does not mean free in the US. Here there can be a sliding scale for people. Meaning you pay a percentage of your income.
If that school was here in my state and state funded it, would not be free unless your parents are almost homeless with no job.
Is how free is free when funded by the UK government?
Example:
My cousin was in a state funded residential treatment facility for mental illness issues. My aunt was responsible for what her insurance did not cover, which was $20K after all was said and done. The only truly "free" kids were those in the foster care system.
Continuing a tangent:
Tawaki wrote:
The_Walrus wrote:
Tawaki wrote:
A question for people in the UK, would the school be private pay or funding by the government? In the states, that place would most likely be private pay and only the six figure income plus types could afford it.
The documentary answers that. It is the only state-funded boarding school for girls with autism in the country.
The reason I asked is because state funded does not mean free in the US. Here there can be a sliding scale for people. Meaning you pay a percentage of your income.
If that school was here in my state and state funded it, would not be free unless your parents are almost homeless with no job.
Is how free is free when funded by the UK government?
Example:
My cousin was in a state funded residential treatment facility for mental illness issues. My aunt was responsible for what her insurance did not cover, which was $20K after all was said and done. The only truly "free" kids were those in the foster care system.
I think it's a bit more complicated than that, in a way that makes the system hard to navigate for those who find bureaucratic complexity inherently challenging.
For autistic people under 18, the key terms are FAPE and IDEA. FAPE is a "Free and Appropriate Public Education," a concept around which a confusing tangle of law and precedent has emerged, but that means, in principal, that the states are obliged to provide all students with a free and appropriate public education. IDEA is "The Individuals with Disabilities Education Act" which compels school districts to comply with FAPE standards.
For autistic kids whose educational needs cannot be met by their local school district, the law means that their school district must pay for their education in an alternative setting, but it's up to the parents to force the school board to do that.
You can find good information on how that works at wrightslaw
Where we live, it seems that some parents are lawyered up and have the time, finances and neurology to easily negotiate this very complex system and force it to pay for private education for their SPED kids. Families less able to work the system are left to fight with child study teams about how to write and use the IEP to make the school deal appropriately with their child's needs.
My understanding is that how this works in practice varies greatly from state to state and district to district.
We found it that just having a professional advocate attend the IEP meeting changes the whole interaction. It cost us $600 that wasn't in the budget, but it helped get proper IEPs. When we naively went along with whatever the CST recommended, the results were not adequate.
It's sad that the system compels the parents and those charged with providing individualized care for their children in an adversarial situation, but that's the way it is.
I agree with the comments that have already been made: the books about autism in females are being published now because all the other books are focused on autism in males.
RetroGamer87 wrote:
I'd like to know how come there are so many books about kids with aspergers. The majority of them are about kids and parenting and are of no help to adult aspies.
Aside from being written in third person they are likely to omit a lot of things relevant to adults.
Quote:
Remember we spend about three quarters of our lives as adults. About three quarters of the population is adult.
This is a rather more important question, IMHO
League_Girl wrote:
Because autism is different in females than in males. Most stuff you read about autism is mostly about males and so many females would fly under the radar and be diagnosed with other conditions instead like BPD, anxiety, depression, Bipolar.
The same is likely to be the case with people who are either trans or non-binary gendered.
Both of these being far more common amongst ND than NT people.
mpe wrote:
RetroGamer87 wrote:
I'd like to know how come there are so many books about kids with aspergers. The majority of them are about kids and parenting and are of no help to adult aspies.
Aside from being written in third person they are likely to omit a lot of things relevant to adults.
Quote:
Remember we spend about three quarters of our lives as adults. About three quarters of the population is adult.
This is a rather more important question, IMHO
There are basic economic forces and a biological imperative behind this, I think.
The biological imperative is the reproductive one: parents want to try to ensure that their children will have the best possible lives.
The economic forces stem from that biological imperative and the social consensus that society should play a role in childcare and education. This means that there is money available directly from parents, through schools or through parent or school funded therapeutic professions, to care for ASD children. This money for pediatric ASD care and intervention also means that there is money for pediatric ASD research.
Adults with ASD are not covered by the social consensus that provides for school age children, and so they or their aging parents are on their own. This means the pool of money directed toward adults with ASD and related research is smaller.
Only the intervention of wealthy parents of adult children or ASD people with independent income will change that situation.
naturalplastic wrote:
More girl aspies are being discovered now because the condition presents differently in girls. So there is a big need both to reddress the imbalance in the number of books, and too address the difference in the same condition in the two genders.
Gender is a spectrum rather than a binary to start with.
Thinking of it as a binary is especially unhelpful with children since they are less likely than adults to be able to indicate if they are not cis-gendered.
wilburforce wrote:
ETA: I personally was given diagnoses of bipolar disorder, avoidant personality disorder, PTSD, GAD and social anxiety disorder before autism was considered (I had to be referred to a specialist to eventually get my diagnosis of Asperger`s.) It`s no joke either because the medications for many of these inaccurate diagnoses can do a lot of damage.
