Informally assessed for AS at 5.
Statement of special education supposedly removed and "undxed" at 11.
I'm afraid that the label will follow me around forever.
They won't remove it from my medical records.
Whenever anyone has mentioned AS to me it's never been on equal terms.
People (even professionals) used to talk down to me and say that I couldn't do things.
It's frightening: I sincerely hope that other people aren't treated this way.
When I was formally identified, some children wouldn't play with me because I was receiving help. Nobody ever explained to me what I was doing "wrong" or what I was receiving the help for. I was often confused and school was very noisy and opened planned. I had no private space at all.
All of the harassment and nonsense stopped when my statement was removed.
People didn't look at me in a negative way any more and weren't so afraid: they actually started to like and appreciate me as a capable human being
, not a set of negative criteria.
Even though I still have social/adaption difficulties now that are holding me back, I don't seek formal help because I'm afraid of the way I'll be treated. People have already told me that I shouldn't stigmatise or limit my chances by labeling myself. From what I hear, there isn't much productive or positive help available for someone like me who can function at a fairly high level. I've tried most other avenues already and so far, nothing apart from denial and keeping quiet, has helped.
There's nothing wrong with me: I'm not ill, syndrome isn't the right word to describe me.
I'm me.