I suspect that psychotherapy can also be harmful in such a situation.
mpe wrote:
wilburforce wrote:
ETA: I personally was given diagnoses of bipolar disorder, avoidant personality disorder, PTSD, GAD and social anxiety disorder before autism was considered (I had to be referred to a specialist to eventually get my diagnosis of Asperger`s.) It`s no joke either because the medications for many of these inaccurate diagnoses can do a lot of damage.
I suspect that psychotherapy can also be harmful in such a situation.
Actually I've received different types of talk therapy throughout the years from different therapists and I found pretty much all of it to be beneficial (I think I was lucky in that I always ended up with quality therapists)--but then again I did have issues other than autism, like an unhappy home life growing up with an emotionally abusive parent, bullying siblings, and some alcoholism in my family. I think the anxiety and PTSD diagnoses did end up being accurate, but those issues either developed from or were contributed to by my unrecognised autism.
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ImAnAspie
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PatrickJane wrote:
AdamLain wrote:
PatrickJane wrote:
AdamLain wrote:
Because nobody cares about men and their feelings, as a matter of fact no one thinks men have feelings. 75% of the people with Autism are male and that is why there is hardly no research done concerning the disorder, it doesn't effect anybody's mother, sister, wife, or girlfriend. Right now breast cancer, domestic violence against women (apparently that doesn't happen to men at all), and HPV are more important because they effect females.
Where did you get that information from? I honestly believe that i have never heard anyone claim that in my life.
They don't have to overtly say it, all they have to do is objectify men in every sitcom during dialogue featuring female friends saying things like "he's not a great choice, he doesn't have a very good job" or "he still lives at home with his parents", or when they show pictures of Charlie Hunman in his underwear and say things like "the perfect man" as if you said things like that about Kate Upton it wouldn't be sexist.
I don't quite see why it would be sexist to say such a thing about Kate Upton. But then again, i'm certainly not too knowledgable in those types of topics as you can probably see.
Who's Kate Upton?
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Wolfprince wrote:
Many other users here have already hit the nail on the head. Autism is very overlooked amongst minorities, including women.
For the longest time, doctors thought that only boys could have Aspergers...
For the longest time, doctors thought that only boys could have Aspergers...
I found the book "Neurotribes" educational in that respect. Leo Kannner's original cases were effectively pre-screened, so that he was only seeing autism in the upper-middle-class white boys his friends and associates referred to him. So for decades afterwards, this has been the group most likely to get the diagnosis. Non-white, female or working class: in the mid-20th century if they got a diagnosis at all it was "eh, some kind of incurable imbecile. Strap 'em to a bed and wait for 'em to die." I'm not exaggerating. I wish I was.
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ASPartOfMe
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Leo Kanner saw for his orignal paper 8 boys and 3 girls. Only the upper classes could afford to go to his Baltimore clinic during the great depression and WWII.
It was Hans Asperger who saw only boys. From Neurotribes
Quote:
“He apologized for not including a young woman in his quartet of prototypes, explaining that he had never seen a full-blown female case in his practice:
While we have never met a girl with the fully fledged picture of autism, we have, however, seen several mothers of autistic children whose behavior had decidedly autistic features. It is difficult to explain this observation. It may be only chance that there are no autistic girls among our cases, or it could be that autistic traits in the female become evident only after puberty. We just do not know.
He went so far as to characterize Autismus as “an extreme variant of male intelligence,” a view echoed forty years later by British psychologist Simon Baron-Cohen, who linked the development of autism to exposure to high levels of testosterone in the womb. It’s more likely, though, that one of the primary factors contributing to the absence of girls in Asperger’s practice was the fact that teachers and judges of the juvenile court were a major source of referrals for his clinic”
While we have never met a girl with the fully fledged picture of autism, we have, however, seen several mothers of autistic children whose behavior had decidedly autistic features. It is difficult to explain this observation. It may be only chance that there are no autistic girls among our cases, or it could be that autistic traits in the female become evident only after puberty. We just do not know.
He went so far as to characterize Autismus as “an extreme variant of male intelligence,” a view echoed forty years later by British psychologist Simon Baron-Cohen, who linked the development of autism to exposure to high levels of testosterone in the womb. It’s more likely, though, that one of the primary factors contributing to the absence of girls in Asperger’s practice was the fact that teachers and judges of the juvenile court were a major source of referrals for his clinic”
bolding mine
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ASPartOfMe wrote:
Leo Kanner saw for his orignal paper 8 boys and 3 girls. Only the upper classes could afford to go to his Baltimore clinic during the great depression and WWII.
It was Hans Asperger who saw only boys.
It was Hans Asperger who saw only boys.
Huh. Right you are! So my neat little narrative about why things were so awful doesn't quite hold water....
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